⚠️cw?: Injury, talking about disability stuff as a cg⚠️
as a disabled caregiver it's hard to get around when it comes to physical activities. Mush that with a little who's often energetic and loves to do alot of physical activities, it's hard. I'm a wheelchair user, but I'm not paralyzed so I can leave our wheelchair if need be. It isn't recommended by our doctors to leave for a very long time, usually up to 30 minutes to an hour. (Most of the time we can stand for only 10-ish minutes.) Anyways it restricts alot of things we'd like to do. Such as piggyback rides with our cousins or playing tag. Simple things like that.
But as someone who's only had one leg in my source, I knew how to narrow down my activities when it came to taking care of age regressors. Fun fact! If I remember correctly, about 3 to 4ish of my students were regressors. So I've been a caregiver for a long time pass when I formed in the system. Anyways, what I personally do is I just sit down. It's a pain to get back up on my own, but usually I keep my wheelchair close so I don't really need help getting back up when I need to. So, I like to sit down and criss cross my legs. If my little follows my movements and sits on my lap, I can do majority of my care for them with them in my lap. Such as talking with them, feeding them if they need help with that, watching cartoons, so on. This can also work if they don't like physical touch or not comfortable being in my lap. Just as long as they're at arms reach I'm fine. The only issue was I always have to find a way into the kitchen to try and get them something. (It's the worst part) but I try to make due.
i guess the reason why I'm making this post was because I felt kinda invalid due to my ability to walk much. Even when starting out when I formed in the system, I had people telling me I shouldn't try to caregive if we desperately needed a caretaker ourselves. However I didn't want to listen to them. I know it wasn't impossible, and I know there's many CGs who are disabled just as we are. So I never gave up on the idea and now I'm here
-coming from someone who's a wheelchair user, half deaf and tics. Have a good day 👋
I love you canes I love you forearm crutches I love you compression gloves I love you compression sleeves for knees and elbows. I love you rollators I love you wheelchairs I love you back braces and neck braces I love you power chairs I love you leg and arm braces I love you screen readers and hearing aids and everyone who spends the time and energy to actually help physically disabled people of all kinds.
I love everything that helps disabled people live our fucking lives
Happy disability pride month! I decided to draw some disabled Barbies, most, if not all, from the fashionista line!
note: I'm not fluent in Brazilian Sign Language, please let me know if I messed this up in any way!!
[ ID: a digital, stylized drawing of five women sitting around a brown table and talking to each other. The background is transparent, and there's some shading. The women are, from left to right:
A woman a wheelchair and has dark skin, black eyes and long, coily, black hair, and wears pink heart glasses and a short, sleek, rainbow striped dress. Then, a woman with Down Syndrome with tanned skin, hazel eyes and long, wavy, blonde hair, and wears a white dress puffy sleeves, pink, yellow and purple flowers, a pink necklace and pink orthopedic shoes. They both smile.
Then, a Deaf woman with pale skin, green eyes and long, straight, red-ish brown hair in a high ponytail, and wears hot pink hearing aids, a short, black dress with a white collar and hot pink, white and purple flowers and dark hot pink shoes. She does the sign for bus in Brazilian Sign Language, her two hands close to her chest, curved inwards, then going forward, breaking apart, like a bus door opening.
Next to her is a woman with vitiligo with dark skin, dark brown eyes and long, dark brown, coily hair in a large bun, wearing a long, pink, yellow and white striped dress and white shoes. Finally, a woman with alopecia with medium tone skin, brown eyes and no hair, wearing a hot pink dress with puffy sleeves and purple flowers, golden hoop earrings and white shoes. They both have neutral expressions. /End id ]
I would suggest using the opportunity to learn more about all the different disabilities and how they impact the lives of people with them, and how that struggle is made worse by ablism in our society.
Take the chance to learn from actual disabled people, talk to us and hear our stories, listen to us when we tell you how to help us and make our society more functional and accessible.
Learn about disabled history, about the crimes and injustices done to disabled people. Look up disabilty holocaust and you will get a bunch of articles on what the nazis did to disabled people. It's depressing, but important to learn.
Disability isn't a bad word, it's an accurate description unlike calling someone differently abled. They aren't the same. Disability = not abled, like not able to walk because you are a leg amputee, not being able to do things like everyone else because you have no executive function capabilities. Differently abled = something like left handed, you are still fully abled, you just do it differently but you do it without any aid or tools.
My friend @poeticallydisgraced gave that example when our school put up a sign about recognizing differently abled students. And I think that fits the situation very well.
If you're curious, I've given a bit of a description of my experience under the cut.
Happy disability pride month!
I am nuerodivergent, Audhd, I have autism and Adhd. I also have chronic health issues with severe allergies and I get some bad migraines. I have hearing issues too but wouldn't call myself hard of hearing, it's more of a disconnect between what's said and what I hear. Makes for some entertaining conversations.
I tend to get over stimulated in social settings, too much noise and too many people really mess with me, light and sound trigger my migraines which can last for days, which is never fun.
