If they claim they can cure your condition that you have been told is incurable, run. If they claim they cured themselves, run. If they claim they have cured everything from cancer to lupus holistically, run. If they claim you have to buy only supplements from them, run. If they claim they that only thing that will cure is x but x costs tons of money, run. If they refuse to run tests or address your diagnosed conditions before insisting you do an expensive treatment not covered by insurence, run. If they offer a one size fits all treatment/cure, run.

I have been scammed by "holistic" and "naturalistic" people before as a chronically ill person. In fact it was an actual doctor who went to medical school who scammed me for years. So watch out. If it seems too good to be true it probably is.

Happy Disability Pride Month to...

People with invisible disabilities

People with chronic pain

People with chronic illnesses

People who feel like they don't deserve to call themselves disabled / People who don't feel "disabled enough"

People who don't have alot of treatment options for their disability

People who treat their disability in "uncoventional"/non-western medicine ways

People who struggle with their doctors listening to them, treating them, or just in general

People with fibromyalgia

People with disabilities that are a diagnosis of exclusion

People who have under researched disabilities

I see you, you're valid, and your feelings are valid, whether it's anger, grief, pride, content, etc. Now go treat yourself to something you love and rage against your country's medical system if it sucks. You deserve it 🫶

Slowly realizing that you may not be able to work anymore if you actually want to treat some of your disabilities feels like you’re being crushed like a hydraulic press. I’ve worked so hard, and I’m afraid that it was for nothing. So if you’re struggling with the same thing, I’m proud of you for all that you’ve done.

Our first post is Yuki Takeya from school live! SPOILERS

Yuki struggles from an unnamed psychotic disorder and is heavily implied to have ptsd and a developmental/intellectual disability. In the show she experiences frequent and severe delusions and hallucinations. She is eventually able to improve over the course of the series

Negative stereotypes? None! Despite experiencing psychosis Yuki is never seen as an evil person, nor does she fall into the "psychotic killer" stereotype

This is nowhere near what I usually post, but can I just rant and express how fvcking annoying it is to have really severe auditory processing disorder? Like, it’s bad enough I have to wear hearing aids (they don’t make it louder, they do some suppression and isolation) + headphones all the time, and I still have to read lips when I do that, but apparently I’m “being dramatic” because I “don’t actually have any hearing problems” because I can hear, but what does it matter that I can hear if I don’t know what I’m hearing???

And you get shit from both deaf and hearing people, like deaf & HOH people telling you to “stop using our services,” and “well… but you don’t actually know what it’s like to have hearing problems,” like… yes I do??? also like, Ive really wanted to learn ASL for a long time, so that maybe, just maybe I can communicate without issues, but in the class for hearing people at my local disability services area, they always talk to teach so I couldn’t understand, yet apparently I wasn’t eligible for the non talking course with subtitles???

Not to mention, teachers not believing you, people thinking you’re stupid, people in general not believing you have hearing issues because “you listen to music” and “you sound so normal” and having to constantly explain that you have to see someone’s face to understand what they’re saying and you’ll still get it wrong a lot.

Of course I’m not saying that I’m deaf or hard of hearing, I’m just tired of not having anyone understand and being penalized for something I can’t control.

Anyways rant over, I hope some people can relate and feel seen.

She had to take a pic in front of the Bowie display! (Why she lookin at me like that 😟)

Just finished my pt appointment, and I’m getting more and more fed up with it. This place DOES specialize in chronic pain, but it is seemingly more and more helpful for people who’s pain stems from injuries, or age, or surgery and such, not someone with just chronic pain.

My biggest peeve right now is that I tried telling my therapist about thsi and her only response was that I just needed to keep going so that I could retrain my brain when it comes to feeling pain.

Hearing that as someone’s who’s expressed that metacognition is normal for me, and I rationalize and logic my way through a lot of things, was really frustrating. I already know that my pain is not coming from a constant source, and being told that I just “need to fix how my brain thinks about it” is both frustrating and a bit insulting.

On a similar note, I mentioned how my muscle spasms and tremors were getting worse, her response? That it was likely my hydration, sleep or fatigue causing it. When I said that this had been present and constant even when those changed, she said she had no idea (although I will say she did say she would check with someone) (that someone being the old doctor that I don’t like all too much)

Not to mention how hostile the facility is to sensory sensitive people. There’s exactly one quiet corner in the entire outpatient area, which is often used for group therapy so it’s not available quite a bit. Everything is bright and open and still cramped because everyone is in the same place, there’s a single large room that is used for both physical and occupational therapy.

