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#ChronicIllness chroniclife

serenebutterfly · 1 year

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One thing that I have learnt from living with #chronicillness and having to take many pills is that they can be difficult to swallow! (And I would love to know why the the smaller pills are so much harder to take than the larger ones!) But the physical pills are sometimes not as hard to swallow than the metaphorical ones. All the losses that chronic illness causes in life such as loss of relationships, your health, the future as you once planned are all devastating #spoonie #spoonielife #spoonielifeproblems #chronicpain #chroniclife #invisibleillness #chronicallyill #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #neurologicaldisorder #fnd #functionalneurologicaldisorder https://www.instagram.com/p/CkySCw5sfAi/?igshid=NGJjMDIxMWI=

#chronicillness #spoonie #spoonielife #spoonielifeproblems #chronicpain #chroniclife #invisibleillness #chronicallyill #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #neurologicaldisorder #fnd #functionalneurologicaldisorder

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dashinghealth · 1 year

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Living with Chronic Disease: A Journey Through Hope and Perseverance by Idongesit Okpombor MD

Living with chronic disease can be a challenging and overwhelming experience. It can change every aspect of your life and create deep feelings of fear, discomfort, and uncertainty.

However, it's important to understand that living with chronic disease does not have to be a death sentence. For those who choose to navigate through the difficulties, it can be a journey of hope and perseverance.

This blog post will explore what it means to live with a chronic disease and the steps you can take to maintain a positive outlook on life. We'll cover everything from the physiological effects of chronic disease to the emotional toll it can take on your mental health.

Additionally, we'll look at different coping mechanisms that patients living with chronic diseases use to maintain hope and focus on the present.

We'll touch on the importance of taking care of your physical well-being, seeking support from loved ones, finding purpose in life, and setting realistic goals.

Accepting a New Reality

One of the key steps to living with chronic disease is accepting a new reality. This can be a difficult task, as it may involve giving up activities and routines that were once enjoyed, as well as adjusting to new limitations and uncertainties.

However, acceptance is an essential part of the journey through hope and perseverance. It allows you to redirect your energy towards finding new ways to adapt and manage your condition, rather than clinging to unrealistic expectations or continuously mourning what was lost.

While coming to terms with a chronic illness may be a challenging process, it is important to remember that it is a journey, not a destination. By accepting a new reality and approaching each day with a positive mindset, you can take steps towards finding joy and fulfilment in your life, regardless of your health challenges.

Openly Communicating With Your Care Team

Living with a chronic illness can be challenging, but openly communicating with your care team is one of the most important things you can do to manage your condition.

Your care team may include doctors, nurses, and other healthcare professionals who work together to support your treatment and care.

By communicating openly, you can help your care team understand your needs and goals, and work together to develop a personalised care plan that suits your unique situation. This may include discussing your symptoms, medications, lifestyle choices, and any concerns you may have about your condition.

By working together and staying informed, you can optimise your care and better manage your chronic disease over time.

Adapting to New Demands on Your Time

Living with a chronic disease can significantly alter your life and priorities, leading to new demands on your time. Adapting to these changes can be a challenging process, but it is essential for managing the disease effectively.

One approach that can help is to create a daily routine that incorporates the necessary treatments and self-management practises.

This might involve scheduling medication times, keeping track of daily symptoms, and arranging for transportation to medical appointments.

Additionally, it is crucial to communicate openly with family, friends, and colleagues about the changes in your life and your need for support. With dedication and flexibility, it is possible to find a new balance and adapt to the demands of living with a chronic disease.

Making Healthy Lifestyle Changes

Making healthy lifestyle changes can be intimidating for those suffering from chronic diseases, but it is a necessary step on the path to better health.

Making small changes to your everyday routine can have a significant impact on your overall wellbeing.

It's important to start with manageable changes, such as increasing physical activity by taking a 10-minute walk each day or swapping out processed snacks for fresh fruits and vegetables.

Gradually increasing the duration and intensity of physical activity and incorporating healthy food habits can lead to long-term success.

It's also important to prioritise adequate sleep and stress management techniques, as both can have a significant impact on overall health.

Remember, making healthy lifestyle changes is a process that requires patience, perseverance, and a supportive network that includes healthcare providers, friends, and family.

Developing Coping Strategies

Developing coping strategies is an essential aspect of living with chronic disease.

Coping strategies refer to the techniques and approaches that people use to manage the physical, emotional, and psychological challenges that arise from living with chronic disease.

Coping strategies can vary from person to person and even from day to day. It is important to identify strategies that work best for each individual, and this may involve experimentation and trial and error.

Some common coping strategies include stress reduction techniques, such as meditation or deep breathing exercises, creating a strong support system with family and friends, seeking professional counselling, and engaging in regular physical activity.

Developing coping strategies can help individuals maintain a positive outlook, reduce stress, and improve their overall well-being while living with chronic disease.

