Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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so one of the things that's so horrifying about birth control is that you have to, like, navigate this incredibly personal choice about your body and yet also face the epitome of misogyny. like, someone in the comments will say it wasn't that bad for me, and you'll be utterly silenced. like, everyone treats birth control like something that's super dirty. like, you have no fucking information or control over this thing because certain powerful people find it icky.
first it was the oral contraceptives. you went on those young, mostly for reasons unrelated to birth control - even your dermatologist suggested them to control your acne. the list of side effects was longer than your arm, and you just stared at it, horrified.
it made you so mentally ill, but you just heard that this was adulthood. that, yes, there are of course side effects, what did you expect. one day you looked up yasmin makes me depressed because surely this was far too intense, and you discovered that over 12,000 lawsuits had been successfully filed against the brand. it remains commonly prescribed on the open market. you switched brands a few times before oral contraceptives stopped being in any way effective. your doctor just, like, shrugged and said you could try a different brand again.
and the thing is that you're a feminist. you know from your own experience that birth control can be lifesaving, and that even when used for birth control - it is necessary healthcare. you have seen it save so many people from such bad situations, yourself included. it is critical that any person has access to birth control, and you would never suggest that we just get rid of all of it.
you were a little skeeved out by the implant (heard too many bad stories about it) and figured - okay, iud. it was some of the worst pain you've ever fucking experienced, and you did it with a small number of tylenol in your system (3), like you were getting your bikini line waxed instead of something practically sewn into your body.
and what's wild is that because sometimes it isn't a painful insertion process, it is vanishingly rare to find a doctor that will actually numb the area. while your doctor was talking to you about which brand to choose, you were thinking about the other ways you've been injured in your life. you thought about how you had a suspicious mole frozen off - something so small and easy - and how they'd numbed a huge area. you thought about when you broke your wrist and didn't actually notice, because you'd thought it was a sprain.
your understanding of pain is that how the human body responds to injury doesn't always relate to the actual pain tolerance of the person - it's more about how lucky that person is physically. maybe they broke it in a perfect way. maybe they happened to get hurt in a place without a lot of nerve endings. some people can handle a broken femur but crumble under a sore tooth. there's no true way to predict how "much" something actually hurts.
in no other situation would it be appropriate for doctors to ignore pain. just because someone can break their wrist and not feel it doesn't mean no one should receive pain meds for a broken wrist. it just means that particular person was lucky about it. it should not define treatment.
in the comments of videos about IUDs, literally thousands of people report agony. blinding, nauseating, soul-crushing agony. they say things like i had 2 kids and this was the worst thing i ever experienced or i literally have a tattoo on my ribs and it felt like a tickle. this thing almost killed me or would rather run into traffic than ever feel that again.
so it's either true that every single person who reports severe pain is exaggerating. or it's true that it's far more likely you will experience pain, rather than "just a pinch." and yet - there's nothing fucking been done about it. it kind of feels like a shrug is layered on top of everything - since technically it's elective, isn't it kind of your fault for agreeing to select it? stop being fearmongering. stop being defensive.
you fucking needed yours. you are almost weirdly protective of it. yours was so important for your physical and mental health. it helped you off hormonal birth control and even started helping some of your symptoms. it still fucking hurt for no fucking reason.
once while recovering from surgery, they offered you like 15 days of vicodin. you only took 2 of them. you've been offered oxy for tonsillitis. you turned down opioids while recovering from your wisdom tooth extraction. everything else has the option. you fucking drove yourself home after it, shocked and quietly weeping, feeling like something very bad had just happened. the nurse that held your hand during the experience looked down at you, tears in her eyes, and said - i know. this is cruelty in action.
and it's fucked up because the conversation is never just "hey, so the way we are doing this is fucking barbaric and doctors should be required to offer serious pain meds" - it's usually something around the lines of "well, it didn't kill you, did it?"
you just found out that removing that little bitch will hurt just as bad. a little pinch like how oral contraceptives have "some" serious symptoms. like your life and pain are expendable or not really important. like maybe we are all hysterical about it?
hysteria comes from the latin word for uterus, which is great!
you stand here at a crossroads. like - this thing is so important. did they really have to make it so fucking dangerous. and why is it that if you make a complaint, you're told - i didn't even want you to have this in the first place. we're told be careful what you wish for. we're told that it's our fault for wanting something so illict; we could simply choose not to need medication. that maybe if we don't like the scraps, we should get ready to starve.
we have been saying for so long - "i'm not asking you to remove the option, i'm asking you to reconsider the risk." this entire time we hear: well, this is what you wanted, isn't it?
