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azztiph · 9 months

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Sometimes u just need to sob and scream and cry and bitch about ur disability

I think a lot of people feel like they need to be at completely at peace with their disability

And you don’t!

Be mad be sad be pissed off!

#disabled #disabled problems #disability #ehlers danlos syndrome #immunocompromised #rheumarthritis #chronic illness #autoimmine disease #angry cripple #this post is about physically disabled people #autoimmune #rheumatoid arthritis #cripple punk

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tinyleafkid · 7 months

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i don’t have many tumblr followers, but i’m desperate to get this as far out into the world as i can

i’m in desperate need of a wheelchair, and i don’t have the money to make that happen

please help and share if you’re able

https://gofund.me/81a4e7a4

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brain-n-body-in-disarray · 2 months

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It's the little things that hurts.

The way people don't get you can't do the things they do, at least without costing you so much.

The way the doors of shops or buildings used to fly open at the slightest touch and now they seems to weight a hundred tons.

The way my mother in law asked me if I wanted orange juice and when I said yes she put two oranges and a old manual juicer. I was too ashamed to admit how much it would cost me to do it this way. So I did it, fighting the tears and then couldn't use my arm for a week.

The way I can't get out of my apartment sometimes because even if there is a lift, there's also stairs between my apartment door and the lift and between the lift and the building door. Why make a lift at all if it's not even accessible because of the stairs? (I can't move out. I have neither the money nor the spoons.)

The way the new building the local bookshop moved into makes things so much harder for me than the old one. There was so much unused stairs that I could sit and rest for as long as I needed. Now in the new building the stairs are so narrow you can't think of sitting on them, you'll just block the way. And there's no chair or bench anywhere in this 4 stories building. You just can't sit and rest there.

The way the city is getting rid of public benches and putting in their stead blocks of concrete with metal spikes on them to dissuade homeless people to sleep on them, which is wrong on its own, but also impacts disabled people. There's less and less places where to sit and rest during a walk through the city.

It's people laughing when I can't open a bottle of soda.

It's people gossiping behind my back, saying "oh they are a junky" because I takes so many meds, including the ones for the pain, but not only for that.

It's me being too ashamed to be disabled at a relatively young age and having an invisible disability. It's me being too ashamed to ask for accommodations. It's me being too ashamed to ask for a seat in the bus when all of them are already taken. It's the society making me ashamed of myself.

It's life itself, mocking me, and the world joining in the good laugh at my expense.

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420spoons · 11 months

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Meme painting of a woman adorned in royal clothing and jewels. The text over the image reads, ‘Disabled people, watching all of the accommodations that were created because of COVID get ripped away as part of able-bodied peoples’ “attempt to get back to normal.”

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hannahcrazyhawk · 10 months

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We live in a world where chronically ill and disabled humans seeking help are treated like criminals. No one should feel like they need lawyers to litigate for their bodies and minds.

#chronic illness #spoonie #disability #sick and tired #neisvoid #human rights #hidradenitis suppurativa #eds zebra #autoimmune #medical trauma #rheumarthritis #crohn's disease #cfsme #chronic pain

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bittersweetcanary · 6 months

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Summoner who experiences Chronic Fatigue & Chronic Pain

How the Artw cast reacts to a Summoner with Chronic Fatigue & Chronic Pain. The gender of the Summoner is not mentioned, this can be read as enby, man, woman, trans, etc. :D

Special thanks to Cora ( @adcmans ) for helping me come up with ideas!!

BTW IF you want to add anything please do in the comments, I'd love to hear your ideas!! Or reblog!! :D

[Disability Rep | Pronouns of Summoner not mentioned | Gender of Summoner not mentioned | Some Suggestive Text | Tooth Rotting Sweet at times ]

Spica

Spica’s part has some stuff about the MC/Summoner to explain the context a bit.

You explained your condition to him first, less due to trust and more due to wanting to get accommodated for your disability ASAP, and not being totally sure how to go about that. He seems the most reasonable and accountable of the bunch.

At first, he didn’t quite understand but it certainly didn’t take long with your explanation of your condition. Spica helped you through the process of getting medication through the school due to your… Finances being… Low… (*cough* broke, poor, you have nothing now that you fell through a damn rift- *cough*) Luckily the school easily covered it, taking some of the weight of your anxiety off your shoulders. Wow, their Medicare system is nice. Unlike some places.

