FND # 4 - Affects of FND (Part 2)

FND: Functional Neurological Disorder or as it is known to a few within the medical profession and those suffering. Is as it says on the title a functional issue. An Issue with the brain where message or electrical impulses do not go to the required section of the brain. This mainly happens during times of stress. Yesterday was one hell of a stressful day where my body refused to work right.…

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Are you #FNDAware ? Part 2

For FND Awareness Month (April)

https://notdefinedbyfnd.wixsite.com/not-defined-by-fnd

Hey! I was diagnosed with FND four years ago and I didn’t even hear of anyone else having it until about a year ago. Honestly this blog just existing makes me excited because we’re not alone :)

Hey there! Thanks for reaching out :) Messages like this make my heart glad. I'm delighted that this has been a validating find for you. The isolation and loneliness of FND can be one of the hardest parts. There are thankfully some great FND communities out there. Twitter (I will not call it the other name :) ) has a good number of active FND folks, and the community is actually growing pretty nicely on Instagram too. Everyone's familiar with the social situation of FND in these communities, so there's little judgment and lots of solidarity. If you happen to use either of those platforms, feel free to give me a follow there or search some FND-related hashtags (#functionalneurologicaldisorder, #fndaware) and I'm sure folks will be delighted to say hi. As will I!

Wellness is not the lack of sickness, but the capacity to overcome sickness.

#fnd #FNDAware #fndawareness #FNDAwarenessDay #functionalneurologicaldisorder #aquagrand

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The stats speak for themselves. It's time to make your elected officials/MPs #FNDAware!

Fnd paitents live with changing symptoms like Parkinson’s disease and long term disability comparable to that with MS. More then 70% of FND paitents experience continuing and deteriorating symptoms after one year and over 40% are the same or worse after ten years.

Pedetric neurologist in the US and Canada have reported 66% less since March 2020 compared to pre pandemic.

It’s time you start making your state officials aware.

Ask for a meeting to learn more about the current platforms and request more awareness, funding, and research for Functional Neurological Disorder.

resources at https://fndhope.org/fndaware/.

You can also help us to spread awareness by sharing this post and tagging your elected officials.

#fnd #fndhope #fndaware

I recently came across this quote on #Twitter and thought that it just brilliantly summed up the experience of living with #chronicillness perfectly. Because although there are good days, sometimes even wonderful days - pain and illness are still there, still a part of that memory and experience. In my experience, there is never a day when pain or the #symptoms of the #neurologicaldisorder I live with are not there; it is my full-time job, just one where I never have a break or a holiday entitlement, and which I work 24 hours a day, 365 days a year. This illness and these symptoms have now been a part of my life for so long, I can no longer recall what it felt like when they weren't there, or what it feels like to feel healthy, what it feels like to feel well. #spoonie #chronicpain #chroniclife #chronicallyill #invisibleillness #spoonielife #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #chronicillnesswarrior #chronicpainwarrior #chronicpainblogger #fnd #functionalneurologicaldisorder #fndaware #voices4fnd https://www.instagram.com/p/CqIM1NLtGp2/?igshid=NGJjMDIxMWI=

Time for the exciting news! Pure Gym are supporting me to qualify at becoming a personal trainer! #woe #puregym #fndaware #pt (at Evesham) https://www.instagram.com/p/CStFTlitLDa/?utm_medium=tumblr

Had the energy to do my make up today. Neurology Ward life. #fnd #functionalneurologicaldisorder #fndhope #fndaware #spoonie #neurology #fmd #FND #neuroward #neurologyward #dystonia #dysphagia

And every time I try to pick it up Like falling sand As fast as I pick it up It runs away through my clutching hands But there's nothing else I can really do There's nothing else I can really do There's nothing else I can really do At all.... A smile can lie a lot! #mentalhealthawareness #borderlinepersonalitydisorder #bipolar #bipolarawareness #bpdawareness #suicideawarness #mentalhealthunderstanding #neadawareness #nonepilepticattackdisorder #fndawareness #functionalneurologicaldisorder #nonepilepticseizures #NEAD #fndaction #fndhope https://www.instagram.com/p/CBjGCDOAF3P/?igshid=1p6u9p6rirwtg

