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#dyspunktional
chronicbitchsyndrome · 8 months
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a lot of the language used to describe disabled people's legal situation is so misleading... like, ok, "disabled people can't get married without losing our benefits" sounds like a non-issue to most outsiders
but "benefits" would be more accurately called "sole lifelong income"
"disabled people can't get married without losing our sole lifelong income" sounds a lot worse and like we're being intentionally funneled into abusive relationships, eh?
in my least charitable moments, i think a lot of the words chosen by non-disabled outsiders to describe us and our lives and legal situations are intentionally softening the reality of our situation, so it sounds less horrific than it actually is
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hell-on-sticks · 10 months
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This disability pride month, I think it needs to be widely acknowledged that
a fundamental principle of disability justice is being able to recognise when someone might be more disabled than you.
[plain text: a fundamental principle of disability justice is being able to recognise when someone might be more disabled than you]
It's easy to point at ableds who will refuse to acknowledge others disabilities, not notice inaccessibility, or cringe away from catheterisation, stomas, hygiene problems and all the troubles that come with disability. It's simple to recognise that that's not okay.
But sometimes within the disabled community people don't do that well. And it's hard because there are of course many people fighting the internalised ableism that demands they downplay their disability. But the answer to that is not saying "nobody is more disabled than anyone else". This is not true. This has never been true.
You will not be able to work towards disability justice if you can't recognise that not all disabilities are equal. Even two people with the same disability - two people with SCIs, two people with autism, two people with EDS, etc. - may have wildly different levels of difficulty. And if you can't recognise that, you're being ableist. I'm sorry, I know that might be hard for some people, but you cannot have any kind of real understanding of disability if you cannot acknowledge when you are more or less disabled than another person.
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Reminder
For people with OCD, Cluster B disorders and other ND conditions that cause intense guilt:
You are human. Hurting others is an inevitable part of the human condition. It's how you react to the harm you've done that defines you. You can grow, you're worth loving, you're worth knowing, you're worth supporting. Please don't condemn yourself for being imperfect in an age that demands perfection.
You are not a monster.
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disabledunitypunk · 10 months
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Happy disability pride month to:
Physically disabled people
Mentally ill people
Mentally disabled people
Neurodivergent people
Psychotic people
Multiply disabled people
Visibly disabled people
Invisibly disabled people
Mobility aid users
People with chronic pain
People with chronic fatigue
People with neurodevelopmental disabilities
People with neurocognitive disabilities
People with intellectual disability
People with neurogenic disability
People with cognitive disability
People with motor disorders
People with rare disabilities
People with common disabilities
People who were born with disability
People who acquired a disability/disorder later in life
People with bodily differences
Nonverbal people
Semiverbal people
People who experience speech lose
AAC users
People with ‘gross’ symptoms
People with sensory disabilities
People who aren’t sure if they are disabled
Disabled people who don’t know they are disabled
Disabled people who want treatment
Disabled people who do not want treatment
Disabled people with disorders that ‘don’t match’ their assigned gender
Zebras
Spoonies
Cripples
Happy Disability Pride Month to all disabled people!
May your tomorrow be kinder than today.
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anomalousmancunt · 10 months
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this disability pride month i'd like to remind y'all that "visibly disabled" does not imply "mobility aid user" (nor anything else other than "people can see there is something about you that doesn't fit abled hegemony")
OP is autistic and talking about its experiences being autistic (AND multiply disabled). don't fucking touch if you have no solidarity towards autistic people.
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sanguinebutch · 2 years
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happy disabled pride month to people with rare disorders/conditions — yes, even the really rare ones. happy disabled pride month to people who NEVER see posts about their disability. i love you.
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People who are feeling thirsty often or water isn't quenching your thirst with no determinable medical cause:
Get electrolyte drinks.
"Water is the best for hydration" is not always true. "Electrolytes are only for athletes" is not always true. There are a variety of reasons someone might need a boost of electrolytes, like being on a dehydrating medication (i.e. stimulants for ADHD), having a diet lacking in them, or having a condition like POTS or IST.
"but electrolyte drinks are so gross" I'm very aware of that. I refused to drink Gatorade on a missions trip once to the point where I got very ill. I am a committed non-drinker of sports drinks. One I've found that uses sugar as its sweetener, doesn't taste like salt, and also fits my need to not have red dye is the brand Body Armour. A lot of fancy bottled water will also say something like "enhanced with electrolytes", those work too. There's a huge variety of sport drink options so I recommend just finding some with ingredients that sound good and trying them. Your body needs it and you'll probably feel better too.
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december-rains · 2 years
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Disabled people reblog this and put your donation info
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roguetelepaths · 5 months
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cultural exchange between different disability communities is good because people with chronic pain have taught me more about living with C-PTSD than any ✨mental illness recovery warriors✨ community ever has
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adhbabey · 10 months
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Just no more gatekeeping. I know it sucks when people pretend to have shit, but most of us don't have a widespread platform where you can spread misinformation willy-nilly, you can block most of those people.
But the further you try to conspiracy theorize about fakers and attention seekers and shit, the more that you hurt the community that you're in.
