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nochiquinn · 5 months

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My roommate Sam has leukemia.

Her husband rushed her to the hospital on November 19th with severe pain and difficulty breathing. Her blood sugar was 44 (way too low) and her white blood cell count was 166,000 (way too high). Wellstar then dicked around for two days and watched her numbers fuck up, doing zero additional tests ("well you know it's a holiday weekend so it's hard to get people up here") until they finally actually transferred her to Northside Hospital's oncology center. This is where her (assumed) diagnosis changed from lymphoma to leukemia.

In no uncertain terms, Wellstar almost killed Sam. The ICU staff at Northside confirmed that if they had waited another day she would have died. "Another day and we wouldn't be discussing treatment, we'd be discussing either hospice or funeral."

Everything else is in the gofundme below, but to paraphrase: she had white blood cell buildup around her heart and lungs. Her spleen was also so swollen it was pressing on her heart, lungs, and stomach. Her kidneys started shutting down from trying to filter so many immature white blood cells out of her system. She's been on dialysis, leukapheresis, steroids, and insulin (to combat the rise in blood sugar from the steroids). She's gotten five transfusions of platelets and one regular blood transfusion. We're waiting on biopsy results for the exact form but right now it looks like acute lymphocytic leukemia (ALL). She's responding well to the treatments she's received so far, but it's still a long road ahead.

It's still very early days so stuff like disability and leave are still being worked out. We're going to have to start paying her insurance out of pocket, not just for her but because their type 1 daughter is also on it.

I keep calling these things "hurdles" but this might actually be a fucking wall. Scalable, for sure, but so much higher than we're used to having to climb. I was originally going to make an update on the house stuff about my partner's raise and the deal we made with the county and how it was going to make the house stuff easier, but instead I am making this post. Believe me, I do not want to be making this post. For several reasons.

The gofundme is here: Thank you and we love you.

#leukemia #acute lymphocytic leukemia #mutual aid #mutual aid request #the problems

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pureanonofficial · 2 months

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Freddie Trumper & Florence Vassy in CHESS - LONG BEACH CIVIC LIGHT OPERA (1990)

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gideonthefirst · 4 months

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my most normal and reasonable emotion i feel now is getting Mad at posts about how getting vaccinated and taking paxlovid reduces long covid risk. if that's so true what about ME!

#i know i am probably suffering more from the two rounds of pneumonia than the covid itself but. man fucking come on #i've gotten every single vaccine i got paxlovid immediately how come I'M still unable to do fucking anything.#personal #the problems

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kieren-fucking-walker · 26 days

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I want to know what my boop paw colour is but if it's not black I will be sad.

#life blogging #the Problems

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girldraki · 10 months

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guys we’re having the picrews of sigguros urges again 😵‍💫

#txt #The Problems

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flareonfoxy · 7 months

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This is going to be totally out of left field but I think the big reason Fire emblem Engage failed was due to Maddening difficulty having fixed growths till you beat it once. The big reason is that part of the fire emblem experience is training your units and seeing how good they turn out from random chance and then adapting in order to compensate that or play into that.

An example of this is that I was playing Maddening in 3 houses ( The game that came before Engage) and I had runs where a unit would just snowball from multiple good level ups and become just a monster. This happend with my Dimitri who had so much speed he couldn't be doubled by basically anything in the game, even the death knight in his first appearance. Random growths can make units who otherwise aren't good, good because they can get lucky.

Another example is I had a Mozu in my conquest playthrough who just decided to become a monster and had like 15 strength and 17 speed by like level 15, like it was insane.

These examples just show the positives of random growths, the negatives though are obviously sometimes characters might not proc certain stats on level up for a few levels, which can be detrimental, back to Dimitri where another playthrough I had he only had like 8 speed at level 9. Which he has a 40 or 45 growth and starts at level 1 with I think 7 speed, meaning he should of had about 2 or 3 speed more than he did causing him to get doubled by enemies he shouldn't been doubled by, this is a big negative because you can have playthroughs where the characters you want to use may be just bad, which sucks but I think it's what makes the games fun.

Obviously it's easier when fixed growths are a thing because the creators can make levels to curate to what the player should have at that point, the problem with that though is when the player wants to play a character the creators expected them to drop. Example being in Engage when you get Alchrest the game expects you to automatically drop Etie who was your archer before this, and that's just something I never do because I like Eties character and design more than Alchrest, like I like Alchrest and he has a better personal but I like Etie more and this pertains to multiple characters who you're just expected to drop when you get a new character. Here's a short list.

1) Framme/Jean/Pangero

2)Clanne/Celine/Citrinne/Ivy/Hortensia/Old guy?

3)Alfred/Amber/Bunet/other guy(can't remember name)

4)Chloe/maybe Rosatto?

5)Louie/Jade

6)Boucheron/Anna/Pannete

7)Etie/Alchrest/Fagato

8)Alear

9)Yunaka/Zalekov/maybe Merrin?

10)Lapis/Kagetsu/Goldmary

That's ten different basically groups that once a new character shows up in that group you're expected to jump ship and use that unit because that's how Madding on fixed growths was designed.

Obviously there are exceptions where some units are just worse that the ones before them, like Chloe could be made the case that she should be in her own group just purely because she never falls off and Rosado and her use different weapons but they are both physical flyers which is why I looped them together. Bunet is just not good so don't ever use him.

This is the big problem with engage is that they expect you to use certain units at certain points meaning the system that is meant to make maddening a "fair challenge" just doesn't do that, and that's what annoys me about engage is the first time through maddening fixed growths, I haven't beaten maddening yet because of this problem. Because I want to use certain units and the game doesn't like that.