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You always joked about how you'd find out what's beneath his mask someday. Literally and figuratively.
He'd scoff at your attempts, or suggestions to lift up his sniper mask. Some of them caught him off guard, to the point he almost did it if not for his logical mind. But some of them were downright ridiculous, that he couldn't help but snort.
Maybe you already accepted it from the start, that he would never give in, but it had become a harmless jest at this point, so you might as well keep it going.
Until he gives you permission.
The thing is, it doesn't make you happy—it scares you to death instead. He once bit off someone's finger when they poked it in the place they shouldn't have touched. So what's behind the mask couldn't be worth the pain.
At first, you thought of it as a warning. Yet he wasn't showing any signs of threat. He even pulled you closer, so you'd get a better view of him.
His mask stays on, but he lets you touch his face. Your hands hover an inch away from his veiled visage, before you test the water with a touch.
He doesn't flinch away, or charge at you like a venomous snake. He stays still, letting your hands cup his cheeks.
"Didn't you say you wanna feel my face?" He said as he brought you closer, causing a shiver down on your spine.
"I did," Your lips trembled slightly, "I'm doing it."
"You're not doing it right." He tugged your paralyzed hands onto his chest.
You're confused when he firmly grips both of your hands, before slowly sliding them under the hem of his hood.
"Inside, maus." He commanded you, "Tell me what you feel."
And so, you complied.
You reach into his mask, and touch his neck tentatively. For a brief moment, his muscles tense under your fingertips, before they come down relaxed.
"Oh." You murmured as you pressed your palm onto his nape, "You can certainly survive a fighter jet ride."
He doesn't give you any response, so you take it as a cue to continue.
Your hands creep up higher, until your fingers reach the soft bones of his ears. They seem small in your grasp, smaller than they should, for a man of his height. A quiet smile spreads in your lips, as you imagine the tiny shells that frame both sides of his face.
"I'm surprised you have clear skin." You commented when you caressed his cheek, feeling the texture of his skin, "I thought you'd have a problem with it since you always wore a mask."
"Not always." He replied, nudging you to roam further, "I took it off whenever I'm alone."
"Did you take care of it?"
"No."
"How unfair." You chuckled, "I want to have your skin."
He keeps his eyes on you, and you feel the need to clear your throat, before you trace the lines on his face.
"You have a big nose." You mused as you ran your finger down from the bridge of his nose, "It's crooked."
He hums, while his eyes follow your uncertain gaze.
"Why you stopped?" He called you out, and you jumped upon hearing them, "There's one place you haven't touched."
You bit your lips, trembling, as you lowered your hand, until you felt the soft lumps on your fingertips.
They form a thin line, before they split open, inviting your finger inside. Your breathing becomes labored, as he takes a hold on your hand, guiding your thumb into his mouth.
He doesn't break eye contact the whole time, and you're too paralyzed to look away. You feel the sharpness of his teeth as his lips are closing around your digit. You have anticipated the guillotine falling on the head of your thumb, yet what comes after is a soft brush of his tongue.
It was rough, and drenched with his saliva, that it formed a string at the time your thumb left his mouth.
"König—" You gasped when he dragged his lips down to your palm, before stopping on your wrist. Pressing his tongue on your pulse point, where the skin barrier is so thin, that it feels as if he's tasting your flesh.
"Scared, maus?" He muttered, his teeth scraped against your skin, "Are you scared of me?"
You stare at him, as your instinct screams at you to nod. But you shake your head, despite the tremble in your hands.
"Then you'll do as I say." He wraps his arm around your waist, leaving no room for you to run, "Take off my mask."
