#diagnosis | Explore Tumblr Posts and Blogs

incognitopolls · 5 months

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"Verbally, but not formally" = a professional told you that they think you have a particular mental illness, but nothing was formally written down, or no formal diagnosis was pursued.

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We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.

#polls #incognito polls #tumblr polls #anonymous #questions #tumblr users #mental illness #mental health #diagnosis #polls about brains

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pplatonic · 4 months

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You cannot know the history of schizophrenia as a diagnosis without coming to the conclusion that the fault of the misinformation surrounding schizophrenia and its setback in its research in modern society is a direct result of the laziness of past clinicians.

Negative symptoms used to be the focus of this illness when Kraepelin and Bleuler defined it - Kraepelin thought them to be more important and Bleuler literally defined them as FUNDAMENTAL symptoms.

Then in the 60s and 70s, since hallucinations and delusions were easy to spot and define, they were given more and more prominence in the hopes of "improving diagnostic precision." In real people language, that means they were lazy and wanted a quick checklist to go off of instead of, you know, caring about their patients.

What resulted from this is that now nearly everyone thinks schizophrenia is just hallucinations and delusions. On the medical side of things, the only treatments available for it treat psychotic symptoms, and the majority of the research focuses on them. Which leaves the rest of the debilitating symptoms untreated.

There are corrective adjustments being made to return to the emphasis on negative symptoms, and cognitive symptoms accompany that, but it should have never changed in the first place. Plus, the majority of society isn't adjusting their worldview to align with current perspectives on schizophrenia.

Schizophrenia was historically about the negative symptoms, and it always should have stayed that way. Schizophrenia is not just a "disorder that causes psychosis." It has negative, cognitive, disorganized, and catatonic symptoms as well.

Schizophrenia is a disorder affecting thought, behavior, and emotion, that is accompanied by psychotic features when left untreated.

Stop boiling down illnesses to basic symptoms. Teach and treat them wholistically.

#plat rambles #schizophrenia #actually schizophrenic #schizoaffective #actually schizoaffective #psychology #psychiatry #diagnosis #neurodivergent #actually neurodivergent

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melodymorningdew · 5 months

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I cannot fight for my health and fight the world at the same f**king time.

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llovelymoonn · 10 months

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cynthia cruz the glimmering room: “diagnosis” (via @virginiewoolf) \\ jennifer s. cheng so we must meet apart: “august 24, 2018″ (via @feral-ballad) \\ safia elhillo girls that never die: poems: “summer” (via @virginiewoolf)

support me

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asoftepiloguemylove · 7 months

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Cynthia Cruz Diagnosis // David Foster Wallace // Olivia Rodrigo lacy // pinterest // Jamie Varon Does The Universe Fight For Souls To Be Together? // Ethel Cain Inbred // Chen Chen Popular Street // Meggie C. Royer Tragedies // Olivia Rodrigo making the bed // @ely-n // Mary Oliver "The Return," What Do We Know: Poems and Prose Poems // Meg Day "There's Snow in the West," Last Psalm at Sea Level

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permanently-sprained-ankle · 1 year

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We’re not seeking a diagnosis because we want to adopt a struggle. We’re seeking a diagnosis because we want to understand our struggle.

[Image ID: White text in a Galaxy background reads If you: Derail my posts; are an “aspie”; run a sh/ed blog; are under 16; are a TERF; think cripplepunk is for mental disabilities; think that autism isn’t a disorder; are pro-transabled, trace, transage, etc; are pro-map or pro-zoo; are a transmed; want to completely demedicalize autism, I will probably block or mock you. End ID]

#disabled #disability #chronic illness #chronic pain #chronically ill #cripple punk #cpunk #diagnosis

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chroniclesofchronicillness · 4 months

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Yes! It shouldn’t have to take years and many doctors to get a diagnosis and proper treatment.

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #diagnosis #treatment

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tightwadspoonies · 1 month

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How to Get a Doctor to Listen To You (and maintain the relationship you have with that doctor, cause you're gonna need that later)

First, I'll preface this by saying: The system sucks. There is no perfect way to access medical care, at least not in the USA. You've almost always got to play the system at least a little to get what you need.

Should it be this way? No. But it is. So here's how to play the game in order to get the most out of a visit to the doctor (there are very different steps to getting what you need out of a hospital stay, but that's a different post):

So First, Let's Assume You Have a Primary Care Doctor That isn't an Urgent Care or the Emergency Department (if you don't, look below the cut first for some tips on getting one, then come back up here)

First, make a list of your problems, then go at the pace of one problem per appointment. Yes I know this sucks. But please read on.

