#multiple sclerosis | Explore Tumblr Posts and Blogs

take-a-dip-in-the-deadpool · 7 months

Text

THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

#chronic pain #disease #multiple sclerosis #tiktok #share #rb

80K notes · View notes

ayeforscotland · 26 days

Text

Holy shit.

Researchers at the University of Chicago have been able to create an ‘inverse vaccine’ that can remove the immune systems memory of specific molecules.

Reading that, sounds like a horrendous bio weapon in the making. But the plan is for it to be used to treat autoimmune diseases like multiple sclerosis, type one diabetes and rheumatoid arthritis.

This was already proven to be able to prevent autoimmunity but the new work shows it can be used to treat ongoing autoimmune issues.

Source.

#ayeforscotland #autoimmune #multiple sclerosis #type one diabetes #rheumatoid arthritis #science

5K notes · View notes

smoov-criminal · 10 months

Text

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

8K notes · View notes

rebirthgarments · 5 days

Text

TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

#gaza genocide #gazaunderfire #stand with gaza #news on gaza #war on gaza #gaza strip #free gaza #gaza #gazaunderattack #save gaza #mutual aid #i personally vetted this fundraiser #disabled and cute #disabilityculture #disabilityarts #disabilityjustice #multiple sclerosis #cancer #pancreatic cancer

1K notes · View notes

gayaest · 7 months

Text

Lishai 🌈🌸♿️🩷🪴 [ID in alt-text]

He has PPMS and uses an intermittent catheter! There is way too much stigma (from both disabled and non-disabled people) about incontinence, catheters, and bladder issues. It’s not “gross”. The only “gross” thing is being judgmental of disabled people for something they cannot control and keeps them alive.

#my art #art #original characters #disabled artist #disabled characters #disabled oc #wheelchair user #catheter #ms #multiple sclerosis #illust #illustration #babe with a mobility aid #disabled and cute #wheelchair

3K notes · View notes

spookysalem13 · 7 months

Text

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

1K notes · View notes

crippledpunks · 2 years

Text

i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

#fatigue #chronic fatigue syndrome #cfs #myalgic encephalomyelitis #cfs/me #chronically chill #chronically ill #actually disabled #fibromyalgia #arthritis #multiple sclerosis #hypermobile spectrum disorder #hypermobile ehlers danlos #heds #eds

9K notes · View notes

mssethii69 · 2 months

Text

#dm me for my content #fit girls #hot as fuck #thick babe #thickwomen #ms sethi #ms.sethe #so fuckable #so hot and sexy #ms sethii #ms.sethii #ass ms sethi #ms #mssethi #ms paint #msm #ms marvel #multiple sclerosis #celiac

457 notes · View notes

melodymorningdew · 5 months

Text

I cannot fight for my health and fight the world at the same f**king time.

573 notes · View notes

dollydroid · 7 months

Text

Chart on myelin damage, "example of cables damaged by rodents, insects, and pests".

459 notes · View notes

zebulontheplanet · 9 months

Text

if you think that disabled people who arent contributing anything to society are leeches then you are Ableist. Disabled people who arent able to contribute much, or anything to an already fucked up society are worth it and are amazing. Disabled people with higher support needs are told constantly about everything wrong with them instead of being told about everything thats right with them. How about instead of constantly tearing disabled people down, you instead love them because they’re HUMAN.

I see time and time again. “Go outside and do something. Everyone can do SOMETHING.” What if they cant? WHAT. IF. THEY. CANT? Then what? They arent worth any less. They arent moochers, or leeches, or anything like that. They are disabled. Stop being ableist, take disabled people into account with your language because your privilege shows.

412 notes · View notes

drferox · 8 months

Text

My MS Diagnosis

So I’m approaching the 2 year mark since my Multiple Sclerosis diagnosis and I thought I’d better document how I got here, because being the patient is a weird experience, especially for a condition that had kind of vague symptoms that needed a fair amount of work up.

My symptoms actually started in early 2020, when I was in the third trimester of pregnancy. The main symptom was mistaken for carpal tunnel syndrome - numbness in my fingers that would progress to increasingly violent pins & needles sensations, that would progress to burning if I tried to push through it. Only this sensation would extend all the way up to my shoulders at times. I stopped performing surgery, because not only was I unsatisfied with my lack of sensation to know what I was doing with my tissue handling, but the pain would get worse quickly in constrictive surgical gloves in the presence of patient warming. So I stopped performing surgery in late pregnancy and was told it would get better a few months after giving birth.

It did not.

So six months after giving birth, finding myself able to use my hands for short periods but still unable to perform surgery to my standard, I went back to complain to the doctor. I also couldn’t play video games properly, my arms would often be numb when I woke up, all the way up to my shoulder, and they were super temperature sensitive. Even hot water from washing dishes would set them off.

They sent me down a carpal tunnel work up - ultrasounds and talking to a neurologist. The short version is they did tell me I had mild carpal tunnel… on one side only.

Which did not make any damn sense considering I had symptoms on both sides all the way up to my shoulder.

The worst neurologist in the world could not explain to me why a mild problem on one wrist was affecting sensation all the way up to the opposite shoulder, and just said ‘it happens sometimes’. Now, I like to think I have a solid understanding of the basics of how a body works, and was really unsatisfied with this answer. They recommended I talk to a surgeon, since I’d already been doing a bunch of physiotherapy, but I decided not to. Surgery could have put my hand in a cast for up to 6 weeks, I had a 6 month old baby to care for at home and a partner who was useless at best, and abusive at worst. I could not afford the time in a cast.

