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#Acquired brain injury
positivelyqueer · 2 months
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give love to people with traumatic brain injury, acquired brain injury, stroke, neurological condition, worsening mental health, trauma, PTSD and all other brain based conditions that make you feel conflicted about your identity. About whether or not you’re the ‘same person’ you were before your injury or illness. People constant evolve and change but can be more difficult when changes more sudden, pronounced, and noticed by others. I hope you are doing well and are able to find some peace, support and love.
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stormr · 1 year
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@Kayla Grey
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So I got my autism diagnosis today as well as once again a confirmation of some of my other disabilities, which is great cause now I have some clarity.
But it also came with the statement that I won't be able to do any of the jobs or studies I really want...
So now I'm really torn up cause at one point I'm happy I finally got a diagnosis, but on the other hand the fact that I very likely won't be able to do what I love for a living really feels devastating..
I already have a very hard time picturing a future for myself.. but without being able to do any of those things I really cannot see one at all.. and now I'm not really sure what to do..
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holyluvr · 11 months
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sensitive subject & long post
***I am aware that surgical lobotomies are usually more severe in results and traumatizing in a diff way than psych malpractice, but at the end of the day— my frontal lobe was damaged by doctors that I had tried to escape from and begged for anyone to get me away from.
I don’t know anything about the woman with the lobotomy tools tattoo, but if she’s the type of crazy or deviant that has to worry about these things, I’d say the tattoo is only a bit insensitive or in bad taste due to how visible it is and anyone seeing it not having context as to why she has it. Otherwise why is it a problem? If I saw that, I would be uncomfortable, wary, and distance myself a bit more than automatically assume she thinks lobotomies are chic. I have no idea what her reason behind the tattoo was or if she’s part of a group that has real and understandable worry about this still in 2023 rather than “reclaiming” the misogyny of the 1900s. It’s a bit contradictory to say that it’s a real concern for multiple groups of people and then assume it’s not for someone else based on appearance alone— and it’s not too uncommon for someone part of a minority group to reclaim symbols, imagery, words, etc that are used as violence against them. It’s really not uncommon for anyone traumatized to reclaim imagery that’s related to their trauma. If someone told me I was jumping on a trend and using psych malpractice as a style and ignored my history with psychiatric abuse or that being a possibility that I maybe don’t want to talk about, I’d be pretty annoyed and hope to God that they have personal experience themselves and aren’t just speaking out of their asses to me from what they read in books or class.
But anyway, the last few sentences of that video are the takeaway people should probably consider more, imo. It’s not about one period in history, it’s not about helping patients, it’s not about anything but doctors and lawmakers playing God and trying to erase people and traits that they deem as too “high risk” or “deviant” for society. Hence targeted minorities being included in discussion who aren’t crazy. Sure, there have been doctors who referred patients for the lobotomy or performed it with good intentions, but grabbing at outliers to derail and ignore the blatant reality of how the USA psych institution works is….not cool but a common way people respond to me anytime I bring up the subject! Because someone has to stand up for the poor, poor psychiatrists!😢
Although the surgery was given a bad reputation and restrictions, do people seriously ignore all of the stories and concerns coming from mostly psychotic or “unpredictable” or “deviant” or “complicated” patients about the cups of medication and TMS/ECT being forced on us as children, teens, people who were unable to consent at the time, or adults given terrifying ultimatums and threats if we hadn’t “consented”? Oh, but believing crazy people is difficult, so how about the stories of kids who were hospitalized by good-intending and concerned parents who then meet their child for visitation hours and realize that something is wrong, and it turns out that their child was given heavy treatment that harmed their wellbeing without guardian knowledge or consent? And how many of those children have a disorder that causes psychosis or disruptive behavior?
All of those treatments, every pill on it’s own or in safe combos, TMS & ECT, and even ABA therapy can be used as a helpful tool in treatment. But they can also be used incorrectly with the same base motive as surgical lobotomies.
