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#and i literally cannot afford to go to the hospital
bloodanddiscoballs · 3 months
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I think my body should just not be disabled anymore
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I think every autistic person should be granted a personal assistant to finagle appointments/paperwork/phone calls/etc
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shadowkira · 3 months
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I lowkey want to do YCH commissions for Baldur's Gate but I'm still moving too slowly. If I'm able to get back to sleeping somewhat normally maybe I'll function better but we've got one income and so many bills coming in.
They did a bunch of stuff today and now want me to do a CT in addition to a bladder scope. 🥲
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clearkneemomjeans · 2 years
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What I really liked about the Buck and Eddie talk in the hospital, when he tells him he’s made him Chris’s legal guardian, is that it showcases how Eddie knows Buck better than anyone else. Bobbie, Athena, Hen, Taylor and even Maddie complain that Buck acts like he’s invincible. Their grievance is with his apparent lack of self preservation on the basis that he thinks himself untouchable.
But Eddie sees past that. Eddie knows that Buck doesn’t consider himself indestructible. He gives Buck the most credit by not treating him like a reckless teenager. Eddie sees that Buck’s apparent temerity comes from a place of deep self depreciation. Buck thinks he is expendable and therefore takes risks that other cannot afford.
And Eddie has been treated to this side of Buck since literally day one. Eddie realized pretty soon that Buck’s issue with him was rooted in fear that Eddie would take ‘his spot’ at the 118 (because Buck thinks he’s easily discarded). Eddie saw Buck struggle with his downtime after the accident and his fear of being easily left behind by the 118 (because he thinks his only value is his work as a firefighter). Eddie saw Buck go through the trauma of the tsunami and the guilt of losing Christopher and nearly fall apart by regret when he couldn’t save him (because Buck’s trauma and survival are secondary to those of others). Eddie hard Buck said he should’ve been shot instead, probably heard about him making that climb to draw fire from the others, and knew Buck wouldn’t understand that his well being is as important to him, to Christopher and to the 118.
And every time Eddie encounters that attitude in Buck, he pushes back. He says “I’m not replacing you, I’m counting on you (because your help matters”. He says “you’re not a firefighter but this kid, my kid, loves you and you can be of service to people you love”. He says “you did everything in your power to protect him, you are not a disappointment, you didn’t fail him”. He says “your survival matters, because I trust you with the one thing I love most in the world”.
And then he really says it. “You’re not [expandable]”. Because Eddie sees Buck better than anyone else.
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chemical-killjoy · 5 months
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Here's a few reminders about the current heat wave in australia and global warming.
Things you may not know:
2023 is the world's hottest year on record, and 2024 is looking to be worse.
Heatwaves are Australia's deadliest natural hazard. Let that sink in. It's not fires. We all know how devastating those are. It's not floods either. It's heat waves. It's not just a little heat, it's a hazard.
With the cost of living and inflation currently happening, a lot of people are rationing air conditioning or can't afford any. This puts more people at risk
It's not just the heat, but the humidity with it that adds to the danger
If you live in a suburban area, you are more at risk, as the concrete and lack of trees traps in the heat
The La Nina (sorry my laptop won't let me do the tilde) years we're going through are now hotter than El Nino years 50 years ago.
Risks with the heat wave and temperature rise in general:
Heat stroke can make you quite nauseous, so you may not be eating enough, making it harder for your body to look after itself.
There's such a thing as over-hydration and it can be just as serious as dehydration
With hotter nights it's harder to sleep - another thing effecting how well your body can handle things and cope
A cold beer can sound soothing, but alcohol warms you up, as well as dehydrating you, and causing lower blood sugar; keep this in mind as you enjoy, make sure you get plenty of water as being dehydrated with this shit is... let's say, subpar.
Heat exhaustion is real, no one is able to think lightning quick with the brain fog that comes with this heat. That means if you're not fully with it, things like driving become more dangerous
If you can't cool down within 30 minutes when you have heat exhaustion, or worse, heat stroke, it can become deadly
If you have a mental health disorder (and if you're on tumblr, chances are you're either neurodivergent, lgbt+, mentally ill or a funky mix) the heat literally changes your mood and exacerbates things. This has been linked to an increase in suicides and attempts, please make sure you have a support network in place, as if things are hard, call Lifeline on 13 11 14, or 000.