Reasoning:

Appointments are set up in 15-minute slots, but docs typically are timed to about 5-8 minutes spent in a room with a patient on average (the rest of the time is prep and charting and referring and checking in with other doctors to get advice). This is imposed by the hospital or clinic they are working for- not something they choose. If a doctor took as much time as they needed with each patient they would probably get fired. That means every minute beyond that 5 minutes is a minute being "taken" from another patient (isn't capitalism wonderful?!). And 5 minutes is about enough time to evaluate 1 single medical problem.

So when you're setting these up understand that it is way easier and faster to make a bunch of appointments all at once than making them one at a time (hence the making a list of your problems). You might be able to get one slot per week (after a new patient appointment, which will probably take a long time to schedule, see below the cut), each scheduled for a different problem. Keep in mind though, if you make multiple appointments, no-shows are not taken-to kindly. Too many and the rest of your appointments will be cancelled. If you know you can't make it, call ahead.

So what if you need seen right now for a specific symptom? Go to an urgent care or the emergency department. They are almost never going to be able to solve the problem, but a toradol shot for a migraine now is better than waiting six weeks for a sumatriptan prescription. Plus, an emergency department visit or two where they did something for you establishes a history in the record of your problem.

Does this suck? Absolutely. Is multiple appointments always practical for work/school/transportation/copay reasons? Nope. But that's the system, and unfortunately, if you go into an appointment with 6 problems, as you have probably experienced, you're either going to be asked to narrow it down to what is the most important to you anyway, or you're going to get exactly zero useful things out of that appointment.

Next, be upfront, and do it LONG before the doctor walks into the room.

When you schedule an appointment, they will ask you why you are coming. If you want to be evaluated for Ehlos Danlos, for example, say exactly that. "I want to be evaluated for ___________".

Reasoning:

No one can hold everything in their heads for their entire careers, and doctors use that little blurb of why you are coming to look stuff up before you get there.

If you spring something on them that isn't something they see every day, they will be falling back on a very small amount of information they got a long time ago. If you don't fit that tiny piece of information they have saved on that specific disease, you're probably not going to get a diagnosis.

In contrast, if they come in knowing what they will need to evaluate, they will be able to look up or ask how to do the evaluation beforehand and the evaluation for things like the thing you want evaluated. You're much more likely to get a diagnosis if they're doing the right test and asking the right questions.

Also, say you are looking for a diagnosis if that's what you want, and say why. Say something like "If I come up positive for MCAS, could you tell me? I want to try some treatments and accommodations for it that I can only get through a diagnosis."

Reasoning:

I spent 6 years in therapy before my counselor admitted to me that she thought I had had depression the entire time. Why? Because before Obamacare, having a diagnosis of anything more than the flu one time could leave you un-health-insurable for life. Plus even just a generation ago being sick in any way was something socially unacceptable.

It's still like that, but it's changing.

There's still fear about this in the medical world. Putting a diagnosis on paper that the doctor technically didn't have to used to run some pretty serious risks. Pre- HIPAA (1996) those risks extended to your job and social life too (patient privacy was actually not actually a law back then). Even today, certain health conditions (including things like gender dysphoria or schizophrenia) may be looked at unfavorably in some areas if you're trying to do something like adopt.

So be open about the fact that you want to know, and if necessary, why that information is important to you.

Finally, come up "normal" on screening questions. At the beginning of the appointment, the person who rooms you will ask you a set list of questions. These are called "screening questions" and they include things like "do you feel safe at home?" and "does transportation keep you from getting to appointments or getting medications?"

Reasoning:

Unfortunately, if they find anything they need to talk about when asking these questions, they generally have to address these problems at the appointment, which means time they cannot spend on the problem you're there for.

If youdon't feel like lying and think you might have come up "positive" (something needs to be talked about), you have to be extremely clear that you would prefer to make another appointment to discuss the screening test, and today stay focused on the problem you came in for. It depends on the doctor as to whether they are willing to take that risk (and it genuinely is a risk, to them), and you also end up eating up some time.

My wife's opinion is that you know yourself better than a screening test anyway, and sometimes you do have to lie to get what you need.

So, you know, you do what's best for you.