Since, to your surprise, Spica checked in on you frequently when you dozed off during meetings or when your pace would slow, asking if you were tired if something hurt, or if you needed to rest.

Spica went with you to pick up some school supplies from one of the village shops, mostly just plenty of pencils with big pencil grips which made it easier to hold. The number of times you’ve lost a pencil simply because it rolled off your desk is… To put it simply, a lot. And a backpack to carry your school stuff in as just holding it wouldn’t quite work for you.

You were quite anxious to start using a mobility aid because then you’d have to explain to everyone why… But Spica made sure to explain to the rest of the Guide Committee just why you were using forearm crutches so they wouldn’t bombard you with questions, after asking if that’d be alright of course.

Upon occasion when you were being stubborn, wanting to keep up with the others, Spica would pull you to the side (-if he had to he would grab your arm just above your elbow and sit you down on the nearest couch beside himself-) and would begin to lecture you- reminding you that it is ok to take breaks & rest. Followed by your comment about his sleep schedule had him stuttering for a moment before coming up with a “good reason” as to why that was totally reasonable. Your expression showed your opinion on that.

It’s safe to say you MADE Spica sleep more hours at night when you could, sometimes he’d be too stubborn. One time he was snappy about it, telling you off harshly though he did apologize later it still stung.

Spica immediately offered to help you ready yourself for the day if you ever felt too tired to do so alone, and you took him up on that offer sometimes, if he could spare some time away from his paperwork.

Spica was the first to offer to take you out for breakfast whenever he could, Arcturus sometimes joined the two of you if they happened to both be free though Spica preferred it to just be the two of you.

Pollux

Before finding out

In class when the Summoner would doze off he’d huff, and puff, but never wake them. Once they woke (or he woke them up after class) he’d chew them out over sleeping through class. Sometimes classes. Threatening to leave them asleep in the classroom next time. (which he never does, it doesn’t take you long to catch on)

You have caught him staring more than once, though you play it off as if you totally didn’t notice him with his head down beside you blatantly gazing at you with big stary eyes.

Sometimes when you’d be writing down your notes your hand would twitch and you’d drop your pencil, having pushed yourself too far. Pollux didn’t notice at first but when you’d take breaks from writing he’d ask why and you’d shrug off his question, picking up the pencil and beginning to work again.

And lunch… Pollux couldn’t quite understand why you’d sleep through lunch of all things, the food was always great. Especially the chocolates he usually kept to himself, that he’d brought as his dessert, he’d sometimes share with you and Arcturus.

Pollux never quite got how you couldn’t keep up with him when he’d run ahead, often telling you to exercise more. It felt insensitive, causing you to show him a bit of a cold shoulder afterward though you knew he just didn’t know about your disability.

Sometimes when you were quite tired and just so happened to be sitting beside Pollux you’d unconsciously doze off while leaning against his shoulder. Pollux would stare at you for a few moments after you leaned against him, then look away and cover his face with his hand, but remain still and quiet so as to not wake you. He would stay there till you woke.

Polly would make rude comments about your disgruntled unkept appearance on bad days, pushing stray hairs into place. Huffed and puffed when he tried fixing up your hair, he got better at that over time. It’s become a sort of daily routine for him to play with your hair during class, sometimes you’d play with his too, he loved it when you did and you could tell by how he squeezed his eyes shut and blushed.

After Spica’s explanation at the meeting

Pollux, much like the others, wondered why you weren’t there till Spica began the Guide Committee meeting. It’s safe to say a lot he was confused about was answered by Spica’s explanation. Why you doze off so much, and why your pencils all have those large grips… And the times you’d just dropped something… He brought up as much during the meeting as he found it concerning that you hadn’t told him, him!.. First... Spica was the most reasonable, he supposed, but you two were close!... Right? He’d work with you on assignments all the time! And share notes… And hangout! (totally didn’t say he wasn’t looking to make friends on day 1)

Pollux is a lil jelly that you didn’t tell him first- he pouts about it.

He was a little pouty around you after that but stopped trying to push you to keep up, or chewing you out over dozing off… Pollux slowed down to your pace whenever he realized he’d been walking at too quick a pace for you. He would constantly glance over his shoulder to make sure you were still there.

