Anyone who has gone to a hospital’s emergency room expecting to receive medical care — not knowing where else to turn, uncertain whether a loved one is having a medical emergency and what can be done about it, or unsure if they can pay — has relied on a law they couldn’t name: the Emergency Medical Treatment and Labor Act (EMTALA). It's now in danger from the Supreme Court.

I wish I could still run around like other kids my age without being in so much pain.

I'm looking to connect with people who are:

*sick of being sick

*faking being well

*hiding pain behind a fake smile

*feeling alone

*have an invisible disability

*don't look sick

*looking for support

*faking being well

You can never win

It sucks that my body cracks like a glow stick and I don't glow neon green

Life is UNFAIR

I think my friend cracked the code lol

I was like, leaning on the stairway wall cause pain & low energy, & she asked "you good- that's a dumb question, what's up?" I explained then a different friend walked by "you ok?" and the 1st 1 was like "no your not gonna get anywhere with that

My pain scale:

"I'm doing good": I'm either good, I'm doing ish-good, or you just walked into me not being good but it's the beginning of a conversation so I reflexively go "I'm good". This is my answer about 60% of the time

"Decent", "fine", "ehhhhhh": I'm either actually neutral on my day, it's kinda bad but not too bad, or shit hit the fan and I dont want to admit it. I say this about 40% of the time.

"No": your either really close to me and I'm laughing like "is there ever any other answer when u ask?", or your not close to me and shit went down enough I'm willing to admit it. In the 1st scenario is about 95% of the time the ladder scenario its more like 5%. (and yet of course I will still need to be convinced to go to the nurse's office)

Tldr: at least with me, "how are you" will get you no where in how good I actually am (just how good I am at lying that day) ask WHAT is going on.

Insurance companies, periodically: hey, is that permanent disability still there?

“If access to Health Care is considered a human right, who is considered human enough to have that right?”

Last two days have been terrible with pain.

I had a headache yesterday at work, it felt like my brain was trying to crack my skull from the inside out. Then I had to go shopping after work, and when I was back I laid down for several hours trying to recover from the pain and fatigue. Pain in my knees, ankles, wrists, and fingers. I used my heated blanket and all the braces I could find--compression socks, ankle wraps, knee compression sleeves (had to take those off bc they are too small on my upper leg and hurt much more than they help). it still took hours for my pain to be relieved enough for me to sleep.

Today, my family and I went an hour north for a festival. We were out of the house for 5 hours, I brought my cane and taped my other knee, but it still put me in a lot of pain. I'm currently at home watching a movie, blanket on, wrist wraps on, compression socks and ankle wraps on to try to lessen my pain even a little. I took my daily fibro medication and prescription NSAID this morning, and a tylenol when we got back, and I'm still hurting so much in my knees and fingers.

I get to go to the doctor on Monday, and will hopefully get some x-rays to check for osteoarthritis. I'm young for it, but there's a family history, plus I'm already young in my family for having my gallbladder taken out and probably for developing fibromyalgia so it would fit the pattern.

My fibro meds are not helping the joint pain, at all. It's in multiple areas, which really sucks, and gets worse in weather changes and the cold.

So hopefully, answers. My stupid EEG already came back normal, unfortunately, but I'm crossing my fingers that the appt on Monday will get me help or answers or both.

150/2000 The short version is, I am on welfare, do not qualify for my province's Basic Income because my doctor does not believe I am "sick enough" for disability for more than a month at a time, and won't sign my disability papers long-term. My IBS is so bad I can barely do chores for a long period, which my family has turned into some kind of joke, and even though I spend all my time working freelance jobs online, I barely make enough to help make ends meet, and my mom ends up helping out a lot with laundry and money for my therapy.

Her attitude towards my chronic illness has gotten so bad it has now become abusive, and I need a way out, but I have no means to care for myself. The amount I am asking for would be a nest egg to put some distance between myself and my family, instead of feeling trapped because I can't live without their help.

Please donate if you are able, I know times are tough right now, and if you can't, please share this post <3

Friendly reminder from your immunocompromised friend: there's still a worldwide pandemic. And wastewater data says cases in our area are on the rise. Please mask up! 😷 Save a life! (Like mine.) 💙🥄

It may not seem like a lot, but I made my bed for the second day in a row today and I'm very proud of myself

There is no winning