#spoonie life
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If you don't need a cane, but you get one to signal disability because sometimes you get faint and need to sit, or whatever, as a cane user for years, go ahead. Please, if it makes claiming accomodations easier for you, even if you don't need it to walk, I don't care. This is your permission if you needed it.
Can I suggest that you can get a foldable one at CVS (they're great) so it's there when you need it? Shits fucked up, do what you need to do. Just beware there are assholes that won't care about the cane. But overall, it does make things easier and is easily purchased. Go for it.
#disability#chronic pain#chronic illness#spoonies#mobility aids#advice#accomodations#spoonie life#ableism
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"Have you considered that depression is causing your pain?"
"Have you considered that constant pain is depressing?"
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#brain fog#foggy brain#chronic pain#spoonie#chronic illness#chronic illness memes#autoimmune disorders#spoonie life#spoonie memes#spoonie strong#chronic inflammation#spoonie stuff#chronic fatigue#fibromyalgia#chronically ill#fibromyalgia warrior#fibro#fibromyalgiasucks
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ChronicVerse
#chronic illness#chronic illness blog#spoonie#spoonie life#positive affirmation#mecfs#cfsme#myalgic encephalomyelitis#chronic fatigue syndrome#fibromyalgia#pots syndrome#ehlers danlos awareness#chronic illness awareness
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this also happens when im writing sometimes, but ill be reading and after a while, it gets to the point where my eyelids are drooping and i can hardly keep them open and im wondering if it's just a me thing, a chronic illness thing, or a generally common thing. tia!!
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It's actually crazy that some ppl think that we are pretending to have a chronic illness for attention(?) or something when I've actually never been more ignored & had less attention in my entire life. I am alone🙃✨
#chronic life#chronically ill#chronic illness#chronic pain#fibromyalgia#myalgic encephalomyelitis#spoonie life#spoonie problems#chronic fatigue
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When you call disabled people inspiring for doing ordinary things, the real message is this:
“Wow, I’m shocked that you have the guts to exist! You mean you don’t hate yourself enough to never leave your house? HOW?? So brave!”
It isn’t a compliment. It’s insulting. Stop it.
#disability#disabilities#actually disabled#chronic illness#chronic community#disability life#cripple punk#disability problems#activism#disability advocacy#disabled#actuallydisabled#chronic pain#chronically ill#spoonie life#cripple life#spoonies#chronic disability#chronic fatigue#spoonie problems#spoonie
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Cooking While Disabled
One of the things I miss most about being less disabled is cooking. It was one of my favorite things to do and something I've always been good at.
On good days there are things I can do that make it easier. It's not the same as before, but I hope that sharing what makes it possible for me to cook helps others who struggle with it.
Tips for cooking while disabled:
You can incorporate precooked food in your meals. For example, stir fry with precooked rice with the ingredients of your choice, or taking frozen pasta (like the ones with maybe sauce and a couple other things) or plain microwave pasta (I prefer these, but heat it first) and putting it in a pan adding other ingredients like vegetables, cheese, garlic, etc
If it comes frozen or canned that can really help. Frozen rice you can just microwave, frozen cut veggies and garlic and onions are good as well
Buy a chopper with different shaped blades, spiralizer, electric slicer/grater, food processor, or any appliance that will save you energy. Ideally machine washable. Stand mixers are also better than manual ones. Especially helpful if you have joint/wrist issues
You can always prepare ingredients ahead of time. I find that sometimes it helps to prep (chopping or mixing ingredients, etc) earlier in the day or even a day before. Then you can put it in the fridge or freezer until you're ready to cook the full meal
Look up easy recipes or recipes for elderly/seniors. With the latter you may find more nutritionally balanced food but an unbalanced easy meal is better than none
You can sit while you prepare ingredients.
You're allowed to take breaks. You can turn the stove off, maybe put a lid on it to retain the heat, sit down, maybe take something for your symptoms. Some things you may not be able to stop in the middle of like making pancakes or deep frying something, but if you're making soup or curry or chili or something, often you can turn it off for a bit and take care of yourself.
