happy pope listening to megalovania anniversary eve. as much as i don't want to think about it, it's also the one year anniversary of the urfaveisunfuckable disaster, and some of you may remember me as mod gortys (or mori or rhys. yes my name is rhys. no im not mod rhys. we're two different people with the same name. it happens.) i wouldn't be making this post if i wasn't absolutely desperate, so if you were at all entertained by that clusterfuck, please do me a favor and just read.

i've made this announcement before, but i was diagnosed with acute myeloid leukemia at the end of september (which is leukemia awareness month, ironically enough.) needless to say, chemo is expensive. i was a college student who was only able to go on scholarship, and the scholarship was rapidly becoming not enough. my parents are both teachers, a job that notoriously never pays well, and my dad quit to be able to take time to take me to my appointments.

my aunt made a gofundme for my care, and the reason i'm so hesitant to link it is that she included my legal name and face, and i know that many people on this site are no better off than me. i am truly desperate, as i spent the majority of october and november in this hospital and this is, needlessly to say, a huge obstacle to getting a job. even though i'm now in remission (not completely, there's some residual left), i'm still going to have to get maintenance chemo about once a month, and the only way to completely ensure i don't have a relapse is to get a bone marrow transplant. this would mean i'll have to stay in the hospital for another month, have visits three times a week for another 3 months, and then have visits slowly getting less often for another 3 months. even then, i'll have to have more frequent checkups for the rest of my life just to make sure i stay well.

even if you can only signal boost, not donate, i would greatly appreciate it. if i had a dollar for every note on that video recapping the drama, i'd have at least 43k. any amount of help would be appreciated. we've only reached about 4k, and while i'm grateful and surprised that we even reached that much, it just isn't enough for all the expenses that will be piling on. thank you for your time.

also, if you are able to donate, please don't send any comments with the names mori or rhys on them, i'm not out to my parents in any capacity and this i don't want to come out to them while i'm so dependent on them. thank you for your understanding.

In November of 2023 my friend Sam was diagnosed with leukemia. I’ve lived with them - Sam, her husband David, and their daughter Emily - for over a decade, and it’s taking all of us together to get through this. She and David both worked before; now it’s just David. He works incredibly hard but with multiple medical issues in the house besides Sam’s leukemia, one income simply isn’t enough. I’m disabled myself and can’t work a traditional job, and Emily is 11. So we’ve turned to our community for help. 

We’ve received so much help and support already and we’re incredibly grateful, but this is a marathon. Sam will be in treatment for two more years minimum, and we have to be in this for the long haul. Which is where you hopefully come in.

Below is a list of links that will help us, be it via direct donation, support of my shops or Patreon, or helping us get groceries and gas. Everything helps. Reblogging this helps. I really cannot overstate how much even $5 can give us.

GiveAndGarden fundraiser

GFM

Paypal

Cashapp ($ceraphena)

Venmo

Redbubble

Teepublic

Patreon

Amazon List (for help with groceries)

Linktree of digital gift cards

Thank you all again for all the help you've given thus far. 🧡

This music is dedicated to Robin,

For her brave, wild heart and the gypsies that remain. 🕊❤️‍🩹

My great aunt has recently been diagnosed with leukemia. Please send your thoughts and prayers.

No one cares about ur cancer I hope you get to stage 4 and die slowly while all of your hair falls out from chemo and you cough up blood

Oh! 🤠 you gotta care a little bit to type that out

Now they've decided to put my dad in a medically induced coma for a few days so they can treat his pneumonia. They also confirmed the the specific type of leukemia he has is AML leukemia. I'm not sure what that means. Please pray for him.

I will keep praying for him. My older brother had leukemia when he was a little boy so I know how difficult this must be.

A window is a luxury for many patients. For many of them, instead of a window, video calls must suffice as the only contact with their family during many weeks of therapy in lockdown. Isolation, watching the changing, professional faces of the staff, a different drip every now and then connected to a tube sticking out of the arm. Solitude in the sterile whiteness, limited to a room with a bed and a bathroom. This is what the world of people with leukemia looks like. How do I know this? Because over a month ago, one of the most important people in my life received just such a diagnosis: acute myeloid leukemia. He has already undergone a series of chemotherapy, is slowly regaining strength, and is mentally and physically burdened. In the meantime, a donor of hematopoietic stem cells is being sought, which will hopefully bring him home permanently. We all wait, enjoying the smallest successes, such as getting out of bed or a successful game of ship games.

