Please enlighten me #EDS #EhlersDanlos #EhlersDanlosSyndrome #hEDS #HypermobileEDS #HypermobileEhlersDanlosSyndrome #Hypermobility #Hypermobile #ZebraStrong #EDSZebra https://www.instagram.com/p/Crmgpn5ravN/?igshid=NGJjMDIxMWI=
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Visual expression of my chronic illness/pain
Explanation The black separated parts are subluxations exeped the black in the tummy that's gi problems. The red parts (except tail) are nerve pain, cramps and migraines/cluster headaches. The background is brain fog/cfs. Bandaids are eczema/allergies
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#Repost @smilethrough_eds Oh my gosh, this is absolutely gorgeous and I LOVE it!!
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Spoonie power!!
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hi help
let me preface this with an explanation that my general practitioner is currently 2+ hours away and the doctor that is referring me to my neuro and stuff is my rheumatologist (💘💕💗💖) because i recently moved so i dont think she can help me and basically it’ll be a little complicated to see a dr soon
every time i lift my shoulder more than 90 degrees and then put it down i see hear and feel it pop out of socket, most likely subluxing or dislocating it and it is not only annoying but it looks gross and will occasionally make my shoulder sore and it even pops out while raising my hand or reaching for something or lifting stuff heavier than like 3lbs. my left shoulder has begun to do it too and at certain times makes this gross cracking noise.
tl;dr: my right shoulder subluxes (albeit not very painfully) dozens of times every day and i’m tired of it - does anyone have any suggestions? any quick fix for recurring subluxations i.e. sling, ace bandage, particular brace to make it stop?
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It is Ehlers Danlos Syndrome awareness month, so you'll probably see a few more EDS related posts from me this month. There are 13 types of EDS. I have hypermobile EDS (hEDS) which is the most common types and has many similarities to hypermobile spectrum disorders (hsd). #Repost @pawsomepurrtraits (@get_repost) ・・・ As some of you may know I have what’s now known as Hypermobile Ehlers Danlos Syndrome which is a disorder causing loose painful joints, fatigue plus many more symptoms. It’s EDS awareness month and to highlight this I will be completing my 50 state drawing challenge portraits in black and white, look out for these special pictures over the month! . . . #artistsoninstagram #zebra #zebrawarrior #butyoudontlooksick #invisibleillness #thinkzebra #blackandwhite #eds #heds #ehlersdanlossyndrome #ehlersdanlos #hypermobilitysyndrome #hypermobility #hypermobileehlersdanlossyndrome #edsawareness #edsawarenessmonth #hypermobilejoints #edszebra #edsawarenessmonth #hypermobileehlersdanlos #edszebrawarriors #edszebras #hypermobile #edszebrasuppport #awareness #hypermobileeds #hypermobilityawareness #hypermobilityspectrumdisorder #awarenessmonth
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Spoonie things - PE
When you try and play football for your PE practical moderation day and play for half and hour then throw up because you're so unfit now...
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Um hi yes would it be possible for me to get one day without feeling awful?
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me: aw man my old sports injury is acting up
you, an intellectual: you subluxed your shoulder on halloween while limbo dancing and now you did it again while bending over to pick up a cat
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Bahahahaha. Can you freakin imagine???????⠀ ⠀ ⠀ Friday Fun One 😂😂😂 #hypermobility #hypermobilityspectrumdisorders #theehlersdanlossyndromes #hypermobileEDS #positivehelpforhypermobility #ehlersdanlos #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #spoonie #zebra #chronicillness #pots #dysautonomia #chronicpain #chronicfatigue #mybendybody #hopeforhypermobility (at Hypermobility Connect)
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Someone can tell me how to replace a subluxated shoulder ? I always struggled a lot
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'RuPaul’s Drag Race' winner Yvie Oddly on performing with Ehlers-Danlos syndrome and chronic pain: 'I don't know what my time limit is' http://dlvr.it/RL9YGb http://dlvr.it/RL9YGb
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I made a funny. I'm sleepy. I sleep ♡ #ehlersdanlos #edslife #eds #hypermobileeds #dysautonomiaawareness #dysautonomia #connectivetissuedisorder #posturalorthostatictachycardiasyndrome #chronicillness #chronicfatigue #chronicillnesscommunity #chronicillnesshumor #igdaily #igdailypic #zebralife https://www.instagram.com/p/B4ujFYcHDkf/?igshid=1i121ehk9zfou
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Too much gaming this week has broken my hands 😅 Plus dizzy and fatigued today (think it's the heat). But Elder Scrolls Online is just so much fun! . . . #chronicpain #chronicpainwarrior #chronicpainawareness #chronicpainsucks #chronicpainlife #chronicillness #invisibleillness #spoonie #chronicfatigue #fibromyalgia #spoonielife #butyoudontlooksick #chronicillnesswarrior #hypermobileehlersdanlossyndrome #hypermobileeds #hypermobileehlersdanlos #hypermobilejoints #hypermobilespectrumdisorder #hypermobileproblems #hypermobilejointsyndrome #ehlersdanlossyndrome #hypermobility #hypermobilitysyndrome #eds #ehlersdanlos #zebrastrong #dysautonomia #posturalorthostatictachycardiasyndrome #heds #toomuchgaming (at Bath, Somerset) https://www.instagram.com/p/CA3DHFdDAnZ/?igshid=199znmjt0yx0a
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In reference to my last post, you can literally see the days I’ve been down by how little I walked, as low as 4-5,000 steps, and the days I’ve felt a bit better, like today.
- 17/01/2000
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