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#become chronic
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sick of this anti-aging obsession. let's go in the opposite direction. i want more characters who are hardened & grizzled & have a face lined with the harrowing tribulations of time--and then halfway through the narrative u find out they're 27
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araekniarchive · 9 months
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@mnvart // Kaveh Akbar, 'Calling A Wolf A Wolf' // @PinkRangerLB on Twitter // @kosmogrl // @devinsturk, '15 Proverbs for the Fellow Chronically Ill' // Jasmine Deporta // Anaïs Nin, House of Incest // the gentle wisdom uquiz by @inkskinned // Rora Blue, 'Sweet Dreams' // Hala Alyan, Dear Layal
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chronicallycouchbound · 10 months
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The narrative that “you should care about disabled people because one day that’ll be you” is ableist in and of itself.
You should care about disabled people’s rights because you should care about the disenfranchisement of a marginalized community.
Becoming disabled is not a punishment. Becoming disabled is not a threat. Becoming disabled is not cosmic retaliation for being ableist. Becoming disabled is morally neutral.
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eyeofthenewt1 · 1 year
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chronic pain
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thebibliosphere · 20 days
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You know the dehydration was bad the moment you get some electrolytes in your system, and it feels like a hit from party drugs.
Like yeaaaah. feeling crazy. Might fuck around and sit up in bed for 20 minutes. Life on the edge (of syncope), baby!
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minimallycreative · 15 days
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i love how sometimes, despite all the medical advancements of the 21st century, the only thing that relieves pain is sitting/laying/standing in a weird position because it places/doesn't place pressure on certain spots
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chronicpaingirlie · 2 months
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every once in a while im like well maybe im not actually that disabled . and then i see someone stand for more than a minute without any pain or even discomfort n it’s like oh. nevermind 👍
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stars-and-branches · 7 months
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god save me from the dumb shit i say when hit with brain fog
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canisalbus · 3 months
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I was on Pinterest this morning and I saw this and went “MACHETE wait- he wouldn’t drink from a puddle even in an apocalypse” then I’m like- apocalypse machete wouldn’t last five minutes, he’d cringe at the thought of mud getting on his heels(tm) and Vasco would probably act like a hunting dog, he might do pretty well ina full on apocalypse or war or something, and he would carry machete over all the mud puddles Q^Q
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800-dick-pics · 3 months
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Help a Black Disabled Lesbian out of debt for Black History Month!
In the past month(s) ive had to max out my credit card to survive and now my monthly payments are $492. Due to disability I have limited/no income at the present and jobs are not clamoring to hire a visibly disabled Black person. I am in the long process of training a service dog so I CAN work a traditional job in the future but for now I need support. If you can pls support n share this around.
Happy Black History Month!
CA: $sleepyhen
VN: wildwotko
DM 4 P@ypal
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lemonisntreal · 4 months
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BLINKY BLINKY BLINKY BLINKY BLINKY BLINKY BLINKY BLI
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uncanny-tranny · 7 months
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To people of loved ones with poor memory:
It might be frustrating when they forget something (especially if it's important), but I can guarantee you that they are already beating themself up over having forgotten yet another thing. You don't need to rub that shame, embarrassment, and humiliation in deeper than it already is.
It is scary to forget things. It's humiliating to be told that the only reason we forget things is because we think nothing is important, that we're selfish and callous. Our brains are being pulled in every direction at the same time. It's impossible to keep track of this shit every picosecond of the day.
People like to conceptualize memory issues as a matter of lesser intelligence, that we're too stupid to even remember [minor detail]. I've noticed, though, that all of our brain power is kept toward other things - keeping ourselves alive, remembering a different thing, trying to regulate emotions or other disorders. Nobody seems to care that our workload is at least twice that of the "average" person's, I guess because they often don't directly notice it, or it doesn't directly affect them?
It's fine to be upset about the situation. You can't help that reaction, but you do not have to be cruel to people with memory issues, no matter the cause of it. Whatever they forgot might have been important to you, but there may be other things in that person's life that required their brainpower.
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disabledprincesses · 8 months
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Whats the first thing you would do if you woke up completely healthy and abled?
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faunina · 1 year
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happy TWO YEAR anniversary to everyone who attended the destiel wedding!
and happy valentines day to the rest of you guys <3 click the image for a surprise!
if you’ve ever seen that one post (i’ll link it in the replies) about the parallels between the rodeo scene in 12x11 and the movie “urban cowboy” and it entirely broke your brain, then this post is for you. and also i’m kissing you on the mouth
[ID. Digital art of Dean Winchester done in black and white. He’s is laid back on top of an electric bull. One hand rests on his hip while the other hovers in mid-air, fingers slightly curled, and he seems to be looking at it. When clicked, the transparency shows Castiel standing behind him. Castiel is holding Dean’s hand to his lips, while his other hand supports the back of Dean’s head. Castiel has a visible halo and wings that he has curled protectively around Dean. End ID.]
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thedisablednaturalist · 9 months
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One day I will get one of those desks that rolls over your bed (as well as an adjustable bed) and I will be unstoppable
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chronicallycouchbound · 9 months
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A Guide for Coming into Disability
Note: While this is meant to serve as a guide for people who are becoming physically disabled and people newly recognizing their existing experiences of disability (including chronic illness), I feel that this guide is helpful for anyone, disabled or abled. No guide is one size fits all, but I hope this can help supplement other resources that exist.
