"You're so lucky! I wish I could just stay at home all day instead of going to school or working"

I have to go to school/work just as much as anyone else does, the difference is that I physically can't. Not having the same choice as abled people does not make me lucky. Staying at home because I can't go to school or work does not mean I get to do whatever I want. Staying at home every day without being able to do anything is not fun. Not being able to do anything but lay down in bed or on the couch gets boring really fast. That's not even taking the chronic pain I endure into account.

Being chronically ill is not being lazy. It's not a choice, or something anyone would choose. It's a disability.

can we stop making things meant for disabled people a trend and making it 100x harder for disabled people to actually be able to get the things they need?? please?

I met with my psychiatrist today, who is absolutely wonderful, and asked for her opinion on what my cardiologist had told me. She basically said, that because my symptoms started before my medications, it is unlikely the medications have caused the symptoms I'm experiencing. She said a lot of doctors see people who struggle with psychiatric problems and blame those problems/medications right away, but she said she would seek a second opinion. She also said that if she ever makes me feel like this doctor has made me feel to tell her, because she never wants to make me feel this way. Seen as my psychiatrist has known me for almost a whole year now, I'm going to trust her judgement and agree with her, and go see this new doctor in May and see what he has to say. I can't even express how much I appreciate my psychiatric care team, they do so much for me and always listen, I can't imagine seeing anyone else.

Disability hearing went weird today. They had an "expert" cardiologist who completely ignored my diagnoses and then proceeded to tell the judge he thought I had somatic symptom disorder.

I was literally sobbing by the end of his testimony and the judge practically booted him from the call as soon as was possible. I now have a psychological evaluation sometime in the next month.

My lawyer said the judge appeared to not be happy with the way the "expert" treated me and my health issues and that the so called "expert" had been super unprofessional and that all and all it might end up helping my case still. But damn talk about traumatizing as fuck. My friend had to calm me down after all was said and done, I was crying so hard.

The amount of people from my neuropunk/madpunk/cpunk post that are like "Umm... well all of these EXCEPT paraphilias because those are BAD!" Do you realize the harm you're doing? That IS ableism my dude. Mad pride includes all stigmatized disabilities. If you can't align yourself with the liberation and support of all disabled people then DON'T align yourself with madpunk or cpunk or punk to begin with.

I won't even get into how not all paraphilias are disabilities rn either because then I'll have to explain all of that and watch it completely go over everyone's heads.

10 children a day lose their limbs in Gaza. All hospitals in Gaza are basically barely functioning and the amputations are done in unsanitary conditions and without anesthesia

• Fidgeting and stuttering do NOT always indicate that someone is nervous.

• Avoiding eye contact does NOT always mean someone is lying.

• Having a hard time focusing does NOT always mean someone is lazy.

• Carrying around a stuffed animal or blanket does NOT make someone childish.

• Poor motor skills is NOT a direct indication of intelligence.

Not everyone fits into your box. Deal with it.

shout out to “gross” disabled people.

people who can’t shower/bathe people who can’t shave people who can’t wash their clothes people who need help going to the bathroom people who have nasty habits (biting nails, picking nose, etc) people who can’t brush their teeth people who can’t go to the doctor people who can’t clean their room people who can’t make their beds people who vomit a lot people who wet the bed people who constantly have diarrhea people who’s physical deformities are seen as repulsive

and every other kind of person I missed that deserves to be here too.

you are people, first and foremost. your thoughts deserve to be heard, discussed, acknowledged, no matter what. you are not lesser. you are just another person. you should never be ignored for what you can/can’t do. you deserve care.

to abled people: check yourself. make sure you listen. and you can reblog, just don’t derail. maybe don’t add on, either.

EDIT: reblog this version instead, please.

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

here's to all the little sacrifices we have to make as disabled people.

here's to skipping a friend's party because you were in too much pain, or because you had no energy.

here's to dropping out of clubs because they became too much for you.

here's to all the times we've said "no it's okay, you guys go ahead, i'll hang back here."

here's to all the things we've held ourselves back from just in case they hurt us.

here's to moving seats in class away from your friends because your back was getting a draft and the cold hurts you.

here's to us. here's to letting ourselves heal. here's to being cautious, being safe.

here's to the things we can do. the things we're allowed to do. here's to enjoying those things, enjoying our lives.

here's to making the most of being us.

do I need to have cute colorful mobility aids?

no.

but will I anyways?

abso-fucking-lutely

i love you shower chairs i love you pain meds i love you canes i love you wheelchairs i love you braces i love you crutches i love you nausea meds i love you inhaler i love you weighted blanket i love you ice pack i love you heating pad i love you loose clothing i love you giant water bottle i love you help from other people i love you mobility aides i love you disability aides

Gentle reminder that you can be 100% pro choice and still understand that aborting a fetus because it will be disabled as a human is a eugenicist idea that comes from absolutely horrifying ideas that have been placed in western culture as a result of more overt eugenics movements in our past.

I ain't wrong

Gazal was wounded on November 10th, when, as her family fled Gaza City’s Al-Shifa hospital, shrapnel pierced her left calf. To stop the bleeding, a doctor, who had no access to antiseptic or anesthesia, heated the blade of a kitchen knife and cauterized the wound. Within days, the gash ran with pus and began to smell. By mid-December, when Gazal’s family arrived at Nasser Medical Center—then Gaza’s largest functioning health-care facility—gangrene had set in, necessitating amputation at the hip. On December 17th, a projectile hit the children’s ward of Nasser. Gazal and her mother watched it enter their room, decapitating Gazal’s twelve-year-old roommate and causing the ceiling to collapse.

UNICEF estimates that a thousand children in Gaza have become amputees since the conflict began in October. “This is the biggest cohort of pediatric amputees in history,” Ghassan Abu-Sittah, a London-based plastic-and-reconstructive surgeon who specializes in pediatric trauma, told me recently.

i've said it already probably but ppl who don't use mobility aids. especially doctors. stop trying to get rid of other ppls mobility aid. stop making that a priority. stop it with the "we gotta get you off that [mobility aid]" "you shouldn't need to be using a [mobility aid]" "let's focus on getting you to where you don't need [mobility aid]" "a [mobility aid]? but have you tried [herb]/[medicine]/ [exercise]/[facebook hack]/[pseudoscience]/[meditation] instead?" "but you look old/cringe/weak/sick". shut up

i don't know why so many of y'all think my end goal is to stop using the thing that helps me. and i KNOW most of y'all wear glasses or contacts but you're not running around trying to find the solution to make you stop needing them. so quit doing it with every other aid just because it reminds you of old or sick people.

especially bc most of y'all don't want to have that reaction when it comes to chronic pain, fatigue or discomfort. i say "my joints hurt" you say "oh well :/". i say "i feel lightheaded all the time" you say "just push through it". i say "my stomach is at least a 7/10 on the pain scale every day" you say "are you sure it's actually that bad? maybe you're exaggerating".

but as soon as i pull out a cane, or a shower chair, or a spinny chair for when im cooking in the kitchen, and i say "finally, im getting really good help!" . that's when you care. and all you want to do is take that away as soon as possible.

you just don't want to fucking see disabled ppl be disabled.

you don't want to have to look at it. you don't want to have to listen to it. you don't want to have to be reminded of it.

but too fucking bad !! i don't care !! im naming and decorating my canes !! they will be the loudest part of my outfits !! the same will go for a rollator if i'll still need one in the future !! i'm going to talk about how i'm disabled regardless of if anyone else can hear me !! because i am !! why should i hide just because YOU don't like it !! close your eyes !!!!!!