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babaleshy · 3 years

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I'm Autistic

Because this will likely be a lengthy, wordy post about my self-diagnosis as Autistic as well as all of my experiences regarding Autistic traits, I'm going to leave a "read more" link so that you're not scrolling for ages just to catch up on your feed.

Ah, I see you've clicked "keep reading" or "read more" or whatever this site has it labeled as, now. You don't get to be mad at how long this is or how much of a waste of time reading this may be to you because you consciously clicked on the link. Therefore, I am exempt from taking responsibilities of eating up any bit of your time, including the time you've wasted reading this disclaimer.

So... Yes. I am. And it's a self-diagnosis right now.

You're probably thinking that I saw a Tik Tok clip, checked out a page on WebMD, and decided that I'm Autistic (this is in reference to a Tik Tok I saw last night that nearly made me spit out my drink because of how painfully accurate the "what people think self-diagnosis is vs reality" clip was). That is, of course, not the case.

A few years ago (likely 2018), I don't recall what it was I read online, but it made me go, "Oh wow, that makes so much sense to me," in regards to a neurodivergent trait. However, this was then I thought I had ADHD. My husband has ADHD, was diagnosed with it as a child, and because his dad forced the doctor (this was like, in the late 90s, early 2000s I think) to put him on Adderall and Ritalin, my husband does not remember 3 years of his life because he was a drooling, zombified mess. Why did his dad do this? Because his grades were bad. Did this help with his grades? No. Did his dad take him off the meds because he didn't get the desired result? Also no. My husband wasn't even informed on what ADHD was. He was simply told he had it and to take these pills. It wasn't until he (my husband) read the label saying that it could increase the risk of heart issues that he cussed his dad out and flushed all the pills down the toilet. Up until very recently, he wasn't sure if he actually had ADHD until he saw a YouTuber who was actually diagnosed with it display the exact traits he had.

But he didn't see this YouTuber when I thought I had ADHD, so my husband couldn't exactly relate, plus I didn't want to trigger anything with him on the subject.

But the more I researched, the more I realized I could be on the spectrum. It wasn't until 2019 that I was printing out articles, trait lists, etc. to highlight and put into a folder (which is thick and nearly bursting with what I've printed out to have a hardcopy of records highlighting the traits that I have, including traits my husband and my mom see in me) that I realized "I could have Asperger's."

Of course, I no longer use that term after finding out it was named after a n*zi, and I began to embrace the term "Autistic" instead.

But the thing that triggered me into going, "Wait, so it's not ADHD that I think I have, it's Asperger's?" was, like my husband, seeing a YouTuber talk about their traits and experiences. I had identical struggles, myself. (Through this same YouTuber, I also found out I'm greysexual, too! There's a name to describe my experience with sexual attraction! Yay!)

There are a lot of VERY SPECIFIC TRAITS Autistic people experience that aren't mentioned by the YouTuber or in anything that I've printed out and highlighted that I have found through various Tik Toks that I have personally experienced that simply further solidifies the fact that I'm definitely on the spectrum. When I showed the Tik Tok I mentioned earlier (I don't remember their name) to my husband last night, he was wide-eyed because the description of how that individual self-diagnosed themselves WAS EXACTLY WHAT I DID WORD FOR WORD HOLY SHIT.

I was already convinced I am Autistic, but each time I read Twitter threads of people's experiences with their Autistic traits, each time I watch Tik Toks or certain YouTubers share their experiences, it further solidifies that yep, I'm Autistic.

What's amazing is that my husband is very supportive. I'm extremely lucky to have married him. I've been a terrible masker but he loves me anyways. He never gave me shit for my meltdowns and tried to help me out, thinking I was just horribly overly stressed. Now that he knows why I've had the few outwardly noticeable meltdowns that I've had throughout our years together, he knows how to help me more, now. And while he's figured out my traits and what issues I have, knowing that I'm on the spectrum helps him make sense of why I'm like this, and he can help me accordingly whether it's to prepare for something in advance, help me calm down, etc.

(I should also add here real quick that there's a high chance I have OCD as well, but less of the compulsive actions and more of the obsessive thoughts, but I'm not entirely sure just yet if this is the case. I'm actually hoping to see someone about this but with the pandemic, I don't know when that will be.)

Now... onto the traits and experiences.

My Traits (that stand out with neon lights)(Will copy word-for-word a trait my mom or husband see in me and it will be typed in a different color.)

Having a folder that has all of my research I've obsessively looked up, printed out, highlighted what I saw in myself with one color (yellow) while highlighting what my mom and my husband see with another color (pink). I'm also using this folder to make this list as a reference because I sometimes forget certain traits I do have are because I'm Autistic. (I'm 32 as I write this, so when so much of what you think, do, and experience that you see is normal for you turns out to be an Autistic trait, it takes a while to get used to it and thus remember that because you haven't had a label for it your whole life.)

Despite being goth/punk, I dress as comfortably as I can. Textures aren't a very big issue for me, but what feels like strangulation of my body tends to be a problem. I cannot handle having the cross seams of pants feeling like I have a chopstick slowly impaling my vulva, or I can't stand how tight some shorts are that they pinch my hip joints.

I've NEVER spent much time grooming my own hair. It's either tiring, I"m impatient and want it done NOW, or both. This is why I have a Tank Girl haircut (all buzzed except for bangs), where I can basically "wash and go." (Husband does my haircuts and dyes and he's kickass at it.)

Eccentric personality; may be reflected in appearance.

Is youthful for age, in looks, dress, behavior, and tastes.

Usually a little more expressive in the face and gesture than male counterparts.

"May not have strong sense of identity and can be very chameleon like before diagnosis." (This resonates with me in the form that I never saw myself in ANY fictional character other than Tank Girl. My husband agrees with this opinion, but he also says he also sees a lot of me in Caulifla from Dragonball Super.)

I enjoy reading and films as a retreat, often sci-fi, fantasy, children's (sometimes), can have favorites which are a refuge.

Uses control as a stress management (like routines, rules, rigid certain habits, etc.)

Usually happiest at home or in other controlled environment.

I've been seen as "sensitive" by some, and mocked for crying a lot by others.

I struggled with social aspects of college and have 2 partial degrees.

Often have trouble holding a job and finds employment very daunting.

Slow at comprehending at times due to sensory and cognitive processing issues.

DOES NOT DO WELL WITH VERBAL INSTRUCTIONS; MUST BE WRITTEN DOWN

Special interests (I'll get into these later).

Emotionally immature and emotionally sensitive.

Anxiety and fear are predominant emotions (some of which might be due to possible OCD).

I do have some sensory issues such as visual processing issues at times, certain sounds, certain smells, food I think, and issues with sunlight and my goddamn retinas.

Moody and prone to bouts of depression. Both of my parents as well as my husband have described my personality as reminding them of a cat.

Mild to severe gastro-intestinal difficulties (some of which could be due to endometriosis, btw).

I stim a little such as leg-bouncing, foot-waggling, some hand-flapping, some bouncing, the "spine-shimmy," joint-cracking, or playing with my ears.

Prone to temper or crying meltdowns, sometimes over seemingly small things due to sensory or emotional overload.

Hates injustice and hates being misunderstood, which incites anger and rage.

Prone to mutism when stressed or upset, especially after a meltdown, likely to stutter and may have a raspy voice.

Words and actions often misunderstood by others.

Perceived to be cold-natured and self-centered; unfriendly.

Very outspoken at times, may get very fired up when talking about passionate/obsessive interests.

Will shutdown in social situations once overloaded but generally better at socializing in small doses. May even give the appearance of skilled, but it is a "performance."

Doesn't go out much; will prefer to go out with partner only (aka my husband).

Will not do "girly" things like shopping.

Takes relationships seriously.

There's a bit on this chart (some of you probably already know by know what chart I'm using here) that says due to sensory issues, one would either really enjoy sex or strongly dislike it. I'm in the former camp complete with a pretty high libido.

Often prefers the company of animals.

So there are the traits that REALLY stick out like a sore thumb. These come from a site regarding female Asperger traits or however it's labeled as. I have plenty more from two other articles I printed out with lots of highlighting, but the chart actually sums a lot of the definitive shit quite nicely. At some point in this list, I could tell I went "fuck it" and copied many things word for word anyways since I'll be talking about experiences later in this post.

But it was this chart that I'd discovered that I started to realize that I really am on the spectrum, and to triple check, I asked my mom and my husband if they saw any of this in me. The traits typed in green are ones I wasn't sure of and had to ask them if they saw it. I'm not always aware of how I am, who I am at times, etc. I also didn't want to lie about it, so I had to get second and third opinions.

Despite all of this, only very few people that know me IRL know about me being Autistic. This is because I was heavily bullied growing up and since I haven't exactly left my hometown, I really don't want whoever stayed in the area as well to either have more fuel and re-enter my life that way, or try really hard to relieve their guilty conscience and demand that I forgive them or some shit. I also don't want "Autism Mommies" to come at my ass either asking that I help their kid (I'm not fond of children so that's not happening, plus ableism is what fucks a lot of Autistic people over regarding of age but they won't take that for an answer) or that because they---a neurotypical person---have a child who's Autistic, then that means they know all about it and because I'm not exactly like their child then I can't possibly be Autistic. It's just a whole mountain of shit I don't wanna get into.

This next bit will be split into 2 parts. One will be my special interests, and the other will be my experiences from my past that are prime examples of being Autistic long before anyone in the common public knew what Autism actually was.

My Special Interests (Both Forever & Temporary)

The following list will have my special interests but with indicators in parentheses as to whether they are forever-interests (as in, I never lost interest in the thing) or temporary (meaning, it was short-lived be it by weeks, months, or a few years). This will be in chronological order, meaning: the order of which these have appeared throughout my life.

Barney (temporary; helped me skip preschool and become honor roll student in kindergarten though)

Halloween (forever)

the color orange (forever)

dinosaurs (forever)

Donkey Kong Country esp. for SNES (forever)

animals (forever)

Godzilla movies (forever)

monster movies (forever)

Pokemon (temporary; I still like Pokemon, but it's not as hyperfocused as it used to be)

Digimon (temporary; same situation as with Pokemon)

Dragonball Z (forever)

Sailor Moon (on-and-off)

Ultimate Muscle (Kinnikuman Nisei) (forever)

Freddy vs Jason movie (still like, but the hyperfocus was temporary)

horror movies (forever)

Transformers (temporary)

Dark Knight movie (temporary)

Harley Quinn (temporary)

Lobo (temporary)

X-Men (forever, but only certain universes, mainly the 90s cartoon, and the character is always Hank McCoy)

neon-colored stuff (temporary; kind of some sort of semi-rave/techno phase)

books (forever; this was when I discovered it's "legal" to enjoy books if you "aren't smart"; I may explain this logic I had later in the post)

sex/sexuality/sexology (forever on the first two, temporary on the last one)

BDSM (on-and-off)

feminism (temporary in regards to doing research and educating myself; I still hold the views I've developed as a result, just not obsessively researching this topic anymore)

anarchism (forever)

ecology (forever)

Pleistocene epoch (forever)

goth and punk stuff (forever after discovering what these things are all about for real compared to when I was in high school and had no idea how to ask, who to ask, or where to look this stuff up at in rural Ohio)

Hellblazer (temporary)

Serbian heritage (on-and-off)

bats (temporary)

arachnids (forever)

teratophilia (forever; finally have a word to describe this damn kink)

gardening (current; unsure)

Russian language (current; unsure)

DIY things (forever)

Towards the end, it may not be in the proper order thanks to slowly losing my damn mind being cooped up mostly in my room on this farm since moving back here in 2014. The two that are "current;unsure" are ones I have a hyperfocus in right now, but I don't know if this will be temporary or not. I certainly hope not, especially considering how useful these things will be. And while I have gardening as one of them, I haven't properly begun yet because I get empty promises from my parents where they claim they'd help me, not to worry about it, then get irritated when I ask where the help is and they suddenly can't give me the help when I told them I needed it.

I should also note that I don't exactly have an encyclopedic knowledge in a whole lot of these interests that are forever-interests because I'm normally exhausted just trying to exist with minimal trouble from people. I'm hoping this will change. The things I know I have an almost encyclopedic knowledge in would be Dragonball Z, animals/ecology, and... a-and that's it. That's really it. That's all I've got because Dragonball Z was so profoundly different compared to other cartoons I've watched in the 90s that it was a wonderful escape, and I grew up around animals, taking care of animals, and watching nature documentaries. The stress I went through growing up has caused my memory of some of that wonderful animal knowledge to be lost and what could be re-gained may be easily forgotten again, hence why I need to narrow my focus for what I'd like to be an ecologist for. While I love paleontology, I want to help the living world's ecosystems and environments, too. I'd love to go back to school for this stuff now that I'm more informed of who I am and what I want in life (as opposed to being forced to pick a college major while still in high school while I'm just trying to survive the concept of existence).

In terms of collecting things pertaining to my interests, a common pattern you'll see me have is a very slowly growing Hank McCoy collection. This is largely because there isn't too much stuff made regarding this character. (There also isn't much stuff I can find that involves Piccolo, Cyndaquil, Donkey Kong, giant ground sloths, etc. that isn't already snatched up by other fans.)

Now, I'm going to get into the list of experiences. Some of which will talk about my special interests, but I also really want to talk about my struggles, too.

Experiences That Screamed "I'm Autistic"

In gradeschool, I was friends with someone who probably wasn't actually a friend and her mom made her hang out with me since I didn't really have any friends. She has told me several times that she didn't want to be my friend anymore with some kind of hostile catty smile, but I just.. I wasn't getting it. Because there was a smile. Why say that with a smile? After all we've been through? Then she's back to being my friend the next week. She really wanted to hang out with the popular girls (yes, there were cliques in 90s American gradeschool) and has done countless things to sabotage our friendship such as telling me Barney is a fake, Donkey Kong was a real gorilla who hung himself, etc. And I believed all this shit, too, in an attempt to still be an acceptable friend. She even told me that I couldn't be a witch because I liked toads so much (toads were the only wildlife I excitedly interacted with in my back yard on a regular basis).

I love Halloween for many reasons, but one of them (aside from my favorite color being involved) was the fact that it was acceptable to wear a mask. I love (and still do) the idea of covering my face because I feel less "naked" to the world. So this pandemic had a small plus for me in the form of mask-wearing outside of Halloween has become somewhat more acceptable.

In 5th grade, another classmate who had more obvious Autistic traits and was diagnosed with Asperger's at the time was an asshole to me. They would constantly give me shit and bully me for whatever reason. When I finally took a stand, the teachers on duty at recess called me to the bottom of the hill, forcing me to look at them WITHOUT allowing me to have my hands up to block the sunlight that hurt my eyes, and were able to manipulate me into "admitting picking on so-and-so for no reason" because I chased them around the playground where a group of girls (the same cliquey assholes the former "friend" wanted to mingle with) had to group-carry me away. They're the ones who snitched and they gave me those same hostile smiles. That's when I learned that not all smiles meant good things. I was 10.

I sometimes "lose the ability" to ask for help long before the "help" I ever got in any circumstance was just me being met with frustration by whoever is trying to "help" me or I'm met with "sorry, can't help you there. (The former being with homework or school work, the latter being with going to authorities about bullies.)

Growing up, I was never girly (or girly enough) and I've tried to, but I failed miserably. My special interests would roar through and because it was too odd or different or annoying, it gave other girls fuel for bullying me with.

Regarding the lack of being girly enough, I was at a pool party with the former "friend" mentioned earlier and she started this "game" where she and the other girls would leap into the pool saying, "I love you, Leonardo!" This was in 4th grade and in reference to the Titanic movie, which at that point, I'd never heard of, because I was too pumped for the latest Land Before Time sequel. So when I leapt into the pool, I said, "I love you, Raphael." All the girls were confused, asked who that was. I then asked, "Aren't we playing Ninja Turtles?" Because the only Leonardo I knew of was a fucking Ninja Turtle, goddamnit. Who let you brats watch that shitty romance film anyways? Boring as fuck.

Aside from the occasional weekend visits or sleepovers at the former "friend's" house, I didn't get to socialize much, so I would spend most of my days (especially in the summer) watching what was on TV or watching from our very large VHS collection. During which I would make mental notes on how certain characters acted or what they said and try to remember that to mimic them in a social setting, which would be out of place because I'd be so focused on mainly the dialogue that once it prompts me to say the thing, they don't respond how I expect them to and then I'm at a loss.

I was very ignorant of music and didn't even know the concept of independent or underground bands existed. Plus, rural Ohio is a cultural wasteland. Otherwise, I would've gotten into metal, goth, and punk way earlier in life. So I thought that bands that existed were because television said so.

Speaking of an odd logic... If it was taboo or bad to talk about, I thought it was illegal. Thus, I thought any knowledge about sex was illegal and that it was supposed to happen "naturally."

I also thought that, because I wasn't considered as smart by my peers, some teachers, and even as such in the form of an insult from my parents from time to time (despite what they claim NOW), that also meant I wasn't allowed to enjoy books, because only smart people are allowed to enjoy reading. So therefore, it would be illegal for me, a not-smart person, to enjoy reading a book. So I had to focus on the pictures because if I enjoyed reading, somehow everyone would know and then I'd get into trouble.

I also thought it was illegal to talk about periods.

I socially struggled BADLY when I got to middle school because my brain was like... 4 years behind? How the fuck do people know all these bigger words? Or complex issues? This was also when I had to start suppressing ALL urges to cry because at that age, I'm not "supposed" to cry over everything. So I still, to this day, suppress it to the point of guaranteeing inducing a headache. Because I've always caught shit for crying.

Middle school was when I met an oppressive "friend" who was obsessed with me because she had a crush on me and was rather controlling of who I could and couldn't talk to and got pissy if I got close to making a new friend. Because I was desperate for a friend that wasn't like the former "friend," I allowed this abuse into my life.

High school was me just trying to survive. By the time I got home, I was too mentally exhausted to enjoy anything short of watching TV or whatever was rented from Blockbuster.