Recognizing Disability
The first aspect of coming into disability is conceptualizing what disability means for you. Some initial questions to consider are:
What is disability?
What does it mean to be disabled?
How do you identify disability in yourself or others?
Only you can define what these mean for yourself, but many definitions and models of disability exist.
Loss & Grief
As you begin to transition into a disabled body, the first sign of that change is often the experience of loss. Loss of ability, access to the world, hobbies, community, loved ones, and your sense of self are just some of the types of loss you might be experiencing. Additionally, when being a part of any marginalized community, you are now not only beginning to experience the trauma of discrimination that you’re personally facing but you are also exposed to a communal trauma of systemic marginalization.
Due to the ableist society we live in, every single person is internalizing ableism. Everything we see on the news, in movies, in classrooms, etc. is absorbed subconsciously to create a personalized narrative of the disabled experience. Weather or not that ableism is externalized doesn’t matter, because if you’re not actively dismantling internalized ableism and practing anti-ableism, then that ableism will hit you much harder when you transition into disability. The work to navigate this is constant, evolving and will change with time.
All of this is very heavy. Always unpacking, always processing, always grieving. But it does get easier to navigate, especially with the proper supports. To cope with this, I highly recommend seeking out appropriate support groups (many are online, Facebook, Discord, The Mighty are some great places to look) and considering grief counseling. Through this, remember to be gentle with yourself, cut off people if you need to, set boundaries, and do what you need to to support yourself and keep yourself safe.
Spoon Theory in Practice
A large portion of my disabled experience is simply just learning. Learning about my body, treatments, my limitations, and what I can still do. This dynamic learning often requires more language to explain complex concepts. This brings us to the spoon theory. If you don’t yet know about spoon theory, here’s the original essay by Christine Miserandino.
Spoon theory works to help explain the energy limitations of chronic illness and has been widely adopted by the greater disabled community. Essentially, it is a metaphor that uses spoons as a metric to showcase energy levels in a tangible form. Over time your spoons will change, different activities might require more or less spoons, and recharging your spoons may also evolve. This is why it’s important to use the concept of spoon theory to help you set boundaries with yourself and others.
For yourself, being able to identify your spoon levels and use them appropriately to ration energy can help you avoid falling into pitfalls like the “Boom-Bust Cycle” and better pace yourself. I put this into practice by creating lists rating activities by spoon levels. I have a master list of meals I can eat, categorized by how many spoons it usually takes to make the meal. This way, I can plan out in advance on low spoon days, like when I have PT, and know I won’t have the energy to cook a meal that takes three spoons to make, I can meal plan for the week and buy what I need for a one spoon meal that day. This can also be applied to things like chores and hobbies. I sort my to-do list by priority, and then by how many spoons it will take to do the activity. Knowing your spoon levels can assist in setting boundaries with others as well. I always have a standing appointment on Tuesdays, so I never make plans that day. I always ask for help with certain chores because even if I physically can get them done, I won’t have spoons for the rest of the day or even the week.
Accepting Disability
In order to cope with the loss of certain activities, finding accessible alternatives can go a long way. You might be able to find an adaptive way to still participate in a hobby, like adaptive basketball. There are also so many options for hobbies in the world, and you might be surprised by what works for you now! This is a good time to start to focus on what you can do, with adaptations, vs what you used to be able to/now can’t do.
Mobility aids are a beautiful tool. My advice is if you think that an aid might help you, you should at least try it! If it ends up not helping, or you don’t need it, you can always donate it. I also like to say (and my physical therapist likes to remind me) Just because you can, doesn’t mean you should.
And, of course, ask for help before your body demands it.
Disabled Liberation & Disabled Joy
If you have the spoons and time, you should prioritize learning about our history as a community (Crip Camp on Netflix is a great place to start) Additionally, you can learn about disability theory, models of disability, ugly laws, cripple punk movement, and our rights.
Disabled Joy is a concept that considers our joy to be a revolutionary act in and of itself. I use ‘joy’ here, rather than happiness, because while similar, happiness is based in the root word ‘hap’ meaning chance (as in mishap and happenstance), meaning that the experience itself is based in luck and external factors, and focus instead on the sensation associated with it– regardless of your situation, which is joy. Disabled joy looks like my partner sprinting while pushing me down the sidewalk with the wind in my face. It looks like a perfect day in Sims 4. It comes with safe foods and the healing power of accessible plauygrounds. You find it where it comes, and I hope you can find it in yourself.
Finding Community
The best part of the disabled experience, for me, is our thriving community. When it comes to community building, I always suggest online options first because they’re available 24/7 for most people, and you can reach community from your home. I’ve already mentioned online support groups, but also, online content creators are a great way to find community. If your social media following list is primarily able-bodied creators, especially ones who focus on activities that aren’t accessible to you, it can be really damaging to your mental health. This can help you to find friends who get what you're going through.
Self-advocacy and systemic advocacy resources from our peers and organizations can give you the tools and feel empowered to create change. Seeking resources by and for our community can be lifesaving. You’re reading one right now.
Welcome to the community.
♿️❤️ (wheelchair emoji, heart emoji)
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