I was never the same after my second and third hospitalizations, and no one was surprised except for my new psychiatric nurse to find out a few years later that my frontal lobe had been damaged, most likely from psychotropic medications. He was mortified because he personally knew one of the doctors in my records and referred patients there. He was the first of a small handful of medical professionals that I’ve met who would actually turn their back on another doctor and be horrified and enraged for an LGBT, schizo, complicated, and unpredictable patient. I was 16 years old, and my appointment ended up going past the hours that they were open. Finally, when I had lost hope already, someone stopped typing and looked up at me when I mumbled something shitty about a past doctor. Instead of typing that I was easily agitated, aggressive, or overly pessimistic, he asked me why I called the doctor an explicit word then did what he could in his power to report it.
My psychologist also reported the same doctor 3 years later and I had legal reports filed against him, but I was still forced to be his patient again last year. If you don’t think the system is fucked up when a patient, the patient’s family, the patient’s ex-psychiatric nurse, the patients psychologist, and the patients current psychiatrist all have sent in faxes, emails, and calls to the local hospitals and crisis teams that someone should not be sent to the same hospital again for a long list of reasons that include criminal behavior and neglect…and the patient is still forced back to that hospital, back under that psychiatrist’s care….idek what to say because that sounds like a violation of rights and disregard for a patients wellbeing to me. It was in their system when I got there. The social worker immediately brought up the reports and forms and promised me nothing would go wrong this time. Lmao right. No offer of a different doctor. No offer to find me a bed in a different hospital. Just “I promise”. Because I’m insane, so who cares? They’re doing me a favor and saving my life! 🤩
No one listened to or believed me when I tried to tell them that I wasn’t scared of the pills as poison or anything paranoia related; I was afraid because I felt like I was losing parts of myself and couldn’t voice my thoughts or emotions about it; actually, my ability to speak was damaged enough to have me considered nonverbal for a while, and my movement was moreso uncontrollable spasms— I couldn’t do anything between the episodes of catatonia that was, of course, blamed on my Schizoaffective Diagnosis and seen as a reason to add more medications. I was 13 years old and on so many medications that my parents had to have my school nurse involved to call me out of class and take my midday 2 pill cups under supervision. And of course I was getting sicker.
It wasn’t until I was an adult and reached out to multiple specialists and psychiatrists to look at my pharmaceutical records and brain scans that I realized, watching their faces turn somber or grossed out as they went through it, when their tone changed and voice fell in volume to ask me to confirm hospital stays and names of providers that were in the system, “can you confirm an appointment with [psychiatrist] for TMS and medications?”. I finally accepted that I wasn’t crazy about it. They were gaslighting a child that they knew was already being gaslit at home. I knew what they were doing: They were trying to chemically lobotomize a child instead of helping me because I was too deviant and unlikeable; a transsexual and bisexual child who wasn’t growing out of the homosexuality despite therapy and had problems with authority, a history of long term abuse and family that normalized criminal behavior, complaints from family and school about disruptive behavior, and psychosis. A child like that is scary to society because they could grow up to be an actual transsexual who partakes in homosexuality, breaks the law, and could be a danger to others and thorn in the system’s side.
How a doctor can keep his license while viewing patients, especially children, that way is beyond me. But yeah, lobotomy isn’t something that went away that people, especially those at higher risk from doctor bias, aren’t worried about anymore or don’t have trauma with. “60 years old” maybe for reported, surgical lobotomies. But there are people younger than 18 to this day who have had parts of themselves damaged via psychiatric malpractice who don’t even know how to talk about it or to who. I don’t even understand what I lost in any way that I can put into words. I just know that I’m not the same person, and I know I lost a lot of people around then because they didn’t understand why it felt like they lost a friend/family member who was standing in the same room as them. I lost my future with school. I was further traumatized and distrustful and bitter. Every childhood disorder that I had was now a more severe, adult version that they didn’t know how to treat and overwhelmed them.
