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cryptid-aac · 10 minutes

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Oh yeah, strap for AAC very broken

This is what we get for buying a cheap one ig

At least one of the things that attach to the case is technically still standing (it also broke but I put duct tape and a safety pin in it so)

Going to see if I can possibly fix the other one bc don't like how spinny my device is now bc of it

If not then I'll attempt to get a new, better, strap

#aac #actually autistic #high support needs #medium support needs #semiverbal #aac user

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cryptid-aac · 13 minutes

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cryptid-aac · 13 minutes

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AAC culture (at least high tech) is not communicating because you don’t know what volume to set your device to and you don’t want it to be too loud?

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cryptid-aac · 14 minutes

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hola 👋 yo también soy hispano y autista! mi inglés es mucho mejor que mi español.. así que siento si mi gramática es mala 🥺

he estado considerando tener un AAC en inglés, pero también necesitaría un AAC en español para hablar con mis padres…

estoy muy ansioso de que mis padres no me acepten porque no soy una persona autista de nivel tres .. y yo soy verbal 95% del tiempo.. ellos básicamente creen que los niveles uno y dos no existen 😭

no se que hacer al momento.. pero tu me das confianza! 💜 gracias por todo!

OMG HOLAAAA OTRO HISPANO AUTISTA !!!!!

Entiendo su situación amigo mío , a mí me costó muchísimo convencer a mis padres sobre mi autismo porque de verdad que no me creían ya que yo no era como otros autistas con mayor nivel { aunque yo también dudo que sea el autista más independiente o nivel 1 que haya ... } . Pero después de hablarlo mucho y básicamente hacer todo lo que yo tenía en mano conseguí un diagnóstico oficial y acceso a mi AAC { o SCAA en español } actual .

Aún sigo experimentando pero tengo mucho apoyo de mi psicóloga y padres , de lo cual estoy muy agradecido .

Pero espero desde el fondo de mi corazón que consigas lo que necesites y que tus padres te acepten , mucha mucha suerte en el mundo y recuerda que en este blog siempre serás bienvenido si alguna vez necesitas algo . Muchísimas gracias por esta pregunta 🧡

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cryptid-aac · 14 minutes

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(technically am mid-high support needs but when simplified to just low, mid, and high, then am considered mid)

1. From what I know, I'm not formally diagnosed. Only diagnosed with a speech and language disorder

2. I use AAC. Part-time technically

3. I'm semiverbal

4. Insects! Only specific species of mosquitoes drink blood and it's only the females that do

5. They help (when used correctly ofc). They also help me specifically with making sure I'm not too confusing (tma Michael fictive here)

6. I'm not sure. I like it overall, but I don't think I can point at one singular thing I like the most

7. Feeling like I won't be able to do anything with my life bc I can't even take care of myself properly

8. Typing is easy for me

9. Yeah! I have so many picrews I've made

10. Using the bus (I can only use two routes at one specific time each bc those are the only two I've memorized but they're still good!)

Level 2/Medium Support Needs Gang?

I'm level 2 and I really want to talk with other people in this category and share each other's experiences :D

I feel less alone knowing that there are other people with similar strengths and struggles as me. I have some questions for anyone who wants to answer them. You can answer all of them, or some, or one, or none. It's all good. I want a positive community :)

Are you formally diagnosed? If so, were you early or late diagnosed?

Do you use AAC? If so, are you full time or part time?

Are you verbal, semiverbal, non-verbal, or verbalflux?

If you have special interests, name one and share some stuff about it if you'd like :)

Do tone tags help you or are they more confusing?

What do you like most about being autistic?

What do you DISLIKE most about being autistic?

Is typing easy or difficult? Do you use AAC to type?

Do you like to make picrews?

Name one bADL or IADL that you're really good at accomplishing with little to no help :)

Level 1 and 3 autistics are very very welcome on my blog and I don't want to come across as exclusionary!!! I just want to make a post dedicated to people in my category so I can share similar experiences :)

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cryptid-aac · 21 minutes

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hello! :) do you have tips on overcoming anxiety using aac device with people who already seen you speak? i have an appointment with a doctor that ive going for a year and hes never seen me using aac and im pretty nervous about it because i dont want to deal with him asking "what wrong" or if i can "talk with my "real" voice'... i know i dont need to justify using my device and i really want to not care because even though im minimally speaking, my speech isnt functional at all and i just want to be able to use whats going to help me without feeling like im "taking too much space or too much time" for being slow at using my device.

