#young and chronic | Explore Tumblr Posts and Blogs

sundry-whovengerslocked · 4 months

Text

shoutout to the confused chronics

shoutout to the people with chronic fatigue who have no apparent reason for being so tired

shoutout to the chronically ill people who feel like they can't use that term because they don't know what's wrong with them

shoutout to the people with chronic pain who only have diagnoses of the mental kind

shoutout to everyone afraid to use the word chronic even though they suffer every day

-

I'm mentally ill, neurodivergent, and have ibs.

my mother has fibromyalgia, arthritis, carpal tunnel, bursitis, insomnia, and probably more.

I find myself comparing myself to her all the time, thinking things like "my pain isn't that bad," or "at least I don't have fibro," or "I'm just being lazy." I hesitate to take pain meds because I feel like I don't "deserve" it.

comparing pain in this way is an awful practice. it prevents people from getting the treatment and validity they need.

no, I don't suffer the way she does. but I still suffer.

I have back pain daily. I regularly have to do physical activity which makes it significantly worse. I have a shitty mattress that gives me no relief.

when I have to lift heavy things or sleep wrong I sometimes get pain all the way from my neck to my knuckles.

I get joint pain especially in my knees and ankles when I walk too much or when the weather is bad.

I get unpredictable nausea and have to be constantly vigilant about hydration, staying cool, and trash bags even when I am out in public.

I have chronic fatigue that I can't explain other than the ibs and mental health, so I hesitate to use it. but that's what I have. no matter how much I sleep, I am exhausted. it's hard to get out of bed and when I walk it feels like my limbs are filled with lead. in school I struggled to stay awake in class sometimes.

sometimes I have trouble talking. it can be because I'm feeling nonverbal, because my anxiety overwhelms me, or because my nausea or fatigue get so bad it's literally difficult to use my voice. it takes too much energy.

my ibs is a nightmare. stress makes it worse, and then I stress over the ibs, which turns into a vicious cycle. I missed a job interview because of this. I will probably never have a 9 to 5 job because of this.

I am 24. I should not be feeling like this. but I do. I am.

so yeah. shoutout to the chronic people who feel like they don't deserve to use that word. whatever your problems are, even if - especially if - you aren't diagnosed with anything: I promise you, you do.

you deserve validation. you deserve an explanation. you deserve relief.

#shoutout #chronic illness #chronic pain #chronically ill #chronic fatigue #important #disability #disabled #mental illness #mentally ill #neurodivergent #ibs #irritable bowel syndrome #nonverbal #young and chronic #undiagnosed #undiagnosed chronic pain #undiagnosed chronic illness #original post

45 notes · View notes

love-me-love-my-weirdness · 4 months

Text

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

#disability #actually disabled #young disabled #wheelchair user #cane user #chronically ill #chronic illness #chronic pain #chronic fatigue #functional neurological disorder #cripplepunk

41K notes · View notes

justabunny · 24 days

Text

disabled people don't owe you their medical history :)

#disability rights #disabled #chronic pain #forearm crutches #joint pain #mobility aid #young and disabled #mobility aid user #chronically ill #disability #disability advocacy #chronic fatigue syndrome

1K notes · View notes

jaxyscreams · 11 months

Text

#add that im fairly young to it as well and oh boy #chronically ill #chronic illness #disabled #actually disabled #adhd #autistic #jaxy babbles #ableism

5K notes · View notes

biggest-gaudiest-patronuses · 8 months

Text

*tries to organize my thoughts*

*remembers i'm not in school and therefore beholden to neither heaven nor hell nor any man's grading system*

*joyously shredding & tossing all my carefully arranged 3x5 mental notecards into the air like so much beige confetti. raising my arms in victory, cheering raucously until i accidentally inhale bits of homemade confetti*

(*coughing up itty bits of paper like a cat evicting a hairball with a firm understanding of tenants' rights*) wait wat happens next