I know an incredible woman called Amy, also known as @warriorprincessamy , who is battling CRPS and FND. Due to mental health issues, as a result of her diagnoses etc, has only just found the strength to share her story and journey so far. She is helping raise awareness which is so important. Please take time to watch her video by clicking the link on my profile page or by visiting: https://youtu.be/ul6CvX7lbzY x #warriorprincess #complexregionalpainsyndrome #crps #crpsawareness #crpswarrior #fndawareness #functionalneurologicaldisorder #fnd #mentalhealthawareness #chronicpain #chronicillness #spoonie #spinepainwarrior https://www.instagram.com/p/BtoUzCBHlbF/?utm_source=ig_tumblr_share&igshid=1k2lfx99wu98s

So, at the Outside, Inside exhibition, I have 4 unique and limited edition Henry’s available. So, in preparation, here is my first UP IN SPACE post. Sometimes it seems like Henry is in on another planet - he may look spaced out, distracted or not interested in a conversation. Sure, you may be boring him, but Henry does love his friends and it’s more likely he is having FND or depressive symptoms. Sometimes vertigo, pain, non epileptic seizures, unusual tingling sensations, trying to figure out how to do a simple activity (like talk or walk), fatigue, disassociation, suicidal ideation and anxiety can cause this “spaced out” feeling/look. It’s okay - it will pass and Henry will be back to functioning again soon! #henrydaze #henrydays #breakingstigma #mentalillness #depression #depressionawareness #fnd #functionalneurologicaldisorder #fndawareness #awareness #spoonie #chronicillness #disability #art #accessarts @access_arts #turtle #turtleart 🐢 https://www.instagram.com/p/Bg5fLblBXXs/?utm_source=ig_tumblr_share&igshid=zqxr6mmlbqy5

Functional neurological disorder (FND) is a medical condition in which there is a problem with the functioning of the nervous system and how the brain and body sends and/or receives signals, rather than a structural disease process such as multiple sclerosis or stroke.

One #wallartprint #wallartdecor #wallart #flowerart #covidart #fndawareness #abstractart (at Sunshine Coast, Queensland) https://www.instagram.com/p/CLkYGO8BiJN/?igshid=1e8c5snfqokxb

Although we all experience #FOMO at certain times of our lives, when living with #chronicillness, we don't fear missing out because we often are forced to face it. Instead, FOMO becomes the FEELING of missing out because, all too often, the debilitating and disabling #symptoms of living with illness force us onto the sidelines, watching instead of being able to experience or participate in the fun and frivolity. Or the feeling of missing out when not being invited or even thought of when those in our social circle organise a party or event, sometimes only finding out about it on social media. On a recent breakaway, I often missed out, seeing so many people going out enjoying walking the many different trails of the #NewForest but unable to experience it myself with my limited mobility and the tendency for my legs to give way suddenly. I felt lazy and unaccomplished, only being able to enjoy the confines of the beautiful log cabin we stayed in and the scenery just outside it. The feeling of missing out and the increasing isolation and loneliness of living with a chronic illness is a grief I don't think I could ever overcome or get used to. #spoonie #spoonielife #chronicillness #chronicpain #chronicfatigue #chroniclife #chronicillnesslife #wherethetiredgirlsare #chronicallyill #chronicallyillblogger #chronicillnessawarness #chronicillnessquotes #neurologicaldisorder #fndaware #fnd #functionalneurologicaldisorder https://www.instagram.com/p/CciQF2EKSmo/?igshid=NGJjMDIxMWI=

#Repost @official_socalledlife with @get_repost ・・・ How very true and sad this is. #anxietyawareness #anxietyproblems #fndawareness #fndhopeuk #functionalneurologicaldisorder #functionalneurologicalsymptoms #ptsdrecovery #ptsd #pasttrauma #emdrtherapy #emdr #butyoudontlooksick #believeinyourselfalways #bekind #bekindtooneanother #chronicpainawareness #chronicfatiguesyndrome #chronicillness #clearthenegativity #socalledlife.uk (at Canggu) https://www.instagram.com/p/B36vLwLANKS/?igshid=tqarivvxv8l2

Walking is a bit tricky at times, walking with more than one cup of tea, or a plate of food? Almost impossible on a bad mobility day. I've invested in this little trolley to help. Stuff for me on the top, Dylan's stuff on the bottom #fnd #fndlife #fndawareness #functionalneurologicaldisorder https://www.instagram.com/p/CJvpsn8pYjp/?igshid=13wfa10mj5lck