My brain was still feeling like it was years behind, and I struggled to keep up with whatever was supposed to be something I knew about, including the concept of masturbation.

Like I said earlier, anything sex-related might've been illegal to talk about, and because masturbation was still kinda taboo, I feared I'd get in trouble, but my teenage hormones compelled me to do it a LOT. It consumed my free time almost like an escape, a form of stimming, but I was shameful of it to the point of suicidal thoughts.

The former bullet was due to being raised in a christian household. My parents didn't have such views on sex like this, but I was afraid of being in trouble for asking, took to the internet, and caught some misinfo about how immoral it was. I mourned I'd be going to hell.

Speaking of religion, I thought it was illegal to change your religious beliefs, and there was only Judiasm, Muslim, and Buddhism outside of christianity (I'm Pagan, now).

While I was excited to get away from my parents presumably for good after high school, college was a new form of hell. The sudden, dramatic change in environment and lack of ANY preparation for living like an adult on my own caused me to mentally/socially/emotionally malfunction. I had outbursts I desperately tried to suppress, I felt stupid because everybody sounded smarter than me, I didn't actually want to go to art school but wasn't smart enough for anything else and never really bothered to better my artistic skills and thus felt like I shouldn't be there anyways, I struggled to fit in better, I had no idea how to function that certain habits such as neglect of my own dishes on my desk developed because I LITERALLY COULD NOT SEE MY OWN MESSES DUE TO THE STRESS I WAS EXPERIENCING. This was 3 or 4 long YEARS of this.

Attending art classes mostly run by very demanding (and demeaning) teachers while my art skills weren't up to par added to this stress on top of me not actually wanting to be THERE in the first place, just away from my parents.

I nearly ruined a friendship with a roommate because of my struggles. I'm not even sure if she is aware of my Autism because I'm afraid to approach her about it for some reason.

Plenty of times throughout my life where I'm loud and don't even realize it.

I've info-dumped on my parents, but right now they half or completely ignore me.

I've tried making eye contact, but it's like staring in the sun not in the sense of pain, but in the sense of by natural reaction looking away. When I force myself to make eye contact, I'm spending so much focus and effort into doing that to the point where I am unable to pay attention to what the person is saying. Instead, I stare at the mouth so I make sure I hear correctly the words they're telling me.

Each time someone is mad at me and gives me the silent treatment, and I inquire what I did to piss them off, they get madder because I'm somehow supposed to immediately know when I fucking don't. Then, half the time, they continue not telling me and I have to hear it from someone else. This further confuses me as to why they don't just simply fucking tell me.

I've annoyed people to listening to the same one or few songs over and over again. A lot (currently obsessed with the Sunset Overdrive and Tank Girl movie soundtracks).

I can "smell" the heat outside on a summer day.

I can smell other people's unique scents sometimes (especially when in someone's house; also experienced this in other people's dorms).

I can't remember what grade this was, but in high school, we went to some kind of space camp facility thing, and our class was split into two groups: one group was the group who was on Mars and ready to come home, the other was on Earth and can't wait to go to Mars. I was in the former group. My job in this little fun display interactive room thing was to examine the isotopes and report... uh.. I can't remember.. Report something that was off. Everyone else was dicking around with what they're supposed to do, and I was actually doing my job, and then said something, like I was supposed to, if I found something that was off (I don't remember the specifics). When the scientist who worked at the facility praised me on "saving the crew," I caught this look from the entire class a look I can't quite describe other than they didn't seem to like the fact that I did a good thing and was being praised for it instead of any of them (or they were shocked that a "dumb girl" like me could achieve this and get praise for it, I don't know.. hard to tell). This was a science class field trip, but despite this, I didn't have an interest in space, and still didn't feel I was smart. (Come to think of it, I think this was actually an 8th grade field trip, I can't remember.)

Just discovered this today: I'm actually very easily overwhelmed that could trigger a meltdown when I wake up. I don't know for how long until that point passes, either. But this could also be explained with how I've reacted to certain alarm clocks (the ones with the bells just induce pure rage in me). Either I will be on the verge of a meltdown or I'll have a fucking headache all day. Normally, I just wanna drink my coffee and either read or practice a little on Duolingo.

I don't always have enough room for a lot of info in my head for things that I like, so I have to carefully narrow shit down. Right now, I'm trying to figure out what to do about my urge to get my hands on some monster movies while making sure nothing else I've retained info for wanes. Not sure if this is due to stress or what. But apparently I have designated compartments for certain categories in my brain. If I get into monster movies, continue to work on my knwoledge on ecology and paleontology, and gain more knowledge about arachnids, that shouldn't impede on the "language" category, so whatever I learn in Russian will remain safe.

Interest "Webs."

I have what I'd like to call an "interest web." My special interests in one thing can lead me to having an interest in another. I care about nature, and I also care about paleontology. Paleoecology is something I'd like to dip my toes into. But because this all involves nature, I have an interest in botany (though it's still intimidating so I'm sticking with local native trees) and arachnids (after conquering my fears and learning more about them). So the web stops at arachnids there (no pun intended).

Back to ecology and paleoecology...

I have a major interest in the Pleistocene because it was just before we humans started writing shit down. Hints of that era echoes within our current environment, from the pronghorn being "unnecessarily" fast (due to miracynonyx, the "American cheetah," which is now an extinct cat) to avocados not seeding like they should without human assistance as well as the yucca trees (Joshua trees) going into retreat thanks to the absence of giant ground sloths.

But the planet is warming, and we could use all the help from plants that we get, especially when it comes to making sure that permafrost stays frozen. So there's this "Pleistocene Park" project taking place in Russia, and one day, if I get into the field of paleontology, I may want to chat with those involved in that project, but one can't expect every other country to know English.

There's also FROZEN PLEISTOCENE MEGAFAUNA CARCASSES BEING FOUND IN PERMAFROST, too.

On top of all of this, Russia's northern lands will become habitable for humans if shit hits the fan and the planet's mostly fucked, so it's still nice to know the language.

See how all of these interests intertwine? (It also helps that since I am of Serbian heritage but can't find accessible resources to learn the language and I wanna know a Slavic language that Russian is kind of accessible. It also seems to be the only Slavic language "commonly" found in colleges when it comes to foreign language courses.) This is why I call them "interest webs." Not sure if other Autistic people have them, but it's something that I have.

The second one could simply involve Halloween, punk, goth, monsters, and teratophilia with Halloween being the gateway because my favorite color is orange.

Just thought this would be a fun thing to touch on real quick.

My Sensory Traits

I do experience some sensory traits, but they're not intense like some people would assume (unless I'm simply not noticing how intense they can be).

I can "smell" the summer heat, which was something I thought everybody else experienced but I'm wrong.

My retinas hurt in bright sunlight despite not looking anywhere near the sun, which I also thought everybody else experienced.

Drinks taste different or off in some way if they're not in a particular mug, glass, etc. that the drink is supposed to be in. (I have certain mugs that I enjoy my coffee in, but the other mugs? They taste off. I can't explain why. I have ONLY TWO acceptable little tumbler glasses for orange juice.)

Breakfast food does not taste like breakfast food unless it's on this one specific plate from my childhood.

Dinner can be iffy on certain plates, but the safest go-to is the knock-off blue willow plates.

Lunch is acceptable on anything, but if I'm having simply a sandwich, it must be on a small plate.

I have specific forks I'd prefer to use because of how they feel in my hand, how the food-part feels in my mouth, and how the fork itself tastes.

Gotta have cinnamon in my coffee. I just do. It's not coffee without it.

I cannot fucking handle hair snippets of any size for any reason on my body. This is why there is a rigid procedure to where my husband must buzz my hair over a paper-towel-covered sink (to avoid clogging the drain) while wearing a particular tanktop Harley Quinn night shirt, and then I must shower immediately afterwards. During the haircut, my skin itches like mad like I'm being poked by the hairs directly even in places where hair snippets have never, ever gone.

I'm overly sensitive to the cold to the point of pain, especially in my fingers and toes.

Also cannot brush teeth with cold water because it's so painful (this was LONG before I had dental issues and persists to this day). Even my tongue hurts from it.

I'm picky as fuck with candy. Trick-or-treating was sometimes difficult because all I cared about was either orange-flavored stuff, or chocolate. Only specific chocolates, too (Krackle, Mr. Goodbar, Crunch, Butterfinger, Reese's, that was it.) Skittles were okay, but a lot of the baggies I got had a LOT the red ones and the red ones suck. Can't stand the other candies. (But my tastes have changed since then, and I opt for European chocolate from Aldi's as they are far superior, especially Moser Roth's 70% dark chocolate and Choceur's coffee and cream chocolate.)

Speaking of candy, the Whopper's Robin's Eggs tasted better than regular Whoppers and I will never be able to explain why.

Despite loving orange flavored stuff, I have trust issues when I see an unlabeled orange candy because there's the dangerous chance it could be fucking peach flavored. *gag* (I like real peaches, but the artificial flavored ones suck balls.) Due to my dental situation, I cannot enjoy very much in a way of candy, and the only artificial orange flavoring I CAN enjoy is through Vitamin D gummies... And even then, EVEN THEN I have to worry about the fucking peach flavors if I have to go with a different brand because we can't get our hands on a bottle from Simple Truth.

Artificial cherry flavoring is death.

The ONLY flavored medicine that was acceptable to me was orange (of course) and those dissolving strips that were grape-flavored that they don't fucking make anymore because fuck me that's why. Everything else was peer-pressured to do shots kiddie edition.

The different colored coatings on M&M's taste different from one another and I cannot explain why. It's very subtle, hardly noticeable, BUT I CAN TELL.

Peanutbutter is fucking amazing.

The smell of peanutbutter is fucking not.

There are these frozen meals my husband gets for days he doesn't have energy to cook and one of them (all from the same brand) smells like fucking hell.

My husband's Nissan Cup Noodle ramen overpowers my incense despite what other household members say.

I love incense, especially dragonsblood, "coffee time," pumpkin spice, raven, and rain.

All of the autumn scents or scents associated with autumn are orgasmic to me.

The smell of artificial cherry is death.

I would love to have perfume or body spray of Play-Doh.

I can compare smells of some places to others, such as the library branch I frequent smells like my gradeschool, as do SOME of their books' pages, and when my husband and I walked through this hall-like tunnel-like storefront in downtown Pittsburgh, I said it smelled like my grandma's basement, and he thought the same, so we're in aggreeance that all grandma's basements smell the same. Except for my Baba and Deda's. Their basement smelled like they actually still enjoy life and had their shit together.

Speaking of gradeschool smells, my gradeschool had two directions of classrooms, one led towards the gym, but the hall off to the side was carpeted, had some nice colors, and held 2 kindergarten classes and 2 first grade classes. That section of the building had its distinctive smells. The other direction led to the office, the cafeteria, and the hall with the 2 classes of grades 2 through 5 plus the preschool and the art/music class was. The smell was different in all classes EXCEPT for the music/art class, and I never went to preschool so I wouldn't know what that smells like.

ALL PRINCIPLE OFFICES SMELL THE SAME. HOW.

I could smell when my husband accidentally put in cinnamon when he thought he grabbed paprika in a dish that I liked. He was terrified of telling me. That was a happy accident and it became a permanent ingredient. He was mortified and shocked that I could smell his whoopsie in my dinner he made me.

I can also smell the cinnamon they use in Little Caeser's pizza crust. Yes. They use cinnamon. But I was the only one to notice.

Honey is like peanutbutter: it tastes amazing. But holy shit fuck that smell.

Gas stations smell like death, sadness, and questioning life's choices.

No two people's car interiors smell alike.

I can smell when it will rain soon, especially if it's about to storm.

I'm the one who noticed that hairy white oldfield asters smell like cake batter.

Dominant yellow filling my entire vision can be sometimes painful.

I used to be able to "hear" the color yellow in my head so much I thought yellow actually made a noise. It was a particular shade of yellow, and it made this Playskool toy-like clicking bell ringing noise, but really obnoxiously, almost painfully. I don't know how to describe the shade other than "cloudy pastel lemon?" It looked like the fucking lemon-flavored medicine I had to take as a kid.

My parents tried mixing in this cherry flavored death medicine in with my orange soda thinking I wouldn't know the difference but I did, so I dumped it down the drain and opened a new can because that can of Big K orange was fucking ruined.

Orange is wonderful to my eyes. But it's a hard color for me to find when it comes to getting things in a particular color. My back-up colors are red, green, and purple.

The sunlight hurts my retinas, even when I'm not looking at the sky at all, but the pain intensity increases the further I look up on a sunny summer day. This has been like this since childhood. Prescriptive sunglasses shouldn't be fucking expensive and should be covered by healthcare insurance.

I have to try really FUCKING hard not to stare at someone's muscles in person because ugh... Good thing I rarely see anybody who's well-built. (No really, this isn't even really a sexual thing, I'm so fucking fascinated and once I realize "oh, so that particular muscle looks like that from that angle", I get a glimmer of hope that I MIGHT be able to draw something humanoid since I suck at drawing people.)

Orange trees as so pleasing to the eye, and these are much more socially acceptable to stare at, lest I'm in person and the property owner might think I'm plotting to steal some (luckily I've never been anywhere near a place that grows orange trees).

Neon lights are amazing and I want them to come the fuck back. I swear, stores were so much more enjoyable of an environment when they were common. Such lights improve my mood in a way I cannot describe. I'm no longer in a hurry to get home if I am in the presence of neon lights.

Sunny days during winter are painful because the sunlight reflects off the snow. I'm painfully blinded if I look outside or go anywhere.

I cannot handle the sight of someone having boogers/snot hanging from their nose, not the sight of someone vomiting, nor the sight of an syringe needle piercing flesh.

I cannot handle the sound of alarm clock bells. I have woken up in a rage and been in a bad mood I try so hard to suppress for a good portion of the day. If I hear an alarm clock bell now these days, I wanna take it and chuck it across the room regardless the time of day or if I'm already awake. It's not so bad if I hear it from a video. In person? That's starting a war with me.

Children crying or screaming (especially babies) are almost painful to me and triggers my fight-or-flight response.

The reason why I was the loudest mellophone player in marching band was to drown out hearing the fucking trumpets. And I did; I was louder than the trumpets. (I quit marching band my sophomore year but for different reasons.)

Much of the music from the 80s that gave it that sound that definitely said it's from the 80s is very pleasing to my ears.

I love punk music for its messages, lyrics, and energy, but goth always puts me into a headspace where I feel like I'm at home; I'm at peace and want to cuddle the monster under my bed.

However, some punk songs can hit deep or strong and live rent-free in my head, such as Anti-Flag's "Racist," Bikini Kill's "Rebel Girl," and Skarpretter's "Nazi Scum."

One particular artist's voice I cannot get over because his is the first voice of any kind that makes me wanna fan myself is Peter Steele of Type O Negative. My favorite song, however, is "All Hallow's Eve" because his voice, the subject, and the lyrical content.

I'm able to hear something off in the oscillating fan my husband likes to use before he notices it.

I'm the one who can hear coyotes at night (doesn't help my mom wants to blast westerns to drown out the world and I'm back here in my room away from that shit though).

I can hear the branches scraping against the house, gently making creepy noises before I realize what the fuck it is, BUT NOBODY ELSE HEARS IT.

I can recognize the call of a robin because we had so many at the house I grew up in, and nobody else in this family fucking noticed.

I tend to notice the sound of the rain over all the house noise first.

I don't like tight clothing, which is why I prefer bralettes because my tits hurt.

If I could, I'd go without the bra because the band can sometimes suddenly feel tighter than it actually is, but because I have large nipples, I kinda need that bra for a bit of protection.

Shorts can be tight around the crotch, hip joins, and lower belly region, and that's a big no-no for me.

I'd prefer baggy pants, honestly.

Can't have tight footwear. No.

The seam at the top of socks or tights hurt my pinky toes if the whole sock/tights shift that way.

I already covered the hair snippet thing so since this is the sense of touch, another body hair thing is I kinda don't wanna shave my pits anymore because they are extremely itchy when they grow back. HAVE to shave my crotch because if I don't it gets horribly itchy, and my thick, fast-growing hair weaves into underwear, gets caught in pads, etc.

Ah yes. Pads. I hate them, but they're far more acceptable than a tampon or a cup because I have vaginismus.

Certain fabric textures are itchy as hell. There's a black shirt I have whose collar and cuffs are gorgeous but I have to wear something underneath to avoid feeling itchy.

Winter is hell for me here in the midwest, as I am very susceptible to the cold to the point of pain, especially in my fingers and toes. I become very slow, too. I feel like I can't get warm enough most of the time.

Air conditioned places in the summer feel almost similar, so I don't always wear shorts if I'm expected to go into, say, a Walmart with my husband to pick up everything. I'll shiver.

(We're gonna get into TMI territory here.) Can't masturbate by hand unless I've got a nitrile glove on because my brain only focuses on what my fingers are touching more than what my cunt feels.

Can't have any sex with my husband without anything brighter than low-light because things can be visually distracting in the room, or lights can suddenly feel way too bright to me. (Halloween string lights or those LED rope lights with adjustable brightness features and colors are excellent for this situation.)

In Conclusion

This is all that I've figured out so far. None of this hit me at once as a realization when I figured out that I'm Autistic. This took a while to realize it, and the realizations were mostly at random times through examples of other people experiencing it on the internet or through me going, "Huh, is that an Autistic trait?"

There may be even more that I'm currently unaware of or have forgotten to type here.

I apologize for how extremely lengthy this was. This took all day to type because of having to get up and do other things that needed to be done. One of the reasons why I really wanted to type this is because it's much easier to organize this on a computer, and I am absolutely shit at organizing files on my computer.

Unfortunately, while my husband is wonderful in supporting me, my parents aren't exactly all that great at it. Especially my dad, who is either vaguely dismissive or outright "forgets" that I'm Autistic (he honestly just... doesn't care, and tries to make things convenient for him at the expense of others most of the time). My mom... I'm not real sure. There are times where she seems to remember and others where she doesn't. I'm honestly wondering if they don't like knowing that I'm Autistic because that means my brother would have been as his traits were far more obvious than mine.