#i marie kondoed my thoughts and *i* feel great. but now my stream-of-consciousness has escaped containment #so many innocent bystanders at stake #every time i try to organize my thoughts i run out of plastic bins and have to make a trip to the container store where i get even more dis #racted so. you can't just hand me THIS brain and NO catalogue OR library classification system #and expect me to single-handedly sort through all this nonsense? bad form but fucking form not in my job description #aNYways. formal education sure did a FUCKING NUMBER on us huh #(a number i measure not in gpa or dollars of student debt.#but in the number of therapy sessions & medical debt it will take to recover.)#seriously folks. our education systems are...innately traumatizing for a huge number of students. and we NEED to address this.#the fact that it is culturally common for adults to have anxiety nightmares about school/exams...even decades later?#that is not cute. it is Alarming.#no one--much less entire generations--should be spending their developmental years in an environment of chronic stress & pressure & strain #and yet that is the reality for millions and millions of pre-teen and teenage and young adult students #this isn't healthy and it serves and empowers NO ONE #...except of course the many exploitative educational & financial & debt-collecting institutions thriving from the current balance of power #and of course it's a nefarious and powerful way to sabotage/erase the middle class #which billionaires and the wealth-inequality creators they finance couldn't possibly have any noteworthy interest in whatsoever #it's not like there's an elite group of people with huge financial incentives to drain/steal resources from the masses...#anyways sorry for going all Conspiracy Theory on you.#obviously the billionaires who control the vast majority of our resources and news and political campaign funding #are not tied to every single itty bitty social issue and i'm a silly billy to imply it #please tell elon musk to ignore this tweet i am so subservient and acquiescent #mr musky u r so good at inheriting slavery-built mining fortunes & buying other people's companies #& building rocket ships & fancy cars that do NOT explode/catch fire & also NOT running billion dollar companies into the ground #mr musky u r so talented genius billionaire playboy with 10 kids and ex-wives who find you creepy af babe u r basically iron man

2K notes · View notes

thedisablednaturalist · 9 months

Text

Do people not remember that period on Tumblr where neurodivergent people completely threw physically disabled people under the bus to further their movement? And then they wonder why we want our own space.

Things used in arguments I heard about 10 yrs ago:

- "you wouldn't say/do that to someone in a wheelchair"

- "we are literally physically disabled too bc our brain is an organ!!!"

- "physically disabled people get everything look they have special parking spaces and ramps!"

- "when you go to the doctor for physical illness they immediately give you all the medicine and work hard to find a cure like Dr. House, but when I go to the doctor they throw me out the window" (stuff along those lines at least)

Y'all kicked us out, ignored us, made your own lil club with its own terms, turned us into jokes and strawmen, and abandoned people who are both physically and mentally disabled.

We wanted solidarity and you all didn't.

But how dare we make our own community so our voices can be heard, god forbid we discuss issues important to physically disabled people in this community without mentioning neurodivergents. And when we get even a little pissed off? How dare we.

And it's happening again. I've seen the same rhetoric repeated. No one is saying that mentally disabled people have no issues or don't face ableism at all. Stop bringing up your issues on our posts, it derails it and clogs up the notes.

We had to separate ourselves because you all kicked us out first so that neurotypical people would accept you. You didn't want to be associated with the gross ugly cripples.

Cripplepunk community is not the same as disabled community. It's under the same umbrella, not a replacement. Stop taking over our spaces and stop posting shit in our tags.

#cripplepunk #cripple #cripple punk #chronic disability #chronic pain #physical disability #spoonie #disability #ive seen a ton of young people posting that stuff and then everyone else rbs it without a second thought #and young people in my notes who dont know the history #pd people feel free to add your own examples

1K notes · View notes

devilboydogman · 27 days

Text

Alternative responses to the question ‘How’s it going?’ For physically disabled people:

- ‘The going is heavily assisted.’

-‘On without me.’

-‘It uses wheels’

-‘It’s not.’

-‘Against my will.’

-‘With frequent breaks’

-‘On pure spite’

-*That was a verbal question and I couldn’t hear you*

-‘We don’t have all day to go through enough medical history to give you enough context to understand exactly how it is going.’

Feel free to add your own

#physically disabled #disabled humor #chronic illness #mobility issues #deafness #young disabled #disability #health issues #sarcasm

255 notes · View notes

sillysecretwriting · 1 month

Text

I love when you reach the point in a conversation with a new specialist where they ask "so other than x reason you are coming to me, you're healthy?" I always want to burst out laughing because if I had a penny for everytime a doctor asked me that, I would have a whole dollar. But, instead, I start listing my various chronic illnesses and watch their expression get increasingly disappointed. It's so funny.