Most of us have wildly inconsistent and abnormal symptoms, different from a textbook definition. Sometimes we have regular symptoms and abnormal ones. Sometimes we just mask and hide it really well. Sometimes we have outrageous and crazy symptoms that are so strange that you'd think we're making it up.
And that's what some people say. That we're making it up when we're experiencing crazy shit. Or when we're being visible or open about our disabilities or symptoms.
You are hurting us. You are hurting the disabled community by searching for fakers and assuming that people are guilty until proven innocent! No one, and i mean no one, no one has to explain or justify their disability to you, and if you can't handle that, you're fucking ableist.
And sure, there are facts to how some disorders form and exist, and people spreading misinformation is harmful. But we have the power to educate others instead of focusing on gatekeeping resources. We have the power to inform and share and create spaces. We have the power to build a stronger community. Don't go wasting that on infighting and lateral aggression.
Fight against the oppressive system, but mind your own fucking business when you don't full understand someone else's experience. Stay in your goddamn lane.
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disabledsun · 2 years
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Disability Sun / Disabled Sun ☉
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[Image ID: A transparent image of the Disabled Sun, which is the same as the astrological symbol of the sun. It is a large black circle with a smaller black circle in the center. End ID]
So... I wanted a symbol to represent disabilities, one that wasn't the wheelchair symbol. As a wheelchair user myself, I do like the wheelchair symbol, but it also feels like an incomplete image of the disabled community as a whole. Disabled people can come in every shape and size, and for many, many of us, the wheelchair symbol isn't representative.
Disabled people may have wheelchairs, or canes, or crutches, or hearing aids, or service dogs, or different body shapes, or even nothing at all visibly indicating a disability. There have been alternative symbols suggested in the past, but most hinge on showing a silhouette, and there would never be a way to demonstrate all of us with one little bathroom-sign-style human. So, I made this! The Disabled Sun!
This isn't meant to replace the wheelchair symbol, as that certainly has its history and place in our community, it's simply meant to be an optional other symbol for those who choose to use it.
This symbol was chosen for the following reasons and meanings:
Outer circle represents the body; physical disabilities, our relationships to our bodies, disabled bodies in general.
The inner circle represents the mind; mental disabilities, our relationships to our minds, disabled minds in general.
The circles represent wholeness, representing that we are whole, complete people. We are whole, not despite our disabilities, but we are whole including our disabilities. We are not incomplete or broken, nor are we “missing” anything.
Circles also represent unity. In this case, the circles represent the solidarity and unity of disabled people across the wide range of disabilities. It also represents universal design.
The sun represents shining a light on disabled people, and the light we provide ourselves.
It's simple, discreet, easy to reproduce, and has a unicode symbol already. ☉
The symbol is welcome to be used by anyone of any kind of disability, be it physical, mental, neurodevelopmental, sensory, invisible, anything! If you have any sort of impairment and consider yourself disabled, you are welcome to use this symbol.
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[Image ID: A transparent image of the Disabled Sun, a large circle with a smaller circle in the center, in the colors of the Disabled Pride Flag by Ann Magill. The disabled pride flag is a mostly grey flag with five diagonal stripes that start at the top left corner and run down to the bottom right corner. In order from left to right, the stripes are red, yellow, white. blue, and green.]
No credit is needed to use this symbol! It would be appreciated if you spread this post around to others to give it some traction, though!
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so: masking: good, unequivocally. please mask and please educate others on why they should mask to make the world safer for immune compromised people to participate in.
however: masking is not my policy focus and it shouldn't be yours, either. masking is a very good mitigation against droplet-born illnesses and a slightly less effective (but still very good) mitigation against airborne illnesses, but its place in the pyramid of mitigation demands is pretty low, for several reasons:
it's an individual mitigation, not a systemic one. the best mitigations to make public life more accessible affect everyone without distributing the majority of the effort among individuals (who may not be able to comply, may not have access to education on how to comply, or may be actively malicious).
it's a post-hoc mitigation, or to put it another way, it's a band-aid over the underlying problem. even if it was possible to enforce, universal masking still wouldn't address the underlying problem that it is dangerous for sick people and immune compromised people to be in the same public locations to begin with. this is a solvable problem! we have created the societal conditions for this problem!
here are my policy focuses:
upgraded air filtration and ventilation systems for all public buildings. appropriate ventilation should be just as bog-standard as appropriately clean running water. an indoor venue without a ventilation system capable of performing 5 complete air changes per hour should be like encountering a public restroom without any sinks or hand sanitizer stations whatsoever.
enforced paid sick leave for all employees until 3-5 days without symptoms. the vast majority of respiratory and food-borne illnesses circulate through industry sectors where employees come into work while experiencing symptoms. a taco bell worker should never be making food while experiencing strep throat symptoms, even without a strep diagnosis.
enforced virtual schooling options for sick students. the other vast majority of respiratory and food-borne illnesses circulate through schools. the proximity of so many kids and teenagers together indoors (with little to no proper ventilation and high levels of physical activity) means that if even one person comes to school sick, hundreds will be infected in the following few days. those students will most likely infect their parents as well. allowing students to complete all readings and coursework through sites like blackboard or compass while sick will cut down massively on disease transmission.