He MiGhT try to loop his arm around yours, or just blush a little thinking about it. Maybe if you offered up the idea first he’d go for it.

Alpheratz & Sirius missed the meeting… But Vega didn’t?! Maybe it’s that pathfinding magic, maybe it brought him there? Pollux eyed him up and down, sus.

Will chew anyone out if they harass or bother you at any point about your disability, yap yap BITE!!

The whole hair play routine you two had started kept up, though he’d offer to help you in the morning if that’s okay, totally understandable if you didn’t want someone in your dorm, but it's him so… It’d be ok, right? Just don’t let anyone else in, they might be bad people.

When he and Arcturus showed up at your dorm, they’d be surprised but they are both besties so they help you out together and sometimes you all go out to breakfast at a cafe as a group <3 Sometimes Vega, Alpheratz, Spica, or Sirius might join if they happen to stop by around the same time, or one of them may try to drag you off for themself…

Alpheratz

Before finding out

Alpheratz thought it was a bit weird that you napped nearly as much as him… More than himself sometimes but never questioned it. It was nice having a nap buddy, someone who didn’t nag him for sleeping so often.

After a while he began to expect you to show up at specific nap locations, he’d bring a spare neck pillow just in case you needed one. And a spare blanket.

Sometimes he’d catch you rubbing at your knees or ankles as if they hurt but when he’d as if something happened you’d say you were just a little tired.

When you would yawn constantly throughout the day despite having napped alongside him he suspected something may be wrong, occasionally checking your health with his magic but not totally understanding what he saw. Alpheratz began to look into possibilities while you napped in the library with him.

He never really kept his appearance up so when you looked messy it didn’t really phase him, though he’d ask teasingly if your messy hair was some sort of new trend.

Finding out

Slept through the meeting assuming it’d be something unimportant- immediately regretted it after Pollux filled him in after he asked you about your mobility aid while the three of you were out at a sweets shop. Alpheratz had been downright staring at your forearm crutches the entire way there, with a very concerned expression.

Pollux scolds Alpheratz- they bicker a little. It’s cute. Then Alpheratz shoves some gummy worms into Pollux’s mouth to shut him up. Pollux stares Alpheratz down, crossing his arms, frowning, and furrowing his brow as he slowly chews the gummy worms.

After finding out

Now he knows what’s wrong and has a better grasp of just what his magic was showing him when he checked up on you.

From then on when you’d nap together Alpheratz made it a habit to check your physical health status using his magic, just to make sure you were ok. Sometimes he would check in to make sure you took your medication, knowing how forgetful you can be.

When he could, Alpheratz would join you, Arcturus, and Pollux for lunch, to spend time with you and make sure you took your meds.

Sometimes, if you seemed more tired than usual or if he saw you over-exerting yourself he’d just pick you up and take you to a comfy spot to nap. After the first few times, you weren’t so surprised. But the first time… You nearly kicked him between the legs and punched his face- in your defense, you didn’t know it was him, AND like wtf- you both laughed it off.

Both of you worked together to make a little “club room” in the back of the library, you both deemed it the Nap Club Tent. It was a sizeable tent- (you guess the only reason the school allowed you to get away with this was because Alpheratz’s grandfather wanted Alpheratz to warm up to him) inside the tent were plenty of blankets, pillows, and a well-padded floor. Some plushies too, those were purely your touch at first, then Alpheratz added some that he thought you’d like.

Sometimes Alpheratz would offer to help you get ready for the day, a slight blush on his cheeks, then he would quickly offer to hire someone else to help care for you if you wanted.

When you’d go out as a group with Arcturus and Pollux for breakfast he would sometimes join, offering to pay for you and the others though sometimes he’d get up extra early just to take you out by himself.

Arcturus

Before finding out

Arcky found it odd that you would yawn so often, and how you seemed to occasionally limp, but if he pointed it out you’d brush it off and adjust your posture and how you walked. He’d frown, he wasn't sure what was going on but how you acted gave him a bad feeling.

Sometimes when you looked incredibly drowsy while standing he would ask if you needed to sit down with furrowed brows, just what weren’t you telling him?

When he would ask if something was wrong you’d change the topic with ease, Arcturus couldn’t remember what he’d asked after talking about some other random thing.

