#something chronic | Explore Tumblr Posts and Blogs

bitdemonic · 7 months

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three cheers for our 1k celebration post🩷 i could’ve put this message on the official post but didn’t want to wait lmao. thank y’all so much for supporting me and reading the content i’ve put out as well as being here in general, it means the world to me and i’m so very appreciative. i have something so big planned for us (after i finish everything else) and it’ll be revealed soon! i’m excited and i hope y’all are too; so much love.

#not a pac #something chronic #bitdemonic #1k post🥂

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sophsun1 · 2 years

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Finding new britin fics in the year of our lord 2022 - so blessed, so moved, so grateful x

#britin #queer as folk #ily fic writers #im missing making content #something chronic #:((#so this is so appreciated

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a-sassy-bench · 5 months

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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?

like honestly. what do you think being disabled means?

#if one more person tells me to take a sick day i'm going to throw something at them #i just honestly cannot anymore #disabilties #disabled #actually disabled #epilepsy #ehlers danlos syndrome #physical disability #neurological disability #actually epileptic #zebra #chronically ill #chronic illness #spoonie #chronic fatigue #chronic pain #c punk #crip punk #cripple punk

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thebibliosphere · 1 month

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Whenever I talk about the medical neglect and ableism I've encountered as a victim of the healthcare system, there's always some cockwaffle who feels entitled to come into my inbox and make the argument of "not all doctors" while talking about how "people like them" (because it's always someone in a field of medicine who does this) are doing their best and it's really hard because so many people fake being ill to get on welfare (Yikes), but like, yeah, obviously #not all doctors, because if all doctors were negligent, bullying scum bags, I'd be dead.

But here's the thing: while I truly believe that the majority of doctors are doing their best in a system stacked against them and their patients, their presence does not negate the mass harm caused by the bad ones. And there are far more bad ones than you realize.

Fuck, John Oliver literally did a segment on this last week:

youtube

Yes, the truly bad, malicious doctors are in the minority. Most are just horrifically burned out and fighting a losing battle against a system, killing both them and their patients through a lack of funding and resources and profound overwork.

But the malicious ones do exist, and they will go out of their way to harm patients who don't kowtow to them.

I almost lost my life because when I was in my early twenties, I told a doctor I didn't think she was listening to me, and I disagreed with her assessment of my mental health (she was not a mental health doctor, and I was there for heart palpitations and chronic pain). She retaliated by putting "non-compliant" in my file.

There was also a fun little "doesn't show respect" note too that lives rent-free in my head because I know I wasn't rude. I was polite. I just didn't agree with her, and my refusal to accept her off-handed comment that "you probably have bipolar or BPD" (again, I was there for heart palpitations and chronic pain) meant I was "refusing care."

I wasn't. I just refused to be slapped with a mood/personality disorder when I was there because I kept fucking fainting when I stood up.

(Spoiler alert: it was dysautonomia)

That "non-compliant" marker followed me around for years. It followed me across an ocean and effectively ensured that any doctor I saw was going to treat me like absolute dogshit because no one wants to help Difficult Patients. It wasn't until I was so undeniably ill, literally on the brink of death, that anyone helped me.

I'm alive because of a good doctor. And all the good ones that came after him because of him.

So, I know they exist. You don't have to tell me that.

But I really fucking need you to acknowledge the bad ones and that you're part of a system with a long, long history of abusing minorities and vulnerable people. I need you to acknowledge that because it's the only way we're going to survive this godforsaken nightmare and make things better.

So yeah, #notalldoctors, but if you feel the need to say that because someone talking about being literally left to die by the medical system hurts your feelings, I'm going to have to ask you to take a step back and ask yourself if you're going into medicine for the right reasons.

Namely: do you want to help people, even the "difficult" ones?

Even the ones who might disagree with you?

Even if they're on welfare?

Even if they'll never get "better" in a way that means "cured"?

Just a thought. But hey, what do I know. I'm just someone who experienced hemolytic anemia because doctors kept telling me I was anxious and needed to exercise more 🤷‍♀️.

#chronic health tag #medical abuse #medical neglect #medical #ableism #to all the good health care workers who follow me and leave supportive comments: I appreciate you so much #but you need to come get your fellow drs #and idk #give 'em a shake or something #Youtube

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hellyeahsickaf · 2 months

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When I say "I can't do that" what I'm not saying is:

I don't feel interested in doing that

I don't care enough to

I'm too good to be doing that

I don't think you deserve that of me

I'm not in the mood to do that

Not now, I'll do it later

Maybe

If that's what I meant, that's what I would say

What I am saying is:

It will negatively affect me in ways I can't afford

I simply can't physically fucking do that

I can't risk the potentially severe consequences I may experience if I overestimate my ability to do that

And if I explain that I am unable to do that, it is not an invitation to:

Tell me how much my disability hurts your feelings

Ask if I'm sure

Interrogate me because you believe yourself to be the judge of how unwell is unwell enough

Put words in my mouth ("why don't you care?")