I hope that whoever is questioning whether or not they're Autistic has found this helpful at least in the sense that it would point you in the right direction on where to go next, but I would highly recommend checking out online Autistic communities, as that's where I've discovered that I'm on the spectrum.

#autism #asperger's #adhd #special interests #sensory traits #autistic traits #sorry for how long this is

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juniorgman187 · 3 years

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The Bones (Reid Series) Part 2

Summary: After doing an even deeper dive on Valerie’s past, Spencer finally meets her, but his invasiveness isn’t the worst part ... the worst part is he might actually like her.

Playlist: “The Bones” by Maren Morris & Hozier (BONUS: song includes major foreshadowing) Category: Series, Fluff, Soft Angst, Eventual smut and *NSFW content Pairing: Spencer Reid POV x Fem!OC - Valerie Content Warning: invasion of privacy, allusions to Maeve’s death, arrhythmia Word Count: 3.4k

Part 1 |

✧･ﾟ: *✧･ﾟ:*

After firmly deciding not to weave Penelope into my tangled web, I was met with the arduous burden of conducting my own research.

Firstly, I would need a computer - yeah ... a computer. That’s how far I was willing to go for this pursuit. I once vowed never to fall victim to modern technology’s clutches, and yet here I was, doing my research on a public library’s computer. To my credit, I hadn’t gone out and bought one, I was merely using my resources.

With the need for a device out of the way, all that was left was the knowledge of what to look for. But that didn’t pose a problem either.

Funny enough, with as many rules and restrictions as there are regarding patient privacy and confidentiality, all it took was matching dates of news stories with hospital records to complete my research. I was fairly certain I was only scratching the surface of information about Valerie as opposed to the sea of things I could’ve uncovered if I asked for Garcia’s help, but there are only so many lines a person can cross in one week.

This was my limit.

Call me naive, but I was actually quite surprised with just how expansive the internet is. To an almost relentless degree, I would open an article and it would lead me to ten more about the same topic. It was this never ending rabbit hole that seemed to spiral on forever. I kept digging deeper and deeper until I could no longer dig.

I’d officially hit rock bottom.

It took me a grand total of just two hours to unearth all the ‘dirt’ I could on a young Valerie Bishop.

Local 16-year-old Wins Nevada’s Statewide Art Contest! Published by Henderson Press.

Valerie, just a sophomore in high school at the time, was donning what any experimental teen girl would’ve worn in the early 2000s - bootcut jeans and a sequin blouse over top of a plain camisole. And if I zoomed in close enough, I could spot the evidence of a sparkly blue shadow coating her eyelids. Surprisingly, though, that wasn’t the first thing I noticed.

It was that smile. That tooth-achingly sweet smile.

Though I never got the chance to see Maeve truly smile, that’s what I imagined it would look like.

The photographer must’ve caught her midway through a laugh, at least that’s what the image of her slightly open-mouthed grin told me. Meanwhile, her two tiny hands were clenching her overbearingly large trophy while her artwork stood behind her as the background.

It didn’t take me long to figure out why her painting won. Simply put, there was no need to see anyone else’s art to know that they couldn’t possibly compete with hers.

Hers was an abstract rendition of what I believe to be a forest of some sort. The detail is what I was most drawn to. It would’ve been unbelievable on its own but the fact that she was 16 when she painted it? That’s what was unbelievable to me.

If that’s how talented she was at that age, I could only imagine how much more talented she became with time. However, I lost the chance to investigate the current state of her skill before a related article from The Cleveland Gazette about Valerie succeeded this one.

From Award-Winning Artist to Henderson’s Hero

Read my interview with 17-year-old Valerie Bishop to find out more about her struggle with arrhythmia and how she turned her pain into a project!

By Kelli Gallagher from the Cleveland Gazette.

Gallagher: Thank you so much for letting me interview you, Valerie.

Bishop: Of course! I’m happy to.

Gallagher: You’ve become somewhat of a hero in Henderson, Nevada, haven’t you?

Bishop: I wouldn’t call myself a hero ... but if everyone else wants to - I’m fine with that. (laughs)

Gallagher: Don’t be so modest! I mean, what you’ve done is so incredible, and you’re only what? Seventeen?

Bishop: Yes, ma’am. I just turned seventeen this past August.

Gallagher: Wow, I can’t believe how young you are and yet you’ve already accomplished so much. I saw that you won a statewide art contest last year. Tell me more about that.

Bishop: That’s a funny story actually. My Grandma Sheila was the one who entered me in that contest. I didn’t even know about it until I won it. She’s always surprising me, though. In fact, she’s the one that surprised me with my first ever art supplies, when I was about eight or so. They were these super expensive oil paints, and I knew she couldn’t afford them, so I told her we should return them and get something cheaper, but she said, “Nonsense. When the bones are good the rest don’t matter. A house don’t fall when the bones are good.” That was kind of her saying.

A house don’t fall when the bones are good.

The bones.

Gallagher: I’m interested to know more about your relationship with your grandma. If I’m remembering correctly, she was also diagnosed with arrhythmia a while back too, right?

Bishop: Yes, she was, but that’s never slowed her down. And as for our relationship, my grandma and I have always been close, but arrhythmia, in a weird way, has brought us even closer. She has always been my biggest supporter and the fact that we’re both on this journey together makes her my biggest supporter even more so.

Gallagher: Absolutely. Now, I also heard that you’ve started a fundraising program to possibly start a gallery and studio in Virginia Beach. If you don’t mind me asking, why Virginia Beach? Is there any special significance?

Bishop: Actually, that’s where my grandma met my grandpa, and they got married and started a family there, too. So if Grandma Sheila hadn’t been there to meet him, she wouldn’t have had my mom, and that would mean I wouldn’t have been here either. I like to think Virginia Beach is where it all started. In a way, it’s where my bones are. That solid foundation in Virginia gave me everything I have today.

Gallagher: That is just incredible. I’m so glad to see your fundraising project is thriving, but I can’t imagine any of this has been particularly easy for you. You were diagnosed right around the time your senior year was starting right?

Bishop: Yes ma’am.

Gallagher: So what brought you from Henderson to Cleveland?

Bishop: Well, actually, I didn’t want to move, especially not before I graduated, but Cleveland has the best cardiovascular hospital in the country and my health is far more important than graduating in the same state I grew up in. So when my parents were willing to move me and my sister out here, I saw it as a privilege rather than something to be sad about.

Gallagher: I am so inspired by you, Valerie.

Bishop: (laughs) Really, why?

Gallagher: Despite everything that’d been thrown at you, you are still so grateful. I hope you never lose that.

Bishop: I promise you I won’t.

Gallagher: So one last thing before I go, what is one hope you have for your future self?

Bishop: I hope, future self, that your ‘bones’ are still strong.

Gallagher: Beautiful. Thank you so much again for doing this, Valerie. I sincerely hope you reach your goal and you get to open up that gallery and studio in Virginia Beach.

At the bottom of the article, there was a footnote from Kelli Gallagher.

Exactly 10 years later, Bishop was able to move to Virginia Beach and open up her gallery and studio.

By the end of the article, I felt a genuine sense of pride for Valerie, and I know I had virtually no right to know these things about her, but I could still be proud of her for them right?

I would never fully get my answer to this question before I crossed the final boundary.

After exhausting all that I could gather from the internet without Penelope’s assistance, the only thing left for me to do was actually meet her in person. However, this would prove to be a bigger obstacle that it seemed. I decided to delay the daunting task until the next day. A decision partially influenced by the phrase, ‘sleep on it.’ I prayed I’d gain clarity on what to do when I woke up the next morning, but even with a night’s rest, I was still undecided as I drove to Virginia Beach once more.

To sit in my car that was conveniently parked right in front of the gallery was a poor choice. Because with every passing second, the temptation to walk in grew, but the fear of regret dampened those impulses. The more I thought about it, the more I psyched myself out. Between my two choices, to freeze or to fight, I should’ve taken the third - to flee. But I was here now and I couldn’t leave empty-handed for a second time.

After a moment’s indecision, adrenaline coursed through my veins to give me the courage to get out of my car. When I felt an outdoor breeze blow over me, I knew there was no going back now. Right when I walked in, the little bell above the door rang, solidifying that I was officially crossing the threshold, and whether I liked it or not, she was going to see me after hearing me walk in.

“I’ll be right with you!” A small voice called out from somewhere in the back. She was hidden from my immediate sight, and somehow that made it so much worse. It was now I that was waiting for her, instead of her unknowingly waiting for me.

As though I were prey getting ready to escape a predator, I stayed put by the door. It gave me a full view of the entire place anyway.

Scoping out my surroundings, I spotted the paintings that were carefully measured and placed on the walls, almost to perfection. I had no time to notice anything more before the person in the back walked out.

Immediately when I saw her, I knew.

“You’re … not Valerie.” I couldn’t help sounding so disappointed but luckily, the woman that came out took no offense to my observation.

“No, I’m not,” She laughed. “But I can get her for you-”

“No wait!” I uselessly leapt forward to stop her from saying, “Vee! There’s someone out here to see you!” But that’s precisely what she did anyway. Evidently oblivious of my previous protests, she politely smiled back at me. “She’ll be right out.”

For the second time that day, I waited with bated breath, anxiously anticipating the arrival of Valerie. And I was almost too focused on subduing the pounding of my heart to realize that she was actually walking out of the back right now.

“Hi, sorry about that!” A new voice chirped.

Valerie.

The moment I laid eyes on her, it became clear to me that the pictures in her files hardly did her justice. Nothing could compare to the real sight of her. I was only able to catch the profile of her face when I saw her in the cafe, but in her entirety, I began to wax nostalgic. Though her face and hair and body had transformed into that of a grown woman’s features, I could still identify the same tooth-achingly sweet smile that a younger Valerie once wore on the front page of the Henderson Press. She was no beast to conquer, she was just a girl, smiling at me in that same gentle way.

Her expression just as well showed no indication of recognition, not that she would recognize me, considering my letter was anonymous and unless she pulled the same stunt I did, she wouldn’t ever recognize who I was.

“I’m Val,” She made her greeting to me while untying her dirtied waist apron, and it was merely the action that caused my gaze to fall to her hips, but when she shed the apron, I was still staring. There was something sort of mesmerizing about the way they swayed as she approached. It wasn’t until they stopped swaying completely that I realized they did so because there was no more distance to advance - she was already right there in front of me, patiently watching me stare.

“Val?” I blinked hard to revert my gaze while also playing into the part that I had no idea who she was.

“Mhm. Short for Valerie,” She confirmed happily. “Like the Amy Winehouse song.”

This time, I genuinely didn’t know what she was referring to, and my confused countenance prompted her to clarify, “You don’t know that song?”

Then, seemingly out of nowhere, she began to playfully sing, “Well, sometimes I go out by myself and I look across the water ...”

While she watched my face and waited for the recitation of the song to jog my memory, I was just as much studying her face. I could tell she was only kidding when she sang, evidenced by the laugh that followed her rendition, but it sounded so unironically good that I had to question what other talents she possessed.

“Um, I was actually thinking more like Valerie, the martyred medieval saint, whose name stood for strength and health.” No sooner than the words spilled from my mouth did I recognize the freudian slip - the simultaneous coincidence and confession. The coincidence was that, now, with Maeve’s heart beating in her chest, she lived up to her name - she was newly strong and healthy. But I worried, she would see the correlation I drew between her name and her successful transplant and would realize that I knew more about her than I let on. Did I just give away too much?

“Sorry, I didn’t catch your name earlier. What was it?” Her casual dismissiveness of my previous statement did nothing to ease my worries. Was she beginning to piece everything together?

“Oh, right!” I said dumbly. “S-Spencer. I’m Spencer.” I was such a blubbering bundle of nerves that I actually reached out to shake her hand - a stranger’s hand.

“Nice to meet you, Spencer,” She softly laughed, which was hopefully not out of the enjoyment of seeing me squirm. “What can I do for you?”

A loaded question, don’t you think? What can you do for me, Valerie? Well, for one thing, you could’ve answered my letter, but to say something as bold as that would require me to admit the real reason I was here, and how could I do that without mentioning how I found you in the first place?

“Um ...” Whose birthday is the soonest? “My friend Emily’s birthday is coming up and I was wondering if I could possibly buy a painting from you as a birthday present.”

There was the faintest perceptible skepticism in her expression, but that could’ve just been my paranoia talking because in the next breath, she didn’t suggest a proclivity to my deceit. “Yeah, of course! Do you know what her favorite medium is? Or her favorite artist? Or her favorite style of art?”

For every addition to the question, I wordlessly shook my head no. Was my lie already unraveling? Could she see right through me?

“No worries. If you want, you can walk around the gallery and tell me if you see anything you think she’d like.” She made her offer to me sweetly, then disappeared into the back room again. I tried to follow her with my eyes for as long as I could, but from where I was standing, I couldn’t see very far into it. I wandered a little further into the center of the gallery to possibly catch a glimpse of what was occupying her time back there, but when I heard the chattering of two voices, Valerie and the other woman, coming from the same general direction, I realized I was completely alone in this part of the studio.

With no one around to bear witness but these portraits, I could’ve easily slipped out and made my escape, and I might’ve even done it had it not been for the unmistakable gravitational pull forcing me to stay here and walk about the room.

Making my way throughout the gallery, I would pause every now and then when a painting would stand out to me, which was often, considering each picture was impressive.

But there was one painting in particular that piqued my interest. It made me feel something I’d never felt before.

It wasn’t special by any means. By rights, I shouldn’t have even noticed it, for it wasn’t the largest painting, nor the smallest one - it wasn’t even the most average painting. But it felt exceptionally ... Valerie. I had no doubt in my mind that she painted this one - in fact, I had a good bet that she painted most of these portraits, if not all of them - but this one. There was just something about it that I couldn’t put my finger on.

“So,” A draft was created from where Valerie swiftly and unexpectedly joined me at my side. “What do you think?”

“Um, there’s definitely something,” I struggled to find the word. “appealing about this one.” Almost as soon as the word came out of my mouth, I knew it was only a matter of time before she called out the inadequacy of my answer.

“Appealing?” She repeated in mockery. “That’s the best you got? Come on, you’ve been standing here for like ten minutes. There must be something about it you like.”

“I’m not sure.” I honestly admitted with a shrug.

“There’s no wrong answer.” She assured me, but I found that hard to believe.

“So if I said I see a grizzly bear attacking a UFO, that wouldn’t be wrong?”

“Nope,” She popped the p. “If that’s how you interpret it then that’s how you interpret it. Just because someone else sees it differently, doesn’t mean you’re wrong.” It would’ve sounded like complete bullshit or nauseatingly cheesy coming out of someone else’s mouth, but her delivery felt so genuine. It actually moved me.

As she said this, she turned her head in my direction to look up at me, causing her shoulder to brush my upper arm, sending a wave of goosebumps all over my body.

She was so close.

But I was so unbothered by her proximity that I didn’t even notice exactly how close she really was. If someone else had invaded my personal space like that, I would’ve moved in the opposite direction just on instinct, but I didn’t even think to do that with Valerie. I was so comfortable with her being there.

But was that just because a part of her was once Maeve’s? Was the entire foundation of my likening to Valerie built upon that single attribute?

Was that my bones?

“Um,” I began fidgeting with my hands to self-soothe. “I like it. I don’t know why. But I like it. How’s that for an answer?”

There was a pause before her response that compelled me to look at her, but when I did so, she was already looking at me. “I’ll take it,” She nodded. “It’s the biggest compliment to me if my art can make you feel something.”

Was it the art that made me feel something ... or you?

“I’ll tell you what,” She walked over to grab something from the front desk. She came back with a small piece of cardstock. “I’m going to an art exhibition next weekend. Why don’t you come with me and see if you can’t find something for Emily there?”

She handed me the paper, which was actually her business card. “You don’t have to have an answer for me today, but call me when you do.” She seemed to think that was the end of the conversation, but I still had more questions.

“You’re inviting me?” was the first question that came to mind, albeit the dumbest one.

“Yeah, you can be my plus one.”

I gulped to dislodge the lump in my throat. “Like-like your date?”

She furrowed her brows with mild confusion. “Um ... sure, if that’s what you wanna call it,” which was the last thing she said to me before vanishing within the back room again.

I peered back down at the card and tapped it gently on the palm on my hand as though to register its presence really being there.

For all intents and purposes, this card was meaningless. But to me, it was the formal consenting - nay, invitation - to reach out to her again. She was willingly extending this line of contact to me.

No more public library computers. No more files. No more ‘research.’ Just her number - a way to reach her without veering off my moral compass.

Despite this, I still had no clue whether or not I was going to accept her offer.

All that I did know was that I wanted to see her again.

✧･ﾟ: *✧･ﾟ:*

PART 3 COMING SOON!

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samwenahetbait · 3 years

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Supernatural, Season 7, and the Positive and Negative Symptoms of Schizophrenia/Psychosis

I just finished season 7 of Supernatural. Season 7 and Sam’s arc, and later Cas’ arc, interested me a lot because I’m schizoaffective (schizoaffective being schizophrenia plus a mood disorder, either bipolar or depression, in my case depression).

I’ve done a lot of research on the disorder and spectrum of disorders and when watching the beginning of honey!Cas I thought this would be a really interesting way to show the ways the show does and doesn’t portray psychotic disorders well.

I’ll be using both Sam and Cas, Sam for positive symptoms and Cas for negative symptoms, and evaluating them for how accurate they are to DSM 5 criteria for psychosis, criteria for schizophrenia (understanding that neither of them could be diagnosed due to duration and the magical nature of their problem), and accuracy to personal experience (not all psychotic experiences are the same, obviously, so this is not the most accurate test, but lets do it anyways lol)

This is gonna be long, so more under the cut!

So a bit of background of the DSM 5 criteria for schizophrenia and DSM 4 criteria for psychosis not otherwise specified, which is still in use in hospitals and doctors offices and would definitely still be used in 2012. The DSM 5 criteria for schizophrenia includes two or more of the following, with one having to be one of the first three: hallucinations, delusions (things that you believe as true even when presented evidence you’re false), disorganized speech, grossly disorganized or catatonic behavior, negative symptoms. The duration must be for six months including prodrome (mostly negative symptoms), with at least one month of active symptoms.

