#bowel disorders | Explore Tumblr Posts and Blogs

disabilityhealth · 2 years

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Do I feel weird because I haven’t eaten much today or have I not eaten much today because I feel weird? Life is full of these mysteries

#spoonie #chronic illness #my text #ibs #bowel disorders

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cj-parker · 1 year

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Thursday 13th April 2023 uk

I woke up with yet another migraine, it's been everyday (except yesterday) sometimes I wake up with it, sometimes it comes on later in the day, but either way it's been everyday for almost two weeks now.

I can't get to the doctors because I can't wake up in a morning to call.

I don't know what it is that causes that, is it the fibromyalgia, or the cfs? Or is it the autoimmune disease? Or maybe the ptsd or gad? Or could it be the hdhd or sleep disturbances? The fact I can't allow myself to sleep properly because then I suffer sleep paralysis could also be the cause, either way waking up in a morning is such a chore, it's so difficult, it's like trying to force one's self out of an anesthetic, I feel like it is absolutely out of my control.

And no one, not one person (even my fellow chronic illness sufferers ) seeem to understand!

Today I have this migraine and my stomach is so incredibly bloated it feels like it might explode, my bowel condition has chosen today to flare up also just because I need to go out and that also entails trying to dodge those April showers i posted about yesterday!

I can't drive and have no one to ask for a lift,

Oh yes that's another thing you should know about me, I am completely and utterly alone no family, no friends, no one to help me out, no one to ask for favours, no one to lean on or to ask for support.

I mean there are people but no one, I've learnt, that I can turn too!

(More on that another time)

For today it's just a health moan, a chronic illness sufferers pitty party for one, a bad day, a day where everything seems to flare at the same time and I just want to feel sorry for myself...

What will tomorrow's complaint be... we shall see.

Thanks for reading, catch up soon 🥰💝

#chronic illness #chronic pain #fibromyalgia #cfs #autoimmune disease #chronic migraine #bowel disorders #ibs #cptsd #generalised anxiety disorder #blog post #slice of life #rant #unload #pitty party #feelinig sorry for myself #long term illness #adult adhd

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chaos-and-ink · 29 days

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Hurts if I eat, hurts if I don't; hurts if I sleep, hurts so deep.

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chronic-gastro-illness-culture · 5 months

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undiagnosed chronic gastro illness culture is idk whats wrong w me but i think its trying to kill me

#digestive disorders #chronic illness #gastroesophageal reflux disease #food intolerance #food allergies #irritable bowel syndrome #irritable bowel disease #stomach ulcer #crohn's disease

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samwisethewitch · 8 months

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Tried a new restaurant yesterday and got burned. 🫠 But at least I can show y'all what I do for flareups. Part of why I like having tinctures on hand is because it makes it easier to grab something when I feel bad.

I hope this helps y'all next time you have tummy troubles!

#celiac disease #celiac #chronic illness #autoimmune disorder #invisible illness #invisible disability #gastrointestinal disorders #gut healing #herbalism #herbal remedy #herbal medicine #tincture #ibs #irritable bowel syndrome #sick day #tiktok #mine

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narcpocalypse · 3 months

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TMI but having NPD and IBS is crazy like I put ALLLLLLLL this work to put up this super suave charismatic front only to have it ruined by clutching my stomach and BOLTING to a bathroom before I shit my pants. Or shitting your pants and ultimately crashing from embarrassment because u could've avoided it by just not eating an apple or something

#IBS #narcposting #narcissistic personality disorder #npd #actually narcissistic #actually npd #actually cluster b #npd safe #cluster b #cluster b safe #narc #irritable bowel syndrome #high fodmap #low fodmap #giles blabbers

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hussyknee · 11 months

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I'm so fucking mad.

Yesterday I took 50mg of Atomoxetine (Strattera) out of sheer frustration instead of my prescribed 30mg which was doing nothing.

And then...I was like "get up" and I would get up. "Go find the electricity bill" and went and found the electricity bill. "Sort through all the mail and organise it" and just. Fucking. Did it. No getting stuck for half an hour and spiralling in anxiety because my executive commands weren't going through.