Hey anon! First up, I want to wish you the best of luck! I hope this all goes well and you have a good experience.

Now for what you can do, honestly. Practice beforehand. Go out in public and practice using AAC! Use it in stores, coffee shops, etc etc. just use it as much as you can with the public. It’ll help build your confidence! Customize your device. Make it yours so you’re proud and confident with it! Realizing that your device is an extension of your body and not just simply a tool really really helps. I wish you luck!

Also, minimally verbal doesn’t mean that you speak minimally. It means you have minimal words to say. So someone who is minimally verbal may have 20,30,50 words (very debated topic on the exact number). So if this isn’t you then maybe look into other terms? Like demiverbal, semiverbal, etc etc.

Have a lovely day anon! Wishing you the best.

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cryptid-aac · 21 minutes

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I get so frustrated when talking about the fact I’m nonverbal and people go “well you type good so you’re fine” and that makes me so frustrated because like…typing doesn’t replace the fact I can’t speak! It doesn’t replace the fact that I’ve had hours upon hours of intensive therapies to get me to type the way I can, to express myself the way I can. And some were emotionally damaging. That doesn’t go away.

It doesn’t take away the ableism I face. Or the fact that if im trying to communicate with someone, our disabilities could collide and make it difficult to communicate. It doesn’t change that. And it doesn’t change the continued regression I am going through. It doesn’t change any of that! It doesn’t change that I’m constantly frustrated because my device is so slow compared to my thoughts. Or that other people find it very slow and get annoyed with me.

It’s honestly frustrating when people say this, because although I’m privileged to be able to type in the first place, that doesn’t change the ableism, frustrations, and therapies that I’ve gone through. I’m not “just fine” I’m constantly struggling to try and adapt to a situation and world that wasn’t meant for me. That is continuously ableist.

Im privileged, but that doesn’t mean I still don’t struggle.

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cryptid-aac · 22 minutes

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When neurotypicals and level 1 autistics say they love autism, what they really mean is that they love the kind that doesn't annoy you. They love the autistics who are quirky and have special talents, who can work independently and read social interactions well enough to fit in.

And then there are the level 2 autistics. They think its okay to bully us and yell when our autistic traits are more debilitating than theirs. When we can't shut up. When we meltdown.

And the level 3 autistics? "Oh, we just forget about them. We don't want to even acknowledge their existence. It's not like they can even think or hear us. We can talk about them like theyre an animal, right in front of their face, because they don't understand us anyway, right?"

When ableist neurotypicals and privileged level 1 autistics say they love autism, they mean they love it until you're an inconvenience.

If you...

Struggle with completing work

Wont shut up about your special interest

Cant regulate your emotions

Have loud stims

Cant mask

Have verbal shutdowns where you can't communicate at all, with or without AAC

Have meltdowns

Cry too much

Say something rude on accident

...you are seen as annoying, embarrassing, an asshole, an inconvenience, and someone to avoid.

If you...

Are semiverbal or nonverbal

Have "embarrassing" stims

Have frequent severe meltdowns

Can't work or live by yourself

Can't make friends

Have weird behaviors

...You're seen as dangerous, less than human, animalistic, and useless.

You are not. You have more meaning than they will ever believe. Your feelings, opinions, and thoughts matter.

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cryptid-aac · 23 minutes

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i see posts about people saying you shouldn't say "going nonverbal" or use the term nonverbal if you arent always nonverbal and it makes me feel like yall forgot about variable disabilities

ambulatory wheelchair users exist

chronic pain doesn't always make people immobile every single day (depending on the person)

so why cant being nonverbal also be a spectrum, much like so much of autism is?

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cryptid-aac · 24 minutes

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Saw one of your posts and I hate hate that the incontinence tag is full of diaper fetish dudes looking for hookups. Like, I want to do like other cripplepunks do and show off their aids and destigmatize my condition, but I know the fetish creeps will just drool all over it and I hate it. My condition isn’t a fucking fetish. I wanna be proud and open about this thing. Other conditions can, why’s this one gotta have all the creeps?

Yeah I just wish people would use their own tags for kink stuff and not co opt tags meant for disabled people to share our experiences. I’m semi continent and proud, but the creeps get to me too.

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cryptid-aac · 29 minutes

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Appreciation post to all my semiverbal & semispeaking , nonverbal & nonspeaking friends . Appreciation post to all my AAC users friends who use AAC for whatever reason . To my friends with language disorders , to those who type & talk weird for whatever reason . To anyone who feels good talking in 3rd person . Who those who can ’ t or won ’ t communicate at all .

