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#disabilityposting
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Not! All! People! With! Your! Type! Of! Disability! Can! Do! What! You! Can! Do!
[Plaintext: Not all people with your type of disability can do what you can do! /End plaintext]
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halogalopaghost · 1 month
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My particular set of health issues is so fun bc I research how to gain weight and it's like "eat whole grains and foods rich in fat and calories! Eat before bed so your body doesn't enter fasting mode!"
And then I search how to prevent GI symptoms associated with POTS and HSD and it's like "eat only the barest minimum of gluten and fat. You should be subsiding on earth and carefully selected gulps of oxygen. Do not eat five hours before laying down or you'll DIE."
Like....great thanks I'll get right on that
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syissuffering · 5 months
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so im a POTS warrior fighting the terrible fight right now
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juanathefunkyfish · 3 months
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Being autistic and trying to engage with media of any kind is so weird because it's like "noooo you don't get me I can't just listen to this album I have to hyperfixate on this artist for like three weeks and don't talk about anything that isn't theeeem and torture my neurotypical relatives with this info", "I can't concentrate on this series until I read the whole TV Tropes page and search the name of every actor's great-grandma" and I'm afraid these "media consuming patterns" might be annoying to some people, like, how is my brother not tired after I tortured him for weeks with info about a band (first it was Soft Machine, then Death Grips, then Jethro Tull and now I fear it's black midi), my mom is probably so tired about me talking about David Lynch that much idkkkk.
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3platoon · 9 months
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"Convergence insufficiency is an eye condition that affects how your eyes work together when you look at nearby objects. This can cause blurry or double vision when you look at things up close, like a book or a smartphone screen."
Sometimes (due to different factors) my vision just unfocuses and sometimes it's not possible to focus it again until the next day. I've had this problem since childhood but I'm figuring out ways to manage it.
Some people mentioned it may be linked to neurodivergence, similar to auditory processing disorder.
Feel free to reblog for wider sample!
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tocautiouslygo · 1 year
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Because of the internet ME/CFS connection we can have conversations, push back the dark all-encompassing silence. We can look for answers and theories and share our experiences with others, who in turn share their experiences with us.
I think sometimes about what our fragile lives with ME/CFS would be like without the internet and it makes my blood run cold. So many of our members would be alone. Even some living with their families cannot be around other people for long, and they live in their bedrooms.
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panopticonsys · 1 year
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pros of being more productive thes3e past few days: gotten. a lot of work done!
cons: i can no longer use my dominant hand
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Tips for someone closeted abt their disabilities? Asking for a friend
hiiii !!! love you, i hope you are doing fine!
hmmm, THAT IS A COMPLICATED TOPIC YEAH... you can only mask so many of your struggles and a lot of it depends on the relationship you have with others and the enviroment you are in. i am not sure i can help, but i will ramble for a bit, okay!!
generally speaking:
1. keep in mind you do not need to tell someone. and if you can deal with it, especially if you are in a stressful risky enviroment where telling people could have repercussions on you, sometimes it can be beneficial to remain hidden. your identity really decides what you can and cant do in society 2. what also factors into this is whether you have a professional diagnosis. i am Very pro self diagnosis but unfortunately not everyone is and professional/school/uni enviroments just straight up dont really care. being taken seriously is always a huge struggle, no matter the disability/chronic illness. 3. seeing how your health is on the line, its usually good to be honest and upfront about it, since it can really help!!! its still definitely worth it, may that be to ask for accomodations, clear up confusion, or just to get it off your chest. its freeing!!
from my own experience, here is what i found:
i am always as upfront and unapologetic about it as possible. this is difficult and it takes practice but it is worth it. i feel like the more confident you appear, the more people are likely to instinctively take you seriously. + it always sets a sign to yourself and others to not treat the topic with any shame!!
people can be ignorant on accident, when they dont understand smth. so instead of describing what your disability does, i find it helpful to tell others how it affects your life and, if necessary, what they can do to help you/create a safer enviroment for you.