There is a point where sweating doesn't help as the hair is saturated/there's high humidity and the sweat cannot evaporate, therefore not cooling you down
The heat can kill, the link at the bottom of the page tells you how
Safety tips:
YOU ARE NOT STRONGER THAN THE FUCKIN SUN!!! Please make sure you are wearing sunscreen if you have to be outside or even near a window. Sunburn and cancer aren't funny, it's painful and deadly.
Drink plenty of water. No one cares if you look uncool carrying around a water bottle, because they either are as well, or are putting themselves at risk. If you're putting a bottle of water in the freezer for the next day, make sure you have non-frozen water to drink straight away
Seek shade as much as possible, even if it's carrying a small umbrella with you, or literally just a cap. Anything is better than nothing. This includes sunnies.
Cold baths and showers. I don't care that they're not pleasant, they can save you. If you have heat stroke, one of the best things to do is to have a luke-warm bath (as this temperature will likely already be painful - I saw my sister go through it) and make it colder to cool yourself down SLOWLY (but really, best advice is to call the doctor, 000, or go to the hospital)
Keep an eye on your body temperature if you can. If it gets over 41'C, your body begins to basically cook itself inside out
If money is an issue and you have a working air conditioner, set it to a higher temperature and turn on a fan. This will make the air feel cooler while saving money
If you don't have an aircon, here's a link on how to create a makeshift one
Alternatively, take turns with your mates going to each others houses to all be in an air conditioned room, while saving money of not having your aircon on everyday.
Aloe Vera at night when you're sunburnt will help ease the pain and cool you down. Also things like using mint body wash will make you feel cooler
I know we're all sweaty but do NOT overdo it with the deodorant. It will clog up your pores, you won't be able to sweat... this is bad
Take a break from exercising; your body will not start to deteriorate muscle until about 3 weeks of not using said muscle passes (I learnt this from my physio). If you're struggling with the idea of not exercising for a while, you might be struggling with over-exercising or an eating disorder - please think this over and consult a doctor.If you need to continue exercise for medical reasons: make sure you are in a cool area, hydrated, have time to cool down after your workout, and do NOT attempt anything too intense. No HIIT or anything high intensity. Aim for things like yoga or pilates (it's not just for women!!!)
You can buy hand held misting fans from kmart for $5 (these really work... I was at a concert in 41'C heat and the lady next to me had one... it helped so much)
Now is not the time for body insecurity, you are fucking gorgeous, I swear, just put the fucking crop top and shorts on or go topless if you can. It's too hot for insecurity
Make sure you've got a good fly screen and leave your doors/windows open but locked over night to keep you cooler. If you don't have a fly screen, try putting a mesh curtain over the door/window.
Silk sheets are not a good plan, you want cotton for absorbancy
Stop having hot meals. You need something cooler, no one gives a shit if you're having weetbix for dinner if you're not dying from your body temperature rising!! It's already gonna rise from the energy expenditure of digestions! So just eat something cool, ok? And make sure you're getting enough carbs, they're not evil, they keep your brain functioning, and you need that extra help with the heat fog brain.
Last of all don't be afraid to call 000 or your country's emergency/crisis number. Thanks for reading and stay safe!
Here's the link to where I got most the info, feel free to add more info to this!!!
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thesurestthing · 2 years
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21 September 2022: URGENT Disabled US family overseas in danger of separation and imprisonment in bureaucratic/medical nightmare
TL;DR: Through no fault of our own, we have a little over a month (possibly two) to come up with an estimated 7,000 USD--possibly more--in visa overstay fees, clearance fees, and travel expenses (even though we COULDN'T leave before) or risk possible separation from our daughter and indefinite imprisonment until those fees are paid. 
We ( @anexperimentallife, our daughter, and I) are a US family in the Philippines who, through a combination of illness, lockdowns, complicated  pregnancy, a mistake on our daughter's birth certificate, and sluggish bureaucracy, have been unable to leave the country with our baby daughter. Now that we've gotten past most of the bureaucratic hurdles raised by both the Philippines and US, we're being charged for involuntarily (and I stress that it was involuntary) overstaying our visas while we waited for them to sort things out. The Philippines jails people who cannot pay their overstay fees indefinitely, until someone pays them. We have no idea what would happen to our daughter if worse comes to worst.
We could have afforded all the fees if not for all the unexpected illnesses, pregnancy complications, and bureaucratic issues, which we already had to spend a heavy chunk of donations on.