I’m traumatized. My family is traumatized from being a part of it. We already had trauma in the family from medical malpractice that lead to deaths, near deaths, permanent physical disability, and abuse of someone with an intellectual disability by hospital and school staff. I’m sure that played a role in why my parents took so long to get me psychiatrists and psychotherapy in the first place. It was painful. My family and the nurses had to pin me to the floor and force me to swallow then check my mouth with a flashlight and watch me for 30min because YEAH I wanted to throw it up or get it out of my system somehow. I felt like I was overdosing on diphenhydramine anytime they gave it to me, but they wouldn’t believe me. Thinking back and comparing it to an ER visit I’ve had, I wouldn’t be shocked to find out that I spent my middle school-high school years forced to live through mild serotonin syndrome. That and them giving me large amounts of benzodiazepines in middle school? My father’s psych encouraging them to cut his benzos in half and make me take them when I was in elementary school? Yeah, I fought back. That was basic survival instincts, not paranoia.
There isn’t anywhere to really talk about this because people immediately want to assume it’s anti-medication propaganda. They accuse people of being part of that whole “anti-conspiracy to numb everyone’s brain with psychotropic medications having to do with capitalism and state control” mentality. And that’s not what I’m talking about. And people’s lived experiences aren’t political tools unless they are specifically applying it to a political stance. Sometimes it’s just to vent about something more taboo that we’ve gone through that isn’t widely discussed or taken into account.
I think meditation is important and can be used in a way that saves or betters lives, but that doesn’t change the fact that putting heavier restrictions and medical stigma on lobotomies isn’t going to stop or change the motives of doctors who believe in permanently damaging the prefrontal cortex as a means of treatment, and they will find a way that doesn’t need any surgical tools if that’s the way they view patients. The current tools at their disposal are mainly medications, TMS, and ECT. If you use those with the intention to (fry) alter someone’s frontal lobe without consent and in a way that harms their quality of life but makes them easier for the system to deal with, that’s not too much different from attempting to do the same with surgical instruments. It’s bullshit to pretend that USA lobotomies ended when they stopped mass producing and buying the tools necessary for surgery. It’s bullshit to assume that the treatment modality stopped existing when one of the tools was taken away.
The problem with lobotomies is that it’s an entire treatment modality mindset. You can ban the Tx, but you still have doctors who were trained or allowed to view psychiatric treatment as a means to commit human rights violations and doctors who were trained under the men who performed lobotomies back in the mid 1900s. Until those doctors are held accountable, nothing will change. Lobotomies still exist both literally with metal and anesthesia and with medications used off-label, in harmful combos, at dangerous ages, and heavily. Then you have literal magnets and electricity still being applied in combination to medications.
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i wish i could explain the pain of watching your life slip away over night as you struggle to open a pen, as you struggle to walk in a straight line, as you struggle to write, when just yesterday you could dance, when just two days ago you could write pages, when just last month you didnt have brain damage i want my life back
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clumsyrunner · 1 day
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It’s never easy to accept when a friendship stagnates or ends. It’s been 10 years, 5 months and 24 days since the stroke happened. I haven’t heard from Sharye since work the day before the stroke. I think she came to the hospital once while I was in a coma, but (obviously) I don’t remember and am going off of what I think I remember someone telling me. We met each other 26 years ago when we were…
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medanta57 · 1 year
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Acquired Brain Injury Symptoms, Causes & Treatment | Medanta
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melissa2017-blog1 · 1 year
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Come Check Out My First YouTube video!
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Autistic and Hard of Hearing
What happens when your own accessibility needs conflict?