The DSM 4 says psychosis not otherwise specified includes delusions, hallucinations, disorganized speech, grossly disorganized or catatonic behavior about which the doctor cannot make another, better diagnosis.

Positive Symptoms

“Positive” and “negative” symptoms are a bit misleading. what they really mean are positive symptoms are things the disorder adds that aren’t there originally (hallucinations, delusions, disordered speech), and negative symptoms are things that are taken away (blunted affect, poverty of speech, avolition or lack of energy)

[ID: Sam looks to the left. He says “he’s singing “stairway to heaven” right now.” End ID]

Sam is our character who experiences positive symptoms with Hallucifer. There are multiple types of hallucinations, the most common being auditory. Combination auditory and visual hallucinations are possible but they’re more rare than the media makes you believe.

Sam has a stereotypical case of what an outsider with no research may think psychosis or schizophrenia is - he has a voice that will not let him sleep, that constantly bothers him. Sam qualifies for Psychosis Not Otherwise Specified in that he has a prominent hallucination and does not qualify for another disorder.

What’s interesting about Sam’s psychosis to me watching, though, was the hallucination was the only sign of psychosis he had. It was severe and caused depression, derealization, dissociation, and insomnia but he never had delusions outside of the hallucinations, never had disordered speech outside of sleep deprivation, never had bizarre movements or disorganized behaviors. The only way to get a schizophrenia diagnosis with only hallucinations is if you have two or more voices who talk to each other, which he does not have. Sam would absolutely not qualify for a schizophrenia diagnosis.

As for personal experience - I’ve been hospitalized because voices have made it impossible for me to sleep so this arc hit close to home. I thought at times he was a little too well put together and honestly think there were moments in the season the writers forgot he was actively hallucinating. I thought that besides only having hallucinations and it being the Hollywood hallucination Sam’s arc with his “voice” was fairly easy for me to empathize with - but not easy for anyone else to treat him with respect. Here’s a link to a quiz I made about which ableist phrase used against Sam in season 7 you are

Negative Symptoms

[ID: Meg, in a nurses outfit, crosses her arms. Castiel’s profile is seen. Meg says “He’s been like the naked guy at the rave ever since he woke up.” End ID]

Cas, when absorbing Sam’s hell trauma, originally has his one positive symptom - hallucinations of Lucifer. However, after he wakes up from his coma he has one and a half noticeable positive symptoms and one and a half marked negative symptoms.

Cas experiences some form of hallucination (he tells Sam that he “sees everything” when asked what he sees) but it’s unclear what he means by this. He has noticeable disorganized speech however in that he will end conversations during important discussions and change the topic, which is an aspect of disorganized speech.

I would also argue Cas experiences a negative symptoms known in disorganized schizophrenia particularly, although anyone with psychosis can have it: inappropriate affect. Some people with schizophrenia will laugh during moments when they should be crying or show inappropriate emotional responses, uncontrolled. Cas doesn’t seem to have control over his emotions and will make jokes and laugh during tense or upsetting situations. Part of that is also due to his complete disconnect with reality and what is happening in the situation. It could also be argued he experienced disorganized movement or catatonia, as we see him staring blankly and sitting still at the end of 7.17.

Castiel definitely qualifies for PNOS through his disconnect with reality, possible hallucinations, and disorganized speech, as well as with inappropriate affect and possible catatonia. Despite having more on the list than Sam he still doesn’t qualify for schizophrenia.

This is getting longer than anticipated so I’ll try to make this section shorter. I don’t think honey!cas was written to be psychotic. I don’t think he was written with an illness in mind. I don’t think either of them were. I think Cas was written to be funny crazy and Sam to be scary crazy. But in writing a funny crazy character the writers accidentally hit somewhere personal as someone living with the cognitive and neurological effects of schizoaffective. I watched honey!cas on a bad cognitive day and sobbed when they were mean to him because I related to the disorganized speech and the inappropriate behavior. Is it good representation? No. It’s exaggerated and ridiculed. It’s deeply ableist. And the way the writer’s treat him and have others treat him is deeply ableist. But I did find myself relating and rooting for him.

Fandom Response

I haven’t been in Supernatural fandom long (four months) and being involved with fandom while watching the show has been interesting. I’ve had pretty much everything at least somewhat spoiled so I was excited to see honey!cas and psychotic Sam in something other than gifs. I’ve seen maybe three people talk about sam’s psychosis, maybe because I don’t follow enough sam blogs, but it’s not something I’ve seen a lot of. everyone i’ve seen has been psychotic and made it clear he’s a psychotic character or been supportive of viewing him as psychotic. But honey!cas is very popular and...sexualized?

I’ve seen two responses to honey!cas: he’s so crazy or he’s so slutty. I’m going to ask both of those groups of people to see the character as a person experiencing cognitive issues and a break from reality. Not saying not to talk about honey!cas - he’s interesting, but please don’t sexualize him for being quirky when by quirky you mean delusional and please don’t do the opposite and demonize him for being vulnerable (and if that’s crazy. you should see me off my meds)

#supernatural #spn #sam winchester #sam #castiel #cas #sam safe space

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star-anise · 4 years

Text

An ask I got recently:

hi so i’m a transmed and i’m not sure if you’ll answer this because of that but i saw your post about transmedicalism and was wondering if you could expand on that? you seem like a genuinely kind and judgement-free person, thank you darling x

My response:

Heh, you call me “judgement-free” and ask for my opinion on a topic I’ve formed a lot of judgments about… I get it though, I’m not into attacking people for what they believe so much as providing FACTS. As a cis queer, my insight into transmedicalism isn’t really about the innate experience of trans-ness so much as using my education and professional experience to talk about social science research, diagnostic systems, and public health policy.

This ended up really long, so the tl;dr is, I think transmedicalism as I understand it:

Misunderstands why and how the DSM’s Gender Dysphoria diagnosis was written,

Treats the medical establishment with a level of trust and credibility it doesn’t deserve, at a time when LGBT+ people, especially trans people, need to be informed and vigilant critics of it, and

Approaches the problem of limited resources in an ass-backwards way that I think will end up hurting the trans community in the long run.

TW: Transphobia; homophobia; suicide; institutionalization; torture; electroshock therapy; child abuse; incidental mentions of pedophilia.

So first off I’m guessing you mean this post, about not trusting the medical establishment to tell you who you are? That’s what I’m trying to elaborate on here.

I have to admit, when you say “I’m a transmedicalist” that tells me very little about you, because on Tumblr the term seems to encompass a dizzying array of perspectives. Some transmedicalists believe in what seems to me the oldschool version of “The only TRUE trans people suffer agonizing dysphoria that can only be fixed with surgery and hormones, everyone else is an evil pretender stealing resources and can FUCK RIGHT OFF” and others are like, um… “I have total love and respect for nonbinary and nondysphoric trans people! I qualify for a DSM diagnosis of dysphoria but that doesn’t make me inherently better or more trans than anyone else.”

Which is very confusing to me because according to everything I’ve learned, the latter opinion is not transmedicalism. It’s just… a view of transness that acknowledges current diagnostic labels and scientific research. It’s what most people who support trans rights and do not identify as transmedicalists believe. But I kind of get the impression that Tumblr transmedicalism has expanded well past its original mandate, to the point that if a lot of “transmedicalists” saw the movement’s original positions they’d go “Whoa that’s way too strict and doesn’t help our community, I want nothing to do with it.”.

Okay so. Elaborating on the stuff I can comment on.

1. DSM what?

The American Psychiatric Association publishes a big thick book called The Diagnostic and Statistical Manual of Mental Disorders, called the DSM for short. This is the “Bible of psychiatry”, North America’s definitive listing of mental disorders and conditions. It receives significant revision and updates roughly every 10-15 years; it was last updated in 2013, meaning it will likely get updated sometime between 2023 and 2028.

The DSM lists hundreds of “codes”, each of which indicates a specific kind of mental disorder. For example, 296.23 is “Major depressive disorder, Single episode, Severe,” and 300.02 is “Generalized anxiety disorder.” These codes have information on how common the condition is, how it’s diagnosed, and what kind of treatment is appropriate for it.

Diagnostic codes are the key to health professionals getting paid. If there isn’t a code for it, we can’t get paid for it, and therefore we have very few resources to treat it with. The people who actually pay for healthcare–usually insurance companies or government agencies–decide how much they will pay for each code item to be treated. They’ll pay for, say, three sessions of group therapy for mild depression (296.21), or they’ll pay for more expensive private therapy if it’s moderate (296.22); they’ll pay for the cheap kind of drug if you have severe depression (296.23), but to get the more expensive drug, you need to have depression with psychotic features (296.24).

Healthcare companies, especially in the USA where the system is very very broken and the DSM is written, are cheap bastards. If they can find an excuse not to fund some treatment, they’ll use it. “We think this person who lost their job and can’t get off the couch should pay this $1000 bill for therapy,” they’ll say. “After all, they were diagnosed as code 296.21, and then saw a private therapist for five sessions, when we only allow three sessions of group therapy, and you’re saying they haven’t had enough treatment yet?”

A lot of the advocacy work mental health professionals do is trying to get the big funding bodies to pay us adequately for the work we do. (This is a much easier process in countries with single-payer healthcare, where this negotiation only needs to be done with a single entity. In the USA, it needs to be done with every single health insurance company in existence, as well as the government, sometimes differently in every single state, and then again on a case-by-case basis as well.) Healthcare providers have to argue that three sessions of group therapy isn’t enough, that Medicaid needs to pay therapists more per hour than it costs those therapists to rent a room to practice in, or else therapists would lose money by seeing Medicaid clients. DSM codes exist a tiny bit to let us communicate with each other about the people we treat, and a huge amount to let us get paid. The fact that their existence lets people make sense of their own experiences and find a community with people who share common experiences and interests with them is a very minor side benefit the DSM’s authors really don’t keep in mind when they update and revise different diagnoses.

So when it comes to convincing insurance companies to pay for treatment, humanitarian reasons like “they’ll be very unhappy without it” tend not to work. The best argument we have for them paying for psychological treatment is that it’s economical: that if they don’t pay for it now, they’ll have to pay even more later. If they refuse to pay, let’s say, $2000 to treat mild depression when someone loses their job, and either refuse treatment or stick the person with the bill, then that person’s life might spiral out of control–they might, let’s say, run low on money, get evicted from their apartment, develop severe depression, attempt suicide, and end up in hospital needing to be medically resuscitated and then put in an inpatient psych ward for a month. The insurance company then faces the prospect of having to pay, let’s say, $100,000 for all that treatment. At which point somebody clever goes, “Huh, so it would have been cheaper to just… pay the original $2000 instead so they could bounce back, get a new job, and not need any of this treatment later.”

Trans healthcare can be kind of expensive, since it often involves counselling, years of hormone therapy, medical garments, and multiple surgeries. Health insurance companies hate paying for anything, and have traditionally wanted not to cover any of this. “This is ridiculous!” they said. “These are elective cosmetic treatments, it’s not like they’re dying of cancer, these people can pay the same rate for breast enhancements or testosterone injections as anyone else.”

So when the APA Task Force on Gender Identity Disorder (a task force comprised, as far as I can tell, entirely of cis people) sat down to plan for the 2013 update of the DSM, one of their biggest goals was: Treatment recommendations. Create a diagnosis which they could effectively use to advocate that insurance companies fund gender transition. Like when you go back and read the documents from their meetings in 2008 and 2011, their big thing is “create a diagnosis that can be used to form treatment recommendations.” So that’s what they did; in 2013 they made the GD diagnosis, and in 2014 the Affordable Care Act required insurers to provide treatment for it.

A lot of trans people weren’t happy with the DSM task force’s decisions, such as the choice to keep “Transvestic Fetishism,” which is basically the autogynephilia theory, and just rename it “Transvestic Disorder”. The creation of the Gender Dysphoria diagnosis, basically, was designed to force the preventive care argument. They didn’t think they could win on trans healthcare being a necessity because healthcare is a human right, so they went with: Trans people have a very high suicide rate, and one way to bring it down is to help them transition. One of the major predictors of suicidality is dysphoria. The more dysphoric someone is, the more likely they are to attempt suicide (source). Therefore, health insurers should fund treatment for gender dysphoria because it was cheaper than paying for emergency room admissions and inpatient psychiatric hospitalizations.

I have spoken to trans scientists about what research exists, and my understanding is: The dysphoria/no dysphoria split is not actually validated in the science. That is, when you research trans people, there is not some huge gaping difference between the experiences, or brains, of people With Dysphoria, and people Without Dysphoria. Mostly, scientists haven’t even thought it was an important distinction to study. The diagnosis wasn’t reflecting a strong theme in the research about trans experiences; that research showed that trans people with all levels of dysphoria were helped with medical transition. The biggest difference is just that dysphoria is a stronger risk factor for suicide. Experiencing transphobia is another strong risk factor, but that’s harder to measure in a doctor’s office, so dysphoria it was.

(I’ve seen some transmedicalists claim that dysphoria’s major feature is incongruence, not distress. And I’ll just say, uh… in psychology, “dysphoria” is the opposite of of “euphoria”, literally means “excessive pain”, and is used in many disorders to describe a deep-seated sense of distress and wrongness. As a mental health professional, I just can’t imagine most of my colleagues agreeing that something can be called “dysphoria” if the person doesn’t feel real distress about it. If you want a diagnosis that doesn’t demand dysphoria, you’d need Gender Incongruence in the upcoming version of the ICD-11, which is the primary diagnostic system used in Europe, published by the World Health Organization.)

2. Doctors are not magic

Medicine is a science, and science is a system of knowledge based on having an idea, testing it against reality, and revising that knowledge in light of what you learned. We’re learning and growing all the time.

I don’t know if this sounds painfully obvious or totally groundbreaking, but: Basically all medical research is done by people who don’t have the condition they’re writing about. Psychology has a strong historical bias against believing the personal testimonies of people with conditions that have been deemed mental disorders, so researchers who have experienced the disorder they’re writing about have often had to hide that fact, like Kay Redfield Jamison hiding that she had bipolar disorder until she became a world-renowned expert on it, or Marsha Linehan hiding that she had borderline personality disorder until she pioneered the treatment that could effectively cure it. Often, having a condition was seen as proof you couldn’t actually have a truthful and objective experience of it.

So what I’m trying to say is: The “gender dysphoria” diagnosis was written and debated, so far as I can tell, by entirely cis committee members. The vast majority of psychological and psychiatric research about LGBT+ people is written by cisgender heterosexual scientists. Most clinical and scientific writing has been outsider scientists looking at people they have enormous power over and making decisions about their basic existence with very little accountability.

And to show you how far we’ve come, I want to show you part of the DSM as it was from 1952 to 1973. It shows you just why so many older LGBT+ people find it deeply ironic that now the DSM is being held up as definitive of trans experience:

302 Sexual Deviation This category is for individuals whose sexual interests are directed primarily toward objects other than people of the opposite sex, toward sexual acts not usually associated with coitus, or towards coitus performed under bizarre circumstances as in necrophilia, pedophilia, sexual sadism, and fetishism. Even though many find their practices distasteful, they remain unable to substitute normal sexual behavior for them. This diagnosis is not appropriate for individuals who perform deviant sexual acts because normal sexual objects are not available to them.

302.0 Homosexuality 302.1 Fetishism 302.2 Pedophilia 302.2 Transvestitism […]

Yes, really. That is how psychiatry viewed us. At a time when research from other fields, like psychology and sociology, were showing that this view was completely unsupported by evidence, psychiatry thought LGBT+ people were fundamentally disordered, criminal, and incapable of prosocial behaviour.

My favourite retelling of the decades of activism it took LGBT+ people and allies to get the DSM to change is from a friend who did her master’s thesis on the topic, because she leaves in the clown suits and gay bars, which really shows how scientific and dignified the process was. The long story short is: It took over 20 years of lobbying by LGBT+ people who were sick and tired of being locked up in mental institutions and subjected to treatments like electroshock training, as well as by LGBT+ social scientists, clinicians, and psychiatrists, to get homosexuality declassified as a mental illness. And that was homosexuality; the push to change how trans people were listed in the DSM is very recent, as seen in the latest version listing “Transvestic Disorder”, a description very few trans people ever use for themselves.

Here are a few more examples of how people with a condition have had to take an active part in the science about them:

When HIV/AIDS appeared in the USA, the government didn’t care why drug addicts and gay people were dying mysteriously. Hospitals refused to treat people with this mysterious new disease. AIDS patients had to fight to get any funding put into what AIDS is, how it spreads, or how it could be treated; they also had to campaign to change the massive public prejudice against them, so they could be treated, housed, and allowed to live. Here’s an article on the activist tactics they used. If you want an intro to the fight (or at least, white peoples’ experience of it), you could look into the movies How to Survive a Plague, And the Band Played On, and The Normal Heart.

Chronic Fatigue Syndrome (CFS) is a little-understood disease that causes debilitating exhaustion. It’s found twice as often in women as men. Doctors understand very little about what it is or why it happens, and patients with CFS are often written off a lazy hypochondriacs who just don’t want to try hard. There are basically no known treatments. In 2011, a British study said that an effective treatment for CFS was “graded exercise”, a program where people did slowly increasing levels of physical activity. This flew in the face of what people with CFS knew to be true: That their disease caused them to get much worse after they exercised. That for them, being forced to do ever-increasing exercise was basically tantamount to torture, so it was very concerning that health authorities and insurance companies began requiring that they undergo graded exercise treatment (and parents with children with CFS had to put their children through this treatment, or lose custody for “medical neglect”). So they investigated the study, found that it was seriously flawed, got many health authorities to reverse their position on graded exercise, and have made strides into pointing researchers to looking into biological causes of their illness.

Amyotrophic lateral sclerosis (ALS) is a rare but debilitating disease that isn’t researched much, because it affects such a small portion of the population. The ALS community realized that if they wanted better treatment, they would need to raise the money for research themselves. In 2014 they organized a viral “ice bucket challenge” to get people to donate to their cause, and raised $115 million, enough to make significant advances in understanding ALS and getting closer to a cure.

