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Everything okay?
If you or someone you know is struggling with an eating disorder, you are not alone.
If you are in the United States, please try:
National Eating Disorders Association (support, resources, treatment options)
If you are outside the United States, visit IASP to find help lines related to eating disorders for your country.
For self-help courses on body image and general peer support, please try Koko.
If you need some inspiration and comfort on your dashboard, follow Post It Forward on Tumblr.
#tumblr#counseling#prevention#self harm#psa#Tumblr support#tumblr help#tumblr staff#eating disorder#recovery#treatment
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happy disability pride month to those with conditions no one talks about, online or in general:
multiple sclerosis (me lol)
marfans
cerebral palsy
bells palsy
hidradenitis suppurativa
cauda equina syndrome
mixed connective tissue disorder
hyperadrenergic pots
non hypermobile eds types
stickler syndrome
mitochondrial disease
cystic fibrosis
sickle cell disease
myasthenia gravis
post-cholecystectomy syndrome
SWAN (syndromes without a name)
...just to name a few. i see you and you deserve awareness and understanding.
this list is non exhaustive, rb with other conditions you want to see represented!!
[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]
#disability pride month#disability pride#cpunk#cripple punk#multiple sclerosis#marfan syndrome#cerebral palsy#bells palsy#hidradenitis suppurativa#cauda equina syndrome#mixed connective tissue disorder#hyperandrenergic pots#eds#ehlers danlos syndrome#stickler syndrome#mitochondrial disease#cystic fibrosis#sickle cell disease#myasthenia gravis#post-cholecystectomy syndrome#swan#syndrome without a name
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WOE!! PINKIE UPON YE!!!
#Pinkie Pie#mlp fim#MLP redesign#MLP fanart#mlp pinkie pie#my little pony#EDS#ehlers danlos syndrome
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steve: this definitely isn't what i imagined when you said you "performed magic in the bedroom"
eddie, all dressed up and ready to perform his magic show:
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this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.
im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.
we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.
you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.
please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".
#disabled#actually disabled#disability#physical disability#physdis#phys dis#autistic#actually autistic#heds#eds#hypermobile ehlers danlos syndrome#hypermobile ehlers danlos#adhd#actually adhd#ehlers danlos#fibromyalgia#chronic pain#cripple punk#cripplepunk#crip punk#back pain#chronic illness#chronically ill#incontinence#incontinent#disability rights#disability advocacy#disability awareness#disability pride#disabilities
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So my joints hate my (yay hypermobility!) So I just spent 2 hours creating an embroidery design that I'm gonna slap on some fabric, to make into cushions, to prop my joints up while I sleep so I don't dislocate anything!
Still gotta test it out and everything, but once I do, I'm planning on putting it up on my Ko-Fi if you guys wanna stitch out some OUCH things on your own
Ko-Fi
#eds#ehlers danlos syndrome#hypermobility#chronic illness#chronic pain#machine embroidery#sewing#acessibility
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If anyone is interested in a reference for Thabo! 🌈🎧🫧🌟🩵
He uses a lot of different braces : wrist brace, ankle brace, neck brace, KT tape for shoulders, Forearm crutches, Rollator, etc, all to help him with his EDS.
#my art#art#disabled artist#eds#ehlers danlos syndrome#ehlers danlos#character design#illustration#illust#character reference sheet#rollator#forearm crutches#disabled and cute#alt text in ID
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Every fucking bus stop should have a bench and I'm reblogging this for every minute I have to stand by disabled ass at this bus stop
#disability#disabled#actually disabled#eds#pots#fibro#ehlers danlos syndrome#postural orthostatic tachycardia syndrome#fibromyalgia
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Every now and again, I remember that my disability (EDS) isn't invisible, actually. People are just uncomfortable when they can see it. People don't want to see it. People like to ignore it. Other people just stare at it, and don't even look at me. All they see is a pile of bones and fascia and something to pity.
I've worn a shoulder brace the past week, because it subluxed horribly a week or so ago. Still healing. Visible.
I always have compression sleeves on my arms, full coverage. Bicep to wrist. Visible.
I have soft braces and compression kit for every joint imaginable. Visible.
I'm covered in KT tape. I've worn it on my goddamn face after a jaw sublux, for that little extra support and proprioception help. Tape. On the face. Very visible.
The people I've worked with for years are used to it by now, the good ones, at least. They don't remark when I take a minute to stretch. They know I'll say something if I'm not okay. They know I'm in a constant state of variable dysfunction. They've seen enough, they're used to it.
But then there's people who aren't used to it. People who see me stretch on the ground, watch in discomfort, then they ask someone else if I'm okay. I can hear them quietly mutter it to other staff. I hear them go, "oh, he does that". I can see their discomfort with me (just existing as I need to exist). I can see the discomfort in these new people who aren't accustomed to bodies with slightly different needs, and it's a visceral reminder of being "other". I wonder, how terrible and scary and different I must be, for them to not even have the fortitude to ask me themselves.
