People will get mad when I suddenly bring up that mental age isn’t a fucking thing because they want to call the severely disabled person a child instead of being decent human beings.

I really dislike the term“lateral able ism” because in my experience there is always a power dynamic at play

The way my autistic and intellectually disabled friend/ colleague is treated by disabled people without an ID or with lower support needs is disgusting.

The disabled people who want to split the community into those who are “useful” and those who are “burdens” are positioning themselves as better than the rest of us.

The people with milder mobility impairments who get pissy over the existence of a single wheelchair space on busses which already have 4+ priority seats for disabled people who don’t use wheelchairs are punching down

The people who respond to someone raising the issue of the lack of public toilets for severely disabled people who can’t use standard accessible toilets is to derail the conversation to claim that “severe disability doesn’t exist! we’re all as disabled as each other” are talking over and policing the language of a smaller and more marginalised group of disabled people.

The mobility aid users who are just as visibly uncomfortable talking to severely disabled people or who talk to our carers/ PAs instead of us are no less ableist than an abled person doing the same thing.

There’s nothing “lateral” about any of it.

"Disability is not evil" my disability is. I am being tortured and imprisoned. The cure narrative is an attempt to drop a bomb on my prison and bury me with it, not to free me. The social model is an insistence that if only I were treated better by the guards and if the society did not think of the prisoner status as lower I would not mind being tortured and imprisoned.

If you do not mind your disability — congratulations, genuinely. Now stop shutting those of us who do up.

(this is not specifically about the line the post started with, it’s about many other things including individuals saying that disabled suffering is only ever an ableist stereotype)

_

A less venty and metaphorical post on this where I also talk more about the inherent ableism of the cure narrative towards those who would actually like to be cured too: https://tumblr.com/dyspunktional-revan/715674903692673024/

Call me a bad cripple or whatever but if i tell you what i cannot do/what i need for my disability i should never have to repeat myself. Hearing/seeing it once should be enough.

And It REALLY irks me when i express how disabled i am, which is severe, and abled people literally cannot comprehend it.

"I cannot wash dishes"

"Just wash one thing at a time!"

I cannot...

"I need access to ice at all times, especially on trips"

"Oh i left the ice packs at the hotel because i didn't think you needed them"

WHAT?

I FUCKING HATE that i keep having to repeat my limits over and over again to my own fucking family that HAS WITNESSED MY ILLNESS FOR 4 FUCKING YEARS!!!

They literally cannot comprehend the word "can't"

I can't do most fucking shit

Im not lying

Im not exaggerating

And its never fucking changing!!!!

CDC finally fuckin' recommended the new COVID boosters for everyone in the US. letting my american followers who don't check the news know because i've been turned away for wanting to get an extra booster & now won't be anymore & it's Lovely. most americans are not going to get these and are going to grumble about them, which sucks as far as spread goes - but DOES mean u can schedule with ur local pharmacy sooner rather than later. please do so. ur immunocompromised friends and ur own body will thank u.

it's never too late to start brushing your teeth again. i basically never brushed my teeth for a whole 10 years. a decade. A DECADE. i still struggle to brush my teeth once a week, but it all started with brushing my teeth once every few months. so i mean it when i say brushing your teeth once a week, a month, a year, or even a decade, is better than nothing.

and still, nothing is not shameful. it is not immoral to struggle with self care. and it is also not pointless to keep trying. anything you can do, even if its wiping plaque off with a towel, is enough. it is good to take care of yourself however you can, even if it's just trying to muster the will to. reading this post is good, too.

i believe in you and i am proud of you, even in the smallest of steps. it's okay. you can give yourself grace.

wish for smart autism people to STOP saying things like "most autism people actually smart ! ". is not true! is just so erase big part of autism community ! of people like Pixie, and intellectual disability autism people !

STOP say , is not okay ! people like Pixie, people with intellectual disability , are BIG part of autism community ! we deserve be part of own community !

STOP try push out of community, is ableism !

