#neisvoid | Explore Tumblr Posts and Blogs

myalgicencephalomyelitiscfstom · 4 days

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#chronic illness #invisible illness #chronically ill #chroniclife #neisvoid

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420spoons · 11 months

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Meme painting of a woman adorned in royal clothing and jewels. The text over the image reads, ‘Disabled people, watching all of the accommodations that were created because of COVID get ripped away as part of able-bodied peoples’ “attempt to get back to normal.”

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neuroticboyfriend · 2 years

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I think one of the most draining things about being both chronically and mentally ill is that nothing I do is ever restful. There is nothing I can do that allows my body and mind to recooperate without there being a significant cost later. Sure, some things are more restful than say, doing a high energy task. But I could lay down in bed and listen to my favorite songs. I could sit in the couch and watch a movie. I could go to sleep or take a nap. And it'd still result in more problems that I need more rest for. More pain, more fatigue, more stress piling up. It's just impossible to rest. I'm so tired, and abled people don't understand.

#softspoonie #disabled #disability #mental health #mental illness #mentally ill #chronic illness #chronically ill #chronic pain #neisvoid #physically disabled #actually disabled #chronic fatigue #chronically sick #chronic disease #fatigue #neurodivergency

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hannahcrazyhawk · 10 months

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We live in a world where chronically ill and disabled humans seeking help are treated like criminals. No one should feel like they need lawyers to litigate for their bodies and minds.

#chronic illness #spoonie #disability #sick and tired #neisvoid #human rights #hidradenitis suppurativa #eds zebra #autoimmune #medical trauma #rheumarthritis #crohn's disease #cfsme #chronic pain

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wishkhh · 8 months

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chronically eepy and that's ok

#narcolepsy #chronic disability #idiopathic hypersomnia #invisible disability #disabled #disability #i'm diagnosed with narcolepsy!#invisible illness #neisvoid #sleep deprivation #sleep #sleepy #sleep disorder

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spacedocmom · 11 months

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Doctor Beverly Crusher @SpaceDocMom Surviving day-to-day with chronic illness and/or disability is never "laziness" regardless of how many health-privileged, abled people assume otherwise. emojis: black heart, blue heart, masked 4:02 PM · May 16, 2023

#doctor crusher #star trek #star trek the next generation #star trek tng #kindness #support #care #compassion #chronic pain #chronic fatigue #chronic illness #disability #surviving #neisvoid

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clintnatalias · 5 months

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I need help paying for my family's health insurance 0/300 USD

Sorry to keep begging but I talked to my mother and she's unable to pay for our family's insurance with her current salary and I'm still waiting to hear back from a job I applied to.

I'm also going to open art commissions and post about them soon. Any little bit helps

p@[email protected]/aktellez

k0-fi.com/karentellez

#mutual aid #neisvoid #mutual support #aid #cripple punK #support #emergency #emergency aid #financial aid #community aid #community support #signal boost #cripple punk #cpunk support #disability aid #disability support

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devinsturk · 2 years

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15 Proverbs for the Fellow Chronically Ill

May your symptoms flare during your diagnostic testing.

2. If spoons are in short supply, one must make do with knives.

3. May you have access to healthcare that is both affordable AND good quality.

4. When your doctor will not order a test you have a gut feeling you might need, request that they note their refusal in your chart.

5. May your online patient portals sync appropriately.

6. May your healthcare providers always take you seriously.

7. May the phlebotomist get a good vein on the first try.

8. In times of distress, permit yourself comfort whenever you can.

9. If you want it, may you find humor in anything you can.

10. May you find community when you least expect it. Even a Twitter hashtag or Facebook group can offer solace when medicine has none for us.

11. If another non-disabled person tells you to “just do yoga,” feel free to flip them off. Or let them know they owe you 20 bucks. Or both.

12. May your injections be swift, and may your tablets be easy to swallow.

13. May the unwanted side effects of your treatment be minimal or nonexistent.

14. A life from bed is still a life.

15. You are the expert on your own experience.

#chronic illness #chronically ill #disability #disabled #NEISvoid #mental health #chronic fatigue #chronic fatigue syndrome #MECFS #myalgic encephalomyelitis #dysautonomia

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welcometocaritas · 2 years

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I’m going to need JK Rowling to explain to me how people who are so ill that they’re confined to their homes or their beds, in some cases dying slowly, are a threat to her existence

#fuck jkr #chronic illness #mecfs #myalgic encephalomyelitis #fibromyalgia #pots #actually disabled #disabilties #neisvoid #invisible disability #jk rowling #fuck jk rowling #YOU ARE THE VOLDEMORT OF OTHER PEOPLE'S STORIES!#WE ARE LITERALLY JUST TRYING TO SURVIVE HERE #WHY DOES THE EXISTENCE OF TRANS AND DISABLED PEOPLE OFFEND YOU SO MUCH #GO OUTSIDE AND TOUCH SOME GRASS FOR GOD'S EVER LOVING SAKE

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frozenoj · 1 year

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#brain fog #fibro fog #spoonie #spoonie problems #memes #disability #disability memes #running away balloon #fibromyalgia #mecfs #long covid #neisvoid #made by me

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yoikami · 2 years

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fucking stop giving disabled people healthy people expectations.