I went to the hospital and begged those fuckers to increase my dosage and spent half an hour trying to convince them that this is clearly my ADHD symptoms being exacerbated by anxiety that's fucking me up. They refused, said "Oh, but anyone would find it difficult to function in your situation", and increased my Venlafaxine (Effexor) instead, although that fuckin plateaus any further than the dosage I already take. My primary doc knows this, but I have better luck catching Bigfoot than her at NHSL anymore so I keep having to tussle with the junior dipshits.

Granted I seem to have overshot a bit, because I spent a while vibrating into the fifth dimension. Felt like I'd had six cups of coffee and needed to do three things at once. Perhaps I should have attempted 40mg first. But 50mg very much did catapult me out of this neverending rut.

WEEKS OF BEING TRAPPED BY THE STATIC IN MY BRAIN LIKE A ROOMBA ON A RUG. I couldn't get out of bed, eat on time, shower, make my bed, do my laundry, go to bed. The simplest fucking tasks like pushing a boulder uphill with a stick. Sitting on the bed doomscrolling and tearing the soles of my feet into strips so bloody that it hurt to walk. I don't pick at my feet anymore! Didn't even realize I hadn't until the end of yesterday. This is the first time I've stopped in months. I stock up on band-aids and keep them next to my bed because I usually bleed in about three places within a day. And I pick the scabs off the still-healing wounds. All stopped by 20mg more of Strattera!!!

In other medication fuckery, I stopped the anti-inflammatory meds I was taking for my back because 1) the total cost of my meds was getting insane and 2) I haven't been in pain the last two months. I looked up whether there were side effects for long-term use of NSAIDs and found that using any of them with Venlafaxine increases the chance of gastrointestinal bleeding?? The way I've been having all this time?? Was my rheumatologist ever gonna tell me?? I'm just so used to flares, so fogged in my head and so relatively pain-free that I didn't especially note it. Turns out– the only reason I haven't been in pain is because I was taking the fucking anti-inflammatories. Imagine that! So I can either take Venlafaxine (which I cherish like a child regardless of the wrath-of-God withdrawal any time I miss a single dose) or I can take NSAIDs??

*googles anti-inflammatory meds other than NSAIDs*

Internet: "eat pineapple idk. have you tried tumeric?"

I hate my life.

#medication woes #life update #cw skin picking #excoriation disorder #actually ADHD #ableism #medical gaslighting #adhd meds #atomoxetine #nsaids #ulcerative colitis #chronic illness #spoonie #disability #effexor #inflammatory bowel disease #knee of huss #fuck my life

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lifewithchronicpain · 8 months

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About 12 million people in the United States – nearly 5% of the adult population – have chronic pain that is accompanied by anxiety or depression so severe that it limits their ability to work, socialize and complete daily tasks, according to a new study.

The co-occurrence of chronic pain with anxiety and/or depression (A/D) is well known, but little research has been conducted on its prevalence or impact. To see how often the symptoms occur, researchers at the University of Arizona Health Sciences analyzed responses from nearly 32,000 people who participated in the 2019 National Health Interview Survey.

Their findings, published in in the journal PAIN, show that adults with chronic pain are about five times more likely to report anxiety or depression than those without chronic pain. The risk is even higher in adults with “high impact pain” – pain severe enough to limit daily life and work activities -- who are eight times more likely to have A/D. "The study's findings highlight an underappreciated population and health care need -- the interdependency between mental health and chronic pain," said lead author Jennifer De La Rosa, PhD, director of strategy for the UArizona Health Sciences Comprehensive Pain and Addiction Center...

...Researchers say further studies are needed to see if people receiving pain treatment are also getting mental health care, and whether that care is helping with their symptoms. A recent study found that anxiety, depression and other mood disorders often precede the development of fibromyalgia, irritable bowel syndrome (IBS), and chronic fatigue syndrome (CFS). (Read more at link)

Yeah that was exactly my experience. Struggled with depression and anxiety from early teens and then by late twenties I started developing chronic issues starting with IBS, but also eventually including Fibromyalgia and a herniated disk. Although I did suffer from severe migraines in my teens too that aren't as debilitating now.