This is why I think many hard-core fire emblem fans just don't like Engage.

#fire emblem #Out of left field rant #fire emblem engage #The problems

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lemon-juice-thief · 7 months

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undyne giving me heart palpitations

#undertale #i’m not even doing genocide. i’ve beaten undyne before. uhm.#the problems

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flyingfishtailoutpost1 · 9 months

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Pardon my panic attack

Less than a week before school employees have to start, a week and a half before kids go back, New Job hasn’t had me in to sign paperwork yet. I have no idea when they want me to start, I can’t set a schedule with Existing Job (which I can’t quit because her other guy is in the hospital and I’m her only functioning employee) or set up a childcare schedule. Just found out that Existing Job Boss tested positive for Covid the day after I spent 4 hours sitting in her office helping her sort paperwork. What happens if I come down with Covid on the first day of school???? What happens if I come down with Covid before I sign a contract???!!!?????

#ahhhhh!!!!!!!#The Problems

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avantikasfreakingknife · 1 year

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from one of 3 rpgs I'm involved in rn (not vtm or the one I dm) and if my party finds this hi there stop having dentist appointments on saturdays

#rpg #the problems #thats us #dnd party #sketches #drake #dorian #galatea #alaina

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lucatielsgirlfriend · 11 months

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writing a list of symptoims sucks because i can’t just write “THE problems” and have them understand. And also it’s like am i allowed to just give a GP a piece of paper? I think it’s pretty well written. Also will they read it all or care OR will this get me The Scrip

#THE problems #also writing the list was actually helpful mentally imma do this this some more

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nochiquinn · 10 months

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this post is probably gonna end up in drafts for a while, bc I'm about to dump a lot of stuff and I'm not putting it behind a cut.

I've talked about the stuff with our property tax, but I don't think I've really laid out what it means. If we cannot pay our property tax, they will evict us from our home. We will be homeless. I've said that part. here's what I haven't laid out.

I have someplace to go. My parents will take me back in. My depression will skyrocket and I'll lose my only means of making a living due to their substandard rural internet, but I'll have a roof over my head. But my partner can't come with me. While they'd probably gladly also take in my kid, I am not her legal guardian in any sense. Her parents would have to sign over custody so I could make necessary decisions wrt her medical care, school stuff, etc etc. All the parent stuff I can't do.

I am in a polyamorous relationship. My partner is married to someone else. "My kid" is legally and biologically their kid, I am a legally "unofficial" third parent. (We usually introduce me as her godparent.) For this reason, my lack of any legal ties to any of them and their status as a legal nuclear family, any temporary housing they find will not allow me to come with them. I would have to apply on my own, and my employment status doesn't give me great odds. The one place they can possibly go doesn't have room for me, just the three of them.

In extremely plain language, if we lose our house, I lose my partner. If we lose our house, I lose my kid.

My partner is currently not working. We can survive on his wife's income, but just barely. Our plan was to take a little off the top of each of her paychecks, so 4-5 times a month, and use that to pay. We can't do that now. As it stands now we would need around $800 a month to make the payment in time.

I don't know. I just needed to lay out the actual stakes I'm facing, I guess. We have tried so, so hard - my partner has tried so, so hard and we just keep getting knocked down. Not to sound petulant, but it's not fucking fair. and I don't know what to do anymore.

#text #the problems #I don't usually talk about the polyam stuff #bc there's always someone going 'well this is what you get'#'should have found someone of your own'#or calling my partner a unicorn hunter #or finding some other way of invalidating us #and I just don't have the emotional bandwidth to deal with that

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pureanonofficial · 2 months

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I took my love and I took it down I climbed a mountain and I turned around and I saw my reflection in the snow-covered hills 'til the landslide brought me down

#Chess #Chess the musical #Florence Vassy #Freddie Trumper #Frederick Trumper #chessedit #chessthemusicaledit #Jodi Benson #Kim Strauss #florencevassyedit #fredericktrumperedit #freddietrumperedit #pureanonedits #theateredit #musicaledit #The Problems #Fleetwood Mac and Chess continue to be a match made in heaven.#anyway Jodi Benson Florence is achingly lovely and amazing.#And she makes Someone Else's Story HIT like nobody else.

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gideonthefirst · 5 months

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at the point where i’m wishing i was sick enough to need to be hospitalized which i’m sure is indicative of a super healthy and stable mindset

#i want to not. Have to do anything #and also [expunged summary of hannah moskowitz’s hit novel break]#personal #the problems

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vilea777 · 1 month

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sorry i cant hang out i forgot how to mimic human like behaviour

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sunbentshadows · 2 months

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Hey all, you know how internet searches suck now? When the results are awful, full-of-AI, death-of-the-internet levels of bad?

Start appending date constraints to your searches - "before:2023".

My results have gone from 90% AI bullshit to ~60% usable - which frankly at this point is a huge improvement.

#information death of the internet etc #legit this has been SO SO helpful #shout out to mastodon infosec server for this one #before 2022 we did not really have the AI-content-farms because. the tech did not exist to the public.#and you can knock back the date if need be #obviously this does not FIX the problem but #me.txt

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dikdikpronouncedxylophone · 7 months

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The most terrifying part of having memory issues is when you can feel something from 5 seconds ago be thrown out the window and there's an empty hole where it once was. You remember that you forgot something.

#amnesia #adhd #memory #memory issues #memory loss #adhd problems #neurodiversity #neurodivergent #amnesiac disorder

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