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#joint disorders
bukatra · 1 year
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Honest question: on the 1-10 pain scale, at what number is "shoulder dislocation" supposed to fall? Also, "partial hip dislocation" or "dislocation of the kneecap?" What would a normal human rate those at? Above or below a 5?
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audhdnight · 8 months
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Just thinking about the common experience of late diagnosed disabled people of “the normal amount of pain is none” and how we’re just supposed to know that despite *some* level of pain being OUR normal for our entire lives, even if it’s usually not super bad it’s just always there.
Thinking about how, when I told my mother this, she asked me “So what’s hurt?” Which is very different than “what hurts?”
I looked at her, confused. “Nothing is hurt. I just hurt.”
And she says “But where do you hurt?”
“Well, right now it’s my stomach and my ankles-“
She cuts me off. “So you twisted your ankle?”
“No,” I say. “My ankles just hurt. I’ve been walking today.”
Now it’s her turn to look confused. “Just walking doesn’t make your ankles hurt. You must have sprained them or something.”
But I shake my head. “Nope. This just happens on days when I walk more than a little bit. My ankles hurt first, then my knees by lunch time. And if I don’t take a nap and stay on my feet all day, my hips will be hurting too.”
“Oh.”
Joint pain is my normal. Sometimes, if I barely walk all day, the ache in my ankles is barely noticeable and doesn’t affect my functioning because I’m used to it. If I do what most able-bodied people would consider to be a “normal” amount of walking, almost all of my joints will hurt by supper. If I have to wash dishes or run any errands, I’ll hurt so bad I can’t walk for the rest of the day.
Then there’s the chronic migraine attacks. I used to have them multiple times a week as a child, and no matter how I explained myself, nobody ever understood that they weren’t just headaches. I experienced those too, and frequently, but they were not the same. Thankfully, at the age of eleven, I found an article explaining migraine triggers. I was able to identify a few of my own triggers, and the frequency of my migraine attacks reduced to maybe a couple a month. For a few years I was basically on cloud nine, I’d never experienced such a lack of pain before and it was so freeing. Unfortunately, migraine is a progressive condition, so the attacks have gotten more frequent over the years.
And then there’s the “random” pains. Some mornings I wake up and my stomach hurts. Or my chest. Or my back. These are just things I have to live with, because my body’s connective tissue is… well, for lack of a better word, faulty. And I never knew that other people didn’t experience this, because how could I? We never talked about it. Sometimes I’d hear people complain about back aches and just assume they were like mine. Of course, I knew that injuring yourself could cause muscle aches, obviously. But I just assumed that *most* of the time, other peoples bodies hurt like mine did. I didn’t realize that humans aren’t supposed to “just hurt” without a connected incident.
And when I try to explain this to able bodied people, their response is always the same. “Well, everyone’s back hurts sometimes.” “Everybody gets headaches sometimes.” “You’re not special just because you’re too lazy to walk. I still go to work when I don’t feel good.” And no matter how many times I try to say that No, you don’t get it, I *always* hurt, they still brush me off and dismiss me.
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basshole-astard · 1 year
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this is a friendly little post to say: if you find that doing stretches for wrist/shoulders/back/whatever either 1) don't help or 2) seem to make your pain worse, then please stop doing the stretches. the answer here is not to keep doing them becuase if you push through the pain eventually it'll get better, right?
listen to me. listen. stretches never did anything for me and at age 25 i learned i had hEDS, which meant 1) most stretches would never help me 2) depending on the stretch, could hurt me, so please. if they aren't helping. please do not keep doing them hoping that they will "eventually" help.
look into whether or not you have a hypermobility disorder or EDS or smth, great resource here: www.ehlers-danlos.com
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Link
The purpose of orthopedic devices is to treat and prevent injuries and abnormalities of the musculoskeletal system. These devices replace missing or broken bones, as well as provide support for fractured bones. Anchoring fractured bones and internal fixation surgery, in which implants are placed to cure broken bones, are common uses.
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neuroticboyfriend · 11 months
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there's a lot of talk about joint pain in chronic illness communities which like fair, it hurts like a bitch. but shoutout to my fellow spoonies who are painfully incapacitated by things like muscle spasticity and nerve compression. just because people can't see red, swollen, dislocated, or malformed joints doesn't make your pain not real. and extra shoutout to spoonies who deal with all these types of pain, because i know how hard it makes things.
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chaos-and-ink · 19 days
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Nothing About Me Is Straight
I'm making stickers based on my chronic illnesses for my final project in my art class. This is the first one! If people like them I'm thinking about adding them to my shop in the summer when I have more time.
Funny enough I killed my wrist and fingers trying to draw this. ouchie i need to buy some splints soon
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crippledpunks · 7 months
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maybe i like the way that my ehlers danlos syndrome makes my skin abnormally soft. maybe i like the way it makes my skin fold and hang in ways that i don't see on most other people. maybe i like that my body is unique and one of a kind. maybe i like that i have been told by previous partners that i'm a luxury to hold and that i feel great to touch and am great to look at.
my disabilities suck ass, yeah, no shit. i hurt myself and sublux my joints often. but i'm also allowed to like the parts of it that aren't all bad. i have an extremely unique skin texture, and i think that's pretty fuckin cool. maybe i'm allowed to like that part of it. maybe cripples are allowed to try to feel at home in our own bodies, as they are, without needing to feel like they'd only be happy if they were 'cured'.