Also there is a risk of taking benzos for anxiety and opioids for pain together. Some doctors won't even prescribe opioids to people on benzos like Klonopin and Ativan. I actually managed to decrease the amount of Ativan I need monthly by just smoking marijuana daily.

#disability #chronic pain #depression #fibromyalgia #chronic fatigue syndrome #irritable bowel syndrome #mental health #generalized anxiety disorder #article

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eldrai · 1 year

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Love looking up IBS because it's just like may cause [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] [symptom doctors never mentioned was related] and abdominal pain!

Like wow. Thanks. Glad I spent so much time as a literal child worrying there was something seriously wrong with me because I had other symptoms.

Anyway, here's a few symptoms in case it is ever useful to someone:

The ones you probably know

Constipation

Diarrhoea (including mucus)

Bloating

Abdominal pain/cramping

The ones you might know

Bloating

Nausea

Indigestion

The ones you probably don't

Headaches

Fatigue

Dysmenorrhoea (heavy periods)

Pelvic pain

Back pain

Interstitial cystitis + other bladder problems

Sleep disturbances

Joint pain

#ibs #chronic illness #chronic pain #disability #ableism #medical ableism #irritable bowel syndrome #gi disorders #gastrointestinal disorders #2023 is the year i say fuck being ashamed of it #it is just a medical condition #and a shitty (pun not intended) one a lot of people don't know much about

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barelyfunctioning-amber · 3 months

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That feeling of my cramps not being helped by laying down but need to lay down because of fatigue is very bad...

-Amber (any pronouns)

#disability #disabled #actually disabled #chronic illness #cpunk #chronically ill #chronic disability #chronic fatigue syndrome #ibs #ibd #functional bowel disorders #functional gi disorders #cfs #cfs/me #me/cfs #myalgic encephalomyelitis

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melodymorningdew · 1 month

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I haven't weighed this little since I was 13-14 years old... I really don't want to waste away my guy.

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nevermindtheb0ll0cks · 1 month

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The reality of whatever the fuck is wrong with me. Is it endometriosis or sever ibs c? Who knows. I cant see a gynecologist until July so im just waiting and hoping at this point.

This is me after spending an hour on the toilet this morning, unable to fully empty my bowels despite lactulose taken in the early hours. It has been working for the past few days, but this morning it decided otherwise. I am getting my period on friday, currently on day 2 break of the pill. I am convinced this is all related to my menstral cycle as diet does not change my issues.

This is a major flare up and im stuck in the office today so have another 11 hours before im home. I dont feel comfortable using the toilets at work bc it takes me so long.

Just ranting and showing the reality of constipation and chronic illness. Please do not send me advice or ask if i have tried x, y, z.

#constipation #bloating #endo #endometriosis #bowel endo #bowel endometriosis #ibs #ibs c #ibs d #gut health #chronic illness #chronic pain #chronically ill #pain #bloated stomach #gut disorder #menstruation

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chronic-gastro-illness-culture · 5 months

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hows the tummy hurty fandom doing

#digestive disorders #chronic illness #stomach problems #irritable bowel syndrome #irritable bowel disease #gastroesophageal reflux disease #food intolerance #food allergies #stomach ulcer #crohn's disease #gastroparesis #celiac disease #dysphagia #pancreatitis #diverticulosis #delayed stomach emptying

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iamyouknow-yours · 2 years

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Hey besties,

I need some advice. I need help convincing my mom to allow me to get a wheelchair. Our medical aid will cover it so money is not the problem. I'll explain what I have and what her problem with me getting a wheelchair is:

20 years old

POTS

Raynaud's as a secondary condition

Autistic

ADHD

The POTS was diagnosed July 14th 2022

Today is September 1st 2022

Autism was diagnosed December 15th 2021

I've obviously had the autism my whole life though.

And POTS since puberty. It's idiopathic POTS meaning they don't know what caused it.

My POTS has gotten worse since I first got it, particularly in the past 2 years.

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I need a wheelchair. I have immense fatigue as well as attacks of headaches and extreme nausea that can come on suddenly.

I mean I'm nauseous pretty much all of the time but it can become way worse just randomly.

