#Sclerosis | Explore Tumblr Posts and Blogs

burythecarnival · 16 days

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i am quite behind on answering messages; thank you for being patient with me.

my pain has been fucking out of control & i feel like i am spiraling. i hate that i have been in hospital twice in a month. i hate scleroderma wrecking my body. i hate that on top of chronic migraines, i get brutal ice pick headaches now & they are so debilitating. i hate that i feel like i am corroding from the inside-out from my arthritis. i hate the random bouts of edema that are apparently "just something i have to deal with now."

for those who check on me, your care is so appreciated. the pain, extreme fatigue & nausea have just been overwhelming. i have a few different medical appointments the next couple of weeks & can hopefully gradually get back to making content.

tips & donations are incredibly appreciated but, please only give if you can afford to. take care of yourself first. the fact that people genuinely care means so much 🖤

cashapp: $dryboneslive / venmo: dryboneslive

luv, cuddles & cauldron bubbles, the ghost queen 👻

#cw illness #cw medical trauma #reblogs are appreciated #disabled sw community #scleroderma #sclerosis #ehlers danlos syndrome #arthritis #i'm so fucking tired #someone hold me #chronic pain #autoimmune disease #support content creators #ghost queen #mine

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crippledpunks · 1 year

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shoutout to everyone who struggles with focus. so many things can cause a horrible relationship with the ability to focus- ADHD, autism, depression, chronic pain, intrusive/invasive thoughts, OCD, schizophrenia, bipolar disorder, brain fog from fibromyalgia, GI problems, MS, EDS and other chronic illnesses, chronic fatigue (CFS/ME), and a lot more. you're not spacing out or losing focus because you don't "want" to pay attention. the harder you try to focus when you struggle with it, the harder it gets- it's alright. you're not doing this shit on purpose, despite what they tell you. there's a lot of shit to distract you, no wonder, it's not your fault.

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take-a-dip-in-the-deadpool · 8 months

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THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

#chronic pain #disease #multiple sclerosis #tiktok #share #rb

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industryupdates101 · 3 months

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#multiple sclerosis #sclerosis #healthcare

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mercoglianotrueblog · 6 months

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Pilots heart failure: +1000%

#DOD:increase in #heart issues of #pilots

Ted #Macie:concerns abt risks from #CoV #vax

spikes in #hypertension #neurologic disorders #sclerosis #cancer #infertility #embolism

1/3 #airline pilots have #military background

#United:3,000 pilots from #USAF

https://salvatoremercogliano.blogspot.com/2023/12/pilots-heart-failure-1000.html?spref=tw

#dod #heart #pilots #vax #cancer #sclerosis #infertility #neurologic #united airlines

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concordprimarycareservices · 7 months

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What is ataxia?

Ataxia usually results from damage to the part of the brain that controls muscle coordination (cerebellum) or its connections. Many conditions can cause ataxia, including alcohol misuse, stroke, tumor, brain degeneration, multiple sclerosis, certain medications and genetic disorders.

📷 ProtoKinetics

#concord primary care services #health #texas #san antonio #ataxia #brain health #stroke #sclerosis

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ayeforscotland · 2 months

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Holy shit.

Researchers at the University of Chicago have been able to create an ‘inverse vaccine’ that can remove the immune systems memory of specific molecules.

Reading that, sounds like a horrendous bio weapon in the making. But the plan is for it to be used to treat autoimmune diseases like multiple sclerosis, type one diabetes and rheumatoid arthritis.

This was already proven to be able to prevent autoimmunity but the new work shows it can be used to treat ongoing autoimmune issues.

Source.

#ayeforscotland #autoimmune #multiple sclerosis #type one diabetes #rheumatoid arthritis #science

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joannahinc0art · 11 months

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What is it like to face a chronic illness on a daily basis? What problems arise at work and on a daily basis, and how to handle them?

This is what my site is about, as I want to share my experience on these topics with others.

#health #challenges #chronic #illness #healthcare #self-care #self-compassion #multiple #sclerosis #MS #life #story #pain #autoimmune #condition #disability

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smoov-criminal · 11 months

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happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

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atomicradiogirl · 5 months

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house and wilson in house md is the opposite of queerbaiting. they are the most canon tragic friends to lovers situationship in fiction history they literally move in together, EVERYONE thinks they’re a couple, house literally fakes his own death just so he can be alone with wilson in his last few months of life, the show ends with them riding off into the sunset together. they literally love each other. the only thing missing is they don’t kiss (on screen). dear GOD. and this show is from 2004. house and wilson invented 90% of modern day queer ship dynamics. just saying.

#house md #sorry i’m infected with house md brain worms #the worms are back #it’s always tuberus sclerosis #why do i only talk about queerbaiting #hilson #they are the blueprint #because i say so #you thought it was over #but it’s never over #they are literally endgame

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cbd4u · 1 year

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#sclerosis #cbd #health #wellness

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gayaest · 8 months

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Lishai 🌈🌸♿️🩷🪴 [ID in alt-text]

He has PPMS and uses an intermittent catheter! There is way too much stigma (from both disabled and non-disabled people) about incontinence, catheters, and bladder issues. It’s not “gross”. The only “gross” thing is being judgmental of disabled people for something they cannot control and keeps them alive.

#my art #art #original characters #disabled artist #disabled characters #disabled oc #wheelchair user #catheter #ms #multiple sclerosis #illust #illustration #babe with a mobility aid #disabled and cute #wheelchair

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nightshadelane · 1 year

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Life from December 2013 to now May 2014

I don’t know about you, but my life unraveled right at Christmas in 2013 and hasn’t settled yet and here it is May 2014. I miss being on my computer, posting reviews on great books, posting free books and reading about what everyone else is up to. I haven’t touched my own draft of my first book. Nothing is the same nor will it ever be. So let me give a bit of an update. I live with my mother who…

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#writing #amputation #arterial #author #book #books #depression #disease #family #life #ms #multiple sclerosis #pad #pulminary #reader #reviews #sclerosis #survival #surviving

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rebirthgarments · 1 month

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TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

#gaza genocide #gazaunderfire #stand with gaza #news on gaza #war on gaza #gaza strip #free gaza #gaza #gazaunderattack #save gaza #mutual aid #i personally vetted this fundraiser #disabled and cute #disabilityculture #disabilityarts #disabilityjustice #multiple sclerosis #cancer #pancreatic cancer

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mercoglianotrueblog · 11 months

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#WHO:CoV #vax can get #sclerosis

#AP:#false Corrupt #press pushed vax,hit #unvaxxed at #Christmas too

#OmicronVG,#Gates,vax #microchips

negatives put on #ventilators,died

#orders from above:fake #death doc

96% died for other DZ,tests dubl.

#greed tragedy

https://salvatoremercogliano.blogspot.com/2023/06/covid-

#who #vax #sclerosis #ap #corrupt #omicron videogame #bill gates #microchips #negatives #ventilators #fake doc #deaths #other diseases #greed tragedy

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spookysalem13 · 8 months

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I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

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