Stop telling us more sport will make us lose weight or be healthier, our bodies do not function regularly anymore and should not be treated without accomodations, moderations and care.

Stop fantasizing that efforts always bring good results, learn about listening to your body.

We function differently and should receive different care methods, and none of your half-assed misinformed ideas that mostly apply to able bodied people.

Our progress is never enough for you, our happiness is less important than your views on what's best for us. Stop ignoring our limitations only to complain our health is stagnating when we push harder.

Stop thinking less struggles or improvements mean we can go back to a trouble-free or pain-free life. We'll just step back again if we get treated "normally" in your invalidating sense of normal.

Accept that our normal is different and deserves to be acknowledged and treated as such.

We shouldn't be held to the same standards as someone who's able to live their life without needing to slow down, stop, recover and crash down or full on break down when it's too much.

#chronic pain #chronic illness #fibromyalgia #sjögren syndrome #sjogrens #chronically ill #disabled #disability #doctors #rant #medical rant #fuck doctors #swearing tw #doctors ain't shit #venting #ranting #disabled rant #neisvoid

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myalgicencephalomyelitiscfstom · 11 months

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#chronic illness #long term illnesses #long term illness #chronic disease #neisvoid

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autville · 7 months

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attention, spoonie residents of autville: the autville spoon depot is now open 24 hours a day! got any extra spoons to spare? you might consider dropping them off to be redistributed to folks who need them. and if you’re nearing autistic burnout or spoon debt, stop by and grab some!

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neuroticboyfriend · 8 months

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i hope things get better for us all. i hope the coming fall and winter are kinder than the summer. i hope. i hope because i have to, and so do you. if you're still alive, there is still hope inside you. waiting for you. it's there. grab it and hold on for the ride, however rough it gets. you have to survive. we all do. we can't let them kill us - not without a fight, not without consequence. disabled people are not disposable, and it's not our fault other people think we are. something has to change. we fucking deserve better than this.

#softspoonie #disabled #disability #surviving abuse #surviving trauma #ableism #trauma #psych survivor #survivor #trauma survivor #depression #severe depression #mental health #neurodivergent #hope #neisvoid

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detectivewigglesaiart · 10 months

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I am literally homeless EXCLUSIVELY because ableds and disabled people without allergies cant be bothered to apply their toxic fragrance in their bedroom instead of the shared bathroom and make other equally minor changes, and disabled people whose disabilities aren't worsened by the selfishness of others and dont even prevent them from being around others are STILL out here like "uwu dont worry, ableism is NEVER your fault, it's totally fine to murder people with MCAS to spare yourself minor inconvenience"

the disability "community" is a myth. Only those with the privilege to safely interact with others get ANY help, sympathy, or even basic visibility. MCAS is a huge component of long covid so it now affects millions more (it affected 15% of the population before covid, 5x as common as autism, for example) but because no one else in the disability community can even acknowledge our existence, we'll never have any accessibility whatsoever.

Most people with MCAS have no idea they have it because of all the constant forcible erasure from other people. That means they'll never know they could be 100% fine if the people around them weren't incapable of empathy

#NEISvoid #ableism #lateral ableism #meatspace privilege #mast cell activation syndrome #MCAS #actually autistic #hEDS #fragrance allergy #food allergies #multiple chemical sensitivities #chronic illness #disability #disability pride month #dysautonomia #POTS #ehlers danlos syndrome #mental illness

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zo1nkss · 7 months

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I haven't had the spoons to explain my other question yet (I will!!!) but this one takes way less spoons. I also plan to leave it active for longer because 1 day feels like a gross miscalculation of something like this.

Friends with sensory overload triggered by visual processing!!

Do me a favor? Take this test and then answer this poll after :)

(if you score above 39 please choose 33-39! "there are only 39 different colors in the test [...] you respond more to contrast than to colors and that is why you count more than 39 :)" )

Once again, please RB for a larger sample size!

#neisvoid #Sensory overload disorder #color range test #eyestrain

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