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#fibro warrior
not-your-pussikat · 7 months
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Suffering from fibromyalgia is a bit like playing Russian Roulette without the dying---you never know which body part will become unusable from overwhelming pain on any given day.
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violet-phoenix-nebula · 10 months
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I've recently found out that July is disability pride month.
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I personally still struggle to apply the word disabled to myself, primarily because of the classic 'not enough' mindset. I was diagnosed with fibromyalgia a few months ago, after my symptoms worsened drastically following a car accident and concussion.
Maybe it's partly because this time last year, most of my body worked the way it's supposed to, minus some pain.
Maybe it's because I can still walk and function, though the duration and frequency I'm capable of has plummeted.
Maybe I would still feel 'not disabled enough' if I was paralyzed. Who knows. But 'disabled' is a word I struggle with right now, despite fibromyalgia being listed as a disability. Classic imposter syndrome, really.
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However, it's a lot easier to use the words 'disability' and 'disabled' when talking about my 3 year old daughter.
Not because she's currently, actively disabled in the way adults with Ehlers-Danlos Syndrome are, but because of how likely it is that she will be disabled to some degree as an adult.
My 3 year old, who has already had a dislocation.
My 3 year old, who has been in physical therapy since before she could sit up.
My 3 year old, who will most likely be in physical therapy her entire life.
My 3 year old, who won't be able to play the majority of sports in school.
My 3 year old, who will inevitably notice all the things her (fraternal) twin can do that she can't.
My 3 year old, who already knows when to bring me the children's tylenol.
My 3 year old, who is already familiar with chronic pain.
I'll tell you right now, that last one is gut wrenching. To know that my tiny, innocent child deals with chronic pain already... There truly aren't words.
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So, while I'm still a bit uncomfortable "claiming" disability pride month for myself, I will loudly claim it for my child.
Fibromyalgia flag credit: @bees--on--toast
Ehlers-Danlos Syndrome flag credit: @eddies-spaghetti
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calmmyfears · 1 month
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My physiotherapist told me today how proud she was that I made it to the concert in Brussels. “You basically ran a marathon,” she added. And I completely agree 😌
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wynndigogh · 2 months
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The universe knows when you're having a crappy day...
Day 8 of unbelievable pain from fibromyalgia flare-up, had to go to doc, listen to all the BS testing they want me to do, have my blood drawn, it started off a crappy day until i got to work and my boss walked up and said "I have something for you".
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Thanks universe, I needed the pick-me-up.
I can fight the pain another day.
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patchyourbrokenwings · 3 months
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i've been motivating myself through 18 months of physiotherapy this far, i think i deserve to be kind to myself :)
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Support me on Ko-Fi <3 I also have a shop [here]
Follow my main blog (here)
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rivernoise · 1 year
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My Nervous System is not being Sympathetic omg send help
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syladelphia · 4 months
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new year, new tears :,)
while hoping to use this blog more this year, i wanted to say— i’m sincerely grateful for all of the support on the fibro post. but it also hurts seeing so many people relating, because i wouldn’t wish this on anyone. however, this has been comforting to see, too; none of us are in this alone, especially with the internet to connect with our unique communities and feel seen and heard.
my heart aches every time i read tags from other chronically ill/disabled folks saying they feel invalidated in their pain, or afraid to use mobility aids, etc. i’m forever sending love and strength and empathy in solidarity with y’all. we all deserve to be believed, and to be able to use aids and tools to live our lives like anyone else. we deserve comfort like anyone else where possible too.
wishing all y’all in the disability community a safe and happy new year. take care loves, and thank you again 🫶🏻
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In my 50s and still missing Mum.
Friends online and irl help.
Fibromyalgia Warrior (disabled)
Type 2 Diabetes. Asexual.
Love reading, music, comedy. XFiles. Doctor Who, Staged. Good Omens forever.
Love David Tennant, Michael Sheen and
Neil Gaiman.
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audreygianelliart · 6 months
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I was a fibromyalgia crisis when I draw this, the feeling to be prisoner of your own body, it’s sometimes terrifying
Special tribute to all fibro warrior and every person living with an invisible illness.
Day 21 : CHAINS
Made with @copicmarker_europe liners.
#inktober #inktober2023 #inktoberchains #inktoberday21 #drawing #inktoberday21chains #fibrowarrior #fibromyalgia #fibrowarriors
#audreygianelli
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eclectic-ways · 1 year
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Hey there! There have been confusions as for what and how I am. This post is mainly to clarify certain things and to summarize who I am, I guess.
I’ve always hated doing descriptions about me and what I do so I’ll try. I’m a very curious and information thirsty person. One of my main characteristics is that I am very versatile and controversial in almost everything. I am also a Heyoka Empath with psychic abilities.
I stopped trying to fit in one category long time ago. So here we go…
I am an Eclectic Witch who is on the Middle Path. While I believe in God/Allah (Muslim); I also honor the virtues of science, The Left Hand Path, deities and more. I am on an endless journey with my studies and practices. I do all kinds of witchcraft and practice occultism.