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neilgayman69 · 3 months
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Casually daydreaming about the mobility aids I think would help me, ya know, like every able bodied person does.
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Dear (physically) abled people: the accessible bathroom stall is NOT for you.
And no, I don’t care if you’re neurodivergent.
Acceptable reasons to use the accessible bathroom stall:
You have mobility issues (visible or invisible) and need the support of handles/grab bars
You have disability aids, such as a cane or a service dog, that require extra space
You need space to catheterize, change a stoma bag, or perform another disability-related procedure
Your disability involves incontinence or inability to hold waste and therefore you need fast access
Unacceptable reasons to use the accessible bathroom stall:
You want privacy during a panic attack and therefore think that it’s ok to use up resources that aren’t for you (idc if you’re neurodivergent)
You want privacy during a meltdown and therefore think that it’s ok to use up resources that aren’t for you (idc if you’re neurodivergent)
You want to eat your lunch in the bathroom (idc if you’re self conscious about eating)
You don’t have actual digestive/gastrointestinal disabilities, but you just want to take a nice long shit
You want to take a break from socializing (idc if you’re autistic)
You want to have sex/make a phone call/get drunk/etc
Let me emphasize: your panic attack, eating habits, social anxiety, or whatever, is not a justification for using up a limited resource that isn’t for you.
I do not care if you’re neurodivergent or mentally ill or whatever. You’re occupying a space that isn’t meant for you. You’re appropriating a finite resource that some people have no choice to need.
Physically disabled people, such as myself, are not just annoyed, but materially harmed by neurodivergent people who think they have the right to occupy the accessible stall for their panic attacks or what have you. We can get UTIs, other infections, rashes, and pain from not having access to a useable bathroom… waiting 20 minutes for you to eat your fucking salad in the accessible stall while we are in wet underwear/diapers is not ok.
Don’t use the accessible toilet if it’s not for you. End of story.
Edit because y’all are putting words into my mouth: this isn’t about invisibly disabled people. This isn’t about me standing outside every accessible toilet trying to judge whether or not each individual is disabled enough. This is about a broader trend of abled neurodivergent people speaking over physically disabled people.
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Moves joints: ow
Doesn’t move joints: ow
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im-secretly-a-frog · 3 months
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I love to crochet. I love it, and it's one of my favourite things to do, but it's really hard. Not just because of the skills I need to develop and the physical and mental load it puts on me. Because I have sensory issues and joint problems. I can't crochet for too long or my hands hurt. my wrists hurt. I need to take breaks all the time. I need to stop and stim for a while to distract myself from how the yarn feels every so often. and all this is when I wear a glove. After I have already made accommodations for myself and my needs.
And I get told that I'm not really disabled. That I'm looking for attention. Yeah, I can't do the things I love as much or as well as I used to be able to because of my deteriorating joints, and you think I'm faking it? I cry because I'm not able to do a simple hobby that I love and you think I'm looking for attention???
Autism is a disability. People who have undiagnosed conditions are still disabled.
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cyber-therian · 16 days
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im really struggling with feeling good about myself since developing these knee issues
i saw a video that was like “go on a walk; if you do youll be happier”
and like, yeah, i would, but i cant. it will wear my joints down more than they already are. im sorry im failing myself and you because i cant do it. im sorry and i wish it was different.
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tumble-tv · 2 months
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i want to scrub all of my joints with steel wool and replace my cartilage with hot glue in hopes that maybe that will ease my pain for once in my life
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justaminnow · 10 days
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I think I misunderstood the song because my leg bone is NOT connected to my hip bone.
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neuroticboyfriend · 1 year
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to my fellow hypermobile ppl, if you are turning while standing... do not simply rotate at the hips. it can fuck up your knees and hips.
instead... lift up the foot on the side you are turning towards. rotate that leg AND your torso towards the direction you want to go in. put foot down. bring your other foot in line with the first foot. make sure your feet point straight when you do this.
tada. you have turned more safely. if anyone knows a better way to turn please add on. may your joints not crumble.
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chaos-and-ink · 16 days
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EDS/POTS/Scoliosis Stickers
All of these will become available on my shop in June. You can follow my page on Ko-Fi to get an email update when they're for sale so you don't miss it :)
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Tomorrow is the last day of my class and this is my final project. Chronically ill stickers. I definitely plan to make more but this is what I have so far. I can't wait to sell these in the Summer and if anyone has suggestions for what kind of stickers I should make next, absolutely let me know! I love getting sticker ideas from others.
Reblog to share them around :) I'd really appreciate it.
Here is the link to my shop : Chaos And Ink
Image Descriptions are from left to right
[ID: A skeletal leg with the knee hyperextended and a rainbow behind it. The text reads 'Nothing about me is straight' / A crooked vertebrae column with a rainbow behind it. The text reads 'Nothing about me is straight' / A zebra pattern awareness ribbon with the initials 'EDS' on the right side / A skeletal arm with a hyperextended elbow and a rainbow behind it. The text reads 'Nothing about me is straight' / A blue awareness ribbon with the initials 'POTS' on the right side / A black leg with a hyperextended knee and a decorative vine tattoo on the thigh. The text reads 'Clinically too bendy' / A white wrist and hand with the thumb pressing against the forearm. The hand wears a ring and bracelet and has a tattoo that reads 'Enough'. The text reads 'clinically too bendy' / A latino arm with a hyperextended elbow and a bracelet and watch. The text reads 'clinically too bendy' End ID]
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