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#hypermobility
chaos-and-ink · 2 days
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They should invent a knee that doesn’t do that.
That: bends backwards, dislocates, collapses, is chronically painful.
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justaminnow · 2 days
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I'm so tired and tired and tired and tired and tired.
Of the pain
Of the subluxations
Of the unsolicited questions
Of the medications
Of being disabled
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fuck I hate having POTS all I’ve been doing for the last half hour is lay down. Why the fuck is my heart racing and pounding???????
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spookysalem13 · 2 days
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My health has lead me to needing to call out from work again. I feel so guilty.
This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.
My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.
So today is an under the heated blanket, in bed with my kitty kind of day.
The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.
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chadepitanga · 7 months
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there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.
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stellaltumi · 1 month
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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.
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maxpawb · 7 months
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walkingsnakes · 4 months
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HER FR !!!
roxie richter chubby and hypermobile propoganda
text- waiting for pain to go away before going on a date
comic text- her weakness is her kness
...she has knee armor!
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[TEXT ID: Two drawings of Roxie Richter from Scott Pilgrim along with a small comic near the bottom. In the top left corner Roxie is in a pink bra and underwear sitting across legged with the caption 'Waiting for pain to go away before going on a date' looking annoyed. Along the right side she is standing in a black hooded shirt and shorts with a yellow cane.
The comic below starts with Ramona Flowers telling a confused Scott Pilgrim 'Her weakness is her knees' before shifting to a close up of Roxie's knees. The next panel is Scott turned looking at Ramona frightened telling her 'She has knee armor' to which Ramona looks disappointed]
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stars-and-branches · 18 days
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Maybe THIS dose of ibuprofen will be the one that fixes me
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cripp-tid · 9 months
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if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.
so. shoutout to:
• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill
• people who can't get off their medication long enough to conceive
• people with uteruses who have endometriosis or PCOS
• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)
• intersex conditions that makes you infertile
• anyone who has a terminal illness
• people who've had medically necessary surgeries which caused infertility
• people with genetic conditions they don't want to pass on (me again)
• those who require IVF that's just not in the cards for whatever reason
• and many, many others
• feel free to add on
you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙
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bodhrancomedy · 5 months
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My body’s currently held together by prayers and, unfortunately, I’m an atheist.
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How the fuck am I supposed to explain chronic fatigue to someone??? Like I need at least one nap a day to even kind of function in addition to going to sleep earlier than most people might. I am constantly exhausted, I wake up exhausted and I end the day absolutely drained and then I’m expected to do it all again the next day. How the fuck do I explain that sometimes even doing nothing is exhausting? How do I explain that I can’t do things sometimes because I’m so far past tired that I’m essentially not functioning? How do I explain to someone who says they get exhausted but can still function when they’re at that point that my exhausted is completely and utterly different?
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nocsa · 2 months
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So my joints hate my (yay hypermobility!) So I just spent 2 hours creating an embroidery design that I'm gonna slap on some fabric, to make into cushions, to prop my joints up while I sleep so I don't dislocate anything!
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Still gotta test it out and everything, but once I do, I'm planning on putting it up on my Ko-Fi if you guys wanna stitch out some OUCH things on your own
Ko-Fi
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hugs4neth · 2 months
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We need to talk about how much physical disability affects your ability to function in a desk job/school. Especially pain. Like have you ever tried to write a proposal or essay while in pain? Or even just an itch?
It consumes your mind until you can’t focus on anything.
And yet we expect people with chronic pain to function at the same mental level as abled people. Like yeah I’m smart enough for this.
But have you ever tried to participate in a meeting with spikes on your chair? You know that sitting down is causing the pain, but if you stand up then it’s unprofessional and no one will take anything you say seriously. Every thought, every action has to complete with the constant chanting of pain.
Pain, pain, pain, pain, pain, pain, pain, pain, pain, pain, pain, pain.
It never goes away, it never stops. It changes, sure. It wriggles around and it shifts and it ebbs and flows. But it doesn’t stop.
If I want to be productive, I have to take pain meds. But I can’t take them all the time because I’ll give myself stomach ulcers. The side effects for NSAIDs include dizziness, drowsiness, headaches, and long term use can cause permanent liver damage and affect your circulatory system.
Overdoses cause seizures, trouble breathing, and loss of consciousness.
But taking 2 tablets every 4 hours won’t last all day because you can’t take more than 6 tablets a day, and you should really only take four.
And the alternatives are pretty much all addictive. Doctors won’t prescribe them, and
Do you get it yet? There are no good options. There’s no escape. Pain is simply the constant.
Maybe you think the consistency would make it less noticeable, that you can acclimate to it. But pain is pain. Sure, I have a higher pain tolerance than most people. But that doesn’t make it go away. My 10 is higher than most people’s 10, but the 5 still hurts like hell. 1 out of 10 pain is still pain.
So please, let’s talk about this. Let’s talk about how physical disability affects non-physical activities too.
Edit: 7 days later I'm still trying to write the essay that triggered this post. 7 days later I'm in tears over this fucking essay because every single word I write causes me indescribable amounts of pain but I can't get an extension because no one ever talks about this, and I'm too young to have a disability, and I was able to do this a few weeks ago, and if I can't do this I'll never be able to do anything ever again because if I can't sit in bed and write an essay then I can't do anything because this was the last thing I had left, and if I can't do it now but I can do it in the future then I'll have been lying, and literally just typing this edit is making my pain worse but I have to be heard because otherwise I don't know what I'll do.
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stellaltumi · 1 month
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having just one friend who is also chronically ill makes me feel better, even though we don't have the same illnesses she gets it
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rhiannons-bird · 4 months
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