Conflicting Access Needs Within Oneself Just over two years ago I had a complete asssesment of concussive and hearing tests done. This makes up for the fact that my original concussion specialist made my TBI worse with his treatment…or lack thereof. After the testing, we determined I had severe tinnitus bilaterally and mild hearing loss in my left ear. The hearing loss was both strucural and…
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raccooninapartyhat · 9 months
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actually I do feel kinda weird that brain injuries don't always get treated as like actual forms of neurodivergency "because it's not like you were born like this"
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vampire-lord-garfield · 8 months
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I KNOW YA'LL DON'T SHIP SEBARD BUT PLS JUST HEAR ME OUT! Imagine servants greeting Ciel and Seb post Compania ark. And Seb is just covered in human bites (weird dolls) and has a massive fuck0you wound in the middle of his torso. Like even in canon he was pretty fucked up by that scythe and i headcanon that his body can't do it's usual demon healing magic on that wound. All energy goes in keeping him alive, so his injuries heal at human speed. So when they finally arrive at the manor who else then a army veteran wound treat his wounds. (You can't tell me Seb would allow human doctor look at his weird otherworldly anatomy, especially when you can see his freaking insides...). Imagine how triggering that would be to Bard. His mind would probably be on autopilot until he was finished. And then flashbacks to both war and his family dying. And like he thought of Sebastian as a "superhuman", a constant. Seeing him injured and in need of HIS help is verging on uncanny valley... (Also he saw this dude literally eat bullets. It would be kinda scary to think what was at sea that would fuck up Seb so badly... With human teeth no less.). --- Seb probably hasn't been so close to his own mortality in a long time so the whole experience doesn't sit right with him either... But even more weird is SOMEONE ELSE worrying ABOUT HIM. I like to think that he would be absolutely shit at comforting someone distressed about his wellbeing. Like his whole experience with that is comforting a bratty 12 years old and dealing with Ciel's nightmares. And here is a grown ass man with PTSD. He is so uniquely unprepared to deal with it. He tries his best, which is absolute worst, until Bard just asks him to shut up. And like he is probably not in a right mind either. He failed, he lost the fight, he got injured and then they basically run. And the whole "possibility of dying thing" is not a concept an immortals creature really thought about. He asks Bard to sleep at his room. Totally for Bard's sake. Not because of the latest events or because most demons don't like sleeping alone. Cause in hell that would just make you an easy target to others.
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stormr · 1 year
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YOU ARE WHAT YOU EAT | Same you Fundraising 2023!
I am one of those who have followed the mission of the SAMEYOU charity from the very beginning and I am very proud of it! I "survived" a brain injury, after a "car-pedestrian" accident in 2012! I have permanent sequels, in part because I haven't received the help, resources and support to regain some of my abilities. A poor understanding of this condition, but especially the too many obstacles to get out of this hell, makes me particularly sensitive to this cause that is close to my heart. Even in a country considered “progressive”, victims of head trauma are neglected. If it hadn't been for my mother, I wouldn't be here to testify... In 2022 I experienced the pangs of an AIT, then a second time, a month ago. My mother had two small strokes a few years ago and one of my aunts died of a ruptured aneurysm at the age of 42. I am therefore participating in this new challenge "You are what you eat", in the hope of contributing to change, of offering the chance to others to obtain the support that my loved ones and I haven't had and to make people aware of this reality that many people have or will have. Cooking/baking is a brand new passion for me. Having major health problems, I had to find new hobbies (yep again! 😅) and cooking became a way for me to express my creativity. Without pretension and without pressure! I don't have any particular talent apart from curiosity (But that's all I need). With inflation and my limited budget, I have to renew myself, be imaginative and turn to new avenues! This is my personal challenge! 💪 I would have some inspirations to help me and I intend to discover others in my little adventure! Don't hesitate to share and give as much as you can! 🧡✌ DONATE HERE: https://www.sameyou.org/you_are_what_you_eat_donation_page?recruiter_id=46899
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endworldbroadcast · 1 month
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I only realised now that about half a year ago someone was insinuating I get checked for a brain tumour because of my neurological symptoms (personality change, emotional volatility, cognitive decline) and was really frustrated that I wasn't 'getting' the concern
The thing is I thought it was fairly obvious my brain got fucked over. I'm living in the aftermath of it, not the pre-apocalypse.
