#heds | Explore Tumblr Posts and Blogs

ashthenerdtheythem · 3 days

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Why are abled people so OBSESSED with telling us to go out and exercise!!! I have been in a flare-up for 2 weeks, I can barely move, I am dizzy as fuck, standing is fucking excruciating, GOING FOR A MOTHER FUCKING WALK WILL NOT FIX THAT!!!

#cripple punk #chronic disability #disability #chronically ill #chronic pain #chronic fainting #chronic illness #chronic fatigue #heds #hypermobile ehlers danlos #ehlers danlos syndrome

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defiantcripple · 3 days

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FIRST SUBLUXATION JUST DROPPED

This feels like a milestone I should celebrate, but we all knew it was going to happen in a mosh pit, right?

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pinkdovess · 2 months

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this meme is so niche

#HEDS #wheelchair #rollator #crutches #walker #mobility aids #cripplepunk #actually disabled #ambulatory wheelchair user #the kitten brothers

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chronicallydragons · 3 months

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anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

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stellaltumi · 1 month

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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

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chronic-counter-user000 · 3 months

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dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.

listen to kids. we tell you what we need, it's not that hard.

#heds #hypermobile eds #chronic illness #chronic fatigue #chronic pain #chronically ill #invisible illness

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love-me-love-my-weirdness · 1 month

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I think the reason why people want to know what's "wrong" with disabled people is because they want to reassure themselves.

They want you to say you were in a horrific accident or that you have a well known and treatable disease because they think they can stop it happening to them.

They think their health is a given because they aren't a dangerous driver/ an alcoholic/a drug user/obese/an unhealthy eater etc. Obviously this isn't true but it's easier for them to think of it like that.

Until one day they meet someone who did nothing. They're not really asking "what's wrong with you". They're asking "what went wrong" because they think they can avoid it.

So when they meet someone who made all the right choices, who was healthy, who was safe and one day woke up sick and never got better, it scares them because some part of them realises that it could happen to them.

They can exercise and eat a balanced diet and be as careful as possible and it doesn't do a thing and they can't do a thing about it. That terrifies able bodied people.

People like to look for something or someone to blame and they hate it when there's nothing there.

#chronic illness #chronically ill #fnd #chronic fatigue #actually chronically ill #chronic pain #pots #heds #actually disabled #ableism #disabled #physically disabled

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sillyfroggremlin · 5 months

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people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired

#i cannot stress enough how #i am people #people is me #i dont know whh i forget so often #i was just thinking this though and... its because i have chronic pain and chronic fatigue??#yeah #anyway #heds #chronic pain #chronic fatigue

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800-dick-pics · 16 days

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Help a chronically ill person eat!

Hey im struggling to eat any soilds due to being in a pretty bad chronic illness flare. I cant keep anything soild down so I need liquid nutritional shakes to help replace the calories im not getting from soild food. The only brand my stomach agrees with costs $30 for 6 shakes so Im really not in a place to buy 2-4 boxes at the moment.

If anyone could help me get a few boxes of shakes that would be amazing! $90 would get me 3 boxes!

CA: $sleepyhen

VN: wildwotko

Dm 4 Paypl

#chronic illness #chronically ill #heds #gastroparesis #spoonie #im living off of broth and yogurt so if you can help

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1980s-slasher-film · 1 year

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Accommodations are not special, they’re not a leg up, they’re not a benefit. They’re not putting anyone ahead in the race, nor are they taking anything away from others.

They exist to put us on a level playing ground to everyone else, and nothing more.

