#adenomyosis
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Surgery done and recovering now
Feeling a bit better already
Tmi but who cares I had to have a hysterectomy. So that's the big thing I'm trying to recover from. Thank you to everyone sending me such kind messages I can't respond to everyone individually because I'm very tired. But I read them all thank you thank you
#endo#endometriosis#fuck endometriosis#adenomyosis#hysterectomy#medical talk#surgery talk#genitalia mention
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Female reproductive health terms you should know!
(terfs not welcome)
Dysmenorrhea: Period pain that isn't normal, i.e. any pain more than Mild cramping.
Dyspareunia: painful intercourse
Oligomenorrhea: lighter, shorter menstrual flow.
Menorrhagia: heavier, longer menstrual flow.
Ovarian cysts: a mass on or in one's ovary, can be resolved on its own, or can remain and cause complications such as a rupture.
Polycystic ovary syndrome: a chronic condition causing cysts to reoccur on the ovaries and enlarging them. Symptoms include:
Irregular periods
hormonal imbalance
facial hair
weight gain
painful periods/ ovulation
infertility
People with PCOS are at higher risk for endometrial cancer, type II diabetes heart problems and high blood pressure.
Endometriosis: A chronic condition in which a tissue similar to, but different than, the endometrial lining grows outside of the uterus instead of inside. During menstruation this tissue sheds and has nowhere to go, thus irritating surrounding organs.
Symptoms include:
Irregular periods
Dysmenorrhea
Widespread pain
Painful ovulation
Vomiting, fainting, chills, sweating, fever and brain fog during menstruation
Infertility
Severe bloating
This also puts people at a higher risk for endometrial and ovarian cancer. There are four stages to Endo as it is a progressive disease, with 3/4 being more severe. The average time it takes to be diagnosed is 7 years.
Adenomyosis: A chronic disease similar and comorbid to endometriosis in which a tissue similar to the endometrial lining grows inside of the uterine wall. Symptoms are nearly identical to endometriosis but more difficult to detect.
Many people are diagnosed post menopause, by fault of the medical system, but it can and does develop much before then.
Ovarian cancer: cancer of the ovary(ies).
Endometrial cancer: cancer of the endometrium, the inner lining of the uterus.
Endometrial cyst, or chocolate cyst: cystic lesions from endometriosis.
Tilted uterus: the uterus is positioned pointing towards the back or severely to the front of the pelvis instead of a slight tilt towards at the cervix. Can cause painful sex and periods.
Pelvic floor dysfunction: inability to control your pelvic muscles. Comorbid with many things and is highly comorbid with endometriosis. Can cause pain and incontinence.
Vulvodynia: chronic and unexplained pain at the opening of the vagina.
Interstitial cystitis: a chronic condition where cysts form on the inside of the bladder and urinary tract and cause symptoms similar to that of a UTI.
Pre-eclampsia: a condition occurring in pregnancy where the blood supply between the fetus and the pregnant person is affected and can cause irregular blood pressure, swelling, and in more severe cases headache, nausea and vomiting, a burning sensation behind the sternum, shortness of breath and potentially death if untreated.
Endometritis: an infection or irritation of the uterine lining. Is not the same as endometriosis and is treatable but can cause pain, bleeding, swelling, general discomfort and fever, and more.
Pelvic inflammatory disease: an infection of the reproductive organs
Ectopic pregnancy: a pregnancy that is attached to the outside of the uterus. Can be fatal if left untreated.
There are many more I could probably add but if you see something missing, please add it!
#reproductive health#endometriosis#adenomyosis#pcos awareness#reproductive health awareness#chronic illness#polycystic ovarian syndrome#ovarian cancer#reproductive rights
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I really think we need to start talking about the stigma around hysterectomies and their place in the treatment for the symptoms of endometriosis.
Something I see often is the phrase 'hysterectomies don't cure endometriosis', which is very true, but do you know what a hysterectomy can cure?
Pain.
And you know the pain I'm talking about. The gnawing, all encompassing agony that surrounds our entire lives. The one that keeps you from going back to school, or uses up all of your sick days and vacation time from work combined, the one that leaves you dry heaving for hours until you pass out on the bathroom floor. That pain. There's truly no describing what it's like until you're living it.
And I cannot describe to you how free I feel knowing I will never have to suffer through that ever again.
If we continue to talk about our pain journeys we can end the stigma against hysterectomies. It will never be a cure-all, but remember that you are not a baby machine, you are a human being who deserves to live pain free. And I'm telling you, it's possible.
#endometriosis#hysterectomy#adenomyosis#chronic illness#chronic pain#i was discussing this with my doctor#theyre finally studying hysterectomies relating to pain#and the amount of people who experience pain post surgery#is like less than 0.1%#i like those odds#and i feel so fucking good you guys#i haven't had a period in over two months#TWO MONTHS!!!!!!!!!#NEVER AGAIN!