I still don’t feel comfortable giving names, but I am attached to one Daemon 🖤 who was introduced to me by a dark goddess (Indian Deity). They are all very precious and personal to me. I might give names in time.
I analyze everything in detail and dig deep both emotionally and rationally. That is my reality.
In my personal view, God is the creator. The angels and demons are all part of his system. If God condemned the entire Legion of the Ars Goetia, he would not have let them exist in anyway. They would have most certainly not been granted certain powers. The ultimate power and the creator, in my book, is God/Allah. I call God and rest of the divine beings (Djinns) divine forces all together.
I am also very into and a part of Astral dimensions. I’ve had so many past lives it’s overbearing. I am a starseed (not sure exactly which type — it seems I’m a mixed of them too 😅)
I am in love with Astronomy, Astrology, Mythology, Philosophy, Psychology and Anthropology. Music, Photography and Film are big part of me. I am fascinated by the Gaelic and Celtic culture. I have a deep connection with Water element. I can easily cry when in or on the sea (not ocean) without a reason. I love animals more than humans.
More personal info:
Born in February, 1989. I don’t care about pronouns. I’m just (mainly) a straight woman. I support LGBTQ community, but I refuse to write she/her on my bios.
Pisces sun & Virgo moon with Capricorn stellium (4) including my rising sign. Most of my placements are progressed hence I currently am more fire and air than everything. When you hate Aries all your life, and your sun becomes Aries for instance 💀
Some health issues I have:
Treatment resistant depression
ADHD
Dissociative Disorder
Insomnia & Parasomnia
Fibromyalgia
Arthritis
Borderline Personality Disorder
PTSD and more…
One of my hallmarks is that I broke my right femur 6 times and had 15 surgeries on the same leg since age 5.
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I was born in 🇹🇷 Türkiye, been living in LA/California since 2014. I travelled so many countries across the globe from Austria to Singapore. Still an undergrad on film directing major. Got a couple of credits left to graduate since… forever. I want to live in Europe once I deal with the things I need to.
This is my reflection account, not a personal account. You don’t need to know my real name. My art brand — © Eclectic Ways — stands for this reflection 🪞 Speaking of mirrors…
Anything harmful and evil that is sent to me, to my ways and close surroundings are immediately redirected back at its owner. I am protected. 🧿 Don’t even bother. For your own sake.
I might edit this section sometimes.
I will also include a major list post here soon.
Ciao ✨
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violet-phoenix-nebula · 9 months
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The most infuriating thing about being accused of faking, is the implied accusation of sacrificing everything you love for attention or clout.
I used to go rock climbing, hiking, and sky diving. I looked forward to the day when I could go back to doing those things.
But now? The chances of me ever being physically capable of those things again are really slim.
I deal with a lot of joint pain, especially in my knees. Think these knees are ever jumping out of a plane again? Probably not.
I deal with muscle weakness on a level I couldn't have even comprehended a year ago. Think they're gonna allow me to go out hiking again, like I've always wanted? Not likely.
I deal with mind numbing fatigue and brain fog on a daily basis. If you're gonna be rock climbing, you need to be able to stay alert and well focused. That's out of the realm of possibility now.
And the fact that I haven't been able to be the mother my kids deserve? That's a whole other level of guilt and self hatred that deserves its own post.
I can't be a good, fun mother. I can't be a good wife. I can't do 95% of the things I loved to do. I may very well never be able to do them again. The only goddamn reason I'm bothering to stick it out is that I don't want to devastate the people who love me.
My entire life is crumbling around me. I feel like I'm not worth anyone's time or love. I'm convinced I'm a burden on my family. I can't enjoy anything I used to and realistically, I may never be able to again.
The only thing I have left to live for is the feelings of the people around me.
But sure, I'm faking for attention, or what the fuck else. Yup. That makes total sense.
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calmmyfears · 3 months
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no more depression tips and lists of how to feel better, give me THE cure.
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Disabled Queer Atheist Female Facing Eviction - Emergency
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I have less than 5 days until I will no longer have a place to live and I have less than half of what I need in my account to purchase a larger vehicle to live out of, and don’t even have a vehicle at all after last week’s whole thing. Please do not ask me if I’ve looked into this, that, or the other thing, because the answer is yes. I have tried every program. Every thing this county has to offer and the best choice for me, for my mental and physical health is to live out of a larger vehicle that is purely mine. I need my own space to retreat to, and a bedroom in a house full of people doesn’t quality. If you can spare anything please do so at the venmo QR code (ID) listed above, or at my GFM page here.
This is a true emergency. If I do not have enough money to purchase a vehicle by Sunday night, I will be forcefully evicted on Monday morning and will have no car, and absolutely no where I could go. Help me. Please help me. Please.
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moonchildmystic64 · 2 years
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Yup.
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