accessible testing for everyone. not just for COVID; if there's a test for any contagious illness capable of being performed outside of lab conditions, there should be a regulated option for performing that test at home (similar to COVID rapid tests). if a test can only be performed under lab conditions, there should be a government-subsidized program to provide free of charge testing to anyone who needs it, through urgent cares and pharmacies.
the last thing to note is that these things stack; upgraded ventilation systems in all public buildings mean that students and employees get sick less often to begin with, making it less burdensome for students and employees to be absent due to sickness, and making it more likely that sick individuals will choose to stay home themselves (since it's not so costly for them).
masking is great! keep masking! please use masking as a rhetorical "this is what we can do as individuals to make public life safer while we're pushing for drastic policy changes," and don't get complacent in either direction--don't assume that masking is all you need to do or an acceptable forever-solution, and equally, don't fall prey to thinking that pushing for policy change "makes up" for not masking in public. it's not a game with scores and sides; masking is a material thing you can do to help the individual people you interact with one by one, and policy changes are what's going to make the entirety of public life safer for all immune compromised people.
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redacted-coiner · 12 days
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Voidpunk, Amatopunk, Beastpunk(link)
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Dyspunktional(link), Medipunk(link), Psychpunk(link)
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Tenderpunk(link), Evilpunk(link), PunkSexus(link)
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Punk terms!
DNI is listed within my pinned post. Please go read it before interacting with any part of my content. Ask to tag!
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Unfriendly reminder that if you gatekeep who's allowed to call themselves a cripple and claim mental illness "doesn't count" you're falling for the mind/body dualism pit trap and you're being sanist.
The brain is an organ, not a figment of imagination.
(I am both physically and mentally disabled. Argue w the wall.)
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disabledunitypunk · 1 year
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What is unitypunk?
Unitypunk is a disabled subculture encompassing other movements like cripplepunk, neuropunk, madpunk, and pluralpunk, as well as other movements like the anti-psych, pro-delusion, and pro-self-diagnosis movements. It's focus is on building a single, disability-justice-focused coalition; a united face against all kinds of ableism
To this end, the movement rejects gatekeeping of terms and talking about experiences based on having the "right" diagnoses or the right "kinds" of diagnoses. It is focused on assuming good faith, on people's similar experiences being shared in turn as a way of saying "I understand, and stand by you", on pulling up chairs rather than building up walls.
This is partly in response to small but vocal minorities within the community who insist that their experiences are entirely unique to their diagnosis or type of disability, and that disabled folks of other kinds are not welcome in their conversations about disability justice. This flies in the face of intersectional anti-ableism, and as I and other physically disabled neurodivergent people have noted, often leaves us unable to talk about a full half of our experiences.
The foundation of unitypunk is that the brain and body are inextricably interconnected - all physical organs that are interdependent on one another - and that while for some the symptoms of physical and psychological disabilities may be entirely separate or different, for others they are impossible to differentiate or functionally the same. The gut is the second brain. The body keeps the score (of trauma). Where in your body do you hold your emotions? The mind-body connection. All commonly used phrases when talking about disability, all illustrating this connection.
A psychological condition may be physically disabling. Autism can cause significant mobility issues. Anxiety can cause cardiac issues. Something like agoraphobia may cause someone to become as effectively housebound as someone with mobility issues and an inaccessible door. A physical condition may also be psychologically disabling. Absorption issues in the gut, particularly in regards to vitamins D and B12, can wreak havoc on the brain. Thyroid and adrenal/endocrine issues are one of the first things tested when seeking a mental health diagnosis. And of course, chronic illness can cause depression, anxiety, and trauma. Whether direct or indirect, the effects are the same; a complexity to the manifestation of symptoms that cannot be neatly squared away into little boxes.
This movement recognizes that only by recognizing and celebrating the breadth and depth of that complexity will we be able to achieve true disabled community and solidarity. It prioritizes a united front over personal differences. You don't have to like the disabled person next to you, but we all have to put aside any petty squabbles and fight for each other, or go down together. This includes being intersectional and inclusive of all other identities, whether you understand them or not. This means not disparaging or writing off identities, and judging people for their actions, not their labels. It also means, while it's fine to make spaces focused on a specific aspect or kind of disability, that it's important to recognize that real life experiences are messy and won't always respect neat lines being drawn. This is especially true of the experiences of physically disabled neurodivergent people, who are multiply marginalized and deserve to have our experiences heard and respected.
The most important things you can do here are to talk, and to *listen*. This account, this *movement*, is just a starting line. The end goal is total disabled liberation, and the only way we will get there is marching together.
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anomalousmancunt · 8 months
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good vibes, a hug if you'd like and a warm drink and/or blanket if you're cold, to all disabled people for whom being undiagnosed didn't mean invisibility but neglect. to those of us who didn't get the benefit of not having a label, to those of us who were mistreated without ever knowing a reason besides existing.
diagnosis and lack of one both have their benefits and disadvantages, but far too often, undiagnosed people are treated as if our struggle was invisible - and that's why we suffer, but also why we benefit. this is for all of us whose struggle was in plain sight, yet still ignored.
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