#neuropathy
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the struggle of being physically disabled and psychotic. am I really experiencing this or is it a delusion? people tell me there's nothing wrong with me and I rely on others for an accurate depiction of reality. then why do I hurt so bad?
#disability#disabled#cpunk#cripple punk#cripplepunk#physical disability#psychotic#actually psychotic#neuropathy#crippunk#crip punk#chronic illness#chronic pain#chronic fatigue#chronic migraine#chronically ill
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NEUROPATHY
[IMAGE ID: a painting of a neuron silhouette. the background is red. the neuron is black and the branches split off as if irritated]
#metal speaks#art#chronic pain#neuropathy#cripplepunk art#sorry if this image description sucks i am in a lot of pain 😭🖤#image id#dying bcuz i forgot to erase the border 😵💫#oh well 🫡🖤
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Not all conditions disable everyone
Not all people with a disability are disabled to the same extent
No one can tell you how you choose to cope with or handle your disability
#disability#disabled#blind#deaf#dwafism#eds#marfan syndrome#fibromyalgia#amputee#paralisis#hdhd#depression#neuropathy#mobility aid#bipolar#AIDS#arthritis
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*kitty stretch & yawn* ooh, it is a beautiful day to tell me that i am haunting & send me monies 💁♀️😉
but seriously, i had a really rough fucking night. lots of pain, lots of nightmares. i am going to try to get groceries today as well as a couple of my prescriptions plus (hopefully) a new heaty pad & arthritis gloves.
any help is immensely appreciated. for realsies 🖤
cashapp: $dryboneslive / venmo: dryboneslive
paypal: message me for email
luv, cuddles & cauldron bubbles, the ghost queen 👻
#ghost queen#thank you for caring#scleroderma#rheumatoid arthritis#ehlers danlos syndrome#neuropathy#queer#myopathy#chronic pain#disabled sw community
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Doctors describing peripheral neuropathy: numb/tingly fingers and toes
Peripheral neuropathy irl: why does the tip of my tongue burn when I brush my teeth
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I can't wear tight pants or any really rough fabric on my legs anymore because I have some sensory nerve damage in both of them. I miss dressing alternative, in tight black jeans and all my punk stuff but its literally excruciating to do so.
Does anyone have any recommendations on pants to buy? People who have neuropathy and/or nerve damage this question for you, other sensory issue havers please dont derail.
#disability#cripple punk#chronic pain#chronic illness#physically disabled#disabled#cripplepunk#sensory nerve damage#nerve damage#neuropathy
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my only consistent bedtime routine 🤪
#personcole#spoonie#chronically ill#disabled#chronic pain#neuropathy#neuropathic pain#chronic nerve pain#nerve pain#disability memes
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Last night I was making tamagoyaki for sushi and whined about how lately every time I crack eggs I seem to have to fish out eggshell pieces.
Claire: You know why that's happening, right?
Me: ... no?
Claire: You have... you have neuropathy in your dominant hand. Your fine motor skills aren't as good so you're cracking the eggs differently.
Me: ???????
Claire: Did you really not realize that?
Me: No I just thought it was a personal failing.
Anyway I love my wife @unforth for pointing out the obvious because uuuuuuuh yeahhhhh.
#disability#neuropathy#some test results have come back#and unfortunately the answer is#well that test told us that actually we need a different test
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When you hobble out to your car after the MRI, turn on the radio, and the very first words you hear are, "When your legs don't work like they used to before..." 😐
RUDE, ED SHEERAN. SO RUDE.
#sometimes mel says stuff#personal post#chronic pain#chronic illness#neuropathy#ehlers danlos syndrome#hypermobile eds#hypermobility#spoonie humor#spoonie problems#ed sheeran#music#song lyrics
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Waiting for my nervous system to yell, "April Fools!" and stop hurting.
Any time now
#spoonie#disability#chronic disability#disabilities#spoonie life#april fool's day#april fools 2024#nerve pain#chronic pain#sci#tbi#neuropathy#spoonie humor#spoonie memes
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Being chronically ill is crazy because I’m essentially just living with multiple warning lights on my dashboard lit up but if an otherwise able bodied person suddenly had their body’s check engine light on they’d go into a coma
We built different
#chronically ill#chronic illness#chronic pain#costochondritis#inflammation#i’m physically disabled#pots#postural orthostatic tachycardia syndrome#fibromyalgia#hypermobility spectrum disorder#neuropathy#cold urticaria
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can we talk about the kids from yesterday and how it's helped me so much with coming to terms with my disability.
like. tomorrow i have another audiologist appointment.
and they're going to tell me that i'm getting worse, i know.
but that's ok.
and kids from yesterday has really helped me.
knowing that i can't live forever and that i'll never hear forever, but knowing that i can make a difference no matter what.
and mcr in general taught me that.
mcr taught me that i can be like this, that i can be disabled and it doesn't matter.
that i can still be me and i can still be loved.
and yes, my friends love me but mcr taught me that i truly belong.
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Me reading the common side effects of the new meds I was prescribed:
#autoimmine disease#chronic illness#autoimmune#chronic fatigue#spoonie#chronic pain#chronic migraine#spoonie life#please send help#sjogrenssyndrome#sjogrens#neuropathy#mental health#why tho#health problems
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Do not call my chronic migraines and other chronic pain physical disabilities if you are not also going to call my ADHD and bipolar physical disabilities.
Do not call my ADHD and bipolar neurodivergence and neurological disabilities if you are not also going to call my chronic migraines a neurodivergence, and that and other chronic pain neurological disabilities.
_
Edit: do not call me neurodivergent at all. I’m a full-bodymind crip, including being disabled and insane and overlap of these. No divisions.
#leviathan.txt#disability#dyspunktional#disability pride month#physical disability#neurological disability#neurodivergence#mental illness#chronic migraines#chronic pain#nerve damage#neuropathy#adhd#bipolar disorder#cane user#mobility aid user#disabilityposting
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Is it normal as an autistic person to not realise when you're becoming overwhelmed like i feel a little uncomfortable then when I get home WHAM! it hits me like a truck. It happens to me all the time, and I can't find anything about it online. Everyone else seems to know when they get overwhelmed when I don't.
#autism#asd#neurodivergent#neurodiversity#neurodivergencies#overwhelmed#autistic life#autistic adult#its the neurodivergency#neuropathy
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That awkward neuropathy moment where one entire limb itches uncontrollably and severely enough that it can't be ignored and so you try to scratch or rub it to make it feel better but WATCH OUT because anything touching it feels like fire.
Ok maybe this was a bit too hyperspecific but I'd like to trade in my right leg please.
#disability#chronic pain#neuropathy#this nerve biopsy can't come fast enough#like i mean if it IS small fiber sensory neuropathy i don't think there's anything we can really do#that i haven't already done#but it'd be nice to have answers?
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