This post goes for all my friends & all the people & non people out there . You all deserve love , respect , support , appreciation & also recognition . Love you all so much !!! 🧡

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cryptid-aac · 29 minutes

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How I do the pharmacy is really interesting. It’s really one of the only medical places l can do really independently. My parents sit in the car and sometimes my sister comes in with me if I really need it, but the pharmacists know me and are really helpful and try and make it as independent for me as possible.

I go in, and proloquo4text has the option of enlarging my text. I usually do it on my phone because it’s easier than the large tablet I carry around! So I put down my name and date of birth and hand them my phone. They take my phone, put in my name and date of birth into the system. They pull up my name and give me my meds. I’ve never had an issue. My medication is always sorted out and everything, sometimes it’s messed up a little? But then my mom calls and gets it figured out.

They give me my medication and that’s that! I pay with my parents card if there’s any co-pays and I go on with my day. It’s super easy and I can do it independently! My mom looks over what I got and that’s it!

It’s just a really unique experience and very easy for me. I love how the people around me make things as easy as possible for me and try and make it smooth for me.

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cryptid-aac · 29 minutes

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part 1 of my video on proloquo talking about the pros and cons - this is the pros section

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cryptid-aac · 32 minutes

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I went in to the hospital unexpectedly for emergency surgery. I nearly did not even ask for medical help because of interoception difficulties, alexythmia, communication and high pain threshold. I am just amazed and so grateful I did the best thing and saught help. They thankfully considered my symptoms and presentation carefully, considered and ruled out appendicitis or kidney stones but it was ovarian torsion. But pain scale is so, so hard for me and I’m sure others, especially autistics could relate. I thought my pains were maybe 7 but it was a lot higher. I just wanted to share. If you try so hard to trust and advocate or assert your need in anyway , I am proud of you. I am proud of my self today. It was such a challenging day on so many levels. I don’t even know how I’m posting this but yay, I felt I really wanted to. I used my autism alert card from Aspect Australia and thank them for their resources. How to get one Link in here only for interest:

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cryptid-aac · 34 minutes

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You know, wild thought, I don’t think that people with speech/communication based disabilities should have to *pay* to make themselves understood. I don’t think that you should be able to charge people 100 dollars for something they *require* to communicate with people and make themselves heard. That’s some bullshit.

Matter of fact, I don’t think anyone should have to pay to exist just because they’re disabled. To go *even* further, I don’t think anyone in general should have to pay to exist. Clean water, food, and shelter should be a right and not a privilege.

Also, sign language should be taught in school. I feel it would do us a lot more good that a couple years of spanish, that you then promptly forget, ever will.

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cryptid-aac · 34 minutes

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part two of my video on proloquo talking about the pros and cons - this is the cons section

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cryptid-aac · 40 minutes

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The thing about disability being a social construct is largely true, because when you have a physical issue but receive accommodations + care such that they can do everything able-bodied people can, you're no longer considered disabled. Case in point: glasses. If glasses fix near-blindness, you're not considered disabled, even though you're basically blind without them.

In a hypothetical world where mech suits existed, were cheap and comfortable and accessible and worked well, and were normalised such that people didn't even notice, even quadreplegics wouldn't be considered disabled (although of course that's distant science fiction).

That's what "disability is a social construct" means. In the same way gender being a social construct doesn't mean boobs aren't real, or money being a social construct doesn't mean physical cash doesn't exist.

I don’t agree with this analysis at all.

What hypothetical disabled people might be able to do in the future holds no meaning in the current reality I occupy

You say that quadriplegics will be “considered” abled with exoskeletons - but then you fail to elaborate on the relationship between these devices, their users, and the people who supply them

My father has had type 1 diabetes for 30 years. 30 years is an entire lifetime for some people. The cost of his insulin increased literally that ENTIRE TIME until last year when the Biden admin put caps on insulin prices

Furthermore, his insulin pump retails for 4,600$, and if it breaks, he is still diabetic at the end of the day and will slowly and terribly die without it.

I noticed a lot of people on here have lots of ideas and hypotheticals about how disabled people should and could navigate the world, but their arguments fall flat and topple so easily because you’re not connecting these ideas to anyone’s intrinsic reality

This is why so many physically disabled people are fatigued by the entire “disability is a social construct” conversation. It’s overwhelmingly used by uneducated 17 year olds to minimize and downplay and discredit the real-life, life-or-death interactions and experiences many physically disabled people live with

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