wish for smart autism people to STOP saying things like "most autism people actually smart ! ". is not true! is just so erase big part of autism community ! of people like Pixie, and intellectual disability autism people !

STOP say , is not okay ! people like Pixie, people with intellectual disability , are BIG part of autism community ! we deserve be part of own community !

STOP try push out of community, is ableism !

Love post for ppl who type " weird "

Love you ppl who type " weird " because use AAC to type (hi, sometimes)!!

Love you ppl who type " weird" because have language disorder (hi)!!

Love you ppl who type " weird " because have I/DD!!

Love you ppl who type " weird " because have severe autism/higher support needs autism/Level 3 autism/however you identify (hi)!!

Love you ppl who type " weird " because English not your native language!!

Love you ppl who type " weird" because rushing thoughts (hi)!!

Love you ppl who type " weird " because blind!!

Love you ppl who type " weird " because that's how brain thinks!!

Love you ppl who type " weird " just because!!

Love you ppl who type " weird " because semiverbal (hi)!!

Love you ppl who type " weird " because nonverbal!!

Love you ppl who type " weird " for any reason not mentioned or no reason or reason that not know of!!

Saw a post and it really got me thinking.

The post was talking about why don’t lower support needs, higher masking individuals even believe that higher support needs, low masking, “severely autistic” people, exist. And that got me really thinking. Because, I do think they know we exist. I just don’t think they want too.

I don’t think they want to know we exist. They know we exist, but keep us on the back burner. They live in ignorance bliss of us. I have what some people would think of as severe autism. Im nonverbal (although nonverbal later in life. But outside people don’t care about that. They see nonverbal as nonverbal), I’m intellectually disabled, need help in everyday life, etc. but I’m in the middle. I’m moderate support needs. To me, I’m not severely autistic. But to society, I am considered and seen as severely autistic because society doesn’t have the understanding of moderate autism yet. They don’t understand it. And I’ve seen more times than I can count that severe autism doesn’t exist. Not because they don’t believe in severe autism the label itself because it’s “harmful” but because they don’t believe that it’s just caused by autism. They often believe that’s it’s caused by comorbidities. Like ID, or cerebral palsy, or apraxia/dyspraxia, or mobility issues, or genetic conditions, and so on. Although none of this is bad.

They believe that autism itself can’t create severe autism. Which…isn’t true. Before, it was believed that severe autism was the only type of autism. That it was the only type that existed and if you weren’t severely autistic then you weren’t autistic. Then more research happened, then social media happened, and now..white, lower support needs, high masking, late diagnosed individuals are the majority of what’s being centered. And, that isn’t bad. We need awareness of all autism. But when one type of autism gets centered, it becomes a problem. It becomes the new norm. It becomes what everyone expects out of autism now. Which, isn’t true. Autism all of all types and traits exists. Autism of all support needs exists.

When people say severe autism doesn’t exist, they’re ignoring and saying that a BIG percentage of autistic people don’t exist. They’re saying that we aren’t real. That we aren’t on the internet, or in the communities they live in, or in their schools, or whatever. We’re everywhere. Severe autism is still a thing. It isn’t a misdiagnosis. It isn’t from comorbities, although if someone’s autism is more severe from comorbidities then that isn’t bad.

I think a lot of people need to be more aware of severe autism. And not just severe autism like me or my mutuals, or the people you see here on tumblr. But the ones with even MORE severe autism. The ones who live in group homes, residentials, institutions, and so on. The ones who aren’t on the internet. The ones who aren’t here blogging about their lives. We need to be aware of them too. We need to believe they exist, and believe that their autism is real.

Don’t erase severe or profound autism.

happy disable pride month severe autistic. high support need autistic. visible autistic. non/semiverbal autistic. autistic never learn mask. autistic not able communicate anything other than special interest. autistic with intellectual disable. autistic in special education. autistic severe disable just because autistic.

there nonverbal level 3 severe profound autistic kids (many with ID) who will never ever able functional communicate even with best therapy best support best assistive device out there

there nonverbal level 3 severe profound autistic kids (with/without ID) who later learn communicate and/or mouth speak but many outside behaviors still look same still high support needs

there nonverbal level 3 severe profound autistic kids (with/without ID) who later learn how mouth speak who now adult cannot ever tell if autistic at all not to mention ever was diagnose level 3 severe profound nonverbal

there kids without functional communication who grow into adult without functional communication

there kids without functional communication who grow into nonverbal adult who use AAC communicate

there nonverbal kids who grow into nonverbal adults

there nonverbal kids grow into speaking adults

how your kid at six not mean will be same as adult.

but also there people who nonverbal level 3 severe profound at 6 and still largely similar at adult.

and also regardless how future adulthood look, still need advocate for those diagnose nonverbal level 3 severe profound six year old

one not erase other. both true.

Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.