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Still sore. But so cute.
#talk to me#me#brunette#make me laugh#say hi or something#tell me i’m pretty#chronically ill#chronic pain#endometriosis#adenomyosis#bad pain day#i need forehead kisses#girls with glasses#mine#selfie#tell me a joke
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[french below]
Please help me spread the word! I co-created a french speaking support server on discord for people with chronic gynecological conditions (endometriosis, adenomyosis, PCOS, chronic pelvic pain, etc)
Aidez-moi à faire passer le message! J'ai co-créé un serveur discord de soutien pour toutes les personnes atteintes de pathologies gynécologiques chroniques (endométriose, adénomyose, SOPK, douleurs pelviennes chroniques, et autres). C'est un serveur safe LGBT 🌈 et inclusif pour offrir une alternative à tous les groupes de soutien cis-centrés qui existent autour de ces thématiques. Ouvert à tous-tes, avec ou sans diagnostic ! 💗
https://disboard.org/fr/server/1110166893366628452
#bagaitte#upthebaguette#french side of tumblr#endometriosis#pcos#adenomyosis#chronic illness#chronic pain
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I heard back from my doctor and whoo boy
The ultrasound shows I have a small fibroid and possible adenomyosis which means one of the treatment options is off the table. She wants me to get an endometrial biopsy to make sure there's nothing more sinister in my uterus. I had one done 15 years ago. It was suggested by my (at the time) new doctor 5 minutes before it was done without any pain management or sedatives. It hurt so bad I nearly kicked him. So my new doctor said I can take ibuprofen and she will give me Xanax, but I told her I can't take ibuprofen so what should I take and btw I've had vicodin for cramps before so can we try that and skip Xanax? We will see what she says. I also informed her I've already had two panic attacks since she first mentioned getting this biopsy done again.
Her message also said my options are birth control pills, a particular IUD, or hysterectomy. I responded that I will under no circumstances get an IUD. I asked how the birth control will be different from the ones I was already bleeding through and how long do I have to try them before it's clear they aren't working. We will see what she says. I know a hysterectomy is a major surgery, but I am also so sick of this. I'm so tired of hormone pills making things worse.
#about me#medical stuff#obgyn#endometrial biopsy#pcos#fibroids#adenomyosis#endometrial abaltion#hysterectomy#birth control#iud
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Adenomyosis is different from endometriosis. This is actual endometrium tissue growing within the uterus and thickening the lining. It has very similar symptoms to endometriosis.
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In September when I got violently sick I was denied healthcare in FIVE PLACES until I - by sheer luck - got to see someone who kind of, sort of, figured out what was wrong with me and put me on treatment that has worked so-so. And that has me wondering - are they just letting people die now? People who don't have the strength to go to five places and scream and shout until finally someone takes you in?
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Hey sweet loves,
Bad pain day = worse brain day so cut me a little slack if you’re so cut me a little slack for falling off the face of the earth. If you can.
Thanks,
Kitt.
#chronically ill#chronic illness#endometriosis#adenomyosis#my uterus hates me#bad pain day#bad brain day
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The uterus is trying to bleed me dry today. I feel like a zombie and I haven't even taken any pain pills recently
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#disability#endometriosis#adenomyosis#pcos#ovarian cyst#transmasc#transmasculine#trans healthcare#trans health#trans#trans man#trans masc
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My hips are hurting today. It's a dull ache across the lower part of my back. Where my arthritis is. Where my tumor is. Sciatica kept me up last night. My head was pounding when I pulled myself out of bed.
I brushed my hair. Lately I've been twisting it into a knot, clipped to the back of my head with a claw clip, the ends of my hair fanning above my head like a limp monochrome peacock. It hurt my shoulder to hold the brush up for so long. My arms burned. It hurt my neck, pulling back my head with each pass of the brush. The brush cuts through my tangles like butter with minimal resistance, but it hurts more than it did before my magic brush, when working through my many tangles would pull at my tender scalp.
My hair has always been pretty. When I was a child it was beautiful and thick, so so thick. It was soft and wavy and plush. Now it’s tired, and I keep it cut close to my shoulders so it’s easier to brush. I cut it myself, at home, once or twice a year. I used to cry when I got my haircut when I was little. Now I inflict it upon myself. Willingly.
Today was a good day. I fed my cat. I fed myself. I put away groceries. I sat at my computer today and worked.
I’m tired of having good days. I’m tired of having good days and bad days. I wish with all my being that I could go back to just having days. Just days, like everybody else. Like healthy people.
#chronic pain#chronic fatigue#Arthritis#tumor#fibromyalgia#endometriosis#adenomyosis#chronic migraine#sciatica
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