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holyluvr · 8 months
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Getting a good hit of indica that’s a little stronger than vapes I had last time after I ran out of my indica is Hallelujah Praise The LORD and that kid with ADHD
#…#I need indica or antipsychotics both to function. an upper and a downer of some sorts. stimulate then depress. over and over again. daily.#TBH one of the dreams/goals that I still haven’t let myself let go of despite knowing the stats and likelihoods of the outcomes….#well anyway one of those dreams is to somehow fix this. to meet a doctor who has a treatment plan or life change idea that works on the drug#dependency / the ‘maybe’ acquired brain injury issues.#the ‘is this idiopathic narcolepsy or is this ABI from drs or would you consider this probable narcolepsy from ABI from drs or?’ issues.#the ‘it’s harder to put together a clear understanding of your health overall’ comments followed by silence bc they don’t need to say it lol#it’s hard because no one has known what my health ‘should’ be like. know one has any labs without me on psychotropic medication combos.#they have partial proof from brain scans for the conclusion that my brain was just .fried to deal with me/make me easy and good. didn’t work#and they don’t even need proof to know that medication combos in their own profession shouldn’t be used together or are only used together#in extreme cases with no options left that they immediately fucking jumped into and were lucky I didn’t DIE so many times but fuck yeah#now my brain hurts and I’m not how I was beforehand but don’t rlly know why or how to express it#and I feel alone there and then I have bitch ass doctors telling me to Just Stop The Meds For A Fee Weeks :-)! …..Dr u have no idea huh do u#a few weeks? give me 3 days before I’m having a psychotic episode that’s severe enough to warrant police arrest or 911 called for me.#that’s thousands of dollars in a legal psychiatric hold. and that’s if someone catches the signs on time before I potentially harm myself or#like yeah no I’m sorry doc but i can’t just Simply Stop or Substitute anti-anxiety drugs when I’ve had them holding me together b4 puberty.#anyway I’m still. hoping I’ll find some info somewhere or stories and people like me who figured something out or anything idk#because my medical testing is interfered by medications that I cannot stop taking (mainly benzodiazepines) without losing my mind now. bad.
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steptowalk · 1 year
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Acquired Brain Injury
Acquired brain injury (ABI) refers to any type of brain damage that occurs after birth. It can include damage sustained by infection, disease, lack of oxygen or a blow to the head.
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Two thirds of all people with an ABI who have their activity limited or restricted are over the age of 45. One third of those are over the age of 65. The largest age group is between 40 and 49 and, at all ages except for those aged 80 and over, rates for males are higher than for females.
 How brain injury occurs
Brain injury can occur through:
Sudden onset – caused by trauma, infection, lack     of oxygen (for example, during near drowning or suicide attempts), strokes     or drug use episodes
Insidious onset – from prolonged alcohol or     substance abuse, tumours or degenerative neurological diseases.
 Causes of acquired brain injury (ABI)
Acquired brain injury is any damage to the brain that happens after birth. The specific symptoms or losses of functioning depend on which brain areas are affected.
Some of the causes include:
Alcohol or drugs – which can poison the brain
Disease – such as AIDS, Alzheimer’s disease,     cancer, multiple sclerosis or Parkinson’s disease
Lack of oxygen – called anoxic brain injury (for     example, injury caused by a near drowning)
Physical injury – such as an impact (or blow) to     the head, which may occur in vehicle or sporting accidents, fights or     falls
Stroke – when a blood vessel inside the brain     breaks or is blocked, destroying the local brain tissue.
How ABI affects a person
The long-term effects of brain injury are difficult to predict. They will be different for each person and can range from mild to profound.
It is common for many people with ABI to experience increased fatigue (mental and physical) and some slowing down in how fast they can process information, plan and solve problems. They may experience changes to their behaviour and personality, physical and sensory abilities, or thinking and learning.
How the brain works
The brain is the powerhouse of the body, even though it only makes up two per cent of the body’s weight. This soft, jelly-like organ has countless billions of neural cross-connections. It functions using a combination of electrical and chemical means. The brain oversees the workings of the body and gives us consciousness and personality. It is divided into two halves: the left hemisphere and the right hemisphere. Each hemisphere is further subdivided into lobes. Different functions happen in different parts of the brain, which is suspended in a chemical ‘soup’ called cerebrospinal fluid. This fluid nourishes the brain and serves as a shock absorber. The brain is connected to the rest of the body through the spinal cord. Together, the brain and spinal cord make up the central nervous system.
Traumatic brain injury
Traumatic brain injury (TBI) is not the same as head injury, since a person can sustain damage to the face, scalp and skull without necessarily injuring their brain. TBI is considered a form of acquired brain injury, and refers to brain damage caused by an impact to the head.
When the head is struck hard, the brain slams against the inside of the skull, causing physical injuries such as bruising, swelling, bleeding, twisting or tearing of tissue. There are degrees of injury, ranging from a momentary loss of consciousness (which can happen from a punch to the face, for example) to a long-term bout of unconsciousness or coma.