I apologize for the long post. This is important to me. Heavy CW for mention of knives, self-injurious behaviors, description of intense emotions, brief descriptions of restraints and police. Yes, I used the word "severe" to describe my Autism. This is because I am Nonspeaking, very High Support Needs, visibly Autistic, and have a Borderline IDD. This is how I choose to describe my Autism. Please don't attack me for this, Tumblr. Anyways. Darting out into busy streets. Repeatedly banging your head against walls. Throwing objects, sometimes even very dangerous objects such as knives. Breaking things - anything - no matter the value or durability. Unplanned, sudden violence towards self and others. Lashing out, in pure emotion, just screaming into nothing at the top of your lungs, for no obvious reason other than pure, unadulterated, terrifying emotion. This may not seem like symptoms of Autism for anyone, and they may not be caused by Autism at all. But for many young people and adults with severe Autism, this is what our families deal with regularly. "Difficult behaviors", as I've often heard them described as by social workers. There's often no clear reason for then. They just. Happen. We are almost never diagnosed with secondary conditions. It is considered a symptom of our severe/profound Autism. While in many Speaking and Low Support Needs people with Autism, they would be diagnosed with various conditions. Conduct Disorder. Bipolar. Borderline Personality Disorder. Maybe even a severe case of Intermittent Explosive Disorder. But for those of us on the more visible part of the Spectrum, nobody knows how to deal with us. It's scary and heartbreaking for our families, and deeply traumatic for us. Many times, our families and caregivers will turn to emergency services such as police or EMTs when they have no where else to turn. I don't like this option, I hate it. But in moments of extreme panic and fear, I don't always blame families for this. Nobody talks about those of us who have been restrained by our arms and ankles to hospital beds for weeks at a time. Nobody talk about those of us who turn violent on the people we love most, when we just can't control ourselves. I wish I had good advice for those of us struggling with this. I wish I could comfort you. While mood stabilizers and antipsychotic medications have helped me, it doesn't help everyone. DBT for severely Autistic individuals is another thing that greatly helped me. This is a fact of life for many individuals with severe Autism and their families. It's terrifying. But please keep trying treatment, keep advocating for yourself as much as possible, and keep going. I'm sure you don't think this means anything, but you are strong. You are brave. I see you and I want you to keep going. Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.

Important: If a person on Tumblr says that somebody else writes your posts for you, and wants you to prove that you write everything on your own:

Don't respond. Don't upload a video of you typing or using your AAC device. Block that person, or ask someone to block them for you.

They won't listen to you and you can't convince them. They're just mean. It's spam. Really, just ignore them.

Here's a long post I wrote about that today, in case you're curious:

Pixie give up . Autism people too angry refuse to stop say “going nonverbal” . refuse to listen … and Pixie just . Can not any more . Crying so much upset so much nobody care at all … just How very very different is to never be able speak … not AT ALL same as losing Mouth words sometimes .

pixie all done being talked over and ignored and yelled at and told go kill pixie self … pixie WISH could just stop exist …

pixie ALL DONE .

from now on . People who miss use actually nonverbal words, Pixie just BLOCK . not care If mean Pixie not welcome in autism community anymore , Pixie never been welcome by community pixie Never welcome by speaking autism people anyway .

is no safe place for Pixie . :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :(

you don’t have to necessarily agree with someone’s take to think their voice is important.

right now i’m seeing some discourse about the different access needs disabled ppl have, like physical access needs vs. sensory needs.

i don’t necessarily agree that late dx’d autistic folks are choosing to make their disability a big deal, i do think that our voices tend to take up more than our share of space i. the autism community. we tend to center our own experiences and not consider the overt isolation and dehumanization of growing up segregated because of a disability.

i will always support the most marginalized, and that includes the visibly, cognitively, and intellectually disabled.

sometimes i just dont understand its making me extremely upset. sometimes i cant have someone explain everything to me. i feel so stupid. i feel dumb for needing someone to help me talk 24/7, needing a device to help me talk 24/7, copying and pasting what ive seen to type, someone to help me understand and explain things. sometimes i wonder if i deserve this much love. is it ok for me to need help to brush my teeth, to eat, to get dressed, to have a drainage bag (that i almost never talk abt bcz its so embarrassing sigh), to drink, to talk, to get groceries, to go from places bcz i cannot drive and will never be able to, to move, to breathe when im asleep, to understand, etc? i feel like a baby thats new to the world but no. im 18. almost 19 years old. im just severely disabled and its been that way since i was born. sometimes i wonder how would i be able to talk and understand on my own. how many friends id have thatd ever understand what i say.

Is it possible for someone's autism levels to change due to trauma? Like could a 1.5 go to a 2.5 after being kidnapped and tortured? I'm writing a story

Me too much Super Dee Duper excited because they make new Barney shoes and me get ❣️❣️❣️

things that can & do & should coexist at same time:

not everyone have access to (autism) diagnosis because of racism ableism etc against marginalized identities such as race class sex gender etc.

having an autism diagnosis is not a blanket privilege because many are forcibly diagnosed as kid and abused specifically because of their diagnosis, disproportionately visibly disabled/autistic, high support needs, “severe”/labeled as severe, cannot mask, have intellectual disability, etc.

if have ability and choice in getting diagnosed or not. choose very carefully. because diagnosis allow you services but also open door to discrimination (take child away, not allowed immigration, harder to access HRT, seen as medically incompetent, etc) you have less chance of experiencing if you undiagnosed.

these above discrimination still disproportionately affect BIPOC, low income, queer trans, high support needs, have intellectual disability, visibly autistic ppl, etc.

but even being able to choose whether to diagnose self or not, is autonomy & advantage many people don’t have. some people don’t have choice, like cannot afford or access diagnosis, or forcibly diagnosed as kid. but also, people who not diagnosed as kid per se but as they grow up, increase disability thus need diagnoses for services (and can’t survive without them) and can no longer hide disability and autism.

Everyone:

If you get an ask about Facilitated Communication (FC) or Rapid Prompting Method (RPM):

Ignore it!

This person isn't interested in us, they are harmful. And they want to shove their political agenda on us.

Don't respond to their ask, block them!