Connecting with Others Living with Chronic Disease

Connecting with others who are also living with chronic disease can provide powerful emotional and practical support. Sharing similar experiences and feelings with others can make you feel less alone and help normalise the challenges of living with chronic illness.

There are many ways to get connected, including joining in-person support groups, participating in online forums and chat rooms, and attending educational events or workshops.

These connections can also provide a wealth of valuable information, resources, and strategies for managing symptoms and coping with the emotional impact of chronic disease.

Remember, you don't need to go through this journey alone. Building a support network with other individuals who understand what you are going through can be a vital aspect of living with chronic disease.

Staying Informed About Your Condition

Staying informed about your condition is an integral part of managing chronic disease.

Healthcare providers are the primary source of information, but there are also several other reliable sources of information available.

Make sure to regularly consult with your healthcare team and ask questions. They can provide you with the latest updates and developments in treatment options and advise you of lifestyle changes that can have an impact on your condition.

Additionally, there are many reputable resources, such as online articles, support groups, and community forums, that can provide valuable information and support.

Remember, it is crucial to prioritise staying informed about your condition and to constantly evaluate and adjust your strategies for managing it. This will empower you to take an active role in your healthcare and make informed decisions to improve your quality of life.

Seeking Support from Family and Friends

Living with a chronic disease can be challenging and emotionally draining, but seeking support from loved ones can be invaluable.

Family and friends can provide a source of emotional support, motivation, and encouragement. It is important to have a supportive network of people who understand the struggles they face.

This can come in the form of physical support, such as assistance with daily tasks or transportation to medical appointments, as well as emotional support, such as being a listening ear or providing words of encouragement.

It is crucial to communicate openly and honestly with loved ones about the challenges of living with a chronic disease and to reach out to them for help when needed. Seeking support from family and friends can not only ease the burden of living with a chronic disease, but can also lead to a greater sense of connection, hope, and perseverance.

Finding Ways to Celebrate Your Wins

Living with a chronic disease can feel like an uphill battle, but it is important to remember that even small victories deserve to be celebrated.

Whether you have achieved a goal related to managing your symptoms, completed a task that may have felt overwhelming before, or simply had a good day despite the challenges that you face, finding ways to celebrate your wins can help you stay motivated and keep your spirits up.

It is important to acknowledge the hard work and effort that you put in every day to manage your chronic condition, as this can help build resilience and promote a positive outlook.

Some ways to celebrate your wins could be by treating yourself to a favourite activity, spending time with loved ones, or acknowledging your successes in a journal or gratitude list.

Don't forget to also surround yourself with supportive individuals that will acknowledge your wins and cheer you on as you go through this journey of hope and perseverance.

Finding Your Own Path to Hope and Perseverance

Finding your own path to hope and perseverance is an essential part of living with a chronic disease. No matter what condition you have, it's important to remember that you are not alone in your journey.

Many people with chronic illnesses have found that connecting with others who share their struggles has been incredibly helpful in maintaining hope and perseverance. You may find online support groups, local support groups, or friends and loved ones to talk to about your experiences.

Additionally, mindfulness practises, such as meditation and yoga, have been shown to decrease stress levels and improve overall wellbeing. It's important to experiment with different coping strategies until you find what works best for you.

Remember to take things one day at a time, and celebrate each small victory along the way. With perseverance and a positive attitude, you can continue to thrive in spite of your chronic illness.

In conclusion, living with a chronic disease is a difficult journey that challenges a person's physical and emotional well-being. However, the journey can also be an opportunity for growth, hope, and perseverance.

Through self-care, seeking support from loved ones and healthcare professionals, and living a purposeful life, you can break free from a victim mentality and find strength and resilience to thrive.

As difficult as it may be, every day of living with a chronic disease is an opportunity to appreciate life and all it has to offer.

NEXT READ: Understanding the Complexities of Chronic Diseases

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achronicvoice · 4 years

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Have you taken some time to preserve and nourish yourself today?⠀ .⠀ #Repost @sunnybloominspiration with @get_repost . Post by @callyjanestudio⠀ ⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #achronicvoice #spoonie #spoonielife #spoonies #spoonieproblems #invisibleillness #mentalhealthmatters #mentalhealthsupport #chronicillness #chroniclife #chronicpain #chronicpainsucks #chronicfatigue #disability #selfcare #selfawareness #wellbeing #selflove #preservation #survive #thrive #nourish #resting #healing #recovery #wellness #mindfulness #totd #inspiration https://www.instagram.com/p/B7eT-L6l1Zf/?igshid=1wh8qp536qexk

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saltwombat88 · 5 years

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One thing I hate about my current mental state is my lack of interest. I used to have so many hobbies and crafts I did. Now I sit down with the stuff required for a hobby and I feel zero motivation, no inspiration and no joy.

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zenasphotography · 4 years

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Please help me through this. It’s a lot to ask, I appreciate it.