If you need help and can get it, please ask for help. I know many of us need to work on asking for help including myself. Even if it's just washing the pots and pans or chopping something. You are not a burden you hear me?
Stretch before and after cooking just as one would before a workout. It will likely lessen any joint pain or stiffness as you are still exerting yourself
Listen to your body. Just as you're allowed to take a break, you are allowed to decide you won't be able to finish what you're doing. You may put away your food before it's done (if this won't ruin the meal). You are allowed to leave a dirty pot in the sink and come back to it later (just make sure you or someone else does before it gets gross). You can wash them in the dishwasher. I know this is bad for the seasoning on pots and pans but you can reseason them to be nonstick again and use nonstick spray
You can buy seasoning mixes rather than using individual seasoning. Instead of parsley, oregano, basil, etc you can buy Italian seasoning. Instead of paprika, pepper, cumin, oregano, salt, etc, you can just get taco seasoning. This may sound obvious but it can save a lot of time and energy
An issue I have is buying perishable ingredients thinking I can use them, having a bad week or two, and the ingredients have gone bad. Try to plan out your meals before shopping and ask yourself if there's an easier alternative for any ingredients. Maybe pre chopped fresh onion instead of a whole one, sliced mushrooms instead of whole, frozen vegetable blends instead of individual, powdered ginger instead of the root, bullion instead of stock that you may not be able to use all at once. I know this is like one of the other points but these are what I find most helpful
Use supercook.com! You input the ingredients you have on hand and you'll get a list of recipes you can make with what you have. Often there's a wide range of complexity and difficulty
Make enough food to freeze or refrigerate leftovers. It helps if you can portion it into single servings in Tupperware or freezer bags. You can prepare frozen burritos for your next few lunches or dinners, separate portion sizes of spaghetti, portion salads, etc
Feel free to add any additions!
#spoonie life#chronic pain#chronic illness#disability#cfs#long covid#actually disabled#chronic fаtiguе ѕуndrоmе#fibromyalgia#spoonie#me/cfs#cfs/me#pots#postural orthostatic tachycardia syndrome#cpunk#cripplepunk#cooking#spoonies#disabled life#idk if this helps even one person I'm happy tbh#especially anyone more recently disabled still learning to navigate it
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I just happened to notice that both my scar pain & asthma get worse when I'm on my period/have pms (post/pre menstrual syndrome) and was curious about other ppls experiences ((im about a 4ish/5 cause its BAD))
#Chronic pain#chronic illness#chronically ill#spoonie#spoonie problems#spoonie life#spoonies#menstruation#period cramps#menstrual cycle#Period havers
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Reminder, in case I'm not the only spoonie here who needs it right now 💖🥄♿💖
#spoonie#spoonie life#disabled#disability#remember your meds#meds#illumination#illuminated text#ink drawing#moss#lichen#lichens#fungus#fungi#ferns#fern#mosses
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Getting diagnosed with a chronic condition is easy! Just follow these steps:
Have symptoms
Schedule doctor visit
Wait indefinitely
Repeat
#spoonie#disability#chronic disability#disabilities#spoonie life#ibs#lupus#ibd#gastroparesis#chronic uti
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They want to remind you!!
#chronic pain#spoonie#autoimmune disorders#chronic illness#chronic illness memes#chronic inflammation#spoonie life#spoonie strong#spoonie stuff#chronic fatigue#spoonie memes#chronically ill#fibromyalgia#fibromyalgia warrior#fibro#arthritis#autoimmune#take your meds#reminder#reminder to take your meds
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Pain severity scale for chronic pain patients!
I always struggle with naming my pain #. After going through a couple occasions of 10/10 pain, I compare everything else to it. Even if my pain is very distressing there's this strange resistance/guilt to ever naming my pain above a 3 or 4.
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When you have a chronic illness, after a few years you reach The State Of Meh.
That's when your body exhibits A Formerly Unknown Thing that is non-healthy and might be a symptom of something new (or not) and you're just like: "Whatever, man. I just work here."
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