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#endowarrior
endonow · 2 years
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You can never win
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People who don’t have endometriosis don’t understand what the pain causes. I had to leave school after only being there for an hour because I passed out and couldn’t stop getting sick from the pain. I was almost unable to leave school because I could barely walk. It’s more than just a bad period.
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saunter-vaguely-down · 11 months
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Hi all, an update on my surgery journey. I’ve finally got my quotes for all the expenses:
Hospital: $11,246
Surgery :$4775
Anaesthetist: $1,600
My savings were wiped out at the start of the year when I had to euthanise Freya after the vets discovered an aggressive and inoperable brain cancer.
I’m planning on accessing my Super to pay for my surgery, however any extra funds would be a serious help as this is a major financial stress. Not to mention I’m going to be off work for 4 weeks recovering from this operation.
Please. Share, or donate anything you are able.
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cosmiccamelot · 6 months
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Happy place with a comfort film.
This is honestly my favorite place in the world. My adjustable bed makes all the difference on a high pain day… I’m able to adjust my feet and head to help take some of the pressure off my lower back. It’s the best investment I’ve made for myself in ages.
I’ve decorated my room already for Christmas because I refuse to deny myself the serotonin I get from looking at the sparkly ornaments or pretty lights. It makes me so happy and in a world like this, I will take anything I can.
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The Pressure To Be Brave
"You Are So Brave!" How often have we heard this said to us? Most times, people truly mean well when they say this. They are doing their best to be encouraging from their perspective of things. However, for many of us who are surviving cancer daily, those four words are filled with so much pressure and expectation.
When people see us maintaining our lives, managing families, enduring all the craziness that comes with living with this disease, they see bravery! Well, there is truth to that. But the real truth is we are just giving our all to live every day and live our best! It takes a lot of work just to maintain our "normal" lives.
Am I a superhero?
Indeed, we are strong and courageous. We fight uncommon battles for our lives absolutely every day. However, knowing that people can see you as this 'cancer superhero' and being given this subconscious permission to be brave, #BeatCancer, #KickCancersButt, #FightLikeAGirl, and all the other awesome hashtags can be overwhelming!
We didn't choose this fight
We definitely appreciate the love and encouragement! But the reality is that some days we are just SICK! There is nothing we can do about it and to be honest, we don't even have the energy to do anything. We get weak. Not tired but fatigued; downright exhausted! We have mood swings. We battle depression and sometimes it actually fights back...and wins! LOL!!!!
We deal with feeling isolated and alone. We are oftentimes in pain. We are in agony, and it doesn't always go away. Some of us live in pain. We lose weight and we gain weight! We lose our hair, our precious hair! Until you have experienced this, you just have no idea what this does to someone. We think about our mortality more times than the average person does.
Tell me it's going to be okay!
So, it's not that we don't want to be told we are brave. Here is the thing, we know living with cancer requires a special measure of bravery. We know we are brave. But it would mean so much more if we heard, "It's going to be okay", "it's ok to feel how you are feeling", or "no matter how you feel today, I will be here to help and support you!"
Our loved ones believe they keep us strong by coaching us through this and pushing us. If they just speak positively and keep us thinking about how we "should" think then we will feel and live how we are supposed to. Please remember we are human beings with real feelings, who happen to be surviving cancer daily. Just let us be that that's how we are Brave!
Leya R. Elijah
This Is What a Fighter Looks Like
CEO/Founder
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clusts · 6 months
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#endometriosis #chronic pain #chronicfatigue #pain #painmanagement #adenomyosis #iamsotired #icantgoonlikethisanymore #helpme #tryingtofindhope #depression #don'tgiveup #keepgoing #endowarrior #keepfighting
Having a shitty day. Hope you're having a better day.
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endometriosis-andme · 5 months
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Trigger warning pregnancy
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I am back blogging after a busy year, I am sorry for the absence!
In July 2022 I gave birth to a beautiful baby boy.
This blog will now be dedicated to being a parent and coping with my endometriosis on a daily basis. I will not be offended if this results in people unfollowing me as I know this can be upsetting and triggering to most people that follow me, I completely understand this and just wanted to give you a little warning and time for you to unfollow me. I appreciate every single one of you and I hope you know this 💛
Thank you so much for being there throughout my journey 💛
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kaayj92 · 2 years
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🖕🏻🎗
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endopositivity · 10 months
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I’ve had spotting all month and I’m only now on the placebo pills
weirdly enough my pre-cramping didn’t happen so either the constant spotting reduced it or I’m just in an endless state of cramping so I don’t even notice lol
I’m not looking forward to this week
But it’s okay I’ll do my best
💛💛💛💛💛💛
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leoloewenherz07 · 8 months
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„But I know, somehow, that only when it is dark enough can you see the stars.“ -Martin Luther King Jr.
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*not only stars, but also northern lights!
It has been very dark this year, but finally there are some (northern) lights! Never give up fighting, no matter how dark it gets.
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petticoatsandparasols · 9 months
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Chronic illness and pain leave you in a perpetual state of grief.
Imagine your biggest losses in your life… as we all know death is hard and final and the grief that comes with it can be all encompassing.
Losing my dad, losing my fur babies, my grandfathers, etc. all made huge impacts on my life but then imagine feeling that same grief every single day you wake up because you are grieving the loss of life you thought you’d have. Imagine waking up every single day with pain or fatigue that is so powerful, you are lucky if you can get from the bed to the bathroom…
Having answers is huge! Having a diagnosis is massive but it doesn’t change the grief. Instead I think of the amount of time that was wasted wondering… I think of the trauma I have experienced from being dismissed, ignored and treated like I was just attention seeking…
Imagine realizing that your entire life is never going to be what you had dreamed it would be. That is what chronic illness does. It strips us of our entire selves.
Pain changes you. And I think that it’s really hard for anyone who hasn’t gone through it to really understand it’s impacts.
My friends see fragments of what my every day life is and yes I have much to be grateful for but the psychological impact, the constant nagging voice of grief will never go away. I do not know a day without pain… and that really screws with your head.
My journey with endometriosis was a traumatic one that left me near death. My mental health journey has been beyond traumatic and it’s taken me 37 years to finally realize that it’s not my fault. That I have autism, that I’m not crazy but rather wired differently.
And now finally knowing I have Lyme disease that has been causing so much havoc… to the point I was actually losing my mind… the feelings I had were real. The anger I have with my husbands family is not going anywhere but my reactions were huge because my brain was inflamed from this disease… even so, I am not okay!
My PTSD is just proving it’s point. I am not safe in my own body and I’m terrified all the time.
This is why I say that life is grief. I spend my entire life grieving the loss of everything around me, including myself. I don’t know how I will ever be okay. All I can do is try…
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endonow · 2 years
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There is no winning
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cosmiccamelot · 5 months
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Costco OOTD.
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loversplayground · 1 year
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Most common symptoms are pain and infertility. pc: @menstrualhealthproject
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clusts · 6 months
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