Things I wish I knew before I got diagnosed with a chronic illness
You’ll forget - Sometimes you’ll straight up forget you have a condition, that you have a disability, and that others don’t feel like you
Your most important job is to stay alive - Everything else is secondary, as long as you stay alive you have achieved something
It’s okay to cry - It’s normal, chronic illness is sucky, but don’t cry for too long or focus too hard on everything that’s wrong because it will make things worse
Your body is in a war, be kind - Your body is constantly fighting against itself, give it time to rest and heal, eat food and drink, do what you can to aid in the battle
If you feel like you can’t do it, you can - Have a cry, eat some ice cream and have a nap, when you wake up you’ll find the strength to keep going
Some advice from younger me; January of 2021 (I just found it stashed away)
I put a mini squishmallow on my cane! Introducing Austin the Avocado! My boyfriend got him for me. I also have my loop earplugs because those are an essential for me.
I am actually very sensitive to noise in general. Especially high pitched loud noises. I get headaches very easily and am diagnosed with migraines. That's why I wear headphones and/or ear plugs. I definitely recommend the loop earplugs!
I also use Picsart to edit my photos and add cute stickers 🫶
Edit - if anyone wants the link to my handle cover, comment and I'll send it!!
Not to be all gloom and doom but my life is really feeling like a string of broken dreams, corporeal pains, spiritual devastations, dashed hopes, bitter truths, financial woes, heart-breaking betrayals, insurmountable obstacles, missed opportunities, cruel lovers, endless nausea, troubled dreams, fitful rest, incessant anxieties, depressing jobs, social embarrassments, and unshakeable discomforts… and to be honest I’m trying so hard to keep afloat but I’m exhausted from all the suffering, stress, and disappointment and my head is bobbing under.
Hi! Can I request a Nausea/Chronic Nausea Emoji!
Similar to @sleepingcatemojis's Chronic Pain emoji but with blue/green coloring.
(Link: https://www.tumblr.com/sleepingcatemojis/695241375328944128/something-for-a-chronic-pain-flare-pls?source=share )
[Not at all asking you to alter that one or anything, i just thought adding an inspo/reference example might help!]
so many versions ............
anyway , here we have nausea/chronic nausea text normal white & brown or red & black with pale ver. & normal flush ver. , then w/ & w/o text ^^
somebody kill me why does my body hate me, LIKE BRO, I AM FEEDING YOU, I AM SLIGHTLY TAKING CARE OF YOU, I AM KEEPING YOU ALIVE AND IN RETURN YOU GIVE ME, LET ME LIST THIS BULLSHIT
So, I've switched to this thing called the anti-inflammatory diet or the mediterranean diet. The hope is that I'll be less nausea with it and maybe get some other good effects cause it's called anti-inflammatory for a reason. But does anyone have any good recipes for it?
Specifically bready things and sweet things. I usually have a lot of those two, but it's not really recommended so alternative or approved versions would be appreciated!
chronic nausea is chronic nausea-ing, please give me tips for dealing with it if you have any, i genuinely don’t know what to do and it’s driving me to tears.
everything i eat or drink makes me feel 10x worse, and no one has managed to figure out what’s going on yet and because i can still manage to eat no one’s running any tests. i have an ED history so it’s just being blamed on that when i’ve been able to eat semi-healthy amounts for the past couple years and only struggle with food now because of the chronic nausea.
I’m sorry to come to tumblr for medical advice but my health is rapidly deteriorating. I have not been able to digest /hold down / or even swallow food,pills, and drinks in about a month. I can hardly breathe even on a good day. I have been nauseated, cramping and very frequently being sick. And dry heaving almost 10 Hours a day. Blinking is even giving me motion sickness. I have lost 15 pounds in the course of three weeks from my lack of appetite and inability to digest. Which all sucks given I am already physically disabled and chronically ill to the point I need a cane on a good day.
I went to the ER- all they could do is give me some IV’s and slap two prescriptions on me for only 2 symptoms In which neither worked or i could actually bodily handle. they pretty much said since they couldn’t see an infection using a CAT scan- “it’s nothing bad just take these.” I immediately got sick after using a dissolvable prescription strength anti-nausea medicine.
I can’t stomach laxatives either. If I pass out they’ll just send me to the same ER room in the same hospital and tell me to go home.
I have to wait till tomorrow to even talk to my doctor who I saw last week. Who may not be able to see me till the 11th of March. I’m scared.
What should I say or do to have medical professionals even begin to believe me? I don’t have a medical advocate and doctors rarely believe me even when I’m having a panic attack from the pain or openly sobbing with a pulse rate of 150 bpm.
I know no one here is a medical professional but I’m hoping someone with a similar situation as me or similar conditions can give some advice.
me: oh im gunna be so productive today!! get so much work done!!
my MaDD, ADHD, fatigue, migraines, depression, sensory issues, etc: oooooooo you wanna lay down so baaaaaaaad ooooooooo such a nice comfy bed waiting for youuuuuu oooooo so eepy sleepyyyyy so safe from the overhead light and in the arms of your beloved ooooo sounds soooo super nice yeah?