We've already gone over 13,000 USD in debt for all this, despite previous donations, and our only income is Rob's disability, since I (Zoey) am not legally allowed to work here.
Here are our donation links. We prefer pay pal donations, because they take the lowest fees, but we can also accept donations through go fund me and ko-fi.
pay pal: https://href.li/?https://www.paypal.com/donate/?hosted_button_id=AAPN4HRA9YLA4
ko fi: https://href.li/?https://ko-fi.com/anexperimentallife
go fund me: https://href.li/?https://www.gofundme.com/f/family-riding-out-covid-overseas
Thank you all again, beyond words!
In-depth explanation:
The long version (and story to date): We are an interracial, neurodivergent, disabled US couple in the Philippines (*see below for explanation). Rob got sick, and nearly died, at the very beginning of COVID (March 2020), and had to be hospitalized literally the day the first lockdown started. Unbeknownst to anyone, this would be the start of nearly two years of lockdowns and inter-city travel restrictions that changed sometimes overnight with zero notice. There were occasions when people who were already in the air were not allowed to enter. Even if not for the lockdown, Rob's doctors agreed that his health was too fragile for travel with the possibility of getting COVID again.
A few months later, still under lockdown, and with our visas about to expire, we found out we were having a baby. There were complications that required me (Zoey) to be hospitalized twice during the pregnancy, and Eleanor was delivered by C Section in March of 2021 (still under lockdown). Also, by this time, we were having to pay overstay fees because Rob’s visa had expired.
An error on El’s birth certificate prevented us from registering her as a US citizen, meaning she could not get a passport, meaning that even if we (Rob and Zoey) could leave the country, Eleanor could not come with us. We did not find this out until August 2021, when we were trying to register her with the US embassy. (Again, since travel restrictions changed at times with no notice, we could not take the chance on leaving the country without knowing when or if we'd be allowed back to reunite with our daughter.)
Thus began a bureaucratic fight with the Philippines bureaucracy that took nearly a year’s time, two lawyers--one of whom had to sweat an affidavit that fifteen was a larger number than fourteen--a priest, pediatric vaccination records a pediatrician’s word, a baby book, a newspaper publication of our daughter’s birth, and a favor from a friend, just to get the Philippines to correct her birth certificate. (If you're wondering how hellish the bureaucracy is here, one of our local friends is still officially named "Baby Boy" in his forties, despite years of his best efforts.)
In the middle of our legal battle in October 2021, Rob got COVID (again), nearly died (again), and had to be on an oxygen machine for a month. Shortly afterwards, the left side of his face also became temporarily paralyzed from blood clots, and clots unseated the retina in his right eye–he’s still in treatment, but the doctors aren't sure he will ever fully recover.
In May of 2022, the Philippines finally gave us El’s “corrected” birth certificate (with a different middle name than the one we chose for her, but we couldn’t afford another ten-month legal battle).
After this, I emailed the embassy to be certain that we would have an appointment shortly after submitting all our paperwork and the necessary forms. They emailed back and said yes, we would have an appointment between 3 and 10 business days from the date that they received our paperwork. So we planned our long and expensive trip down to Manila, and once we were there we sent in our paperwork. After a few days we get an email saying that our appointment was scheduled for the END OF AUGUST. This was in June, so they screwed us over majorly. It cost us over 200 USD just to get down to Manila, and over 1300 USD to stay there.
While we were in Manila, we finally decided to get an evaluation of Rob’s ingrown and chronically infected big toenails. At this point he had had the nails removed at least 3 times during COVID lockdown in Baguio, and they kept regrowing and becoming infected over a period of two years. During the consultation it was determined the nail bed would need to be cauterized to prevent the nails from becoming ingrown and reinfected. To have this done in a satisfactory medical facility cost us 800 USD. We had to stay in Manila an additional 2 weeks or so following this, and spent another 200 USD to get home.
During the preparation for Rob’s surgery, his blood pressure was alarmingly elevated, so after we got home to Baguio we had him consult with a cardiologist and have made medical and dietary changes to mitigate this. (This is apparently another effect of long COVID.)
His toes were still infected and resisting all the antibiotics that had been tried, so he had to go see an infection specialist and have testing done to make sure his bones weren’t infected. Luckily they weren’t, and after an actual wound culture (which no one had thought to do until after two years of this) and this latest round of heavy duty antibiotics, it is finally cleared up.