#multiple chronic illnesses do be like this #shout out to the kind respiratory specialist who I saw this week #he was one of the nicest specialists I've dealt with #young people can be sick too #chronic illness #chronic pain #chronically ill #pots #potsie #chronic disability #chronic fatigue #cw medical

261 notes · View notes

stillfuckingtired · 7 months

Text

Recently described my heart palpitations and the way feel as being like walking down the stairs and missing a step. One of the doctors said “That’s a really good metaphor!” And I was like *yes! I’m gonna get a good grade in doctors appointments, something that is both normal to want and possible to achieve!*

#chronic illness #chronic pain #chronic fatigue #disabled #disability #fibromyalgia #young and disabled #doctor appointment

512 notes · View notes

cripplemetal · 22 days

Text

no, @ me, you're not faking

no, @ me, you're not an attention seeker

no, @ me, you're not healthy and able-bodied

no, @ me, you're not lying to everyone

no, @ me, you're not using your cane to draw attention

#chronic pain #disabled #mobility aid #physical disability #cane user #cripple punk #chronically ill #c punk #cpunk #using a cane #young and disabled #physically disabled

166 notes · View notes

tesco-finest-aromantics · 1 year

Text

if you tell someone with memory problems that they’re “too young” to have bad memory you are being ableist. end of.

#pk;m crow #'you’re so young you should have excellent memory' fuck right off. spend a day as us see how you feel by the end of it #did #osdd #adhd #actually adhd #actually autistic #chronic pain #chronic fatigue #amnesia #endo safe

2K notes · View notes

mylifeingotham · 27 days

Text

158 notes · View notes

moonsprinkler · 6 months

Text

it's so frustrating when you are a young person with an invisible disability and it's acting up but again it isn't obvious from the outside (AND YOU'RE YOUNG) so people won't believe your reasoning for backing out of a task

#chronic pain #chronically ill #cpunk #cripple punk #scoliosis #invisible disability #it's even more frustrating when the people are your own family #they're aware of your illness yet they keep bringing up your young age

237 notes · View notes

justabunny · 14 days

Text

unpopular opinion but mobility aids shouldn't cost so much !!

#disability rights #disabled #chronic pain #forearm crutches #joint pain #mobility aid #young and disabled #mobility aid user #chronically ill #disability #ambulatory wheelchair user #rollator #cane user #wheelchair user

1K notes · View notes

uncanny-tranny · 7 months

Text

I know other adults like to joke about how much pain they're in, but genuinely, please try to get your pain checked out if you're an adult experiencing it, or at least adapt your life in whatever way lessens your pain.

Your pain deserves to be addressed. Please don't "let" it get worse because you've been told that to grow older is to suffer. No, you aren't being needy or selfish or annoying. Ultimately, you are the one who suffers the most from the state of your health, and it's entirely reasonable to want your health to be up to your standards.

#disability #chronic pain #it's actually not normal to feel scared to sneeze for fear of making your pain worse (calling myself out)#i dunno i guess maybe i'm just ~too young~ an adult but i'm already tired of the jokes about pain 😮‍💨#i've been at this pain going on decades now so i guess that's what's gotten me kind of sensitive lol #like... it's just shitty to be told that 'its gonna get SO much worse so don't even TRY' as an adult with pain #basically when you're a kid you're too young but if you're an adult well... that's just what you get so suck it tf up #i'm going back to playing video games so that i may live in the comforting realm of fantasy (Much Less Pain Universe)#(trying to be grateful that my body is Very invested in telling me that it needs to be handled gently but it's hard)#talking so much about this just to continuously make sure that people don't do what i did in the past

293 notes · View notes

chronically-mars · 1 month

Text

Shout out to everyone who is young and disabled. The judgment that comes with it is so hard especially if you’ve been invalidated for so many years. The fear of using a mobility aid in public and getting stares or nasty comments is something I will never get used to.

#cane user #arthritis #chronic fatigue #chronic pain #disability #ehlers danlos syndrome #hypermobility #hypermobile ehlers danlos #mobility aid #young disabled

143 notes · View notes