He had asked Spica if he noticed it as well… Which led Spica to ask you which kicked off the conversation.

Began occasionally stopping by your dorm in the mornings if he was free after seeing how messy and tired you looked most days, offering to help you prepare for the day. He helped when he could though he would often ask you why you looked so tired.

Finding out

Spica explains the situation to him first, being the only other Fili Pferer & Spica’s most trusted confidant. Arcturus was a little worried and sad that you hadn’t told him personally but understood it was probably difficult to talk about. Still pouted a little. But only a little!

After finding out

He helped to explain your disability to Vega and Pollux with Spica.

Later he ran into Sirius… After being chased by that big black dog!! Scary!! He updated Sirius on the recent meeting, assuming he’d just been too busy with missions to show up! Why else would his friend miss the meeting, he must’ve had a good reason! Though Arcky didn’t push Sirius to tell him why he’d missed the meeting.

Arcturus would constantly check up on you whenever he could. (when random Fili Pfere sorcerers weren’t dragging him around) Sometimes he’d go overboard and continue to ask you what he could do to help till you told him you were alright, only then would he stop and sigh in relief.

He likes to offer to make food for you, get you a drink, or sometimes he will just leave a snack with a cute little note wishing you well if he finds you napping. (with a little smiley face)

Will also cover you with a blanket and place a pillow beneath your head VERY CAREFULLY if you don’t already have a blanket and/or pillow.

Might gaze at you for a while if you doze off while hanging out with him before sputtering if you ask him why he was staring.

Began to make it a point to stop by your dorm in the morning to help you prepare for the day whenever he was free, knowing that sometimes just keeping up with your hair and skin care was difficult. Then he would walk with you to the cafeteria for breakfast.

Loves having breakfast with you and Pollux, he wishes the others would join you all more often!! Super excited and happy when everyone or almost everyone shows up!!

Vega

Before finding out

Vega arrived at the meeting right on time to Spica, Pollux, and Arcturus’s surprise. He felt that he should be there, for this particular meeting.

It was plain to see that you weren’t getting enough sleep, the bags under your eyes were telling and the yawning at 9 a.m.! Your symptoms stressed Vega out quite a bit to the point he would constantly be on you about getting plenty of sleep.

Might force you to go back to bed if you doze off during breakfast.

After Spica’s explanation at the meeting

Vega is incredibly worried about you. However, the way he shows this feels more like a nagging older sibling. Sometimes he would give you harsh lectures when you push yourself a little too far.

One time he offered to carry you when you felt too tired to walk, your knees hurting, but when he tried- he apologized so many times after you both fell. His cheeks were utterly red when he looked up at you, atop him, before you got up. From then on, when he was with you he made sure no one blocked your path.

“ MAKE WAY SUMMONER IS TIRED “

If you ever decided to bring up that one time he tried to carry you he’d just DIE.

Constantly offers to carry anything he can for you just to take some of the weight off your shoulders. He will do whatever he can to help.

Grumpy if he can’t have breakfast with you by himself. Might try to drag you away, if only he could. Will not respond to anyone unless the topic is you. Or if he is talking to you.

Sirius

Before finding out

Sirius didn’t say much, other than teasing you over just what could be keeping you up to make you that tired. “Were you thinking of me last night Summoner~? I’m so flattered~”

Sometimes he would drag you about with him on a random mission or just more fun which hurt your joints a LOT, when you would tell him you needed to slow down and rest he would tell you to keep pushing forward if you ever want to build your endurance. Not giving what you said or your actions a second thought as he brushed you off.

It certainly stung each time he’d brush you off so you began to give him the cold shoulder if he tried to drag you along one of his schemes.

After Arcturus’s explanation

Spica didn’t specify what the meeting was about beforehand so he just skipped it. Or maybe he would’ve anyway? He’s busy, but with what? O-o sus.

When Arcturus showed up, with the black dog playfully giving chase, he was told what the meeting was about. Though he brushed Arcturus off at first. But when Arcturus mentioned that it was about you, Sirius listened.

How’d he not notice sooner? When thinking back, it seemed quite obvious…

Your pained expression to the sheer amount of times you dozed off… You even told him you needed a break so many times and he just brushed you off… He swore at himself for not thinking more about your health. Adding to the list of things he loathes about himself.