The grandfather, who is also blind as a result of severe diabetes, feels isolated despite having his family around him. "If an air strike targets the house or the neighbourhood, I cannot move, not even using the wheelchair. I am completely paralysed, I cannot see and I can barely hear and move my arms. What has helped me is that we evacuated by car when the situation was less dangerous," Abujubein told MEE. . . . "What did the world that has long talked about human rights and the rights of people with disabilities do for us? My granddaughter has a subject about human rights in school. The first time they learned about people with disabilities, she was happy that she could reflect on me," Abu Jubein laughed. "She came to me repeating what she had learned about their rights and how they should be given a special treatment." "Now where is this special treatment? Did the world at least call for the evacuation of the displaced from Gaza until the end if the attacks?" "Even hospitals are targeted. When the Israeli occupation started bombing hospitals and then besieged al-Shifa Hospital, we thought that this would be the start of an international revolution against the occupation, because the protection of patients and children inside hospitals is the core value of human rights." "But, surprisingly, nothing happened."

. . . full article on MME (18 Nov 2023)

i talked about it a little bit already but i have things to say about it. for context, i was born with amniotic band syndrome. the amniotic band wrapped around my left wrist in utero and stunted the growth of my hand. i was born with about half a palm, four nubs for fingers, and a twisted half of a thumb. i can open and close my thumb and pinkie joint like a claw.

yesterday at work i had a shift in the room with 5-10 year old kids. i had my left hand hidden in my sleeve (a bad habit of mine). a kid asked if he could see my hand, and even though internally i was debating running into traffic, i said “sure you can” and showed him my hands. he stared for a moment, looking disturbed, and then said “i don’t want to look at that anymore”. that hurt to hear, but i understand that kids are new to the world and he probably didn’t mean it out of malice. i put my hand away again, told him that it was okay, and that i was just born that way.

he then went on to talk about how he knows a kid with a similar hand to mine and called it “ugly”. i told him that wasn’t a very kind thing to say and that he wouldn’t feel good if someone said that to him, and he replied that no one would say that to him—because he has “normal hands”, and he’s glad he does because otherwise he’d be “ugly”. i tried to talk with him for a bit about how everybody is born differently, but he just started talking about a girl he knows with a “messed up face” and pulled on his face to make it look droopy. i went on some more about how it wasn’t very kind to talk about people that way, but the conversation moved on to something else.

i’ve told my supervisors about it and they’re going to have a talk with his mom. what i wanted to say is this: i’m genuinely not upset with the kid. kids are young and naturally curious, and he clearly simply hasn’t been taught about disabled people and kind ways to speak to/about others. which is why i am upset with his parent(s). i know he’s encountered visibly deformed/disabled people before (he said so himself!), yet his parent(s) clearly haven’t had any kind of discussion with him about proper language and behavior. i knew from birth that some people were just different than others, but my parents still made a point to assert to be kind to and accepting of others. i wonder if adults in his life are the type of people to hush him and usher him away when he points out someone in a wheelchair. that kind of thing doesn’t teach politeness. it tells children that disabled people are an Other than can’t be acknowledged or spoken about; which, to a child, means disability must be something bad.

i’m lucky enough that this was a relatively mild incident, and that i’m a grownup with thicker skin. i’m worried about the other kids he mentioned to me. has he been talking to them this way? when i was a kid, i had other kids scream, cry, and run away at the sight of my hand. or follow me around pointing at me and laughing at me. or tell me i couldn’t do something because i was ugly or incapable or whatever. one time a girl at an arcade climbed to the top of the skeeball machine, pointed at me, and screamed at me to put my hand away and wouldn’t stop crying until she couldn’t see me anymore. another time, a kid saw my hand, screamed at the top of her lungs, and ran into my friend’s arms, crying hysterically about how i was scaring her. that second incident made me cry so hard i threw up when i got home. i can kind of laugh it off now, but having people react to me that way as a child is something i’m still getting over. why do you think i have a habit of keeping my hand in my sleeve? it just irritates me to see children that have clearly not been taught basic manners and kindness—their parents Clearly missed something pretty important .

pleaseeeee hire me im just a little guy… im just a little guy and im sooo cute and you should give me sooo much money one million per second and um also let me sit down. thank you <3

As a severely disabled person, smart tech is super exciting to me. Do you know how important it is to be able to directly impact your environment?