i think its generally good to start out by using easy terms and categories other people will instantly recognize before getting into the details. to be relatable, as the kids say and love to be. depends on the situation though. (like, for example, i have narcolepsy. no one knows what that is but if i tell people its a neurological disorder, that includes seizures and excessive exhaustion and tiredness, they instantly get a vague idea.)
be prepared to provide whatever the other end may accept as "proof". this is upsetting and it sucks. but you have to expect it unfortunately, even in casual enviroments. if you dont have anything official, a clear definition of how disability affects your life can help get the serious nature of the situation across.
you will find yourself explaining your disability over and over and over, so lay out a "battle plan" in your head that contains the most important information (symptoms, how it affects your daily life, which kinds of aid you need with it) it gets tedious but private people will often just.... forget. we all have our own lives and disability is usually unfortunately not a topic on peoples minds. (we can change that however >:))) )
this one sucks but. take care of yourself and be prepared to treat yourself better than the people who may push your away bc of this. i have ended many relationships with friends and family because they treated me terribly in relation to my disability. there are always people who will love and understand you.
if you know someone who already knows and supports you, it can help to have them be present. just as backup you know. and even if thats unnecessary, as emotional support.
as for any sort of school or work enviroment: gotta bite the bitter pill and just hand a docs diagnosis letter to people and ask for what you need. in relation to this, look up what sort of benefits/accomodations you can receive in your country and hand info on that in alongside the diagnosis. sometimes theres also local social services who can provide accessible info on this. you gotta be direct and demanding about it or no one will do anything, in my experience.
this got kind of lengthy, so i hope some of it is helpful somehow?!??! aaaaaaa
also, everything depends on the kind of disability ofc and the specific stigma related to it. my personal issue is people keep hitting me with the "wow i wish i could sleep as much as you do" (bruh,... my days are like 10h long. with maybe 4h i can "work" in. permanently) so i always try to lead the conversation in a way that wont give others a chance to attack me in predictable ways o|<
its genuinely super hard but necessary and sometimes extremely good for you to be open about your disability. the world wasnt made with us in mind but with more information and social acceptance, it can be. never let others get you down!!! youre strong as hell!!
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fish-arcade · 10 months
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happy disability pride month everyone
i just took two ibuprofen and went back to bed because both my knees and ankles are killing me on top of terrible timing from cramps so man what a start to the month 👍 another day another slay
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sainte666 · 1 year
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i’m on my knees begging my fellow tumblrinas to please have better color contrast on your blogs 😭 I can’t read a dark red font on a lighter red background babes
please consider using this free online tool from WebAIM which lets you see how readable (or not) your blog is based on colors
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dyspunktional-revan · 11 months
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"Common sense" is not actually a thing.
If something is common sense to you, it is actually simply just because at some point in your life, perhaps a very long time ago, it was made explicit enough for you, and you were able to internalize it long term.
Even mainstreamly, things that are common sense to some are not to others. Then we have differing backgrounds, and then we have disability, about which this post was originally first of all intended.
"Common sense" is literally very close to "basic DNI". Or, "this food contains allergens. You know, the basic ones."
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hunters-angel · 4 months
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if i had one wish, it would be so i would never have to be on a train again
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syissuffering · 6 months
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disabilityposting
i wish i could just be different. my mom was a gymnast and she was really fucking good at it until she got hurt. i’ve never been anything. i wish i could be flexible like a Normal Abled Person and not ‘hypermobile in the may or may not impede my ability to walk for several days if i fall or move in the wrong way’ sense
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4usrhacidae · 1 year
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it is not good when teachers do not know how to interact with/teach disabled students and end up just going really easy on them. but i am so done with this class so ummmm actually it is good. for me.
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morwensteelsheen · 2 years
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ongoing breakdown because I am rapidly losing my ability to see, constantly feeling like a burden to others (mainly my partner) because of it, physically incapable of articulating my emotions and needs which just exacerbates the problem, and basically feeling like without my sight my life will be nothing but a valueless burden
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ultradeducing · 11 months
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ranpo cane.........
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