A common treatment for Autism is Applied Behaviour Analysis (ABA), which is designed to encourage “desired” behaviours and discourage “undesired” ones. The problem is, the treatment targets behaviour an Autistic person’s parents and teachers consider desirable or undesirable, without consideration that some “undesired” behaviours (like stimming) are fundamental and necessary to the wellbeing of Autistic people. Furthermore, the treatment involves punishing Autistic children for failure to behave as expected–in traditional ABA, by witholding rewards or praise until they stop, or in more extreme cases, by subjecting them to literal electric shocks to punish them. (In that last case, they’ve been ordered to stop using the shock devices by August 31, 2020. That only took YEARS.) Autistic people have had to campaign loud and long to say that different treatment strategies should be researched and used, especially on Autistic children.

So I mean… I get that the medical model can provide an element of validation and social acceptance. It can feel really good to have people in white coats back you up and say you’re the real deal. But if you get in touch with most LGBT+ and transgender groups, they’d say that there’s still a lot of work to be done when it comes to researching trans issues and getting scientific and governmental authorities to recognize your rights to social acceptance and medical treatment.

Within a few years, the definition you’re resting on will turn to sand beneath your feet. The Great DSM Machine will begin whirring into life pretty soon and considering what revisions it has to make. You’ll have an opportunity to make your voice heard and to push for real change. So… do you want to be part of that process of pushing trans rights forward, or do you just want to feel loss because they’re changing your strict definition of who’s valid and who’s not?

3. Scarcity is not a law of physics

One of the major arguments I see transmedicalists push is that there’s only a limited number of surgeries or hormone prescriptions available, so it’s not okay for a non-dysphoric person to “steal” the resources that another trans person might need more. This makes sense in a limited kind of way; it’s a good way to operate if, say, you’re sharing a pizza for lunch and deciding whether to give the last slice to someone who’s hungry and hasn’t eaten, or someone who’s already full.

When you start to back up and look at really big and complex systems–basically anything as big, or bigger, than a school board or a hospital or a municipal government–it’s not a helpful lens anymore. Because the most important thing about social institutions is that they can change. We can make them change. And the most important factor in how much the world changes is how many people demand that it change.

I’ve talked about this before when it comes to homeless shelters, and how the absolute worst thing they can have are empty beds. I used to work in women’s shelters, which came about when second-wave feminists started seriously looking at the problem of domestic violence in the 1960s and 70s, It was an issue male-dominated governments and healthcare systems hadn’t taken seriously before, but feminists started heck and did research and staged demonstrations and basically demanded that organizations that worked for the “public benefit” reduce the number of women being killed by their husbands. Their research showed that the leading cause of death in those cases were when women tried to leave and their partners tried to kill them, so the most obvious solution was to give them someplace safe to go where their partners couldn’t find them. Therefore the solution became: Women’s shelters. When feminists committed to founding and running these shelters, local governments could be talked into giving them money to keep them running.

(Men’s rights activists, the misogynist kind, like to whine about “why aren’t there men’s shelters?” and the very simple answer is: Because you didn’t fight for them, you teatowels. Whether a movement gets resources and funding is hugely a reflection of how many people have said, “This needs resources and funding! Look, I’m writing a cheque! Everyone, throw money at this!” In other news, The BC Society for Male Survivors of Sexual Abuse does great work. People should throw money at them.)

When the system in power knows there are resources it wants and doesn’t have, it finds a way to make them appear. For example, in Canada, the government knows that it doesn’t have enough trained professionals living in its far North, where the population is scarce and not very many people want to live. Doctors and teachers would prefer to live in the southern cities. But because it’s committed to Northern schools and hospitals, they create incentives. For example, the government offers to pay off the student loans of teachers or health professionals who agree to work for a few years in Northern communities.

Part of why trans healthcare resources are so scarce is that for a long time, trans people were considered too small a part of the population to care about. Like, “Trans people exist, but we won’t have to deal with them.” Older estimates said 0.4% of the population was trans, which meant a city of 100,000 people would have 400 trans people. A single family doctor can have 2000 or 3000 clients, so the city could have maybe 1 or 2 doctors who really “got” trans issues, and all the trans people would tell each other to only go see those doctors because all the rest were assholes. And the cracks in the system didn’t really seem serious. A couple hundred dissatisfied people not getting the healthcare they needed? Meh! Hospital administrators had more to worry about!

But the trans population is growing. A recent poll of Generation Z said 2.6% of middle schoolers in Minnesota were some kind of trans. which is 2,600 per 100,000. That’s enough to make hospitals think that maybe the next endocrinologist or OB/GYN they hire should have some training in treating trans people. That’s enough to make a health authority think that maybe the state should open up a new gender confirmation surgery clinic, since demand is rising so much.

Or well, I mean. Hospitals have a lot on their minds. This might not occur to them as their top priority. They’d probably think of it a lot sooner if a bunch of those trans people sent them letters or took out a billboard or showed up by the dozens at a public meeting to say, “Hello, there are a fuckload of us. Budget accordingly. We want to see your projected numbers for the next five years.”

When you’re doing that kind of work, suddenly it hurts your cause to limit your number of concerned parties. Sure, limited focus groups or steering committees can have limited membership, but when you put their ideas into action, to protest something or lobby for political change, you need numbers. If you want to show that you’re a big and important group that systems should definitely pay attention to, you don’t just need every trans or GNC or NB person who’s got free time to devote to your campaign, you also need every cis ally who can pad out numbers or lick envelopes or hand out water bottles or slip you insider information about the agenda at the next board meeting. You need bodies, time, and money, and you get them best by being inclusive about who’s in your party. Heck, if it would benefit your cause to team up with the local breast cancer group because trans women and cis women who have had mastectomies both have an interest in asking a hospital to have a doctor on staff who knows how to put a set of tits together, then there are strong reasons to do it.

Basically: All the time any marginalized group spends fighting over scraps is generally time we could spend demanding that the people handing out the food give us another plate. If you don’t think you’re getting enough, the best answer isn’t to knock it out of somebody’s hands, but to get together to say, “HEY! WE’RE NOT GETTING ENOUGH!”

That kind of work is complicated and difficult! It’s definitely much harder than yelling at someone on Tumblr for not being trans enough. But if you do any level of getting involved with activist groups that fight for real systemic change, whether that’s following your local Pride Centre on Twitter or throwing $5 at a trans advocacy group or writing your elected representative about the need for more trans health resources, you’re pushing forward lasting change that will help everyone.

#staranise original #transmedicalism tw #transphobia tw #homophobia tw #my problems with sj let me show you them

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heauxplesslydevoted · 4 years

Text

Under My Skin (Ethan x MC)

Warning: 18+, NSFW

Summary: Set in the middle of chapter 6, Ethan and Naomi have it out over the current state of the diagnostics team.

Tags: @colourmeshy @virtualrain202 @fanmantrashcan @writinghereandthere @ao719 @x-kyne-x @paulfwesley @ramseyandrys @a-i-n-a-a-s-h @perriewinklenerdie @aworldoffandoms @thatcatlady0716 @drakewalker04 @canknot @hatescapsicum @lapisreviewsstuff @akacalliope @senseofduties @badchoicesposts @ethandaddyramsey @the-soot-sprite @chasingrobbie @zodiacsign1 @choices-lurker @miyakokurono @trappedinfandoms @my-heart-beats-for-ya @adrian-motherfucking-raines @riverrune ~v~

Naomi stares at the textbook in front of her, eyes tired and blurry. She checks the time on her cell phone and 3:22 AM stares back in bold, white letters. Craning her head slightly, she spots Ethan standing at his kitchen island, looking at something on his laptop.

She never thought she’d be back in his apartment, but he invited the entire diagnostics team over so they could get some research done on Leland Bloom’s case. Ethan wants it to be solved as quickly as possible, and he wants to be rid of the tech billionaire, so after work they all congregated in his apartment, eating Chinese food, drinking wine, passing around textbooks and throwing out theories.

They’ve been at it for almost 6 hours now.

The energy in the room is off. Ethan’s been pissed ever since the board told him they’d need to be for-profit and start accepting wealthy clients and potential donors, and everyone feels it. June, Baz, and Naomi have been walking on eggshells around him, but aside from occasional snark from Naomi, they’ve been extremely curt.

Jenner likes her though. The golden retriever took a shine to her the moment she crossed the threshold to Ethan’s condo, sniffing at her feet and attaching himself to her hip. He’s now lounging with her, head in her lap and she pours over this book, and she’s glad. The friendly dog provides an excellent distraction and Naomi is thankful, because his owner currently sucks.

Naomi has dealt with a lot of Ethan’s moods before: upset, defeated, angry, happy, the works. But she’s never had his ire directed at her before. They’re in this mess because of her, and it’s a tricky space to occupy. It’s not fun.

“As much as I love reading, if I look at another word, I think my brain might melt,” June says, breaking the tense silence. She stifles a yawn.

“I’ve tapped out for the night as well,” Baz adds. “I’ve looked up every possible kidney and bladder disease and disorder known to mankind. I’m on sensory overload. I think it’s time I go home.”

Ethan looks up from his laptop. He knows his team is probably exhausted. He can’t believe they’ve actually stayed over this long. “Well, thank you for staying. Go home, get some rest, I’ll see you at the hospital.”

June and Baz gather their belongings and all of the study material they brought along with them, returning Ethan’s living room to its original tidy state. Muttering goodbyes, the two of them exit the apartment.

And then there were two. Naomi ignores the tension, ignoring the fact that they haven’t been alone together in over a week. Instead, she buries her face in her book, trying to focus on the words.

Ethan doesn’t bother sparing Naomi another glance before asking, “You didn’t want to leave with them?”

“Why, are you about to go to bed?”

“No.”

“Then, no.” She’s not going to stop now, and give him the satisfaction of thinking she’s given up for the night. Her stubbornness won’t allow it. “I don’t want to disrupt the process. I want this guy diagnosed and treated as badly as you do.”

Ethan scoffs. “I doubt it.”

Naomi has been giving as good as she gets when it comes to the passive aggressive snark, but it’s just exhausting at this point. She refuses to be his emotional punching bag any longer. She whips around in her seat. “God, is being a petulant little crybaby a second full-time job for you?”

That manages to get Ethan’s full attention. He levels a cool glare at the young resident, eyebrow raised in challenge. “You’ve gotten real comfortable calling me out of my name recently. Care to repeat that, Valentine?”

“You heard me loud and clear, Ramsey. You’re being a petulant little crybaby. You’ve been trying to pick a fight with me for the past 2 weeks. Look, I apologized, multiple times, for going behind your back or over your head, but I will not apologize for doing what I believe is right, not just for the team, but the hospital.”

“And you’re an insubordinate know-it-all!” Ethan shoots back. “You’re the type to touch the hot stove despite being repeatedly told not to because you think you’re a special snowflake who’s above getting burned. You lack foresight and analytical thought and self-preservation.”

Naomi recoils, having not expected Ethan to snap at her like that. “Excuse me?”

Jenner recognizes the change in tone between both adults. Not wanting to be caught in the crossfire, he moves from his spot on the couch and trots out of the living room, disappearing into the hallway.

“You thought this was going to be easy, that patients would just come flocking to us, but look at us, and everything would be perfect. We’re part of some social media...something or another’s video diary, we’re competing with a subpar hospital for patients despite being better than them, wasting time and resources because he wants to treat this like a reality show contest, and who knows what’s next, because you’ve opened Pandora’s box. We’re whoring ourselves out to the highest bidder, and the integrity and core foundation of this team has been compromised. So please spare me the martyr act, Naomi, and while you’re at it, please remember that I’m still your boss the next time you want to spout off at the mouth.”

Naomi’s hands are shaking, and she can practically feel the anger boiling in her blood. The nerve of this man. She stands up, ignoring the heavy book that fall out of her lap and onto the floor as she does so. She charges over to him, and sizes him up. Ethan’s almost a foot taller than her, but Naomi doesn’t care about the height disparity. She tilts her head back so she can look him in the eye.

“I’m not a martyr, but you’re a self righteous hypocrite. You’ve been pouting and waxing poetic about Naveen’s mission when you were the first one to mess with his legacy.”

Ethan’s nostrils flare at the accusation. “Excuse me?”

“Last year, you got into bed with Declan Nash and big pharma, compromising your own shaky moral code in order to save the life of one person. I’m trying to keep the team around in order to save a lot more people than just Naveen!”

“That was different!” Ethan argues. It doesn’t even feel right coming out of his mouth, but they’re far too deep in the argument for him to do anything besides dig his toes in.

“The only difference is you were the one in control then. But because it is my idea, you’re rejecting it. You’re being completely unreasonable here, Ethan. We’re standing in the middle of a sinking ship. Edenbrook is in trouble. My friends and I didn’t get our new salaries upon becoming residents, there’s talk of them shutting down the free clinic, and they’ll be coming after our team next. Who knows, maybe they’ll decide that mental health isn’t important and the entire psychiatric department should go. And then the nurses. And then they’ll start ordering less and less supplies, just to stay above water. And maybe you don’t care, because you’re Ethan Ramsey, you’re so wealthy that you only get a one dollar salary from the hospital, you’re established, your livelihood isn’t on the line, and I’m sure any hospital in the world would kill to employ you, but the rest of us? The little guys? We don’t have that option, so again, if you’re looking for me to kiss your ass and grovel because I made an executive decision, you’re going to be looking for a mighty long time.”

Ethan studies her, his gaze coolly fixated on her as she rants because he’s waiting for the second she stops talking, so he can jump back into his own argument. He realizes that it’s not an effective way to debate, and he falters slightly.

“What’s wrong?” Naomi goads, her voice taking on a singsong tone. She’s embroiled in the fight now. “Cat got your tongue?”

In his 37 years of living, Ethan can confidently say Naomi Valentine is the most infuriating woman he’s ever met. A stubborn, impulsive, hot-head with a smart mouth.

And fuck, he’s made a mistake.

Her mouth. Now his gaze is fixated on it, her full lips that she’s repeatedly bitten down on during this argument, the tackiness of her lip gloss, the way her tongue darts in and out.

Their argument is now the furthest thing from his mind, and he’s actually annoyed by it. What is it about this…woman that completely bewitches him? He wants to argue, not be transfixed on how pretty she is. She doesn’t even have to do anything and he’s under her spell again.

A sharp jab in the middle of his chest pulls Ethan back to reality. He looks down and realizes that Naomi poked him in the chest, out of anger or to get his attention, he’s not sure.

“Hey!” The fact that he’s ignoring her only makes her more incensed. He started this fight, he doesn’t get the right to dissociate and shut down in the middle of it. “Have you listened to a word I just said?”

“No,” Ethan answers honestly. Naomi’s eyes darken at the response. He didn’t say that to piss her off further, but he won’t lie and say he doesn’t enjoy the sight.

He can tell she’s going to launch into another tirade, one that’s completely separate from their original issue, because that’s just how things are between them; they spiral before either of them knows what’s happening.

Before she can even fix her mouth to call him another name, his hand cups her jaw, tilting her head back, and he slants his mouth over hers, kissing her fiercely.

She gasps. This is the first time he’s ever caught her off guard and initiated a kiss. She’s usually the one to be in control.

All too quickly, Ethan pulls back, locking eyes with the young woman in front of him. She’s dazed, chest heaving and eyes glazed over.

“Did you do that to get me to stop talking?”

“No, I kissed you because I wanted to. But the fact that it got you to stop running your mouth is a personal bonus.”

Naomi huffs, but doesn’t say anything else. God, he could be such an asshole at times.

“I want to do it again,” he says, his voice barely above a whisper. His blue eyes pierce into her own, and it suddenly becomes hard to focus on anything other than him. “Can I?”

She doesn’t know why it’s so sexy, him asking for permission, but she feels the butterflies in her stomach rumble at the question. She’s barely able to nod her head before Ethan launches himself at her, sending her flying back into the kitchen counter.

It’s so different from any other kisses they’ve shared. This one she can feel all the way down in her toes. His tongue darts out, gliding against her bottom lip and demanding access to her mouth, which she eagerly grants him.

Everything about him invades her senses: the feel of his calloused hands touching her jaw, the scratch of his beard against her face, the smell of his cologne (something by Gucci that she’s been yet to narrow down), his taste (she can still taste the wine on him, even though he drank it earlier), his sounds (the little groans that only she’s privy to, always gravelly and smooth, that make her knees buckle). It all culminates into this one man that is so all-consuming, it makes her lose her mind.

The kisses become shorter, more teasing, allowing Naomi the opportunity to actually breathe. He leaves kisses along her jaw and neck, making her whimper.

Ethan wraps an arm around Naomi’s waist and spins them, pushing her against the wall. She winces upon contact. “Warn a girl next time.”

“You want to know what’s been on my mind recently?” Ethan asks, nipping at Naomi’s earlobe.

“W-What?”

His hands find purchase underneath the grey Henley she’s wearing and he lifts it up. Her stomach clenches under his touch and it’s maddening just how responsive she is to him. “I haven’t been able to get the sight of you out of my mind since I came to pick you up from your apartment the other day.” With trembling fingers, Naomi helps him remove the shirt, and it’s tossed somewhere behind them.

She’s not wearing the grey bra he saw the other day, this one is a soft pink, and he groans at how it contrasts against her skin. There isn’t a color that doesn’t look good on her. “I stood there…” he only pauses to place opened mouthed kisses on her collarbone. “...like a floundering idiot…” this time he kisses slightly lower, earning a sharp inhale from Naomi. The noise does nothing to soothe the erection straining in his jeans. “...while you decided to tease me.”

“You’re the one who decided to stay,” Naomi shoots back with a shrug. “So I had to put on a little show.” He hums in agreement. His tongue darts out, flattening over her lace covered nipple. “Fuck, just take it off!”

“You still have no patience,” Ethan observes. He yanks at the material, until he hears a loud tear.

“That’s La Perla!”

