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#spoonies
spacedocmom · 2 days
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Doctor Beverly Crusher @SpaceDocMom When I get a patient who has a condition I'm not familiar with, I'm eager to find time to research it further. Too many doctors in your era deny, blame, or otherwise chastise patients instead when they're embarrassed by their own lack of knowledge. Appalling. emojis: black heart, blue heart, masked, spoon 4:06 PM · Apr 16, 2024
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lifewithchronicpain · 16 hours
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The idea that all people are equal should never assume that all people are physically equal.
In other words my membership in this society should never be conditional on my ability to work. I understand many people want to just express that if you work hard you deserve an equal share of the pie. On the face of it, I get it. But you will always be leaving out disabled people who are still humans that exist and deserve dignity whether we can work 8 hours a day or not. Our work doesn’t make us equal, our humanity does.
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the-jesus-pill · 10 months
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You’ve got to forgive yourself for being traumatized and needing to learn how to function again. 
Recovery isn’t always nightmares and depression, it’s forgetting to eat, being scared of what others might see as completely normal things, it’s getting random panic attacks, not knowing how to take care of yourself, not knowing how to live like an adult, even if you’re twenty, thirty, forty, fifty, of feeling like you’re failing to function in a world where everyone seems to have their shit together. 
If you need help, ask for it. Go to forums and ask for advice. Take advantage of community resources. Buy pre-sliced veggies and fruits, eat instant meals if you can’t cook for yourself today. Hire someone. Ask a neighbor for a favor. Buy any item you think might make life easier, even if you feel like you aren’t ‘disabled’ enough to have it. 
Some of the depression posts (ie open your windows, take a shower, go outside, call a friend) are really helpful but they’re not always enough. I’ve found advice for spoonies, people with chronic pain or other disabilities have the best tips because they know what it’s like to be bedridden, out of energy, stuck in a brain fog. 
You may never return back to the energy you had when you were younger and you might always need to use crutches to help you through life. It’s the same with medication. 
Trauma is a real thing that happens to you, it physically alters your brain and it’s alright to have lasting scars. 
You’re not broken, your life is not over and you can still be happy. 
It’s not your fault.
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frogsupportanarchy · 2 months
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Just because I'm not in my wheelchair today doesn't mean I'm not disabled or I'm faking it. Flare ups happen, bad days exist. Not every disability is a constant there's fluctuation in pain levels and mobility.
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cripp-tid · 9 months
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if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.
so. shoutout to:
• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill
• people who can't get off their medication long enough to conceive
• people with uteruses who have endometriosis or PCOS
• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)
• intersex conditions that makes you infertile
• anyone who has a terminal illness
• people who've had medically necessary surgeries which caused infertility
• people with genetic conditions they don't want to pass on (me again)
• those who require IVF that's just not in the cards for whatever reason
• and many, many others
• feel free to add on
you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙
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grouchydairy · 1 year
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headpainmigraine · 8 months
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"MERD" isn't a thing. It doesn't make sense.
TERFs say 'transwomen aren't really women'
Cripplepunks aren't saying 'mental illness isn't a disability'
We're saying 'cripplepunk is a space for people with a physical disability'
And 'if you're nd or have a mental health condition but DON'T have a physical disability, this isn't the right space for you.'
Please populate 'neuropunk' and 'madpunk', please.
I'd love to see more activity in those tags than people trying to push a triangle into a square hole because 'we're all shapes'
Yeah, that's true, but you aren't a square!
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clownrecess · 11 months
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You are not gross, or bad, if you struggle with hygenine. Its okay! Last night I brushed my teeth, which was a big achievement for me! Whatever achievement you made, I'm proud of you. And if you didnt make an achievement, I'm still proud of you. I love you so much, and your ability to take care of yourself is irrelevant to that love. /p
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calmmyfears · 1 year
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i hope you did at least one thing for yourself today. whether that's brushing your teeth, drinking a nice cup of tea, taking a break to listen to your favorite song or reading your favorite poem. it doesn't have to be grand to be meaningful. it is so important to stay close to what brings you joy and purpose in life. ❤️
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spacedocmom · 8 months
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Doctor Beverly Crusher @SpaceDocMom You're allowed to be angry at your disabilities and/or illnesses. You don't have to be, but you're allowed to be. Never let anybody police your emotions about your health. I'm here for you to support however you feel about all of it in any given moment. emojis: black heart, blue heart, masked 1:10 PM · Sep 4, 2023
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chronicillnesshumor · 19 hours
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lifewithchronicpain · 11 months
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If you don't need a cane, but you get one to signal disability because sometimes you get faint and need to sit, or whatever, as a cane user for years, go ahead. Please, if it makes claiming accomodations easier for you, even if you don't need it to walk, I don't care. This is your permission if you needed it.
Can I suggest that you can get a foldable one at CVS (they're great) so it's there when you need it? Shits fucked up, do what you need to do. Just beware there are assholes that won't care about the cane. But overall, it does make things easier and is easily purchased. Go for it.
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chronicallycouchbound · 9 months
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Most wheelchair users are ambulatory.
Meaning, most of us can walk for short distances. We aren’t faking just because we can walk some of the time.
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frogsupportanarchy · 20 days
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Disabled people don't owe you a diagnosis. Don't ask "what's wrong" there's nothing wrong with me I'm just disabled. You're a stranger, why would I tell you something that should only be between me and my doctor?
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