my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.

i care about you. your disabilities deserve to be seen and acknowledged

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

remind that no matter how 'severe' or 'mild' your tics are, its normal for them to sometimes be worse and other times barely noticeable!

its apart of the tics/tourettes phenomenon called "waxing and waning" and if anything, should make you feel more validated in your diagnosis <3

A guy with a giant suitcase boarded the bus today without waiting for me to get off (the front is the only accessible exit), and tried to shove his way past me to get on.

I literally blocked his way, looked at him, and went "I need to get off." I made his ass back all the way back off the bus to let me out.

I do not care how able-bodied you are or how authoritatively you try to move. I need this exit, and I'm going to use it. The bus will still be here after I do, I promise.

Being asked to rate your pain on a scale as someone who has had chronic pain for several years is so difficult. Like how am I supposed to rate the pain I am experiencing from 1-10 when I have no idea what it feels like to not be in pain. Like what is 0? what is 1?? what is even 10???? What am I comparing it to???? My 5 can be someone else's 10 and their 10 can be someone else's 2, and how is a doctor or anyone else for that matter supposed to tell the difference? Maybe it's because I'm autistic and I'm just overthinking it but it literally makes no sense to me.

dont make people with tremors or tics or muscle spams feel uncomfortable

i shouldnt feel awkward sitting next to u on a sofa or being in the same room as u

i dont choose tics or when my tremors, etc flareup

dont look at me like im an alien.

when the “10 tips on how to make showering easy for disabled people” list doesn’t include a shower chair or a shower/changing table or grab bars etc, i know they don’t care about us physically disabled people.

good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.

it’s good that those tips are there but for once we’d love to be included.

When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

me when the chronic pain is chronic and painful:

do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?

like honestly. what do you think being disabled means?

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

when you have chronic pain, nobody cares that your having a particularly bad day because your meant to be used to it. no one believes that i’m actually in such bad pain. i can be crying from the pain and they just don’t care

but i do care, if you are suffering from chronic pain, im sorry and i see you and you don’t deserve this. you deserve rest ❤️‍🩹

Everyone is fine with having a disabled friend until they complain about their disability

Everyone is fine with having a disabled friend until they need to slow down for them

Everyone is fine with having a disabled friend until their mobility aids are loud

Everyone is fine with having a disabled friend until their mobility aids fall

Everyone is fine with having a disabled friend until they cancel plans due to their disability

Everyone is fine with having a disabled friend until they need to hold something for them

Everyone is fine with having a disabled friend until they need to open a door for them

Everyone is fine with having a disabled friend until they can't go somewhere because it's not accessible

Everyone is fine with having a disabled friend until their disability is inconvenient

Everyone is fine with having a disabled friend until their disability impacts them.

here's to all the little sacrifices we have to make as disabled people.

here's to skipping a friend's party because you were in too much pain, or because you had no energy.

here's to dropping out of clubs because they became too much for you.

here's to all the times we've said "no it's okay, you guys go ahead, i'll hang back here."

here's to all the things we've held ourselves back from just in case they hurt us.

here's to moving seats in class away from your friends because your back was getting a draft and the cold hurts you.

here's to us. here's to letting ourselves heal. here's to being cautious, being safe.

here's to the things we can do. the things we're allowed to do. here's to enjoying those things, enjoying our lives.

here's to making the most of being us.

You say you’re punk but are you normal about it when someone asks you to wear a mask?

You say you’re anti-establishment but are you normal about self-diagnosis?

You say you’re an ally to neurodivergent people but are you normal about people with personality disorders? People with low/no empathy? Are you normal about psychotic people?

If you read this post and think it’s ‘anti-mask,’ go back and re-read. Then ask yourself: why would someone who is against wearing a mask ask people to wear masks?