Keep Reading:

Choosing a Doctor:

When you are first starting out looking for a doctor, you will probably have the choice between family practice (either a family practice doctor or family practice nurse practitioner) or internal medicine (your standard adult primary practitioner). Having worked in family practice I may be biased, but personally of the two, if you're looking for someone who is most likely to listen off the bat, it's going to be someone in family practice.

You may also have the option between a private practice and a residency. Of the two, I would choose the residency, because at a residency the docs you see are going to be residents who, 1- just finished up learning about all the zebras and can still remember them, and 2- are not yet jaded. Which if you think you have anything that isn't the most straightforward case of diabetes/heart disease/COPD, that's what you need.

The First Appointment:

So here's the thing. In order to get in with a doctor, you have to do something called a "New Patient Appointment", or NPA. An NPA takes a long time to get (sometimes months) but it is worth it to get a primary care doctor. An NPA is a little longer (usually about an hour or two) and most of that is going to be screenings with a nurse or medical assistant.

Understand that very little will happen at this appointment. It is just for you and the doctor to get to know each other (through a pre-programmed set of questions) and get some background info on you. Sometimes there will be time to address one thing. Use the checkout from this appointment to make more appointments that will fix things.

#health #chronic illness #going to the doctor #diagnosis

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watercolourcritters · 9 months

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a while back a friend asked me to do an encouragement card around a grieving a new diagnosis, and it felt like something that deserved a bit more thought than my usual thing. so i made this mini-comic about new diagnosis and difficult feelings! for anyone having complicated feelings after a diagnosis, i am sending you a lot of love <3

[ID copied from Alt: a seven panel comic, each featuring handwritten text and a marker drawn barnyard animal over a white background.

One - text beside art of a white chicken reads "I heard you got a new diagnosis. And sometimes that brings joy and relief - but sometimes it brings the opposite."

Two - art of a white and brown spotted duck with text reading "There's no right or wrong way to feel about a new diagnosis, so be gentle with yourself as emotions come and go."

Three - art of a brown cow lying in grass with text reading "It's okay to feel overwhelmed, and to grieve the idea of what your life would have been like without this."

Four - text beside art of a black goat with long grey ears and white stockings on three feet. It reads "Whatever this leads to - medication, or therapy, or simply a better understanding of yourself -"

Five - art of a white sheep with pink ears with text reading "I hope that someday down the line, it all feels a bit lighter."

Six - text beside art of a brown donkey with a white nose reading "I'm proud of you for facing this, even when it's hard."

Seven - art of a fat orange cat sitting with its tail wrapped around it and looking earnestly upwards. Text reads "I love all of you - and that includes the messy bits (heart shape)."

The signature on each panel reads @ watercolour critters. End ID.]

#mental health #diagnosis #encouragement #comic #messy encouragement cards #watercolour critters art #art

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sillysecretwriting · 5 months

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Sometimes I love just how nonchalant doctors informing you that you have been diagnosed with a life-altering chronic illness are. Like when I got diagnosed for POTS, the doctor asked for my symptoms and had my tilt table test results already which I had had to wait a month for. And this dude (doctor) is just like, "So you have POTS, here are some things to do". He did not tell me what that meant in terms of my life, whether it was permanent or not, or which symptoms aligned with that (I have more than one chronic illness, so that would have been very helpful in seeking other treatment), or tell me if he was going to follow-up. And so I asked, "Will it ever go away?" and he was like "Well, sometimes people feel better in their forties". Like great, I have at least two decades and probably the rest of my life being incredibly disabled with this illness that I was pretty sure I had, but you are confirming it for the first time, and you don't seem to care enough to actually explain what that might look like. That was a day I finally had to confront what the rest of my life would look like for me, but it was just another day in his life and he certainly acted like that.

The healthcare system is weird.

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incognitopolls · 3 months

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Anon was tested recently, but masked too hard and was not diagnosed with autism. They're certain they got a false negative but redoing the test is too expensive. They're wondering if others have had similar outcomes.

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We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.

#polls #incognito polls #anonymous #tumblr polls #tumblr users #questions #polls about brains #submitted nov 16 #autism #neurodivergent #neurodiversity #autistic #actually autistic #diagnosis

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neurospicyyy · 5 months

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Neuroforecast || December 2023

#neuroforecast #neurodivergence #neurodivergent #neurodivergent polls #neurodiversity #actually adhd #adhd #neurospicy #actually ocd #ocd #tumblr polls #tw all caps #2023 #december #neurodiverse stuff #actually neurodivergent #nuerodivergent #diagnosis

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starfishpufferfish · 2 years

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Obligatory nischa post of the day, ive made a severe lack of just purely romantic comics so BAM

Btw please submit comic prompt ideas to my ask box pls pls pls I’m so uncreative 🙏🙏😞😞😞

BONUS: some Mischa doodles I made while working on this comic

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po-pulari-tics · 9 months

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Friendly reminder that a misdiagnosis can really hurt you. It is important to think very carefully about what you/your doctor diagnose it as, and to be accepting to the possibility of being wrong.