After finding out

Sirius was noticeably more careful around you, not yanking you about or pushing you to keep up with him. Instead, he would pull you into little hidden nooks to hide or teleport away with you in his arms, to hide from the other Sorcerers when he blew something up again.

Slowly you warmed up to him after he began to actually listen to you, but you were always at least a little wary of his intent.

To make up for his carelessness he spoiled you as much as you would let him for a good month, he swore to get you anything if you’d forgive him but you just wanted him to understand and that he did. And still got you things he knew you liked.

If you felt too tired to apply makeup(if you wear that), nail polish, clean your face, and or fix your hair in the morning he’d be there to help, offering to do so when you looked worse for wear and insisting that you call him whenever if you need help getting ready for the day ahead at any time! He would be there, anything for his Summoner.

Sirius also just loved to get to do your hair and nails, and help you choose out a cute outfit for the day! Totally didn’t attempt to peek at you changing like a perv. Denies it after he was caught. Doesn’t try again, but teases you, asking if you’d give him a show.

Beats Alpheratz at getting up early just to take you out to breakfast first, will tease him about it if Alpheratz asks where you’ve been.

Sirius ends up taking you to breakfast quite often when he isn’t out on a mission, sitting beside you with his hand on yours.

#arcana twilight #arcana twilight pollux #artw #arcana twilight spica #arcana twilight alpheratz #arcana twilight sirius #twilight arcana arcturus #twilight arcana vega #disability #disabilityrep #disability representation #rheumarthritis #rheumatoid arthritis

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fantasy-store · 9 months

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arthritis haver flags

flags specifically/exclusively for folks with these conditions, general arthritis flag found on an older post

made because i recently found out not only does it run in the family (both osteo and rheumatoid) but i am highly suspected to have it myself.

transx/transid stay the fuck off my posts. not for you

Osteoarthritis/OA + Rheumatoid/RA

Osteoarthritis(left) <- a flag for those with osteoarthritis, a form of arthritis where the cartilage in joints begins to break down causing mobility issues, pain and so on.

Rheumatoid(right) <- a flag for those with Rheumatoid Arthritis, a form of arthritis where the body's immune system attacks healthy cells in the joints causing pain, inflammation, mobility issues and so on.

Psoriatic/PsA + Fibromyalgia

Psoriatic(left) <- a flag for those with psoriatic arthritis, a form of arthritis where the skin develops rashes. this effects the skin and nails, causing large red rashes and pitted nails.

Fibromyalgia(right) <- a flag for those with fibromyalgia, where the body has pain, soreness and tiredness all throughout, causing sleep issues and heightened sensitivity.

Gout

a flag for those with gout, when urate builds up as needle-shaped crystals in the joints, leading to swelling, pain and more.

[id: a green to white gradient box with a gif of candles and witchcraft tools on a shelf in the background and dark green text on top of the image reading "dni if transx/transid, radqueer, terf. more in pinned post. free to use/identify so long as you respect my boundaries. exclusive terms/flags are non-debatable". :end id]

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archivist-emoceans · 5 months

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Trans People 🤝🏻 Disabled People

The best goddamn body horror writing you will ever see

#poetry #chronic illness #disabled #disabled writer #transgender #disabled artist #trans writers #body horror #rheumarthritis #hypermobile eds #ehlers danlos syndrome #trans artist

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cpunkwitch · 5 months

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i got amazon money i can finally buy some compression gloves but im not sure which ones are good

i have pretty small hands

does anyone know what compression gloves on amazon would be best?

#disability blogging #cass asks #actually disabled #cpunk #cripplepunk #arthritis #compression gloves #rheumatoid #rheumatoid arthritis #rheumarthritis #cripple punk #cpunk blog #disabled #physical disability #physically disabled

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azztiph · 9 months

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Needing a mobility aid but being unable to get one because of ur parents is actually so frustrating!

Sorry to all the people who r too young to get one on their own

Who can get one, but face too much pressure from their families not to

Who r told that getting a mobility aid is basically giving up

And last but not least!

One big FUCK YOU to ur ableist family

#disabled problems #disabled #disability #ehlers danlos syndrome #rheumarthritis #autoimmine disease #this post is about physically disabled people #cripple punk #cripple shit #cripple posting

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mindrottinglystupid · 19 days

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A Late Medical Update!