Tell me how easy it would be

Remind me of how many other things I've been unable to do. I keep the score more than you do

Accuse me of exaggerating or faking to avoid doing it

Ask me again shortly

Make assumptions about additional explanations. (I must be mad at you, I must not care about this)

Offer compensation in return ("I can pay you" "we can do something you want to do after" "I'll get you something you like")

Ask what it would take for me to suddenly be capable of doing it

Tell me how you do things you have to do when when you're tired and then you can just rest and recover. I am not like you

Remind me of a time I was able to do that. Either I had more spoons or was less severely disabled if at all.

Say that if I was well enough to do X today, I should be able to do this as well. Energy doesn't work that way. Are you capable of running 8 miles right this minute just because you were okay to work a 10 hour shift today? That's what I thought

Suggest simply doing it a certain way ("take your time", "do it sitting down", "we can stop and take breaks", "just take your painkillers", etc)

But it is an invitation to:

Leave me the fuck alone about it 💕

#chronic illness #chronic pain #disability #actually disabled #chronic fаtiguе ѕуndrоmе #spoonie #cfs #fibromyalgia #cfs/me #me/cfs #cpunk #cripplepunk #pots #long covid #yes this is about something that happened lmfao #feel free to add more #bc I am sick of this!#this is about physical disability. please don't derail it

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plague-parade · 10 months

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if upon being told about someones illness/condition, your first thought is to say “have you tried X?” i want you to step back for a moment and think to yourself “if i thought of X after hearing about this condition for the very first time, the person who has this condition very likely has thought of this and possibly tried it already”

we are tired of constantly being told to try the same things by people who didnt know our condition existed five minutes ago.

you dont need to offer any solutions or try to fix us. i know it might seem like a polite thing to do or that it shows you care, there are other ways to show us you care.

#thought of saying something about being told ‘get well soon’ too but idk if im ready for that possible backlash lol #my mom (able bodied) gets really mad at me when i say this kind of stuff is annoying #so i just assume all able bodied people would react that way #actually disabled #disabled #disability pride month #disabled pride month #disability pride #disabled pride #physically disabled #chronically ill #chronic illness #actually chronically ill #cripple punk #cripplepunk #cpunk

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silkysong · 2 months

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inside of you, in spite of you

#⬅️ is not consistent about colouring forever #i wanted to go with something diff here but settled on smth simpler like this. such is the way of chronic fatigue #consider this my. valentines thing. i dont know we dont celebrate that here #cult of the lamb #narilamb #narinder #cotl lamb #my art

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bisexualseraphim · 4 months

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Fibromyalgia is such a stupid condition because literally every symptom is also a symptom of something that could kill you so you go to the doctor or Google your symptoms and you’re like “am I dying?” and they’re like “no it’s just your Ouch I Hurt All Over Disease again”

#Like how am I supposed to know when something serious is actually happening #chronic pain #chronically ill #chronic illness #fibro #fibromyalgia #disability

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eyeofthenewt1 · 1 year

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chronic pain

#ashton greymoore #critical role fanart #bells hells #gesture drawing #Ashton having real visible cracks coming from his head and chronic pain can actually be something so dear to me #-a person with chronic headaches and migraines who also feels like their skull is a brittle stone being picked at with hammer and chisel #Is Ash gonna become my my new projection blorbo like Caleb was a couple years back? Tune in next time to see..#Would make sense honestly tho cause trauma was my biggest issue back then and chronic pain is now so....#annathenewt art #my art #critrole

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wheelie-sick · 1 month

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ILY people who are continually wrong about their self diagnoses

being right about self diagnosis isn't what makes self diagnosis okay. it's a process, and you're learning. it takes time to find answers and just like doctors can be wrong in their suspicions so can you.

figuring out what condition you have is hard and I'm proud of you for taking steps towards finding the right answers. being wrong is okay and is even a valuable part of the process of ruling things out. sometimes it's not a horse, sometimes you're just a zebra, and you can't know you're a zebra without making sure you're not a horse first.

#this is about the diagnosis process for rare diseases but idc if other people relate to it #it's just a very frustrating process to suspect something so badly to the point your doctors agree #just for it to never be what you suspect #chronic illness #chronically ill #cripple punk #physical disability #physically disabled #cripplepunk

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bitdemonic · 8 months

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date. september 9th 2023

time. 753pm

✞ 𝐛𝐢𝐭𝐢𝐧𝐭𝐮𝐢𝐭𝐢𝐯𝐞 ✞

verse one

im bored and we haven’t been interacting as much so cheers to our first rapid fire. plus im high af lmao. read the guidelines below and we can have fun. kissesss.

send in an ask for an intuitive answer, followers only. anons and minors are allowed. imaginative cards will be included in response. reblog or leave feedback, if that’s too hard don’t participate.

no questions regarding health, death, or pregnancy please. celebrities are allowed.

askbox is closed.