Treatment for brain injury
A range of tests, including x-rays and CT brain scans, can help pinpoint the exact areas of damage. In some cases, surgery may be needed. Recovery depends on the extent and location of the brain damage, the age and general health of the person, the speed of first aid received and the quality of treatment.
The consequences of a person having an ABI are far reaching. Coping with any loss of functioning and going through rehabilitation can be difficult. The person with an ABI will have great distress. Family, friends and partners will also experience difficulties as they deal with emotional and practical challenges, interruptions to family life and role changes.
An ABI can affect intimate relationships, friendships, social networks, recreational and vocational activities. It may force the person and their immediate family to adapt to a completely new way of life and new kinds of relationships.
Caring for someone who has had a brain injury may bond a family closer together. It can also mean enormous burdens for the family, which may tear it apart.
It will help if family members:
have good information about the effects of ABI
appreciate the difficulties that might be     encountered
understand that recovery is a slow process.
 For carers to cope with the situation, it helps to:
stay with the present, rather than brooding about     how catastrophic the future may be
highlight strengths and daily achievements,     rather than the weaknesses
make time to care for themselves
be wise enough to ask for help when it is needed.
 Where to get help
·        Step To Walk Neuro Rehab, Ghaziabad https://steptowalkneurorehab.com or call +91- 99101 18186
·        Neurologists
Things to remember
Acquired brain injury refers to any type of brain     damage that happens after birth.
Causes of ABI include disease, blows to the head,     alcohol and drug use, or oxygen deprivation.
Coping with the consequences of acquired brain     injury can be difficult for everyone, including family members.
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Enhancing Lives through the ABI Waiver and MFP Programs: Share Your Valuable Insights
At ABI Resources, we are dedicated to providing the best care and support for individuals and families navigating through Acquired Brain Injury (ABI) and transitioning from institutional settings to community-based living environments. Our collaboration with esteemed organizations helps us deliver the highest level of support and services.
Your valuable feedback on our ABI Waiver and Money Follows the Person (MFP) Program Survey is instrumental in improving the quality of our programs and services. By participating in this survey, you will be directly impacting the lives of countless families who rely on our services for support, care, and independence.
Ask yourself:
What aspects of our ABI Waiver and MFP Program have been most helpful for you or your loved ones?
Are there areas in which you believe we can improve our services?
How has your experience been with our partnering organizations?
Your answers to these questions will help us better understand the needs of our community and enable us to enhance our services to better support the individuals and families we serve.
______________________
SURVEY: ABI Waiver and MFP Program: Share Your Insights
At ABI Resources, we are dedicated to providing the best care and support for individuals and families navigating through Acquired Brain Injury (ABI) and transitioning from institutional settings to community-based living environments. Our collaboration with esteemed organizations helps us deliver the highest level of support and services.
Your valuable feedback on our ABI Waiver and Money Follows the Person (MFP) Program Survey is instrumental in improving the quality of our programs and services. By participating in this survey, you will be directly impacting the lives of countless families who rely on our services for support, care, and independence.
ABI Waiver, MFP Program, Survey, ABI Resources, Connecticut Department of Social Services, DSS, Connecticut Department of Mental Health and Addiction Services, DMHAS, Connecticut Community Care, CCC, Connecticut Community Care Incorporated, CCCI, Southwestern Connecticut Area on Aging, SWCAA, Western Connecticut Area on Aging, WCAAA, Allied Community Resources, ACR, Access Health, United Services, feedback, community care, supported living, professional environment, continuous improvement, insights, individuals, families, acquired brain injury, institutional settings, community-based living, collaboration, care, support, independence, quality, needs, partnering organizations, experiences, improvements, life enhancement, transitions.
ABI Waiver and MFP Program: Share Your Insights
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Your Feedback Matters: ABI Waiver and MFP Program
Contribute to ABI and MFP Program Improvements
Empowering Families through ABI and MFP Feedback
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Transform Lives: ABI Waiver and MFP Program Survey
Strengthening ABI Waiver and MFP Program Support
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