The wheelchair would be to help with the immense fatigue.

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My mom agreed (semi-reluctantly but still) that I could get a wheelchair. This was a week or two ago.

She (able-bodied and prone to ableism) changed her mind after talking to her (able-bodied) therapist.

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This morning she came into my room to start yelling at me and say that no I can't get a wheelchair.

My fatigue is apparently caused by the fact that I'm unfit.

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She called me getting a wheelchair a regression and she says that I glamourise disability and being disabled because of youtubers like Jessica Kellgren-Fozard.

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(I have made her watch a few including Jessica's excellent video about having a mobility aid not meaning you're giving up and I watch Jessica quite a lot I like her.)

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(I do not however want to be disabled. Obviously? I wish I had the energy to be out all the time and living not in my house and working and earning my own money and seeing my friends and not be in pain all the fucking time. I do not glamourise disability.)

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The point is she's ableist and she loves me and so she's worried that I spend too much time in bed

(^^ caused by lack of energy, which is not going to be cured by exercise. Exercise is not a fucking magical cure)

She's worried because I should be out with my fellow young people.

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She thinks I need to try exercising with a biokineticist, and go to her chiropractor, and try the new meds for an unspecified period of time before she will, maybe, agree to me getting a wheelchair.

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I'm devastated. I was nervous but so excited about getting a wheelchair because it would mean I could see my friends more.

And go on walks without worrying I was going to be too tired to come back.

It would mean I could unpack the dishwasher without using half my energy.

It would mean I could go to Pride next year and not be in immense pain for a week afterwards.

It might mean I could get a university degree.

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Of course my mother thinks I could and should be doing all these things now and that I'm just too unfit and that's the whole problem.

I'm not disabled, I'm unfit.

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She's said she'd rather drive me to the park so I can hang out with my friends there and then drive us back than me have a wheelchair.

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Please help me if you can. Any ways your wheelchair has helped you do more?

Or function better in our ableist capitalist society?

Has it helped you to have more energy or less nausea somehow?

Have you ever convinced a parent/guardian to get a wheelchair?

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I wish I could move out but I can't live alone. I'm in the process of applying for a disability grant but it's so pitiful here in South Africa it's maximum R1900 which is 110 US Dollars/110 Euros/95 British Pounds.

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Thank you in advance for your help, I appreciate it <3

P.S. Most of the post is in a big font so it's easier to read for other disabled peeps :)

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neurodiverse-adulthood · 6 months

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Tummy care: pain & discomfort

x x x x x x x x x

↖️ Top left: IBGard & FDGard

What-- indie over-the-counter pills for digestive trouble Why-- help + ease tummy Other-- they are . p r i c e y

⬆️ Top middle: Yoga

What-- stretching, twisting, and folding the torso and limbs Why-- ease tummy

↗️ Top right: Thermal therapy

What-- a warm or cold pack on the tummy Why-- ease tummy

⬅️ Middle left: Know food & yourself

What-- know which foods help and which make things worse; eat the former and avoid the latter Why-- avoid trouble + help tummy + improve body relationship

🫵 Middle middle: Tummy rubs

What-- massaging your tummy Why-- help tummy + ease tummy + improve body relationship

➡️ Middle right: Target problem with right medicine

What-- determine what exactly issue is (e.g. acid reflux, loose bowel, indigestion, nausea) and what caused it, and take medicine accordingly Why-- help tummy + improve body relationship

↙️ Bottom left: Ginger

What-- consumables with ginger root in them Why-- help + ease tummy

⬇️ Bottom middle: Foam roller

What-- tough foam cylinder for working out, but used to massage your tummy Why-- help + ease tummy

↘️ Bottom right: Digestive enzyme supplements

What-- digestive enzyme supplements Why-- help + ease tummy

See also-- upcoming tummy and digestive care posts, nourishment with low appetite posts

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lovemeorleave · 2 years

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having bpd and ibs is so funny ,,, like oh you dont love me ? i will literally shit myself and die

#actually bpd #bunbun.text #borderline personality disorder #bpd blog #actual bpd #actually borderline #ibs #ibs problems #ibs flare #irritable bowel disease #irritable bowel syndrome

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