(She/her) Young and disabled blogger focusing on disabilities, public health, and writing about my experiences. I share posts to make you smile too! Accidentally an activist. Quaker. Gray demisexual
chronicSOS.com
I still remember the nurses who laughed at me after major spine surgery when I was walking around with my butt out because I didn't know to bring shorts to the hospital and wasn't allowed to double my gowns due to the incision location. I still remember the aid who told me that I smelled after days of being unable to move my limbs or get out of bed while sweating uncontrollably from spinal shock and agonizing pain. I sat and cried after that because I had overcome so much that hospital stay just to be dehumanized. Never did they ask if I wanted something to cover up or assistance bathing. Just laughed at me and joked with each other.
I also remember the nurse who checked on me extra during the night with a hospital stay in the middle of covid because they kicked my mom out and I have trauma about being in the hospital alone. She made extra visits to make sure I was okay just like she promised my mom. I remember the nurse who held my hand and called me honey as my limbs trashed and shook from spinal shock.
Basically being a good nurse and being a bad nurse to patients does stay with a person. It's been years and many other hospital stays since a lot of these instances and I still remember them clearly. I know nurses are burnt out, traumatized, and exhausted. Nurses deserve better treatment. But so do patients.
It's amazing how differently people treat you based on what mobility aid you're using. When I'm using my cane I get funny looks from people because I'm a young person and "do you really need that?". Almost nobody holds the door for for me and when I drop something almost nobody helps me pick it up.
When I'm using my forearm crutches people are a little nicer but not by much. I get less funny looks and more people hold the door for me, but still hardly anyone helps me pick up stuff I drop. And if I'm out alone shopping or something, nobody helps me reach stuff on high shelves unless I ask. I get not wanting to come off as ableist by offering to help, but if you see someone clearly struggling you might want to step in.
Now when I'm using my wheelchair, that's a whole different ballgame. Almost everyone is holding doors, helping me pick up stuff, helping me with high shelves, and being really nice to me. But people often infantilize me when I'm using a wheelchair. They always smile at me, which sounds nice, but it's usually in a way you would smile at a little kid out in public. If I'm with someone then people will talk to them instead of me, and if I'm alone people will talk slowly to me or in a high pitched voice.
It's literally not that hard to be normal around disabled people I just don't get it.
I just wanted to say that I love allies who aren't always loud and obvious in their support. I often see the loud and obvious ones being talked about the most but just a huge I love you to the discreet allies.
They are often then ones who make the most difference in my everyday life. The people who talk to me like any other person, who point out that "that'd a weird question to ask" and leave it at that. The ones who ask once if I need help and listen even if the answer is no. The ones who make me feel like a person not a prop to use to make a point. The people who always talk to me and not only the person I'm with. The people who help and then go on with their day, not going on to tell everyone they talk to about how they helped someone in a wheelchair. The ones who just treat me like a person.
It means so much to me that there are people who don't get awkward when they say it's within walking distance or that I can take a seat over there without going on to apologize for 3 minutes. I just really like being able to be a person.
Growth capitalism is a deranged fantasy for lunatics.
Year 1, your business makes a million dollars in profit. Great start!
Year 2, you make another million. Oh no! Your business is failing because you didn't make more than last year!
Okay, say year 2 you make $2 mil. Now you're profitable!
Then year 3 you make $3 mil. Oh no! Your business is failing! But wait, you made more money than last year right? Sure, but you didn't make ENOUGH more than last year so actually your business is actively tanking! Time to sell off shares and dismantle it for parts! You should have made $4 mil in profit to be profitable, you fool!
If you're not making more money every year by an ever-increasing exponent, the business is failing!
It’s always “support disabled people!!” Until they need help doing “basic” every day needs. Until they need help brushing their teeth, using the bathroom, taking a shower, getting dressed, etc. Before you call yourself an “activist” think about what you would do if a disabled person asked you to change them, or help them brush their teeth, or carry them to the couch.
why do people always only expect you to have one thing. one disorder one pet one gender one pronouns one name one favorite movie one crush one best friend. like why do I have an inventory limit