I’m tired of this place and I’m only halfway done with my appointment for the day

We're hoping in a few months we will be able to afford mobility aides again!! aaaa!!

Either a rolling cane or forearm crutches!!

I am SO EXCITED to have mobility aides aagin!!!

I'm gonna get a rollator for the kitchen only bc sadly our house wasn't buildt with disability aides bulkier than crutches or canes :/ I really am mad that most houses even more modern ones arent built for disablied ppl!!

Theres some disabled people who have been TRAPPED in thier homes/apartments for YEARS/DECADES!!

It's really upsetting!!

And right now we don't have money to renovate the house 😤

Happy Disability Pride Month to everyone who is disabled but has no idea what is causing their disabling symptoms- not knowing what is causing your pain and waiting for a diagnosis/ explanation sucks. I see you and I understand. <3

You are still part of the community and deserve the help and accommodations necessary for a quality life!

I made a second account!

I have felt for a long time like disabled people are grossly misrepresented in anime. It makes me sad to see my own people so noticeably absent from something I love so much. So ive decided to make an account dedicated to highlighting disabled and neurodivergent anime characters! you can find it @urfavisdisabled

We are currently looking for mods if you are interested in this project!

*wakes up*

Me: time for my routine

*convinces myself I am overacting/faking my chronic illness no matter how bad my symptoms are*

“I am clumsy in my own limbs. My knees buckle and ankles give out; I watch my fingers spasm and release what was held once so confidently in my grasp. I realize no one passes me the infants. I look at my shaking fingers and pulsing legs and realize my body was not made for this. In knowing this comes the knowledge that neither is my mind. I wonder how I got here, anyway, in a room of people whose eyes avoid my figure, whose conversations don’t extend to me. I look at the only other person who seems as out of focus as I am. I wonder what it’s like to hold a baby. I remember what it was like before; or at least I try. The problem is that is feels like i’ve always been forgetting to take my pills, always wearing braces on my body always looking confused into a world not built for me. I remember when I trusted the bones that house me; before they, too, creaked and caved and exposed me to the world when they crumbled. I try to remember my sport, my strength. I don’t have to try to remember the look in my PT’s face when I, again, took a first step. A wave of nausea comes over me and I dismiss myself. I make my apologies and excuses, my promise of next time and I take my exit. I glance back when i’m out of the room and watch their shoulders fall. I go to my bed.”

-What The Cold Does Aik.

this disability pride month, all of my doctors, old and current, owe me 20 dollars. and the ones who didn't do their job owe me 40. i would say i don't make the rules, but i do. pay up.

Struggling with the testing part of being disabled I feel is the most traumatic part out of all of this. I am in pain, I am sick, something is clearly wrong. The tests prove my point of that, but the constant “no not that” can be a bit rough.

This is Saki Tenma from Project Sekai!

Saki has a chronic illness and was hospitalized for most of her childhood. This is a key plot point within the narrative, and she speaks openly about how this affects her. Her condition is now stable, but she still deals with frequent episodes.

Negative stereotypes? Some do not appreciate that her illness is not named/specified upon as it can fall under the "sick girl" trope in anime. Many people who have been through hospitalization see her as accurate and positive rep. She is largely considered amazing representation and a fun character by the larger community

Omg I never expected other people to see my lil post about difficulties and stigma around auditory processing disorder, but some people did and here we are.

Tbh I really want to hear from other people with apd, and their experiences, cause I’ve actually never met another person with severe apd, so here’s a list of 10 questions if any of my fellow apd people wanna answer some!

1: when did you (or those around you) realize there was something up with your hearing?

2: does your apd come with other neurodivergency?

3: does your apd also come with specifically synesthesia?

4: what resources and accommodations have you found help best?

5: which headphones are better, in ear or outer ear?

6: how do you explain apd to those around you?

7: what is the worst thing about apd?

8: what is the best thing about apd?

9: which is worse, repetitive noises or loud noises?

10: do other people in your family have apd?

Thanks so much to anyone who responds, y’all are helping me feel less isolated!