So I went to try something else, visiting an osteopath to see what they could do about my ‘mild’ carpal tunnel, and while I’m there, these headaches I’ve been getting.

She spent a good long while stretching out different muscle groups, and found that certain neck muscle stretches changed the sensations I was getting in my fingertips. So whatever was causing the hand problem was coming from somewhere in the neck, and she recommended I get a CT scan.

Went back to my doctor to get a referral for a CT scan, and explained what was going on. He thought about it for a minute, didn’t voice his concerns, and upgraded it to a neck MRI.

That MRI found a demyelinating lesion in my neck. So went back for a full Central Nervous System scan and found a couple more borderline ones.

That sent me back to a (different) neurologist, had a proper neurological exam that found a few random patches of altered skin sensation in addition to the arm weirdness I had going on. So I was probably a MS case, but not particularly severe as MS goes.

To confirm it I needed a lumbar puncture to look for oligoclonal bands in by CSF. The lumbar puncture was a moderately unpleasant experience which then mandated that I remain lying down for 24 hours so that my spinal fluid didn’t spring a leak. With a baby and a distinctly unhelpful partner, I barely made it to that 24 hours.

And then… I sprung a CSF leak. Which is a jolly weird experience I can tell you.

When your CSF leaks from a lumbar puncture you will feel perfectly fine… when you are lying flat on your back, because your spine flops over the hole and plugs the leak. If you’re upright at all the spine flops away from the hole and it slowly leaks out, and you get more of this weird frontal headache that gets worse the longer you’re upright, standing there talking to the ER admissions nurse. And the info I had explained that it can progress to seizures and similar the worse it gets, but I only got as far as pain and fuzzy vision. I seriously could only be upright for ten minutes without pain, and had to lie down to resolve it.

That required some medicine-that-looks-like-magic to fix, called a blood patch. Doctors took some of my blood, fresh out of the vein, and inserted it into my spine approximately where the leak should be, so that the clot would cover the leaky patch. Self blood magic. It worked brilliantly, about an hour later.

The CSF tap ordeal confirmed the presence of the oligoclonal bands, and then I got stunted into the public health system, in a department specifically geared towards managing Multiple Sclerosis patients. They debated for a little while, at a multidisciplinary meeting, whether I was really MS or a Clinically Isolated Syndrome (which is like Multiple Sclerosis but without the ‘Multiple’ part), but settled on MS. Yes, Tumblr, I was nearly diagnosed with CIS.

The shoe thing took about a year from when I actively complained to doctors, or about 18 months from the first probable symptoms. That’s approximate because some things that were thought to be pregnancy symptoms could have been due to MS, like fatigue and leg weakness. I’m pretty lucky that I’m comfortable in hospitals and with medical procedures, am reasonably medically literate. I think the magic phrase that got things to happen quickly was ‘these symptoms are greatly affecting my ability to do my job’.

I don’t think my MS has progressed since starting the medication (and I’ll talk about the medication in another post). I’ve acquired one additional brain lesion since diagnosis, but I have no clue what physical symptom it’s associated with.

While some symptoms are better, I still cannot perform surgery to the standard or with the endurance that I used to,so I basically don’t any more. I can do about ten minutes, which is enough to bail a new graduate vet out of trouble, but not enough to take over completely for them. I’ve had a few years to think about it but I don’t know what the MS is going to do to my career, only that I can still practice for now.

It’s not great, but it could be a whole lot worse, and that’s how I got here.

#multiple sclerosis #MS #medical diagnosis #me the patient

339 notes · View notes

mindblowingscience · 2 months

Text

Epstein-Barr virus, a common virus that infects most people at some point in their lives, has long been suspected as a trigger of multiple sclerosis, an autoimmune disease affecting around 36 people in every 100,000 worldwide. But exactly how this virus trips the immune system into attacking the body's own cells, often years later, has mostly eluded scientists.

#Science #Health #Immunology #Neurology #Multiple Sclerosis #Epstein-Barr Virus

101 notes · View notes

referencebaseforme · 9 months

Text

Yes doctor, I have an unexplainable cause of the ouchies. As you can see I am in pain, no I am not a hypochondriac.

#chronic illness #disability #disabilties #disabled #fibromyalgia #hypermobile eds #hypermobile joints #joint problems #multiple sclerosis #cpunk #cripple problems #cripple punk #queer cripple #cripple shit

268 notes · View notes

ibr860 · 9 days

Text

This is what "Doaa" suffers from in Gaza!

Multiple Sclerosis patients in Gaza are forgotten amidst the flaming war. No medical care is available for them, and no hope is left for them to get their must-take infusions.

Doaa is a case of an MS patient in Gaza that needs your support urgently. Help Doaa by donating or sharing her story with your network on all social media. If you support, you are not supporting one person, but you will support a family of 7 members who are waiting for the safety, peace, and healing of their mother.

#free gaza #gazaunderattack #palestine #stand with gaza #gaza #gaza genocide #gaza strip #free palestine #israel #palestine genocide #ms #multiple sclerosis #ocrevus #history #horror #hazbin hotel

63 notes · View notes

gr8rainbowpunk · 2 months

Text

Chronic pain syndromes really have people doing the weirdest shit to be in 1% less pain

“why are you sleeping on a blanket on the floor”

“Because laying on the floor made my back hurt slightly less and I couldn’t sleep anywhere else cause it hurt too much”

Feel free to add your own

#ehlers danlos syndrome #scoliosis #endometriosis #chronic pain #fibromyalgia #lupus #multiple sclerosis #cerebral palsy #and any other disorders I forgot

112 notes · View notes