And then there are the new people who see it and ask too many questions. The ones who go "but you're so young!" as though my connective tissue has a concept of social expectations for people under (arbitrary age). They go "but you look great!" as though I'm not covered in bruises and held together by tape (nevermind the implication that the disabled must look "bad"). They go "but you never call in!" as though I'm not often two seconds away from doing so, before the fear of losing my job sets in.
...and these are the ones who seem to wish not to see it the most. The ones who ask questions like I should be on display, and as soon as the conversation ends, so does my disability. They'll ask the same questions the next time, and the next time, and the next. It always ends with statements of pity, or something pity-adjacent. If I'm "lucky", they might even make an inappropriate comment about how I shouldn't be working, or sex must be "interesting", or act like I'm some eldritch horror that shouldn't exist.
And I'm reminded of the training I was once made to sit though. A ninety minute training, where you sit and watch the PowerPoint for ninety minutes in a too-small plastic chair, while someone reads the PowerPoint. The presenter started with a cute little "haha I know it's long, feel free to get up and walk around, or stretch".
I did.
I got up, walked myself to the side well out of the way of the tight chair lines, and laid down to stretch (a good spinal twist, loosen things up).
And she stopped the presentation.
She asked if there were any first-aiders present.
She was going to keep going on and on, until I heard someone say, "oh, he's fine, he does that." and a few "that's just (name), he does that". She started apologising profusely, waffling about how she thought there must have been a medical emergency, how people don't usually get up. She seemed baffled by the mere concept that someone would actually need to get up, and couldn't sit for ages. Her statement was entirely performative and insincere.
Today, after the day was effectively done, I laid down on the clean, carpeted floor in my classroom to just...be horizontal for a moment. Find some way, any way, to get my lower back to move and function and not feel like it was being clawed apart from the inside. Relieve myself a little, so I could finish the day without abject misery. And this very-new member of staff sat on the other side of the room, presumably watching me. When I got up, she asked very quietly, "Is something wrong with you?" and all I had the energy to say was "I'm fine". I'm tired of explaining my body. I'm tired of explaining my needs. I'm tired of justifying taking care of myself.
Someone recently told me "You're very brave. I think I'd rather die than live like you."
I didn't respond. I didn't have the energy to break down that she'd effectively told me I should die. I didn't have the energy to tell her that it's not bravery to live "like this".
It's my only option.
I know nothing else.
And I'm just tired. And hurting.
I'm grateful for the few good ones, the ones that are used to it. The people who have stopped asking me if I'm okay when I stretch, or need a little break, or get out the tape and scissors.
They know I'm not okay. That's why I'm on the ground. That's why I'm checking my range of motion, or feeling a joint, or holding pressure on a digit that's come undone. I'm not okay, and I'm trying not to get even worse.
I'm not okay, actually. I'm never okay, and that's fine. I'll never be your version of "okay", and that's fine. I've no choice. Thank you for knowing that I'm not okay, but that that's normal, and that if something was seriously, horribly wrong, I'd do something. Thank you, for just going about your business and talking to me as normal when I'm taking care of myself, instead of sprinkling eggshells on the ground for your own personal crunching.
I'm just tired. I'm visibly disabled if you look for ten goddamn seconds. I'm a person if you look for twenty. I'm a fetish if you just keep staring and staring and asking about my body like you're entitled to my flesh. I just want to sleep for more than two hours without my body waking itself up to remind me it hurts. I'm so tired.
#hypermobile ehlers danlos#ehlers danlos syndrome#ehlers danlos zebra#chronic pain#chronic illness#chronically ill#chronic fatigue#spoon theory#spoonie#vent post#vent#invisible disability#Heds#Eds#knv writing
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PSA
-OCD is not a synonym for neat or preoccupied with tidiness. Obsessive-Compulsive Disorder is all about distressing intrusive thoughts and rituals (compulsions) used to combat those thoughts.
-Intrusive thoughts are not synonymous with silly things I want to do. They're deeply upsetting, often taboo mental apparitions. Letting them win is the last thing anyone wants, and nobody is immoral for having them. (See 'impulsive thoughts' if you need a term.)
-Anorexic is not a synonym for thin or emaciated. The majority of anorexic people have OSFED atypical anorexia – that is, their BMI is above 18.5. You cannot judge the severity of someone's illness by their appearance. (If you're worried about someone, look out more for rapid weight loss than thinness, even when it's occurring in someone in a larger body. 10kg in 10 weeks is never a good thing.)
-Eating disorders are not synonymous with just anorexia and bulimia. Anorexia is an ED, but it's nowhere near the most common. Bulimia is an ED, but again, not the most common. Together, they do not constitute the most common. The most common ED is binge-eating disorder, and the second most common is atypical anorexia, which is one of many, many OSFED categories. Those living with ARFID, pica, night-eating syndrome, rumination disorder, subthreshold BN, subthreshold BED, and orthorexia all deserve dignity, compassion, and acknowledgement. Remember: EDs are not necessarily thin, and never glamorous.