#cripplepunk #actually disabled #disability #self diagnosis #diagnosis #cripple punk

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asoftepiloguemylove · 8 months

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Ruta Sepetys "Emilia;" Salt to the Sea // Cynthia Cruz "The Glimmering Room;" Diagnosis // @herchainsaregone // Jamie Varon Does The Universe Fight For Souls To Be Together? // The Edge of Seventeen (2016) dir. Kelly Fremon Craig // Marya Hornbacher Wasted: A Memoir of Anorexia and Bulimia // Sue Zhao // Clementine von Radics // pinterest // Billie Eilish What Was I Made For?

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dani-sdiary · 12 days

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Anyone Else?

I am 18 years old and I just found out I am intersex.

I started puberty at an earlier age than average. I had severe acne, oily skin, and hirsutism in second grade. I remember my dad telling me to wash my face because I was getting "a type of pimple called a blackhead" (he had to explain to me what it was, I had never heard of them) when he dropped me off at before-school daycare at 7 years old. When I told my mom I had hair under my arms that same year, she flat-out refused to believe me. She simply said I did not, that it was impossible.

I started shaving my legs in third grade, after begging my parents to let me for a year. My mom said I should only have to shave every other day, and again denied the truth when I told her that wasn't enough. Once I started shaving my legs, I noticed the hair everywhere else: my back, my chest, my face, all over.

I googled my symptoms over and over, scouring the internet for a documented experience of any other woman who was like me. I questioned my gender identity over the years. I had wondered if it was possible for me to be intersex, but I had a very limited view of what that could mean, and I assumed if I was, it would be very physically, externally, obvious. At that time, I didn't think it was possible for my doctors, my parents, and everyone else in my life to miss something so important.

For about a year, I identified as non-binary and used they/them pronouns. I think that part of this came from a place of being young and exploring my identity, but it also came from deep insecurity. I didn't feel like being a girl was an option for me because of the way I looked, so I thought it would ease my pain to pretend I wasn't a girl. I want to make it abundantly clear that I am in no way saying questioning one's gender identity is only about being insecure. That was my personal experience, and I am in the minority. I am the exception to the vast majority of experiences.

I bought plain, solid-color, clothes 3 sizes too big and wore pants and long sleeves all summer to swallow me up. I always wore my hair down and I always had bangs to cover as much of my face as possible. I wanted to make it impossible to see my face at all, and, between bangs, glasses, makeup, and a mask, I was fairly close.

By the time I was 12, I had developed a four-hour daily routine for removing all my hair. After a year of seeing my therapist, I finally broke down and told her about my hirsutism via pen and paper and through tears. I was so, so ashamed that I couldn't even say the word "hair" out loud. She immediately told me I might have PCOS, something I had never heard of, and it turns out she was right.

It was only recently, six years after my PCOS diagnosis, that I found out there was any discussion at all about PCOS being considered an intersex condition. I am ashamed to say my first reaction was one of more fear and insecurity. I have been chasing womanhood all my life, and this felt like yet another barrier to it. Even if I didn't identify as intersex after reading about this, it's taught me I have quite a bit of unlearning to work on.

I am in no way qualified to declare PCOS to be an intersex condition, and I am not telling other people with PCOS that they have to be intersex, but I now identify as intersex. I love that PCOS awareness is a trending hastag on tiktok, but there is still so much more research that needs to be done, especially into this particular area. I read peer-reviewed journals from scientists and blog posts about individuals' real experiences and I found a term that feels like home for me, that fell in line with the way I had always felt about myself. I will still use she/her pronouns, because they also feel right for me.

When I experience things like this, I don't know what else to do but write about them. I hope we learn more about this, and I hope I can talk to someone who has also had this experience. Thank you.

#intersex #nonbinary #gender identity #genderqueer #trans #her #she/her #they/them #pronouns #lgbtqia #lgbtq community #lgbt pride #lgbtq #queer community #queer #diagnosis

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