I would like to be a donor, but my health does not allow it. Therefore, I can only believe that somewhere in the world there is a person who is a genetic twin and will be willing to help. To register in DKMS, a cheek swab is enough. Just enough, and more than enough, to join the group of people who can give others a second life.

If you are out there somewhere, Twin, know now that I am very grateful for your help ❤️

Guys, I'm ten years cancer free tomorrow. I expect hundreds of Asmo arts to be produced for the occasion. I've given you one day to prepare.

Nem tudom fel fogni hogy ilyen hirtelen itt hagytál…

Annyira erős voltál es minden erőddel azon voltál hogy meg gyogyulj…

Nem akarom el hinni, el sem tudtam tőled búcsúzni

Hiányod örökké fájni fog…

I mostly keep tumblr stuff to reblogs, fandom stuff, and the occasional salty opinion, but my best friend just called and told me he has leukemia, and I'm so scared I'm going to suck at supporting him, and I need to tell... the internet, apparently.

I'm so practical-minded. He's in a sterile room so visits are complicated right now, and I could only ask 'do you need anything'. He said it's what everyone asks. I had to text him after his call because I totally forgot to check if he wanted me to tell the news to others. (He did, I have two of our friends on my list.)

I don't know how to help with grief, or anger, or fear. This sucks.

He heard about it in the worst way possible; he was being switched hospitals for extra testing and the ambulance paramedic told him it was strange, bringing over someone a year younger than her who has leukemia. No one had thought to tell him before, I guess because they didn't have the final-complete diagnosis yet.

It all sucks and I feel disconnected, like my brain is not computing what this means. I want to crack jokes about the fact that I'm sorry I ribbed him so much for being a hypochondriac for as long as I've known him. I want to tell him we better go to the Isles of Scilly this summer, even if I've been calling them the Isles of Shitty each time he brought it up before. He's 31 years old. I want to give him Marie-Aude Murail's Oh boy in which a teen has leukemia but things are still alright in the end.

Everything is inappropriate and I don't know what to do with myself. I only know I want to help.

My roommate Sam has leukemia.

Her husband rushed her to the hospital on November 19th with severe pain and difficulty breathing. Her blood sugar was 44 (way too low) and her white blood cell count was 166,000 (way too high). Wellstar then dicked around for two days and watched her numbers fuck up, doing zero additional tests ("well you know it's a holiday weekend so it's hard to get people up here") until they finally actually transferred her to Northside Hospital's oncology center. This is where her (assumed) diagnosis changed from lymphoma to leukemia.

In no uncertain terms, Wellstar almost killed Sam. The ICU staff at Northside confirmed that if they had waited another day she would have died. "Another day and we wouldn't be discussing treatment, we'd be discussing either hospice or funeral."

Everything else is in the gofundme below, but to paraphrase: she had white blood cell buildup around her heart and lungs. Her spleen was also so swollen it was pressing on her heart, lungs, and stomach. Her kidneys started shutting down from trying to filter so many immature white blood cells out of her system. She's been on dialysis, leukapheresis, steroids, and insulin (to combat the rise in blood sugar from the steroids). She's gotten five transfusions of platelets and one regular blood transfusion. We're waiting on biopsy results for the exact form but right now it looks like acute lymphocytic leukemia (ALL). She's responding well to the treatments she's received so far, but it's still a long road ahead.

It's still very early days so stuff like disability and leave are still being worked out. We're going to have to start paying her insurance out of pocket, not just for her but because their type 1 daughter is also on it.

I keep calling these things "hurdles" but this might actually be a fucking wall. Scalable, for sure, but so much higher than we're used to having to climb. I was originally going to make an update on the house stuff about my partner's raise and the deal we made with the county and how it was going to make the house stuff easier, but instead I am making this post. Believe me, I do not want to be making this post. For several reasons.

The gofundme is here: Thank you and we love you.