I’d love to be able to turn my own bedroom light on. If I can do it with my phone or Alexa, I can do it with my voice.

Or seeing what’s in the fridge –I can’t open a fridge door but I’d like to be able to plan my shopping trip or next meal independently.

I’d also love to be able to see who’s at the door and to tell them if they need to wait 10 minutes+ for me to transfer into my wheelchair, if they can leave the parcel in the porch, or if they should just piss off.

I know there are problems with smart tech. But the problem isn’t “why does X need to be connected to your phone” it’s “how can we make these devices more secure and less dangerous for the people who need them and are around them while also making sure they’re affordable “

I am so disabled that I don't know when I'm sick anymore, and when it's just the usual. Sometimes it is very clear, but other times I have to invent new ways to tell. I have nearly missed a fever of 39.2 C because I just feel so horrible all the time. I have to ask my family members if they are also sick, I have to ask my med student family member how can various things affect such a weakened body and what something can be other than what seems obvious (it does turn out to be that). And more things like that.

And when I am sick I now have to always dread it'll become another major disabling event, no matter what it is.

Friendly (or unfriendly if you're against this) reminder that this blog is supportive of ALL disorders. This blog does not think ANY disorder inherently makes someone a bad person, and is against any disorder being demonized. This blog wholeheartedly believes that a bad person having a disorder, yes, even if things that are also symptoms of their disorder are part of what caused harm, does not make the disorder a "bad" or "evil" disorder or excuse ableism and demonization directed towards the disorder.

Yes this includes personality disorders

Including npd and aspd

Yes this includes all psychotic disorders & disorders that cause psychotic symptoms

Yes this includes paraphilic disorders. All of them.

Yes this includes disorders that cause, or are even characterized by, attention seeking

Yes this includes disorders that directly have lying as a common symptom

Yes this includes dissociative disorders

Yes this includes any disorder with "gross" symptoms

Yes this includes physical disorders too

Yes this includes disorders that can cause loss of control of any kind- control of speech, control of body movement, etc.

Yes tis includes disorders that make someone "look scary"

This goes for literally any fucking disorder. There are not exceptions.

Love post for ppl who type " weird "

Love you ppl who type " weird " because use AAC to type (hi, sometimes)!!

Love you ppl who type " weird" because have language disorder (hi)!!

Love you ppl who type " weird " because have I/DD!!

Love you ppl who type " weird " because have severe autism/higher support needs autism/Level 3 autism/however you identify (hi)!!

Love you ppl who type " weird " because English not your native language!!

Love you ppl who type " weird" because rushing thoughts (hi)!!

Love you ppl who type " weird " because blind!!

Love you ppl who type " weird " because that's how brain thinks!!

Love you ppl who type " weird " just because!!

Love you ppl who type " weird " because semiverbal (hi)!!

Love you ppl who type " weird " because nonverbal!!

Love you ppl who type " weird " for any reason not mentioned or no reason or reason that not know of!!

The thing is, you don’t have to have a diagnoses to make simple “unmasking” changes that make your life easier. You don’t even have to self-diagnose! You are not appropriating anyone’s culture or struggles or hijacking anyone’s movement by allowing yourself to sway in line at the grocery store or buying a weighted blanket or using study or household hacks intended for people with ADHD. If you start favoring the needs that make your brain and body unique over the arbitrary norms of society, you’ll be better off, and you’ll be expanding the norms. It’s a win/win.

happy disability pride month to people whose main mobility aid is an adjustable bed

people who need to lie flat all the time

people who only sit up to eat or use the bathroom

people who are too unwell to be transported anywhere, even within their own home

people who structure their whole week around recovering from a single planned trip out of bed

people who are technically wheelchair users because they can’t walk, but can’t tolerate being upright for long enough to use a chair either

people who can’t adapt activities to be accesible, and instead have to just miss out on 90% of life

i see you and i respect you and love you. if you feel limited, confined, sick, or bound to your bed, i see you.