I have no social awareness, and can't tell the difference between teasing and bullying, the line is super blurred/non existent for me.
This causes a lot of problems, because when people make those jokes and tease me, I don't get it, and to me it's rude and mean, but it also goes the other way cause when I joke I cross a line I can't see, and then everyone gets mad at me even though I'm doing the same thing as them.
I technically have a minor hearing loss in my left ear from a surgery as a child, but I had started having those hearing issues during the phase of development where you learn to speak, so my understanding of language is a bit skewed and I frequently hear things wrong, or don't hear the words said and have to ask for people to repeat it.
My family is starting to get annoyed and won't repeat anything but it's not like I'm choosing to do it, and it is very frustrating when they refuse to repeat it.
All these things leave me feeling a little isolated from my family and people around me.
I am expected to change and be someone else that is more acceptable to nuerotypical society, I jump through hoops and put on an act to appear less different, I've always been singled out as weird and other, and while no one has bullied me, at least that I was aware of, I got left behind by my peers.
The constant masking and acting like something I am not is exhausting, after a week of school I am fully drained of my energy and ability to put on that act.
My mom has gotten upset that I don't act the way I do at school at home, but I shouldn't have to act like a different person with my family.
I am not ashamed to be nuerodiverse and disabled, no one should be shamed or looked down on for something they can't control. A lot still needs to be done to make our society accessible to everyone, the current disability protection and aid laws are insufficient and full of loopholes that allow for disabled people to be ignored.
Shoutout to all deaf/hoh peoples who also have sound sensitivity or wear ear defenders!
I may be hoh + have an audio processing disorder, but this can quite frankly add to my sound sensitivities sometimes, so I wear ear defenders whenever I need them!
[ID: A gacha character is standing with their left hand on their hip, tilting themselves slightly forward. With their left arm, they are pointing to a pair of hot pink ear defenders that they are wearing. They have a light pink hoodie with a few small stars and a moon design on it, and they have shoulder length dark brown hair. They have a small smile on their face, with their eyes happily scrunched up. End ID]
[id: a dark purple userbox with a black border, to the left is a picture of the ASL sign for ‘i love you’ with a heart. to the right is a black text reading: “this user uses sign language”. /end id]
In the US, the FDA is now allowing OTC/non-prescription hearing aids to be sold. Of course they won't be as good of quality (think reading glasses vs. prescription glasses)
This won't solve all our problems but it will hopefully force manufacturers/retailers for RX to lower prices to compete.
This makes hearing aids accessible to SO MANY MORE PEOPLE. Hearing testing and diagnosis can cost hundreds of dollars. My cheapest hearing aids were $3000 each!! That was before I needed more high-tech equalization from moderate-severe loss.
y'all have no idea how much effort goes into trying to interpret and respond to some of the questions we get about aromanticism lol.
like kee does so much tonal phrasing to be nice about this, but. please. "what is aromantic?" i am not google. "i don't know if i feel romantic attraction." cool, i'm not gonna be able to tell you what it feels like either. "hi, what if I am a person and not one of the major aro stereotypes?" then you are a person who is aro and doesn't fit that stereotype.
and like, whatever, we deal with those fine. but the worst. the absolute worst. is the ones where the ask is more or less requesting me to speak for aromantic people as a whole, or - worse and more commonly - a specific subset of aro people who i may not identify with, and almost always insist they aren't trying to be bad, but have such a questionable mindset behind it that i feel like i need to start with "how to identify that you haven't unlearned shit, you just realized you have an identity and stuck your tongue out at the people who taught you that shit"
I'm going to be all alone and probably homeless in 3 months and I'm terrified
My partner has been forced to care for me all alone with no external help for years. His care of me is the equivalent of 3 full time jobs. He and his body cannot take it anymore. He told me he will move out and back to his parents in May. That's in 3 months.
We are both heartbroken. We just want a life together. We love each other so much. We don't feel complete without each other. We both just want a life together, that is okay. We could have had such a good life with each other if we weren't forced in this situation by the system. We are so upset and terrified about what will happen in 3 months that we can't find any words for it. We cry and cry and hug each other and cry more and I feel his hugs and I cry even harder because in 3 months I might never get to hug him again.
I have no idea what to do. I can't live alone. I can't eat, drink, toilet, or sleep on my own. Left alone it will only be a few days before I die. I would lie stuck alone in bed in my own pee and poo without any drinks or foods and slowly die of thirst. I'm so scared. I'm so terrified.
I don't want to die. And if I somehow find a way to survive, but never get to have my partner in my life again, that would be worse than dying. A life without him in it is not for me. I can't.
I am in so much pain and so much fear I have no idea what to do or how to describe it. Every good thing makes me sad because I will lose all of it in 3 months. I don't have anyone else to take me in. There is nowhere for me to go. I'm so scared.
My partner is my only communication partner who even gets close to fully understanding me. Without him, I don't even have a voice. No one else has loved me like he does, either. No one else has been so kind and gentle with me. Without him I have no communication partner and no person I'm actually attached to.
I'm terrified. My life has an expiration date. It's 3 months away.