“In the latest CRISPR success story, a 13-year-old girl whose leukemia had not responded to other treatments now has no detectable cancer cells.

She received a dose of immune cells that were genetically edited to attack the leukemia, a method that’s been used with other cancers.

A form of cancer in the bone marrow tissue, leukemia is caused by mutated immune cells and is normally treated by killing all bone marrow cells in the patient’s body before receiving a transplant from a donor. If this falls, the Nobel Prize-winning CAR-T cell therapy can be used instead.

This was the case of Alyssa, a 13-year-old girl from the UK, who received a dose of common immune system weapons called T cells that had been modified to attack cancerous cells in her body. To avoid the extreme costs associated with this, the Great Ormond Street Hospital team at University College London further modified the donor T cells.

“This is quite remarkable, although it is still a preliminary result, which needs to be monitored and confirmed over the next few months,” said Robert Chiesa, one of the doctors treating Alyssa, in a statement released by Great Ormond Street Hospital.

While she has no detectable cancer now, it will take several years to determine whether she’s truly cancer-free.

This procedure was used before to save the life of a 1-year-old girl, Layla, also in the UK last year, and is now approved by the NHS as a treatment for people with leukemia arising from mutated B cells, another group of immune cells that can lead to the cancer.” -via Good News Network, 12/17/22

I felt very sad yesterday but today is a new day and I am feeling much more positive and at peace. I want to lose weight but I don't hate myself. I have leukemia but I'm not gonna die any day soon.

I do still feel that the likelihood now is that I will be single for the rest of my life, which is a harsh prospect at 37... but yesterday I realised there is basically no way anyone, male, female, non-binary etc, will want to start dating me while I have leukemia, it's just 'too much'. And with the leukemia it will never be 'cured' all I can hope for is remission. I do think people who's partners get leukemia would stick by them but I just don't think any new relationships could happen for me. And that makes me sad... because I really wanted to find someone who would love me as loyally as I love them...

But! No point dwelling on something I have no control over! So instead I'll accept that romantic love is over for me, but all the other kinds of love: friendship, family, children, pets - those are still available to me and a huge blessing for me. So I will focus on giving my love in platonic ways out into the world.

I can still daydream about romantic love, but I now know it's just that, a sweet dream that will never be. And I'll be okay.

Because I have myself. And I will build a beautiful life. And I will be love and I will be hope. I will help people and care for myself as well. Today I'm going to have a day spa day. I will help my child with their game design and game coding. I will eat healthy food to nourish my body. I will take the 3rd dose of my life saving medicine. I will pat my pet kitty. I will live.

Down To The Bone: A Leukemia Story by Catherine Pioli. Translated by J.T. Mahany. Graphic Mundi, 2022. 9781637790342. http://www.powells.com/book/-9781637790342?partnerid=34778&p_bt

While trying to get treatment for her sciatica, Pioli was diagnosed with leukemia. She spent more than a month in the hospital starting treatment, which was followed by chemotherapy after she was able to go home. This is her story, from pain to diagnosis to telling her family and then enduring treatment. Throughout it all, she maintains a sense of humor and produces some amazing comics despite how much her strength deteriorates. The narrative, the information about leukemia, and the details about her treatment that the book shares all have a sense of hope that made the graphic novel's abrupt ending, with a short text note about Pioli's death in 2017, all the more devastating.

I love how exact the illustrations feel, and in particular how she draws some people, objects, and backgrounds as colorless to emphasize other details and people. Plus I'm a fan of borderless panels which the book uses beautifully.

Worth noting: there's a wonderful "afterward," a 10-page section on bone marrow transplants which is informative and encourages donation.

hiii!!! i lurk around a lot of communities but im making a post to share something important! (plz reblog!)

earlier this year my dad was diagnosed with acute myeloid leukemia, aka, a type of cancer that has been aggressive. right now, he has lost the ability to generate income so it's been hard to pay for expenses. our family is working with him on stuff but yk it's still really demanding. any help is appreciated, whether is a reblog, repost on a different site or donating, it's all appreciated 💗 i'll be tagging some communities im in so i'm sorry if this is out of place !!

(dropping some gifs just so it's not ENTIRELY outta place)