Ethan blinks, struggling to find the significance in that statement. Was it supposed to mean something to him? “Okay?”

“It was expensive, you jerk!”

“I’ll buy you 10 more,” he replies with a shrug before resuming his previous activity, pulling one of her nipples between his lips, sucking lightly. Naomi’s breath comes out in quick bursts, and it’s becoming harder for her to stay grounded to reality. She reaches out, wanting to touch him, but he intercepts, catching her wrist. “Hands to yourself, Valentine.”

Ethan’s fingers make work of the button holding her jeans together, and he drags down the zipper. He yanks at her jeans with the same care he afforded her shirt and bra, tugging them down until they pool at her feet. Naomi does the rest of the work, hopping around until the pants are fully off.

“You and the thin scraps you call underwear, have been driving me insane all week,” Ethan confesses. “The other day when I came to pick you up, part of me was so mad at you because of your blatant defiance, but the other part of me wanted to push you onto that bed, and do very, very inappropriate things to you.”

The wetness that floods her panties is overwhelming. She clenches her thighs together in hopes of alleviating some of the tension, but it doesn’t help. Figuring out a new strategy, she wraps a leg around his waist, pulling him flush to her. She rolls her hips, grinding into him. The growl that escapes his lips only fuels her and strokes her ego. “You should’ve.”

Ethan kisses her again, reveling in the needy way Naomi claws at him. Her fingers are desperate, fingering into his t-shirt, twisting at the fabric. He’s unsure if she wants to take it off, or if she’s impatient enough to say ‘fuck it,’ and just rip it.

Whatever the case, he doesn’t let her continue. Grabbing both of her hands, he forces them on either side of her. “You really do have a problem with listening. No. Touching.”

The gruffness in his voice sends a shiver down her spine, but whatever rebellious side of her that wants to challenge the command is squelched with one look into his eyes. She can tell he means business and now isn’t the time to challenge his authority.

With restraint she didn’t know she had, Naomi places her palms on the hall behind her, and she stays as still as she can.

“Good girl.” Ethan smirks and drops her hands. He untangles himself from her and steps back an inch to admire his work. “You followed directions for once.”

Whatever smart aleck reply that was about to fly from her mouth is stifled by Ethan pulling her soaked underwear down and slipping two digits past her folds. The noise she lets out is a mixture of a high pitched yelp and a strangled moan, something that threatens to choke her.

The pace he sets is random and uneven, never giving Naomi a chance to settle into a rhythm, and she wonders if this is his way of punishing her, keeping her keyed up and writhing on him for what feels like eternity, trapped in her own form of purgatory.

She pulls her bottom lip between her teeth, and bucks her hips wildly into his hand, trying to keep pace with him.

“Stop doing that,” Ethan demands, using his free hand to pull her lip out of her mouth. “I want to hear you, Rookie.”

Something about the use of her former nickname makes her moan, and it doesn’t go unnoticed by Ethan.

“You like the nickname,” he states. “It’s funny, you know. You take every opportunity to defy me, argue with me, and push my buttons, yet you get off on me controlling you.”

She can’t focus. He’s too close, it feels too good, and her brain can’t function properly under these conditions. He presses forward, the heel of his palm pressing into her clit, earning a hiss.

“Admit it.”

At this point Naomi would admit to committing armed robbery if it meant he’d keep doing this. She nods frantically. “Yes, Doctor.” He groans at the use of his title, and he pumps harder, curling his fingers inside of her.

Naomi stands on tiptoes and desperately claws at the wall behind her. “Fuck Ethan, please!”

“Please, what? What do you want?” His lips find her neck again, and he sucks on her pulse point, only making things more hazy. “Use your words, Rookie.”

She wants a lot of things. She wants to cry out, she wants to dig her nails into his back until she draws blood, she wants him to keep talking her through this, his gruff voice in her ear as she shatters around him.

Unfortunately, Naomi cannot form a coherent sentence to save her life. She just rolls her hips, shamelessly grinding herself into his hand. “I...I…” The pleasure mounts, building in the pit of her stomach, spreading out. She’s so close, she can almost taste it.

“Do you want to cum for me?”

“Yes! Yes, yes, please, I want–” Ethan rewards her for her honesty and his thumb drags into her clit and he rubs the sensitive nub in tight, quick circles. That’s all it takes, and she orgasms with a strangled cry and she’s thankful Ethan is right here because he holds her upright as her legs momentarily give out.

When Naomi regains the ability to stand on her own, Ethan lets go and slowly removes his fingers. Moving fast, Naomi grabs his hand, and without breaking eye contact with him, she slides the two digits into her mouth, licking them clean.

Ethan’s next breath is a shaky gasp that leaves his lung far too quickly. “Fuck, Rookie.”

“Why don’t we move this to the bedroom?” Naomi suggests, releasing his fingers with a loud pop.

Ethan shakes his head. “No.”

He registers the confusion on her face, but Ethan doesn’t give her a chance to respond. He grabs her by the waist and kisses her again, walking them towards the living room. He only breaks the kiss to pull his t-shirt over his head, and it joins the growing pile of discarded clothing scattered around. Naomi helps him speed the process along, getting rid of his belt and popping the button on his jeans. Her fingers hook into the belt loops of the pants and she pulls them down.

Before she can do anything else, Ethan stops her wandering hands. “Wait, wait.”

“Wait for what?”

Ethan knocks his forehead against hers and he sighs deeply. “Naomi, if you don’t want to do this, please stop me now.”

She thinks it’s cute that he’s giving her an out, but she doesn’t need it. Her fingers slip past the waistband of his soft cotton boxers, a warm dainty hand wrapping around him.

Ethan shudders as a warmth spreads through him at the touch of her hand, and he mentally curses himself. He pushes her hand away.

“What? What’s wrong?”

“I’m not cumming into your hand.” Ethan spins Naomi around and bends her over the arm of his couch.

While it’s not the desk in his office, Naomi won’t complain. She feels one of his calloused hands trace the length of her spine and her eyes flutter shut in anticipation.

No patience left, Ethan tugs down his underwear, letting the material pool at his ankles. Without another word, he lines herself up at Naomi’s entrance and thrusts into her all at once. He groans at the sensation.

Naomi has never been more thankful for couch cushions, as they muffle the scream that escapes her.

“Fuck, Naomi.” He digs his fingers into her hips before pulling out and slamming back into her. He doesn’t give her any time to adjust, but she doesn’t mind. They both know patience isn’t her forte. “You’re...so...tight.” His words are punctuated by sharp thrusts that threaten to steal the air straight from her lungs.

He leans forward slacking against her, but Naomi welcomes the weight. His beard scrapes against her shoulder blade, his breath warm against her ear, his fingers which are no doubt going to leave a bruise, all of it makes her dizzy, and god, this isn’t going to last much longer.

His thrusts become sloppier, more frenzied as the pleasure mounts, his blood boiling in his veins like molten lava. The only thing he can hear is the sound of the skin slapping, and his ragged breaths.

“Are you close?” He asks. But Naomi can’t think, let alone actually speak words, even if something monosyllabic would suffice. Why does he keep trying to make her speak? Her head drops with a thud and she mumbles something incoherent.

“For someone who had so much shit to talk earlier, you’re mighty silent.” Letting go of her hip, Ethan tangles a hand in her hair, yanking it back so she can’t hide her face in the cushions anymore. His other hand reaches around and he rolls her clit with his middle finger. Still way too sensitive from her last orgasm, she thrusts back, clawing at the couch with her nails, but he holds her in place, refusing to let her move.

“Ethan, fuck, don’t stop!” The words fly out all at once, shaky, fast and jumbled, but it’s all Ethan needs.

With a burst of energy he didn't know he possessed, he drives into her, plunging deeper. “Cum for me, Rookie.”

Naomi screams. Loudly, and she’s sure his neighbors might be very annoyed, but she doesn’t care. Everything goes white behind her eyes as he all but pushes her over the edge. She clenches around him and Ethan hisses as she’s holding him in a vice-like grip. A few quick thrusts later, and he’s joining her in ecstasy, spilling inside of her. The hand holding her hair tightens for a second, then relaxes.

She’s pretty sure she blacked out for some period of time because when Naomi is finally able to focus, they’re no longer obscenely bent over the arm of Ethan’s couch. They’re on the floor, in the cramped space between the couch and the coffee table.

She’s hot and sticky and absolutely exhausted. She places her hand over her heart, willing it to stop beating so erratically. Stealing a glance, Naomi peers up and looks at Ethan. He looks as disheveled as she feels, his hair tousled, lips swollen, chest and neck flushed red.

Her voice is horse and completely shot to hell when she finally speaks, “If that’s how our fights are going to play out from now on, I’ll let you pick more fights with you. And I’m a Cancer, we’re stubborn people.”

“I think we can find a happy medium somewhere.”

Naomi rolls over, until she’s nestled into his side and her head is on his chest. She can feel his heart beating rhythmically under her cheek. “Are we still fighting?”

“No.”

“Are you still mad at me?” He doesn’t answer the question right away, and a sense of dread fills her.

“I was never really mad at you,” Ethan admits after a long bout of silence. “I’m just mad at the entire situation. I’m mad at the budget cuts, I’m mad at our country’s healthcare system, I’m annoyed with your inability to listen to me. I’m mad at Leland Bloom’s obscene wealth and the fact that he gets to dangle his money in our faces like we’re horses waiting for carrots.”

“You made the right call, Naomi,” he continues. “But it’s a call you shouldn’t have been forced to make in the first place. I’m sorry for making you carry the brunt of my misplaced anger.”

“Apology accepted. And since we’re apologizing, I’m sorry for calling you a petulant little crybaby.”

Ethan chuckles. “Do you apologize for calling me a goddamn diva, as well? Don’t forget ‘entitled jackass’ and ‘spoiled child’.”

“You co-signed ‘spoiled child’ so I am not apologizing for it.”

“Fair point,” Ethan concedes.

Blindly searching with an outstretched hand, Naomi finds her cell phone and checks the time. She has to be at work in 2 hours, though she’d much rather get into Ethan’s bed and go to sleep.

“That happy medium that you mentioned? I think I have it figured out.”

Ethan raises an eyebrow, his interest piqued. “Oh, yeah?”

“First and foremost, I promise to never go over your head again, if you agree to do a trial run on whatever ideas I may come up with. You can’t shoot me down immediately.”

“I’m...willing to agree to that.”

“And once this all settles down and the hospital isn’t on the verge of complete financial collapse, maybe we can convince the board to only take on one or two billable patients a quarter.”

“That’s actually not a bad idea.”

“Yeah, I tend to have those every once in a while,” Naomi teases.

Ethan stares at Naomi as she laughs at her own poor joke. Everything about her is an anomaly to him. She blew into his life a little over a year ago and here he is, willing to adapt his entire ethical code for her. And here they are, entangled together as if he didn’t spend 2 months on a different continent in order to get her out of his head. What is it about her that he can’t shake?

He gently cups her jaw and kisses her as if she’s a precious gem, like he didn’t just try to devour her. “What are you doing to me?”

Naomi smirks, recalling that it’s the same question he asked her in Miami. “Hopefully something good.”

He kisses her again. “Better than good actually.”

Realization washes over her that once she leaves this apartment, things are going to go back to being the way they were. He’ll go back to pushing her away. “So does this mean you want to have another reset?”

The question throws him off, but he soon understands what she means. “No.”

“No?”

“No,” Ethan repeats. If there’s a happy medium to be found between his team and the board, maybe there’s one for him and Naomi.

She doesn’t allow herself to get swept up by his words, but instead she braces herself for the chance that he pulls the rug from under her feet. “Well, what does that mean?”

“It means you and I are going to take a shower together, go to work, and we deal with our obnoxious patient. And after work, you’re going to put on something fancy because I’m taking you out to dinner. How does that sound, Dr. Valentine?”

Naomi can’t stop an annoying grin from spreading across her face. “I think it sounds pretty damn good, Dr. Ramsey.”

#playchoices #open heart #dr ethan ramsey #ethan ramsey #ethan ramsey x mc #ns*fw

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pluviophile-bookworm · 3 years

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Understanding and acceptance: a short story consisting of things that actually happened

[A/N: I was on the phone with my mum and she told me that I seem to be in a creative mood and that I should write something. I decided to kill two birds with one stone and share a personal story while also writing it as if it’s fiction. So here goes.]

Word count: 2K

-- 2 weeks ago --

It’s a quiet Saturday evening. My brother Max and I are walking home together, deep in conversation. I have no memory of what the conversation had been about when it started, but I do remember that it somehow got to this:

‘...all this assuming you’re straight, of course, and I’m not assuming anything--’

‘What does being straight mean?’ Max says in a tone that tells me he genuinely doesn’t know. So I feel obligated to explain it in the simplest terms possible. ‘Well, in your case it would mean that you, a boy, like girls.’

‘Well, that’s the normal thing for any person!’ He nearly cuts me off with this. I calculate my next step carefully.

‘Not every person,’ I say, keeping my voice as calm as possible. ‘I’m not straight.’ Of course, he knows that. I came out to my whole family at once three years ago, hoping for the awkward discussions to be over with that. It hasn’t worked out quite as I envisioned it yet.

‘Yeah, but you’re not normal either,’ Max parries. Can’t argue with that. Lucky for me, that is when we reach the front door and each one goes off to mind their own business.

I know very well just how ‘not normal’ I am. Not in that cliche ‘I’m not like other girls’ way, but in a way that causes Bulgarians undereducated on mental health and identity labels (which is unfortunately most people over 30) to brand a person clinically insane, unstable, a threat to the Traditional Bulgarian Family™. Being aroace and having severe social anxiety and ADHD to top it off, I hardly classify as ‘normal’. This is a frequent cause for arguments at the dinner table at home, most of which end in a. tears and/ or a panic attack on my part, b. my father storming off and pretending to be asleep whenever someone goes to call him back to dinner, c. my brother gluing himself to his phone, leaving his plate half-untouched, d. my mother crying over ‘what kind of mother am I that I can’t even have my family together at the table once’, and usually e. all of the above.

For this scenario to play out, however, the whole family of four is required to be present. So fortunately it only happens every other weekend when Dad and I come back home from the capital, where we have been living for the better part of three years now, ever since he got promoted and I started uni. When I’m away from my loving but over-controlling mum and my brother, who seemed to become obnoxious overnight the moment he turned 13 a little over a year ago, I usually have significantly fewer reasons to cry or feel anxious about... you name it. So we do fine. For the most part.

-- this evening --

I am watching Joe and Frankie’s performance of A Whole New World for the thousandth time today when I get a text from Mum.

Mum: How’s my girl doing?

Mum: I haven’t been able to hear from you with all the fuss about your brother.

Max is at that point in his education where he’s applying for high schools. His exam results have just come in and now everyone in the family is stressing about whether his scores will be enough to get him into the school he wants to go to. It’s a big deal, but with all the Rodfini magic going on (and with how terribly behind I am on my internship assignment) I have just been completely unable to care.

Speaking of Rodfini and A Whole New World, I have been repressing the instinctive urge to send my mum the video all day, and when I get her texts, I almost nearly muster up the courage to do it. But between me and her, this is not something you do over text. So I give her a ring instead.

When she picks up, the sound of her voice combined with the anxiety over what I want to tell her makes me tear up and the words are stuck in my throat.

‘Erm-- Mum, can I tell you something?’ I say, still not sure if I’m not about to regret taking up the subject at all.

‘Dear, you know you can tell me anything,’ she says, sounding concerned at my obviously-trying-to-swallow-tears voice.

‘You mean it?’ I ask, listening to her tone to make sure. I wish I could read tones better. ‘Anything?’

‘Is something wrong, honey?’ Oh gods, she’s in a really benevolent mood. I grow more and more afraid of ruining that with my ‘obsession with gays’.

‘Erm, so I guess you should know Dad and I had the tiniest disagreement just now,’ I say, deciding last minute to start with something she might deem ‘more relevant to the family’s personal lives’. ‘You know, we were watching the Euros and then the match ended and we watched the news, and then Dad changed the channel so he could watch the next match. And I was like ‘whoa, what’s with the video quality’, and so dad was like ‘you really need go get your eyes checked out’; and I tried to explain that there was a very obvious difference in quality between the two channels, and he kept yelling at me that I was ruining my eyesight spending all day staring at a screen.’

‘Did he sound annoyed or just concerned?’ Mum asks me.

‘I know what you’re thinking. And I know full well that he’s my parent and he’s concerned about my health. But you should have heard his tone.’

‘So are you two in a fight now?’

‘No. Well, I don’t know.’ I really don’t. It’s hard to tell when one side of the argument refuses to talk about his feelings as if that will kill him. But I don’t tell Mum that. She’s been dealing with Dad since long before I was even planned, so she knows him better than I do. ‘The thing is, he called me back and said that, well, one of the channels was HD and the other was not, so there was indeed a difference, but he thought it was ‘unnatural’ that I was able to register it so immediately, and he kept insisting there was something wrong with my eyes. I should think that seeing something quickly would be a sign of good vision, not bad. Besides,’ I keep talking, nearly desperate to justify myself, ‘I did some research and sensitivity to light is a symptom of ADHD. So it’s nothing new, really.’

‘Oh, please, dear. You’re of a new generation, and ADHD is something of the older generation. Don’t be so quick to self-diagnose.’

I guess there’s some reason to what she says, or at least the last part of it, so I give up on pursuing the subject further. ‘Yeah, anyway,’ I say, ‘I just thought it was all a bit rich coming from the man who refuses to wear his prescription glasses. I haven’t got any prescription glasses, you know.’

I don’t want to come off too cheeky because I still want to try and talk to her about how happy Rodfini have made me today. A while ago, Mum would accuse me of only calling her to complain when I was unhappy, so I have since made it a point to call her when I am happy and tell her so. That’s why I’ve been itching to share this with her. And now the time has come.

‘You know, I’ve been crying in a completely different way today,’ I begin tentatively. ‘A good way, A really, really good way,’ I add quickly before she can get worried again.

‘Yeah? So what was it that made you so happy that you cried?’ Goodness, there’s no turning back now. I decide to proceed with caution.