#lupuswarrior #systemic lupus erythematosus #lupusflare #SLE #LUPUS #chroniclife #CHRONICILLNESS #gofundme #donations #donate #pleasedonate #help #disabledppl #disabled #disablepeople

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chronicallyjazzy-blog · 4 years

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Introduction

Hi I’m Jasmine, AKA Jazzy. I’m a graduate student who studies mental health and school counseling. I’m here to share my experiences, and write about chronic illness in general. I have POTS, Fibromyalgia, CFS/ME, PCOS, Sjogrens, and Chronic Migraine. I do my best to have a successful life despite my ailments. I want to share things I go through because many people in the chronic illness community have things in common, and I think it’s great to see different perspectives. I also want to discuss different topics that are not often spoken about in the community like mental health. I’m an open book, and always here to talk if anyone needs. In my free time I love to watch shows on Netflix, go shopping, go on walks when my body allows, and hang out with my family and friends. Hope you enjoy reading and scrolling through my blog. I will be posting things I feel relate to chronic illness and pain.

#chronicillness chroniclife chronicpain spoonies

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serenebutterfly · 1 year

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I recently came across this quote on #Twitter and thought that it just brilliantly summed up the experience of living with #chronicillness perfectly. Because although there are good days, sometimes even wonderful days - pain and illness are still there, still a part of that memory and experience. In my experience, there is never a day when pain or the #symptoms of the #neurologicaldisorder I live with are not there; it is my full-time job, just one where I never have a break or a holiday entitlement, and which I work 24 hours a day, 365 days a year. This illness and these symptoms have now been a part of my life for so long, I can no longer recall what it felt like when they weren't there, or what it feels like to feel healthy, what it feels like to feel well. #spoonie #chronicpain #chroniclife #chronicallyill #invisibleillness #spoonielife #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #chronicillnesswarrior #chronicpainwarrior #chronicpainblogger #fnd #functionalneurologicaldisorder #fndaware #voices4fnd https://www.instagram.com/p/CqIM1NLtGp2/?igshid=NGJjMDIxMWI=

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lovesilentfury · 4 years

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Y'all still think it's great? Reposted from @theunchargeables Isn’t this what you want to ask everyone complaining? This is basically our every day lives! It sucks, and they’re getting a little taste of what we’ve been dealing with for so long. Y’all are welcome to share this to show everyone complaining! 💜 -Meena⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.🌟⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #spoonie #invisibleillness #fibromyalgia #autoimmune #endometriosis #disability #raredisease #ehlersdanlos ~GoddessStrong (at Park Hill, Denver) https://www.instagram.com/p/B98EjXmJkdD/?igshid=19lpaqlyvln4

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lisaehrman · 2 years

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April Chronic Illness Prompts give me a great way to express my thoughts about chronic life.

#ChronicIllness chroniclife

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baddyabby97 · 4 years

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Self-help

Today, I found myself in the book store. I don’t know what I was looking for, maybe just to leave the house for the first time in days. Maybe to pretend I was more than a sick girl. Maybe to buy a book. I don’t know. But I found myself in the “inspirational and self help” section. I used to live by these books. They kept me motivated and positive, I’d listen to the audiobooks on the way to work every morning. I guess I was just looking for that same feeling or fufillment again. Books with names like “The power of positive thinking” “Grit” “Drive” etc. I started to tell myself “you should get a couple of these, learn how to be happy and successful.” I started flipping through a few. They’re all different and the same. The message at the end is be more disciplined, try harder, develop better habits, push yourself, you can do more, you’re your only limitation. As I flipped through book after book, tears began to stream down my face. I was mourning who I was. Now, it doesn’t matter how hard I push, how much discipline I have or how much I want it. The attacks still come at random. The pain is still consistent. I’m still incapacitated for the majority of the time. I found myself desperately searching the covers to find something to tell me how to live with this. Something on how to be happy again. Or how to cure a brain tumor. DIY Neurosurgery perhaps. But all I found was “mind over matter” and “stop making excuses.” 2 years ago I would have walked out of the store with a pile of books and a new outlook on life. Today, I walked out defeated and with mascara running down my face. There’s no success story for me.

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achronicvoice · 5 years

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Relatable ;) Am not that introverted, but I do hate phone calls of all communication points the most!⠀ .⠀ #Repost @lizandmollie with @get_repost⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #achronicvoice #spoonie #spoonielife #spoonies #spoonieproblems #invisibleillness #awareness #mentalhealthmatters #mentalhealthsupport #chronicillness #chroniclife #chronicpain #chronicpainsucks #chronicallyill #chronicpainwarrior #chronicillnessawareness #chronicfatigue #disability #disabilityawareness #selfcare #selfawareness #wellbeing #communication #introverts #phonecalls #ihatephonecalls #networking #socializing #funnymemes https://www.instagram.com/p/B2fqmTCjNJq/?igshid=17qlqzubhuetc

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saltwombat88 · 4 years

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I would love to find a medication that gets rid of my migraines. But I'm also scared. Because I've had chronic migraines since my early teens, so I have had to put off or dial back ideas and hopes and dreams and plans. So now if I get drastically better... I have to plan enough to make up for 6+ years.

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