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crippledpunks · 2 months

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chronic fatigue is such a bitch because it's not super obvious at first. it creeps up on you some days, but other days, that's just the entire day. you start your day exhausted as hell, and like yeah, you're aware that you're tired, but you blame yourself for feeling this way. it's always your fault somehow. then comes the end of the day and you realize that it was your chronic fatigue, and you blame yourself for beating yourself up all day long. you can't win

#actually disabled #disability culture #chronic fatigue #cfs/me #cfsme #chronic fatigue syndrome #fibromyalgia #arthritis #psoriatic arthritis #heds #hypermobile eds #chronic pain #cripple punk #crip punk #cripplepunk #disability rights #disability advocacy #our writing

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defiantcripple · 2 months

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Using a mobility aid when you need one is an act of self love <3

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aestheticofalifetime · 3 months

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Me when my disability disables me

#heds #hsd #ehlers danlos #ehlers danlos syndrome #hypermobile eds #hypermobile ehlers danlos

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forsakeofabetterusername · 3 months

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I made a zine about adjusting cheaper wheelchairs, after adjusting my NHS wheelchair.

Notes: Your wheelchair ‘service manual’ is a good resource for adjustments! You can often google them. Also, with the wheel adjustments, be prepared to move the breaks. Google how to measure for a wheelchair to find your seat width, and if you want to get extra, look at seat depth. Leg length is usually done by adjusting the footplate height.

Image description and printable version under the ‘read more’ .

Image Description:

An 8 page zine. Both images have the same content but the first one is arranged to be read on a computer. I am going to describe each page.

First page reads “A cripple’s guide to.. making a cheap(er) wheelchair work for you” and in smaller writing “by Sock - who uses an Invacare Action 2NG”. There is a drawing of a wheelchair in the centre.

Page 2 reads “Choosing a wheelchair. Look for adjustability (can you change wheel height? COG?), seat width (as close to your size as possible), and arm rests that can be lowered/removed.” Each item has a small drawing illustrating the point.

Page 3 reads “Adjusting a wheelchair. You will need… Allen key set (bike ones are good!), Pliers (for holding bolts) and Phone (for access to manuals, taking photos at each step.” Each item has a small drawing of it.

Page 4 reads “1. Adjust Wheel height. This can be done where the wheel “plugs in”. Your fingers should touch the wheel hub centre. If you can, move the wheel forward too (centre of gravity adjustment).” There is a small drawing of the wheel base, an arm reaching down to touch the centre of the wheel and a wheel base with an arrow pointing to the right showing it being moved.

Page 5 reads “2. Arm rest adjustments. Get your armrests as far down and as far back as they go. I keep mine on because of muddy weather/to protect clothes from spokes but you can also just remove them!” There is 2 drawings of a rounded and straight arm rest.

Page 6 reads “3. Modding castor wheels. Adjusting the height will change the seat angle. Smaller castor = easier turning, but makes rough pavements harder.” There is a drawing of a tilted chair with big castors and a straight chair with small castors, with a double pointed arrow between, with the caption “Play around!”

Page 7 reads “4. Footplates. You can take the footplates off and toe propel. You can make a foot sling out of a belt/luggage strap/paracord.” Both have an accompanying illustration. Then there is a note saying “if you have poor circulation, weakness, etc. oh might just want to keep the footplates on”.

Page 8 reads “5. Cushion. You need a cushion for your chair. Depending on how long you sit/how bony you are, you might need to spend a little more” then “£: Foam. ££: pressure relief cushion. £££: EBay/second hand for jay, invacare, low zone etc.”

End.

Printable version:

#forsakeofabetterarttag #hope this helps someone #wheelchair #nhs wheelchair #hospital wheelchair #cripplepunk #physically disabled #heds #spoonie #potsie

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enbycrip · 7 months

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It me

#disabled #disability #chronic illness #chronic illness shitposting #chronic fatigue #chronic pain #pots syndrome #heds

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eggings · 10 months

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happy disability pride month to anyone who has a disability from a condition that “usually isn’t a disability”. happy disability pride month to people with disabilities that aren’t often understood by able-bodied people. happy disability pride month to people who don’t have any official diagnosis yet. happy disability to people whose “labs look completely fine”. wishing you peace this july.

#first sentence is phrased a little weird but i’m mainly referring to adhd #and the amount that it is not taken seriously even when it majorly affects someone’s life #anyways sorry if i phrased anything bad these are all based on personal experiences #actually adhd #actually autistic #adhd #autism #ocd #pots #heds #fibromyalgia #disability pride month #chronic pain #sleep disorders

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