‘Oh, well, it was this performance, you know. A really beautiful song. So I’ve been wanting to show it to you, but I was worried about how you’d react.’

‘And why would that be?’ she asks in the same kind tone that keeps making me anxious about potentially ruining everything.

‘Well, erm...’ I feel myself start to stutter. ‘See, it’s a love song, and it’s... ok, I’ll just say it. It’s sung by two guys. As in, a couple, you see.’ I keep feeling up the ground with my words, anxious to hear her reaction. It’s like when I’m opening an exam result -- I want to know, but I’m too scared to look. And so now, in my anxious despair to know what she thinks about it, I miss the beginning of her response. ‘And I know how you are about those things, so I...’ I genuinely don’t know what to say. I’ve done my thing again. I’ve kept talking so much that she hasn’t even been able to react audibly. So I trail off, determined to let her speak this time.

‘Ok, but... why do you get so affected by those things?’ Mum says, starting to sound suspiciously like she’s about to question my own orientation again. I feel the need to justify myself for the second time since the conversation has started.

‘Well, it’s just that... I really wish you would just see them, Mum. If you could just see how they look at each other, you’d see that there’s just love. So much love. And joy at being able to express themselves as they are.’

I’m speaking from the heart now. I am finally letting out how much I want her to give them a chance because she deserves to see and hear their magical performance. She must be sensing the anguished sincerity in my voice as I finally manage to stop crying and I smile through the tears, because she says, ‘Dear, are you... are you trying to tell me something there?’

I sigh. She’s asked me this question nearly every time I’ve started speaking ‘too’ passionately about anything LGBTQ+ Which isn’t an awful lot in her presence, but there have been several occasions. Once about Solangelo, at the beach. Once about NPH and his husband David and their children, at the dinner table, as I was trying to explain how same-sex couples can have kids; that one resulted in a seriously bad scene of the type I described earlier. Once about a participant in a reality show who identified as a gay man then, but has recently come out as a trans woman; whenever she’s been mentioned on television, I’ve fought to repress my inner urge to express my happiness for her and the representation she is for the Bulgarian LGBTQ+ community. I wonder even now if my parents have noticed my silence on the subject -- because they certainly do notice when I am not silent.

So now, when the time seems to have come for me to set things straight about my non-straight-ness (bad pun very much intended), I try my best to keep my voice from shaking. ‘I’m not trying to tell you anything I haven’t already told you, Mum. Really.’

‘Are you perhaps attracted to the same gender, dear?’ It seems so unbelievable that she’s said it, and even more that she’s worded like that, but she really has. I force myself to be calm and patient.

‘No, Mum. I’ve told you -- I am not attracted to any gender, be it male, female or anything else, really. You know that.’

‘Well, it sounded as if you--’

‘No, Mum. Really. But I do need you to understand that part of my identity is that I feel the need to support people with other identities different from straight. I’m happy for their successes. I'm concerned about their issues. They’re a sort of family to me. Do you understand that?’ I say, relieved to be speaking my truth at last. At the same time, I try to sound as reasonable and mature about the whole thing as possible. I don’t want to put her off, especially not now that I’m knee-deep in the subject already. I’ve gone too far to turn back now.

‘Yes, honey. Yes, I do. I just don’t want you to exert yourself emotionally, is all. Plus I’ve been so stressed out about your brother and all, you know...’

‘Yeah, I do know. And I know he’ll be fine. He’s a nice boy. I just wished he didn’t keep calling me ‘abnormal’ all the time...’

‘Oh, well, don’t listen to him. He’s been quite stressed out too. And he’s 14. It’s just how he is at this age.’

I’m not too sure about that. ‘Boys will be boys’. It’s ok for boys, then, to pour salt into their neurodivergent sisters’ wounds? I don’t think so. But I can’t fix every problem in one talk. Plus my mum sounds tired now.

So I just say, ‘I guess... Well, anyway, thank you so much, Mum. For hearing me out, and for supporting me, and for everything else. Please don’t worry so much.’

But I know she can’t not worry at all. I’ve got that from her.

‘If you’re sure you’re all ok now, dear...’

‘Yeah, mum, I am. Or I will be. You know, there’s this expression with English, ‘to run with something’. So I’ve been telling myself, I’ll at least try to walk with things. You know I’m not much of a runner anyway.’ I actually laugh, even though the pun is quite untranslatable into Bulgarian.

‘You know I’m proud of you, right?’

I know that has very little to do with the kind of pride I’ve been celebrating all month, but I say, ‘Of course I do. And you know what? I’m quite proud of myself, too.’ I can’t believe I’m saying it, but I mean it. I mean it wholeheartedly this time.

‘I’m nearly falling asleep, though, dear, so I say we call it a night?’

‘Good night, Mummy. And thanks.’

I hang up. Then I forward the video to her.

I’ve come so far, indeed. I reckon we both have.

#writing #personal #asexual #aromantic #lgbtq+#jnk #rodfini #frankie rodriguez #joe serafini #solangelo #hoo #neil patrick harris #family #family dynamics #found family #pride month #adhd #long post

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outrunningthedark · 3 years

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I am one of your followers (that you have talked to before) but I’m too nervous to make this post not on anon. Over the last year I have had worsening knee injuries/conditions that affect my mobility, and my job (I stand all day at work) has made it exponentially worse. I am now on constant strong anti-inflammatories and other pain meds in an attempt to control the pain and swelling but it doesn’t make it completely better. I’ve been realizing more and more lately that I may actually be disabled, as there are many things I can no longer do while in this kind of pain (even just walking down the hallway from the kitchen to the bathroom can be excruciating), but there’s no real condition/disease/disorder that I have. I feel like I am not allowed to address myself as disabled because I don’t have anything diagnosed, but I am certainly not able-bodied either.

I kind of feel like I’m in some limbo where I’m not allowed to be either disabled or able-bodied and I feel lost. I’m afraid to embrace the disabled community in case I’m judged as not disabled enough, you know what I mean? I would never want to claim a spot in the community if I’m not actually viewed as disabled, because then it would not be my place.

I feel like I’m rambling, but I hope you understand what I’m getting at. Sorry this is so long. It’s just been bothering me a lot and I needed to talk to someone.

Hey, hey, hey. Nonnie. Listen to me.

If whatever’s going on with your knees has negatively impacted your ability to function, if you are no longer operating at the level you are used to because of these issues, you have every right to consider yourself disabled. People in the community might make comments, but that’s because they don’t understand what you’re going through. They don’t understand how drastically your life has changed. That’s your story to tell only when you want to.

Also, just because you haven’t been diagnosed with an actual disability/disorder yet doesn’t mean you won’t be in the future. The fact that you present as able-bodied by default most definitely influences how the medical community treats you. You spend your workday on your feet, of course your lower limbs are going to hurt! 🙄

Keep researching your symptoms to see if anything catches your attention (believe me, I *know* how tiresome it can get, but nobody else knows what you’re dealing with), and if you’re at the point where walking down a hallway takes too much energy and effort you need to basically be a pain in your doctor’s ass about it. Easier said than done, yes, but YOU’RE the one suffering right now. You know your body. You know something isn’t right. Make them do their job. (It’s like they always say: Bitches get stuff done!)

Keep your head up, babes. I got you. 👊🏻

#anonymous #there are good people in this world

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cuttlefishkitch · 4 years

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hello! i haven't talked to you before, but ron said that i could ask you for some advice on writing eds? (i'd like to know things to avoid/common things that could come up in everyday life that would be good to mention/the sort of aids and stuff they'd have maybe?/anything else you think is relevant)

Hi! Sorry this took so long, a combination of ADHD and chronic pain slowed me way the fuck down. Thank you for being patient!

EDIT: WEIRD HEEL THINGS I FORGOT!!

So, before I get into this I should probably say I technically haven’t been diagnosed with Ehlers Danlos Syndrome (EDS for anyone reading) because it’s one of those syndromes that takes forever to get diagnosed with (it took a friend of mine’s mother over 30 years to get dxed). Many doctors, and everyone I know who does have EDS agree with me that it’s probably what causes my chronic joint pain and some of my other chronic issues. But just because three separate doctors have said “Yeah Probably” doesn’t mean I’m diagnosed!! Only a geneticist can do that!! And they had two-three year waitlists BEFORE the apocalypse happened.

I am diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Small Fiber Neuropathy, and potentially misdiagnosed with Fibromyalgia (once I get properly tested for EDS I might get undiagnosed with this because I don’t have most of the main symptoms of Fibro, but I got diagnosed with it anyway because it’s what doctors misDX you with when they don’t know what’s wrong with you and don’t want to do more tests).

All that said, I’ve done a lot of research about EDS (mainly because it’s the only thing that explains all my symptoms since doctors seem incapable of doing so), and know a few people who have either confirmed or suspected EDS, so I’ll link to some stuff, talk about the symptoms that often come with EDS, explain how the symptoms I have affect me, because just because someone’s not diagnosed doesn’t mean they aren’t having symptoms, and probs elaborate a bit about writing physical disabilities and chronic pain in general because it’s super important to me!

So RESOURCES aka how to make sure your post never sees the light of day because you’re linking things and tumblr hates it when people give other people information!!

Youtubers! If you want to know about the day to day of living with EDS or any disability or chronic illness I super suggest finding a youtuber that makes videos about their life. My EDS favorites are

Jessica Kellgren-Fozard

Annie Elainey

Amy Lee Fisher

Websites! If you’re asking random folks on tumblr I’m assuming (and hoping) you’ve already done the basic WebMD google searches and looked over the seemingly ridiculous lists of symptoms and related conditions, so here are a few websites that are made more for people than for doctors.

The Ehlers Danlos Society

OhTWIST (That’s Why I’m So Tired)

ChronicPainPartners (the fact that they have an entire section of articles called “Dealing with Doctors” should really tell you something)

Books! If you feel like doing actual reading! I suggest reading books written by people with Ehlers Danlos, to get a feel for how they portray themselves. I’m not saying steal, but it’s probably a good point of comparison to see how your portrayal feels. (haven’t actually read these b/c my ADHD doesn’t let me read)

Ria Ruse by Morgan S. Ray (a superhero book with a disabled super MC!!)

Mysteries of Maybelle by Imani Benfell (Imani is still in high school and has already written and self-published a book cause she didn’t have enough representation for herself how cool is she!!)

Bodies in Motion by Liana Brooks (tw for pregnancy problems and miscarriages in the link, because it’s a blog post talking about integrating EDS symptoms into the story without explicitly naming them as such)

OKAY, now for some rambling about EDS SYMPTOMS!!!

Ehlers Danlos is one monster of a genetic condition in complexity and variety. There are THIRTEEN different identified types of EDS, it often comes with Mast Cell Activation Syndrome (MCAS) and/or POTS, and can lead to various other conditions like gastroparesis, chiari malformation, craniocervical instability, and/or bad teeth. So if you’re going to be writing a character with EDS consider what other comorbid conditions they might also have. I’m mainly going to be talking about Hypermobile EDS (hEDS) because it’s what I probably have and what I’m most familiar with. That said there is a lot of overlap in symptoms with the other varieties.

I started typing this section and realized I was going to have to break it down even more so we’re going to talk about Chronic Pain, Unstable Joints (Dislocations and Subluxations), Skin Things, Mobility Issues, and Other Weird Shit and how those things get addressed separately.

Gonna get the Other Weird Shit out of the way first. Because EDS is a malfunction of connective tissue it can fuck up all sorts of random things. For instance, I and many other people w/ hEDS have trouble swallowing. Shit gets stuck in my throat, I sometimes choke on and have to cough up food, and pills can be hard to swallow, which sucks cause I take A Lot Of Pills. If it doesn’t cause full-on gastroparesis it can cause IBS or other digestive problems b/c the digestive tract is mostly made of connective tissue. It can potentially cause heart problems even if they aren’t as big of a risk as in some other forms of EDS. Premature osteoarthritis is common because what you need is more joint pain. And Fatigue OH BOY THE FATIGUE. And of course the headaches, can’t forget those pesky migraines can we!

AND piezogenic papules!! I completely forgot!! Piezogenic papules are little white bumps that appear when you put weight on your heel. In some people they hurt, but in others they don’t. They’re technically tiny little herniations of fat peaking through the fascia in the heel. They were added as part of the diagnostic criteria for hEDS in 2017!

Now for Skin Things cause it’s not as big a thing in hEDS as it is in other forms. Basically, in a lot of forms of EDS, the skin is extra stretchy and extra delicate. It bruises and tears easily, people with the extreme versions of this can accidentally scratch something into an open wound if they aren’t careful. My skin is pretty soft and sensitive, I def have the typical velvety skin, and as is pretty par for the course of someone with hEDS my skin is a little stretchy, and sorta delicate. I’m not as tissue-papery as some people get, but I almost always have at least one mystery bruise or scrape b/c existing is hazardous. Most of scars are also pretty normal, unlike the extremely papery and atrophic scars (though I have a few tiny acne scars that are atrophic) that are common with other kinds of hEDS. Something that I DO have is Lots of Stretch Marks, all over my thighs, and even down to my calves. Which wouldn’t be abnormal, except for the fact that I’ve never been over 145 lbs and I’ve never been pregnant. Having a lot of stretch marks or striations in the skin without due cause happens because the structure of the skin isn’t as strong as it is in people with a normal amount of connective tissue.

I don’t have to worry as much about my skin but people that do are usually very careful with adhesives because they can irritate or tear the skin, which sucks when you need a lot of bandaids cause your darn skin won’t do its job.

Now on to the meatier stuff and since I’m mostly working backward let’s do Mobility Issues!! These can happen in loads of ways, but a lot of what causes these in people with EDS are the other two things I wanna talk about. Unstable joints lead to increased risk of injury when doing stuff people with fully functioning joints can do.

For context, I’m an ambulatory wheelchair user, meaning I can walk, but a lot of the time it’s better if use a chair. Mine is mostly for my POTS symptoms, but the fact that my legs aren’t also in absolute agony is a big plus. I use a custom manual wheelchair with a SmartDrive (b/c I’m very fucking fortunate and have good insurance) whenever I leave the house and have to be “walking” for more than a few minutes at a time. I can’t fully self-propel in a manual chair because it would be damaging to the joints in my arms and hands, but the smaller chair is easier to maneuver in less than accessible spaces (like almost everywhere). There was about a month-long span where I used a very cheap and very bulky electric chair while I was waiting on the ideal set up I have now. Before that, I also briefly used, and sometimes still use, an up-right posture cane.

People with EDS have widely varying mobility issues because of how uniquely it can manifest. My cane only gave me a little help with balance because if I used it in any prolonged capacity any pain it took away from my legs was relocated to my arms, and as an artist, my arms are more important to me!

If you’re going to write a character with EDS having mobility issues as a result of their EDS the best thing to do is to narrow down their specific needs. Are their knees complete and utter garbage but their shoulders and wrists strong? Maybe they can get away with using a cane. Can they not stand for longer than 5 minutes because of the vertigo from their POTS? Maybe they need a manual wheelchair. Would propelling themself damage their back and arm joints? An electric chair might be necessary! Plenty of people with EDS use all sorts of combinations of these aides to get around their life, consider how your character’s good and bad days would be. Do they have back up plans if they overestimate themselves? There can be a lot to manage, but don’t let it scare you off! Sometimes I try and make it into a resource management game (because I’m a game designer and that’s what I do), to make evaluating my energy and mobility needs more fun!

But now let's tackle some of the reasons those mobility aides might be needed. Unstable Joints.

Ever stepped wrong and rolled your ankle? It hurts for a few steps and then kinda fixes itself, or maybe it bothers you for the rest of the day and you put it up and ice it when you get home? When I was walking around outside my house that would happen AT LEAST once a month, usually more. Some times I’m sitting wrong and when I get up my knee isn’t a knee anymore and decides to just give out from under me. My knuckles are made of unruly popcorn and they Don’t Want To Stay Home!! Oh! And my shoulder is more often out a little out of its socket than it is fully in.

Unstable joints lead to Dislocations and Subluxations of varying intensity, and some people get them more frequently than others. Some can be severe enough to necessitate hospital visits and even surgery, some subluxations are so banal (like my fUCKING SHOULDER) that you just learn to live with the pain.

If a character is going to be in high action, combat-heavy scenarios, chances are they’re going to be popping out joints left and right. Hell, depending on the severity of their joint laxity they could be doing the same sitting at a desk. Again, it’s incredibly varied. I’d suggest setting some sort of baseline for yourself, of what a character’s joints can and can’t stand up to, and maybe do some research on which joints are most likely to pop out in general (hips and shoulders are big culprits being the wacky ball and socket motherfuckers they are). Then maybe have something pop out or hold up every so often when it shouldn’t cause hey! EDS is kinda just like that! Unpredictable!

Some ways people manage joint laxity is with braces, KT tape, and physical therapy. Braces come in many different forms, since I’m currently getting pretty much no treatment for my shitty joints I use mostly compression braces made for sporty people. It really is amazing how much a bit of tight fabric can do to keep my wrist in place.

More specialized braces often have solid parts to prevent the joints from hyper-extending (bending the wrong way) and causing further damage. If you ever see someone with what looks like diamond shaped rings around a bunch of their finger joints, chances are those are Ring Splints, and are there to keep the finger shaped like a finger. I want to get my hands on some and get some on my hands Very Badly, because my fingers hyper-extend SO MUCH when I type, and it makes my hand pain way way worse.

KT tape is another thing people often use. It’s stretchy tape you put on your skin and it basically functions kinda like a second ligament as well as reinforcing the joint and keeping the bones mostly where they’re supposed to be. The problem with this is a lot of people with EDS have very sensitive and fragile skin like I mentioned before, so KT tape can cause allergic reactions, chronic skin irritation, or just straight up take the skin with it when someone goes to remove it. Hence a lot of folks are really careful with it.