#bitintuitive🧞#something chronic #asks #bitdemonic #rapid fire

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uncanny-tranny · 7 months

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I think it would really benefit people to internalize that mental illnesses are often chronic and not acute. Some of us will never be able to jump the hurdle of managing illness, much less sustaining a sense of normalcy. Many of us will never "recover," will never manage symptoms, will never even come close to appearing normal - and this is for any condition, even the ones labeled as "simple" disorders or "easy-to-manage" disorders.

It isn't a failure if you cannot manage your symptoms. It isn't a moral failure, and you aren't an awful person. You are human. There's only so much you can do before recognizing that you cannot lift the world. Give yourself the space to be ill because, functionally, you are.

#mental health #mental health advocacy #like... anxiety and depression are often concieved of as simple and easy to manage...#...but that isn't the case for so many of us. anxiety and depression just have a lot more research invested into them...#...and while i wish this were the case for literally every other condition it does alter people's perception of you to some extent...#...so while this is NOT solely about anxiety or depression it includes us...#...my anxiety and depression and PTSD have *destroyed* my life. this is chronic and will probably be life-long...#...and that isn't my fault. i've done the fucking work but guess what? that doesn't account for the fact that I Am Just ILL #the least we can do for each other is to be compassionate #be compassionate to those who cannot heal. be compassionate to the people who can't manage their lives. this world is scary enough #recognize that management of symptoms is something not all of us can do - even IF their condition is labeled as 'easy to manage'#i allowed myself to feel angry that i can't heal 'normally' and that was unfair as fuck toward myself #and i NEED people to internalize this so that MAYBE this could help somebody else who is where i was #i NEED them to understand that it's okay that they are where they are - sometimes shit just doesn't turn out how you expect or want #don't beat yourself over you being a person. you are struggling enough. you deserve to rest. just rest please #and just... give yourself space

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sacrificialter · 9 months

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Happy birthday golden boy.

#he deserves the world #id drafted something happier but i was foiled by my own chronic art block #then i was upset that i didn't have anything to post today and then this happened #drarry #harco #harry x draco #drarry fanart #hjp #sacrificialter

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thebibliosphere · 9 months

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I got my biopsy results today. The good news is there's no new or unknown disease wrecking my insides.

The bad news is it's most likely my MCAS burning down my GI tract.

I say "likely" because the GI doctor had the humility to admit the medical world doesn't know enough (yet) about conditions like MCAS to say for sure, only that the areas biopsied showed elevated numbers of mast cells and that the inflammation and damage are consistent with mast cell dysfunction.

I got to watch in real-time as the GI doctor added the mast cell stabilizers to my regimen of meds, the exact ones the allergist denied me 3 years ago because he said I needed psych treatment and was mistaking anxiety for anaphylaxis because I 'googled too many things.'

Part of me hopes the allergist gets notified and chokes to death on eating crow. A larger part of me is just relieved it happened before I developed internal bleeding or cancer.

Anyway. We're testing new meds soon to try and bring down my base inflammation to something lower than "my insides literally feel like they're burning."

I'm also starting even more supplements to try and combat the mass deficiencies likely being caused by the MCAS inflammation. I've been told to take twice the daily recommended amount of pre-natal supplements on top of my existing regimen, and if that fails, they'll start infusions. (The hope is that my stomach isn't so far gone that oral meds won't help, so fingers crossed.)

Apparently, this is the year we finally stop my gradual death from malnutrition for good. Well, better late than never, I guess.

#chronic health tag #mcas #I'm trying not to be angry #or ill wish the allergist #but I'd be lying if I said I'm not wishing devastating bodily harm on him right now #hmm #probably something for therapy

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melodymorningdew · 1 month

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Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

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disabled-dinos · 9 months

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my addition for disability pride month

Parents: please teach your children about disability. Teach them that all bodies are different. Teach them that not everyone is like them and that’s okay, diversity makes life exciting!

Almost every time I take my wheelchair out, these kids are just staring at me like I’m glowing fluorescent green. It’s like they’ve never seen someone in a wheelchair before. When I tic, kids look at me shocked and a little freaked out.

And yes, I know they’re kids! I understand that they don’t know everything yet. But guess what? That’s your job as their parent. Not mine. Not any disabled person’s.

show your children pictures of people in wheelchairs, videos by and of autistic adults stimming, videos by people with facial differences, of people with limb differences, people with Down syndrome, people with dwarfism, people that use nasal cannulas, and so on.

Kids are not inherently going to be afraid of or rude to disabled people, not if you as the parent educate them from a young age. Teach them to be kind, not to stare, not to pet service animals.

We aren’t rare; your kid will come across us. We’re not “inspiring” OR “scary.” We’re people. That’s it. Educate them first so these are positive experiences! 💜

#I feel like this is missing something idk #but it’s just something that’s been bouncing around in my head 🙃#disability pride month #parenting #cripple punk #autism #chronic illness #disabilties #disability #disabled #fern talks about stuff

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