-Schizophrenic is not a synonym of all over the place, abnormal, unpredictable, dangerous, or crazy. Nor is schizoid or schizotypal. Folks with schizophrenia spectrum disorders live with hallucinations, delusions, disorganised thoughts/behaviour, and/or catatonia. They are far more likely to be victims of violence than perpetrators, and go to huge lengths to act okay even when distressed by symptoms.
-Schizophrenic is also not a synonym of multiple personalities/volatile. For the disorder involving having different facets of personality that are generally unaware of each other, see Dissociative Identity Disorder, and even then, don't assume it's a) dramatic as it is in the movies; b) evil; or c) trivial. DID is a trauma disorder.
-Delusional is not a synonym of wrong. Nor is it the same as this politician/friend is saying something I do not like/that is potentially dangerous. Delusions are false, fixed beliefs held despite evidence. And generally, folks with delusions don't tend to proselytise them. I know that certain politicians have beliefs that seem to persist in the face of evidence, but nevertheless, we don't need to stigmatise mental illness further to call out poor political/social behaviour. If you need a word for the pundit spewing potentially dangerous content, use 'dangerous' or 'wrong', but don't call them delusional.
-Bipolar is not a synonym of all over the place or fluctuating results. Bipolar disorder involves mood states that, even in the rapid cycling form, tend to last at least 3-4 days (mania) and weeks (depression). If you need a word for the weather, use 'British' instead.
-Psychotic is not a synonym of evil. Psychosis is losing touch with reality, whether it be through hallucinations or delusions. It doesn't make a person bad or violent. It's just a neurological phenomenon that may be distressing. It's also relatively common: 6-15% of people will hallucinate in their lifetime.
-ADHD is not a synonym of just quirky/scattered/forgetful/unfocussed/lazy/careless. ADHD is fundamentally a disorder of being able to choose where to direct attention, rather than of just I can't focus. If someone can't tune out the noise of the crowd, but can't prevent themself focussing on something trivial because their brain is wired that way, it's not laziness or just being quirky/scattered.
-Autistic meltdown is not a synonym of temper tantrum.
-Borderline is not a synonym of harridan.
-Narcissist is not a synonym of abuser.
-Mentally ill is not a synonym of volatile or bad person. This doesn't mean we have to make something artificially positive out of mental disorders. If there is good to be found in certain disorders, great; if there is nothing positive about living with certain others, that doesn't make you any less real or resilient than anyone else. It's okay to have complex feelings about your own disorders. It's okay to feel exhausted or frustrated by a disorder. But never should anyone have to face stigma.
#vent post but also important#ocd#intrusive thoughts#eating disorders#eds#schziophrenia#delusions#bipolar disorder#bipolar#psychosis#adhd#bpd#npd#cluster b#mental illness discourse#i want to make this for a couple of reasons:#a) i have intrusive thoughts (and possibly inserted thoughts) and they're awful#b) i've had OSFED and seeing the AN = thin stereotype is... frustrating#c) so so many people live with the other disorders on this list and don't get help and support because of stereotypes#d) so long as stereotype persists the medical system will not acknowledge the needs of its patients#e) while i don't have the right to speak over anyone with any of these disorders i can at least try to start a conversation#those of you with the above disorders: feel free to correct me if i stuffed up a detail#nt people you may interact with this post#everyone: feel free to add more to the list
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This is so fucked up. This article is from 2017 but afaik is still accurate. Let me know if anything has been done about this since then - possibly during the early pandemic?
TL;DR most medications seem to be stable for leagues longer than their expiration dates say, and their expiration dates have been extended federally after doing periodic potency testing with the drugs hoarded by the US government, but the FDA refuses to extend the official expiration dates. It's illegal for medical professionals to dispense expired drugs, so perfectly good medications are being thrown out constantly.
#health#medication#disability#medical treatment#fda#chronic illness#chronic pain#actually disabled#pots#fibro#fibromyalgia#eds#tagging all my things#cfs
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your honor i love her
ID in alt text!
#i will not shut up about her#charlie webber#charlotte webber#sunspider#sun-spider#edge of spider verse#across the spiderverse#described#alt text#my art#heds#ehlers danlos syndrome#eds#disabled art#disabled artist#wheelchair user#wheelchair art
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trans eddie buying a glow in the dark strap and turning out the lights so he can start swinging it around and make lightsaber noises
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i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.
fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.
#fatigue#chronic fatigue syndrome#cfs#myalgic encephalomyelitis#cfs/me#chronically chill#chronically ill#actually disabled#fibromyalgia#arthritis#multiple sclerosis#hypermobile spectrum disorder#hypermobile ehlers danlos#heds#eds
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Doctor Who - Season Twenty Four
Think about me when you're living your life one day after another, all in a neat pattern. Think about the homeless traveller and his old police box, with his days like crazy paving.
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