Physical Therapy is kinda the best (and only) treatment for joint laxity aside from Very Invasive and sometimes Highly Experimental surgery. It focuses on strengthening the muscles around the joints so they can do the work all those bone ropes made of body glue can’t. The problem is finding a physical therapist that 1) knows what EDS even is, 2) knows you have it, and 3) knows how to treat it without doing stuff that’ll Phucking Hurt You Worse!! Because exercising wrong with EDS can do Permanent Damage!!!

Again most folks use a combination of all of these things, or have next to no access to them b/c healthcare sucks.

Anyway, on to one of my favorite topics, Chronic Pain!! One of the reasons this post took me so long!!!

Chances are if your character has chronic pain as a result of their EDS there are gonna be some things they hate, including stairs, rain, thunderstorms, stairs, hills, uneven terrain, oh and did I mention stairs??? It’s going to vary person to person, but almost everyone I’ve met with pain from EDS has complained about their knees. For me the most debilitating pain is in my fingers and wrists. They’re by far my least stable joints but I use them constantly for stuff like drawing, typing, and sewing.

Because my joint pain is so wide spread, like most people’s with hEDS, it effects every single part of my day to day life. I can’t carry a heavy ceramic plate, open a bottle, or even use my computer without pain. It’s practically impossible for me to get comfortable in any position be it sitting or laying down, and as you can imagine that makes it hard to sleep a lot of the time. Moving too much hurts, but so does sitting still. I’m constantly taking braces on and off or cracking/stretching my joints so they pop back into place and hurt less.

Also being in pain makes everything else That Much Worse. I get tired way faster than I did before my pain was this bad (I had chronic pain for a while before actually realizing it wasn’t normal to not be able to walk down the block without feeling like your foot bones are trying to escape). My sensory issues and anxiety disorder are more easily aggravated because my base level of comfort is way worse. It fucks with my depression. And OH BOY does it make my ADHD worse because being in pain is fucking distracting as hell and makes it harder to make decisions and switch tasks. Also my ADHD often makes my other symptoms worse cause I forget to take my meds, don’t drink enough water, or can’t find my fucking braces because the item eating black-hole that comes with ADHD stole them. The intersection of mental and physical disabilities is probably a rant for another time though, so back to chronic pain.

Does it suck? Yes, undoubtedly. Is this incredibly debilitating? Of course it is, I spent the last several months unable to feed myself without assistance because there was a staircase between my room and the kitchen and I could only manage to climb it once a day. Is it overwhelming? Definitely, I’ve frequently broken down crying from a combination of pain and frustration because I’m having a bad day and there’s no relief to be found. Am I able to predict when it’s going to rain with uncanny accuracy because any change in barometric pressure makes me feel like every bone in my body is trying to kill it’s neighbors? You bet your fucking ass I am!! Does it sometimes make me irritable, angry, and occasionally dismissive of when abled people get cold or a temporary injury because the stuff they’re complaining about is my life every single day and all avenues of treatment and recovery I have could take years and still not entirely solve my issues? Yeah, and while I deserve a little extra patience I also have to be sure to check myself because I don’t want to turn into someone who’s nasty to be around. Do I sometimes need to sleep for 17 hours straight because it’s raining, I have migraine, and I’m in too much pain to be conscious? Yup, sometimes a few days in a row. Does living in constant pain mean I’m unable to do all the things I want to and does that sometimes make me wanna curl up in bed and never leave? Yeah, it happens.

But! And here’s the big important but, that’s not everything! I still write, draw, and talk to my friends!! It might take me a little longer but I get there. I’m still happy and excitable and make the time to write out five page long posts about EDS because it’s something I’m passionate about! My chronic pain doesn’t stop me. I refuse to let it. I never really wanted to go mountain climbing anyway, so I’m perfectly happy being able to make it up and down the six steps in my house, even if sometimes I have to sit and bump down them on my ass, or crawl up them like a cat. Chronic pain isn’t all I am. It isn’t a fate worse than death. It isn’t the only thing your character should talk about (though I do talk about my pain a lot cause I’m a complainer about almost everything). You can have your character be hindered by their pain, realistically they would be. You can have them seek comfort, support, and relief. Other characters can commiserate and be sympathetic, but it doesn’t mean their whole life is going to be one big pity party, that would be incredibly fucking boring. I know I’d be bored out of my mind.

All that said dealing with chronic pain, especially from EDS, is Complicated. Physical Therapy is the gold standard, but like I said before it can be a long and difficult process, and isn’t always accessible. Stabilization methods like I talked about before can help prevent pain, or reduce it by keeping bones mostly where they belong. Heat and cold help joints, relax muscles, and reduce inflammation but keeping them applied is rough and the relief doesn’t always last. Doctors prescribe anti-depressants, anti-anxiety, and sometimes even anti-epileptic medication to help manage pain, but everyone’s mileage with those varies. And I’m not at all qualified to talk in-depth about narcotics or other heavy duty pain-meds, but suffice to say the war on drugs fucked shit up for people that legit need that kind of help BIG TIME.

Now for my closer/bonus rant about EDS and Disability Writing in General!

Everyone always says write what you know, so if you really want to do disabled people justice, get to know disabled people! Make friends with disabled people, get involved with advocacy groups, consume content made by disabled creators both about disability and not! Disabilities are so fucking diverse, even EDS is such a complex disorder, and comes with so many potential co-morbidities, that practically everyone with it has a unique experience. There’s no way I can fully explain everything in a tumblr post. Hell, even if I could talk to you for hours probably couldn’t give you enough info to answer all your questions (especially since I’m still in diagnosis hell :,) ), so talk to a wide range of people with EDS and other disabilities!! I know it sounds like a lot of work but trust me, disabled people are some of the strongest, raddest, coolest, people you will ever meet that it won’t feel like it.

And don’t be afraid either, the fact that EDS and other disabilities are so wildly varied means that you have a little bit of wiggle room with your character’s experience. There’s so little disability rep out their I think people are WAY to scared to try their hand at writing it. So long as your character is a fully developed person in addition to being disabled, you give some logical thought as to how it would affect their life, and you don’t make their disability the butt of any joke it isn’t difficult to avoid ableist writing. PLEASE WRITE MORE DISABLED PEOPLE AND PEOPLE WITH CHRONIC PAIN/CHRONIC ILLNESS!!

Okay that’s it, again sorry it took so long for me to get back to you! My fingers were being little pests about it, and my ADHD (which is honestly more disabling than everything else a lot of the time lmao) was being an asshole! Hope this helps, and feel free to ask me more questions if you need clarification! It might take me a bit but I do love talking about this stuff.

#neela-chaan #ehlers danlos syndrome #EDS #hEDS #hypermobile ehlers danlos #disability #writing advice #disability writing #Chronic Pain #asks #SORRY THIS TOOK SO LONG IM JUST SLOW #also i'm sorry the formatting is such a wreck #my adhd won't let me go back and fix it #and i've already spent way too much time

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lastsonlost · 4 years

Link

These women have dedicated their lives to addressing a crisis of masculinity

Some have academic backgrounds or at first campaigned for women's rights

They believe society has developed a creeping antipathy towards all things male

So who are they — and what are the issues they are fighting on men's behalf?

The gender pay gap. The lack of women in top jobs. The #MeToo movement and the exploitation and abuse it exposed. There is a damning list of evidence that the fight for equal opportunities and rights for women is far from over.

This makes it all the more surprising that a small but increasingly vocal band of women is fighting for justice — not for women, but for men.

These women have dedicated their lives to addressing what they see as a crisis of masculinity and the unfair treatment of men by society.

They come from academic backgrounds or began campaigning for women's rights before focusing on problems of the other sex.

Of course, it is not the case that women's advancement can come only at the expense of men. And no one could deny women still face huge obstacles on the road to equality.

But the campaigners believe that in its attempts to rectify historical wrongs towards women, society has developed a creeping antipathy towards all things male, and this is knocking men's confidence at a time of intense cultural shift.

They fear that many men and boys are neglected, ignored and excluded. This, they say, is why men's mental health problems are on the rise. Suicide is now the biggest killer of UK men under 45.

Some of their views are highly controversial, and some activists have been accused of ignoring the harm done to women by men, or excusing it.

So who are these women, why on earth are they doing this — and what are the issues they are fighting on men's behalf?

COURTS PUNISH MEN – AND KIDS LOSE OUT

Alison Bushell, 57, from Suffolk, runs a social work consultancy.

Britain's family courts are engaged in practices that separate fathers from their children, knowingly or not, Alison believes. She says: 'The pressure groups springing up, some of which are advising the Ministry of Justice on domestic violence cases, have an anti-male agenda.'

In 20 years as a statutory social worker she saw a lack of effort to keep families together and an 'airbrushing out' of many dads.

'I see fathers marginalised and excluded from their kids' lives,' she says, 'while mothers are supported by out-of-date gendered views of parenting within the courts, and health and social services.'

And so, she believes, custody of children is often automatically given to women even when that isn't in a child's best interests.

'False allegations are more prevalent than people realise and supervision orders disproportionately happen to fathers.'

Every day, Alison gets calls from men who haven't seen their kids for up to five years. 'Having lost contact with their children, such men sometimes turn to alcohol or drugs out of sheer desperation.

'More become depressed. I had a client who took his own life. I believe the allegations against him were a major contributing factor.'

Alison has faced several complaints of bias while representing — largely male — clients in court, but none has been upheld.

Disillusioned and concerned to highlight these inequities, she left statutory social work ten years ago to set up consultancy, Child and Family Solutions. The agency works with families going through bitter separations, and carries out assessments for the Family Court and local authorities.

She has also worked with male domestic abuse victims. 'It has given me huge respect for those daring to speak out, because there is so little help available. It is a national scandal that so few refuge places are available for men.'

In England there were more than 3,600 beds in safe houses for women in 2017, but just 20 for men. The charity ManKind Initiative, which Alison supports, has told her that only 36 of 163 beds now available in refuges or safe houses are earmarked for men.

'Since Office for National Statistics figures state that 40 per cent or more victims of domestic abuse are men, this is alarming.

'When will people realise that holding on to a gendered narrative in domestic abuse is harmful?'

As for gender politics, Alison admits she has performed a volte-face. 'In the 80s I spent time at Greenham Common and lived in a women-only house. I even had a badge declaring 'a woman without a man is like a fish without a bicycle'. How times change.

'I can now be found reading [neoconservative author] Douglas Murray or listening to a talk by [Right-wing psychologist] Jordan Peterson.'

WHY I'M FIGHTING FEMINISM

Belinda Brown, 54, is a social anthropologist and co-founder of Men For Tomorrow. A widow with two children, she lives in London.

When she met her second husband, social scientist Geoff Dench — known as the architect of the socially conservative Blue Labour movement — Belinda's activism was ignited.

Together they set up Men for Tomorrow to research male problems — and fight against what they saw as a tendency to 'neglect or ignore issues affecting men'.

Shortly after their 2009 marriage, however, Geoff was diagnosed with a rare brain disease, progressive supranuclear palsy. He died on June 24 last year, aged 77. Belinda nursed him until the end.

She plans to continue his work by exposing what she sees as a deliberate attempt by feminist activists to undermine the traditional family unit.

She writes and speaks on a range of topics concerning men for platforms such as The Conservative Woman website, and carries out research aimed at reinforcing 'traditional' values.

As an anthropologist, she learned about feminism during her studies, but disagreed with much of what she heard.

'I was always aware of my own power and the power of other women,' she says. 'While I knew there were injustices which needed rectifying, today I see more injustices afflicting men.

'Most men work extremely hard to provide for their families, often at considerable cost to themselves. For women to ignore these sacrifices and instead blame men for all the problems in the world, it's divisive and damaging to gender cohesion.'

Belinda has worked for homeless charity Shelter, where like Alison Bushell she was shocked by the high proportion of men she saw.

'Almost all the rough sleepers were men and family breakdown was the reason so many were without homes,' she says.

'During divorce settlements it was always the wives who gained ownership of the house, leaving husbands stranded.'

According to charity Homeless Link, today 84 per cent of the homeless are men, and their average age at death is just 44, half the average male lifespan. She also draws a correlation between the current epidemic of gang-related knife crime and the rise in fatherlessness. Most of the offenders, she says, come from broken homes, according to her research.

As for the future of gender relations, she has this to say: 'I hope one day soon feminism will be seen as an interesting period of history, but one which caused tremendous damage to society.'

BOYS NEED MORE EMOTIONAL SUPPORT

Sonia Shaljean, 49, founded award-winning community interest company, Lads Need Dads. Married with three teenage sons, she lives in Essex.

Sonia has observed men at their lowest ebb during her 20-plus years as a substance misuse counsellor and anger management specialist within the fields of alcohol, drugs, criminal justice and homelessness.

'I was struck by how many of those men had grown up either without a father or with an abusive or unsupportive dad,' she says. So she founded not-for-profit Lads Needs Dads in 2015, with an initial grant of just £4,000.

The organisation has a team of trained male mentors, who encourage emotional intelligence in boys aged 11-15 with absent fathers. It also provides opportunities for youngsters to take part in outdoor activities, learn practical life skills and volunteer in the community.

She believes it helps to have a woman at the helm. 'If it were a man leading an all-male organisation, it could possibly be disregarded by some women.

'Our aim at Lads Need Dads is to provide support, guidance and encouragement — and a much-needed male voice to enable boys to open up.

'It's so rewarding to watch boys' self-esteem, emotional stability and motivation grow. They perform much better at school, too, as well as having improved relationships at home.'

According to the Centre for Social Justice, 1.1 million young people have little or no contact with their fathers, while 2.7 million live in lone parent families.

In his book The Boy Crisis, Dr Warren Farrell explains how fatherless boys, and to a lesser extent girls, tend to have less empathy and are more likely to break the law. According to a Unicef report on the wellbeing of children in economically advanced nations, including the UK, 85 per cent of youths in prison have an absent father.

Sonia was keenly interested in the link between fatherlessness and offending, in part because she started her career in a civilian role at the Metropolitan Police, where she managed a Community Safety Unit and helped refer victims and perpetrators to the right services.

Later she worked for the charity Refuge, setting up two women's refuges in South East London alongside volunteering on a national helpline for a men's charity that provided therapeutic programmes for men wanting to change their behaviour.

Sonia is keen to point out that not all boys growing up without a father end up as a statistic, saying: 'Other protective factors come into play, such as encouraging boys to join clubs and take part in sports, where they can find positive male role models.

'We aren't here to replace fathers. In fact our programmes have reunited many boys with their dads after years of absence.'

FATHERS PAY THE PRICE IN DIVORCE

Stacey Camille Alexander-Harriss, 41, a family support worker and children's novelist, moved to the UK from America ten years ago after meeting her English husband online. He's a City finance director and they live in Ilford with their two dogs.

A former Art and French teacher, Stacey now works supervising contact between fathers and their children after family breakdown, at Alison Bushell's agency.

'We tend to work more with dads than mums, as they seem to be the ones who have difficulty retaining a relationship with children after divorce and frequently become depressed in the custody battle.'

She believes this is the result of systemic inequalities and a bias towards mothers. 'Women hold all the power, especially when it comes to custody.

'It's unfair that dads have to pay for all the legal costs, paying people like Alison to advocate.

'Often men with good jobs from affluent backgrounds end up taking out loans. Even if you win you spend so much on this insane game.

'When mothers notice there is a maternal bias they realise they can say whatever they like about their ex. I've heard accusations of terrorism just to get custody. It's so ugly. And when mothers refuse to seek help for their emotional problems they tend to place the blame on men.'

Her books deal with troubled families — Myrtle Takes Tea, published under the pseudonym Alexander Stacey, is about a lonely nine year old with mean teachers and parents with money problems. All that matters to her is her prized toy rabbit Earl Grey.

Stacey thinks setting an example is a way to heal these injuries and help families.

'All the tools I use in my work are drawn from examples set by my own parents who were loving, strong and wise. My father was an orthopaedic surgeon and he and my mother were married for 40 patient years until they both passed away. I try to teach fathers about the importance of discipline, responsibility, self-reliance and confidence.'

I HAD DEATH THREATS - AND A BOMB SCARE

Erin Pizzey, 80, founded women's charity Refuge. She is now a patron of the charity Families Need Fathers. She lives in South London and is divorced with two children.

'I'm all for equality of the sexes,' Erin Pizzey says.

'But equality isn't the endgame for those feminists who believe women would be far better off without men.'

This may sound odd coming from the founder of the first women's refuge.

It's nearly 50 years since, aged 32 and with two young children, she set up The Chiswick Women's Refuge as a place 'where women could meet and use our talents'.

'Both my parents were violent and my mother beat me,' she says. 'So when the first battered woman came through the door and said 'no one will help me', I knew what she meant.'

The London house became women's charity Refuge — and led to the creation of hundreds more women's refuges. And yet Erin became a pariah, as she insisted many female victims were also violent.

'Of the first 100 women who came into my refuge, 62 were as violent or more violent than the men they had left,' she says.

'Therefore, domestic violence can't be a gender issue, it can't be just men, because we girls are just as badly affected.'

She became a hate figure for saying so. 'They branded me a 'victim blamer'. 'After a bomb scare, the police suggested my post be sent to them for inspection.'

In the Seventies, she tried to set up a refuge for men, with little success. 'The rich men who were willing to fund my projects for women refused to give any money to male victims.' Now she works with Families Need Fathers and is a patron of The ManKind Initiative, a charity which supports male domestic violence victims.

The subject may be becoming less taboo. Police in England and Wales recorded nearly 150,000 instances of domestic violence to men in 2017, more than double those in 2012 — which in part reflects a greater willingness to report problems.

The 2018 Crime Survey for England and Wales recorded that 7.9 per cent of women (1.3 million) and 4.2 per cent of men (695,000) have suffered domestic abuse.

It is women who are far more likely to be victims of extreme violence. Government figures show, for example, that 73 per cent of victims of domestic homicides from 2014 to 2017 were women, while most killers were male.

This leaves male victims in a difficult situation, which Erin is working to address. She says: 'I am fighting for my son, my grandsons and my great grandsons, so that they might have a future where men are no longer demonised.'

The War On Masculinity by James Innes-Smith will be published by Little Brown in spring 2020.

#the women demonised championing mens rights

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