It has been a few. Life got away from me for a hot second! I am currently staying in a hotel in the very noisy Houston Medical District because of multiple doctor's appointments tomorrow. One is early in the morning for a Rheumatologist; later that day, I have an appointment with another neuro-optimist. This one is different from the last two. They both referred me to her, so we might get answers with this one!

The last Optimologist I went to said that my cataracts weren't causing my vision problems, and neither was a vitamin deficiency. He said that the ganglion cells in the back of my eyes were in the red and yellow, so that was most likely causing my vision problems, though, like normal, he didn't know why. Hopefully, we find out soon.

We got into the Rheumatologist with much hast, which was a good surprise! When we did blood work, my ANA came back positive, and given my history they think it might be RA or lupus.

That reminds me! I bought a cane recently to help walking, and it has been a life changer. I would upload a picture, but the wifi here sucks :(

If you are thinking of getting one please do at least try and pick one up. I didn't notice how much pain my right leg was in when walking until I tried walking with my cane. It has officially become part of my personality XD

I'll post tomorrow whenever we get back from the appointments. After this, my mother, grandmother, and I are going to visit family in San Antonio, so I should have more free time to post updates then!

Remember you are valid in your pain, and you are loved and appreciated and I promise, you are heard.

#medical journal #chronic pain #chronically ill #chronic illness #disabilities #disabled #kids can have chronic illnesses too yk #rheumatoid arthritis #rheumarthritis #walking canes #i love my walking cane so much its my new best friend #blindness

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spookysalem13 · 7 months

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I would expect a lot of posts today 😅. It's looking like today is lay in bed with my trusty ice pack day. It's a chronically ill chronic pain day everybody, which means prepare yourselves 🫠😆.

#chronically ill #chronic disability #chronic pain #chronic migraine #autoimmune disease #disabled #stuck in bed #fibromyalgia #rheumarthritis #ehlers danlos syndrome #hypermobile ehlers danlos #hypermobility #spine problems #migraine #sjogrens #celiac disease #osteoarthritis #multiple sclerosis

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kingseijuro · 8 months

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my favorite helper 🥰

#service dog #pots syndrome #rheumarthritis #spoonie #disabled #disability #smooth collie #blue merle

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sacha1slytherin · 3 months

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Not me and my mum (we are 2 women, and if you known from my posts from in the past, my mum has Rheumatoid Arthritis, so things are very difficult for her to do in that condition,) getting some groceries at night, and like any other person we of course stood in line to wait until we could check them out with the cashier, but then of course a clearly drugged out grown man then comes barging in front of us with alcohol in his hands, demanding, yes demanding that he stand in front of us seeing as he didn't have much to check out.

Now, see here, we didn't understand the man's intentions at first, nor what he was saying seeing as he did not speak our language (he was speaking German I later realised, which I do speak a little of but I could not for the life of me understand him, seeing as he was clearly not fluent in the language himself..), but when I told him to stand in line like everyone else (because there were people behind us as well, waiting for their own turn) he then started to cus us out aloud in Turkish then, which my mother understood (mind you, she isn't Turkish, she's just fluent in it, and in 4 other languages, but that's besides the point), and she rightly then got angry at the man, and said to him that for every bad or good thing he wished us, that it would turn back at him (it's a saying), seeing as he cursed us out in the name of god (like how dare u). The bastard then of course backed away, seeing as my mother wasn’t someone to take anyone's crap like that. He then, of course, bothered a man then (who had little kids mind u) a bit further away from us, who was just going to check out his groceries, until that druggie then barged into him, and the man then let him go before him, seeing as he didn't want to get into anything with the sick bastard.

But urggg the audacity of these so called 'men', what makes them think they can act like that? Especially to women? But just people in general???

If it were an elderly person instead, or a little child, then of course I would've let them pass without them even asking me for it, but that was a goddamned grown arse man. A druggie at that.

Like screw him!

Sorry for the rant, I just had to let off some steam somehow...😅

#the audacity #druggie #problem #rheumarthritis #rheumatoid arthritis #women problems #on a daily basis #fuck men

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seething-river · 7 months

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Coffee won't change this

I get through

by borrowing tomorrow for today

Because every day I wake

having already spent the day

on yesterday's survival.