Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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We were so close to smoking not being cool anymore. We were so close. Then they flavored it mango and now it's taboo to criticize it anymore. People don't ask if they're allowed to vape indoors, they aren't considerate of people who may have health problems that are triggered by the chemicals or if it just bothers them, people don't care that they're supporting an industry built on corruption and greed, they can't see it draining their pockets and much less their health. We were so close to smoking not being cool anymore.
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something the women in my family are absolutely flabbergasted by every time it comes up is the fact that i don’t own a scale.
“how do you know how much you weigh??” they cry.
“i don’t.” i simply respond.
“you look thinner, have you lost weight?” they ask at christmas.
“i dunno.” i say as i check on the turkey.
“you look bigger, have you gained weight?” they probe, as if my weight rests on their shoulders.
“i’m not sure, but it’s fine if i have.” i respond with a casualness they cannot comprehend.
“don’t you want to know if you’ve lost or gained?” they inquire over cups of coffee and a plate of untouched cookies.
“i do.” i take a sip. “which is why i don’t need to know.”
“we don’t understand.” they say.
“i’ll drive myself mad if i know. it’s been a question i’ve been looking for the answer to since i was in the seventh grade and my weight was the topic of conversation for the first time; the stretch marks on my calves puberty brought being questioned and condemned. and so i started weighing myself once a day. then twice a day. i gained weight as i grew and was told to stop. i got depressed when i was 16 and the weight i gained was more concerning than the scars on my thighs. the critiques turned to compliments during my first year of college when i’d started skipping meals and my body had to feed itself because i wouldn’t. everyday i stepped on the scale and smiled as i watched that number get smaller and smaller. hunger felt like victory. i started doing drugs that took away my appetite and then my strength. and started feeling guilt when my stomach felt full. and suddenly every time i looked in the mirror i hated what i saw. the more weight i lost, the better i was supposed to feel. each remark on another part of my body lost felt like a slap to the face. i was told i looked good but i knew i wasn’t good enough. and so i tried harder. and then i started to get dizzy when i stood. and i ignored it like i’d learned to ignore my hunger. and then one day at work i dropped like the weight that was never enough after i bending at the waist to grab a milk cap from the floor. and when the darkness faded, i was surrounded by panic as an ambulance was called. and then i was tested and prodded and poked because they thought something was wrong with my heart. and the problem persisted but they never found out why. but i’d known all along. and then i left home and its scale behind. and moved into a new home that was mine. so i bought plates and sheets and art for the walls. but i didn’t buy a scale. then every time i walked down an aisle i’d see the them and pause. and i’d think about the hunger i now kept at bay. and even though i didn’t know how much i weighed, i didn’t notice my body had changed. and i’d think about how i hadn’t been dizzy for months. and how i hadn’t fainted for longer. and then i’d keep on walking. and now most days i like how i look.”
“but don’t you want to be skinny?” comes their quiet response.
“i want to be myself in whatever body i have.”
they stare in disbelief. so i shrug my shoulders, and grab a cookie. and i smile at them as i swallow the first bite.
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Nico and Percy's dynamic through the series is eternally funny to me, because it's just. like.
Percy's having a constant mental struggle between his fatal flaw of loyalty with a promise he made to Bianca to protect Nico, versus his Big 3 kid desire to maim other Big 3 kids / Poseidon descendant urge to totally maim Nico specifically. He hates Nico so so much. He thinks Nico's annoying and weird at best, and creepy/sketchy when he's older. The only positive thoughts Percy has towards Nico are "He's Bianca's brother and Bianca was my friend and I owe her/He's Hazel's brother and Hazel is my friend and would kill me if I was mean to him," "He's a powerful asset and useful ally (if questionable)," and "He's kinda pathetic and I feel maybe a little bad about it." Percy has multiple occasions throughout the series where he strongly considers - and on one occasionally actually goes through with - throttling Nico.
Meanwhile, Nico is following around Percy like a lost puppy. He explicitly can never bring himself to even dislike anything about Percy no matter how hard he tries. He has a whole bit in BoO where he's mentally going "UGH he's so stupid BUT IT'S ENDEARING HOW DARE HE." He's totally smitten. He's making deals with his dad for Percy. He's making convoluted plans to help Percy stand a chance against Kronos. During the entirety of BoTL it's like he's playing tsundere - "I'm helping NOT PERCY SPECIFICALLY with this quest! Me helping Percy would be SILLY because I DEFINITELY HATE HIM." Then he proceeds to show up to Percy's birthday party to basically ask him on a weird date and spend the entire next book scrambling around trying to help him or protect him or impress him. And Percy could not give less of a shit.
Just. That dynamic is so funny to me. Percy is the founder of the Nico Protection Club in that he's the one they're all protecting Nico from and meanwhile Nico is throwing himself at Percy to the point where the literal god of gay love calls him out on it.
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one of the true and most devastating signs that you are now a comic fan is that suddenly you have powerscaling opinions. once upon a time someone on twitter said kon was the weakest kryptonian and i took it personally. ruined my day even
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the reason misogynistic men are so hostile towards women who say they're lonely is they genuinely believe women don't need support because everyone cares about them by default and that unwanted sexualization makes you "lucky". someone said this way better than me surprisingly on reddit but I can't find the post so this is my attempted explanation of "why did this guy call me an ungrateful slut in my DMs for saying i'm lonely". he thinks you have it all in life and are unfairly demanding more.
gif to lift your mood ⬇️
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several hundred pages into nabokov’s letters to véra I start to think I’m becoming immune to gasping and giggling every time he writes her something affectionate and then he ends a letter with “I kiss you on the clavicle, my bird” and its back to square one all over again
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