Your eyes widened, not believing what you just heard from his mouth. Alas, his glare is enough to confirm the truth.
He guides your hands to his mask, pushing it up in a manner that's close to unveiling a white cover. And once the mask is lifted, you have no time to admire him as he slams his lips against yours.
Your cry of surprise is swallowed by his mouth, as he pushes his tongue between your lips. You can't do anything but cling to him, as he presses your body down with his, until your back is flush against the cushion.
When you open your eyes, what greets you is a pair of eclipses. Gone was the cruel Colonel, as he's replaced by a voracious brute.
The moment he opens his mouth, you know you'll be devoured by him.
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"Still super jealous as hell by the way.“
"Okay, now, can you…get outta my face?“ Steve annoyedly swats a hand at Eddie’s chest and ducks out of his space.
Eddie sighs and shakes his head. "Why are you-" He purses his lips, thinks. "You don’t…you still don’t like me very much, do you?"
At that Steve stops walking, huffs out an annoyed breath and presses his eyes closed. He turns to Eddie, looks at him with an expression Eddie can’t read and says, "No, Eddie. No, I don’t."
Eddie just watches him for a second, not sure what to do, studies his face, the furrow between his brows, the clear discomfort in his expression.
He scoffs. Getting a little angry. "Jesus, man,“ he says. "You just can’t get over it, huh? And here I was rambling on about how you were actually a good dude after all, but…no, turns out Steve Harrington is still just as much stuck in his stupid high school mindset as I would have thought.“
Steve just looks more annoyed now, a slight shift in his eyebrow and…he looks…frustrated? A little? How does that make sense?
"You,“ Steve says, voice low, but not because of the monsters, Eddie knows that much, "are unbelievable.“
Eddie blinks. "What?“
"Eddie, you’re the one who can’t get over it,“ Steve accuses him. "You always talk about that non-conformist shit and how people should just stop with the categories and drawers and labels but, dude, you’ve never judged people that way yourself! I have been saved in your brain as this dumb idiot jock ever since you’ve known me and…“ Steve huffs out an unbelieving breath. "And Eddie, I don’t know what to tell you…but you’ve never been nice to me. Ever. And when Lucas made the basketball team, which is amazing, by the way, you weren’t proud of him or supported him for that incredible achievement like you should have if he’s really one of your 'little sheep‘.“ He draws quotation marks in the air. "You punished him for it. You said you can’t make Hellfire? Fuck you. I’m just gonna have the most important part of the campaign without you, because you know what, you don’t deserve us anymore now that you’ve joined the dark side. Now that you’ve taken up a…a jock game. Because god forbid, somebody could actually ever enjoy playing sports.“
Eddie can’t follow. His mind’s lagging behind, still stuck on Steve apparently knowing DnD terms and saying he was never nice to him and-
Steve takes another step back.
"Eddie, for as long as I can remember you hated me. And yeah, sure, I was stupid and I did some stupid things, but…“ he shrugs one sided. "But I don’t think I deserve to be treated that way. I think I at least deserved a chance. And you never gave me one.“
Eddie blinks. "What do you mean I never gave you a chance, I-"
"Biology, sophomore year,“ Steve interrupts him. "We were assigned lab partners. I tried to really…put all of it aside, tried to get to know you, because actually, Eddie, you know what? I was sort of obsessed with you. Because you were so…loud and so unashamedly yourself, I admired you so much. You didn’t care about anything and you stood up for yourself and that’s something I’ve never been able to do, my whole life. I…“ Steve looks down, sighs a little. "I let people push me around because it’s the only way I feel like I can be of use. But you…you made me believe that maybe actually I…could do it, you know? Like, tell Tommy H. off or something…“ He looks so hurt. Eddie kind of wants to die. "But you…you acted like it was the worst thing ever, getting partnered with me. You didn’t even look at me. You…never gave me a chance, Eddie. So…sorry if one 'you’re actually a good dude, Harrington' doesn’t make me forget all of that, make up for it. Because I’m not so sure I believe you.“
Oh.
Oh no.
Eddie fucked up.
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