That brings us to August 2022, when we went back down to Manila again for our appointment scheduled with the Embassy. Luckily everything went well, we had all the correct documentation, and Eleanor was formally declared a US citizen. It’s been a couple weeks since then and we now have her passport. Rob and I were also able to get married over Zoom through the Utah court system, which is a huge relief for us and something to bring us some joy in this whole mess.
Unfortunately, this is not the end of our ordeal. We still have Eleanor’s immigration fees to pay and we have to secure an exit clearance for each of us before we can leave the country to reset our tourist visas. The hope and the goal is for us to be able to get the SRRV, which may be anywhere from 5,000 to 12,000 USD, which will allow us to stay here without the hassle and expense we’ve been going through, even if there’s another lockdown.
Everyone’s monetary and emotional support through this whole thing has been so wonderful, and we are so grateful to you all. Hopefully we’re able to resolve this soon but even after we get things somewhat settled, we still have an overwhelming amount of credit card debt staring us right in the face.
(* “Why were you in the Philippines to begin with?” After Rob's two adult sons died, he moved to the Philippines both to fulfill a decades-long dream, and to make his disability payments stretch further, as it’s basically impossible to live on in the US. I started talking to him online a few months later, and eventually flew over to be with him. Until COVID, everything was fine here financially--a family of three can easily live on under a thousand USD a month here.
It was only all the bureaucratic and legal hassle stemming from El’s birth certificate error, covid, the national lockdown, and the unexpected medical issues that put us in a tight spot. It’s fairly common for people to move to the Philippines on a tourist visa, renew every two months for 40 dollars until they hit the three year mark, at which point they have to leave the country for a day to reset. Thanks to ever-changing travel restrictions, Rob's health, and then El's stateless status, we were unable to do this.)
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talkethtothehandeth · 2 months
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Why is everything medical so expensive (aside from the fact they want us dead) like $1.5k to get my lungs tested, $880 for fucking blood work and my endo surgery??? My endo surgery to remove pieces of uterine tissue throughout my abdomen and off of my organs??
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People say I’m lucky for being on Medicaid and receiving the bare minimum of SSI aid (I couldn’t live on it at all, I cannot save because of bills) and I am so privileged to even have these services. I am SO thankful that I can get help for free, but I am not receiving adequate care; my body is trying to, quite literally, kill me again.
I am so fucking blessed to have no medical expenses, it is something I will forever be grateful for because I’m probably never going to get off of it. I’ve been on Medicaid since I was 3 when they declared me “legally” disabled (yes, really).
Also the government is so horrible with disabled people. The only reason I have this is because my mom fought for me as a kid so hard just so I could be okay. I appreciate her always and I can’t express it enough, the level of gratitude I have for this.
I would die without having Medicaid, but I cannot get certain aids, I cannot have access to doctors unless they approve it, I cannot have any medication they don’t approve, any braces medicaid pays for fall apart and lose their stability because it stretches too much. I cannot go to doctors outside of my main hospital without a referral and approval. I cannot afford to be sick, that is the biggest problem.
Free healthcare seems like a dream, but it is not. Yes you get coverage, in exchange for only being able to have $2k at any time for any reason, not being able to marry your partner, you cannot choose a doctor on your own or where you need to get treated, you don’t have access to eye or ear care, you cannot get into a dentist because there are such few places that accept it and it is full because everyone is fucking poor which means the waiting lists are so long that by the time you’re able to see a doctor, they send you to a new one since your symptoms got worse and out of their field. There is a reason I’m on Medicaid, and it’s not because I have thousands of dollars in my bank account.
Although it is absolutely a privilege, without financial aid I would die. And I fucking hate that this is a reality for so many people. It makes my blood boil knowing we have enough resources to take better care of people, but the government literally refuses to do anything unless they think you’re bad enough. And when you are bad enough to their standards, it’s a whole other type of price to pay.
Tl;dr: people deserve low cost or free healthcare and it is incomprehensible to me how the American health system can just charge you whatever they want for whatever reason when all you want to do is live
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blackwoolncrown · 1 year
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Yeah I put this in the tags but it bears focus-
I’m no professional on the matter so I can only wager a guess but a huge amount of the population of the US is in a Slow Death situation.
We don’t have accessable health insurance, a pandemic is raging. Hospital costs are completely unaffordable if you do get sick. Jobs are hardly hiring and none of them are paying wages that can compete with the ever-rising cost of living, not to mention the astronomical and impossible rent prices (the fact that a majority of us cannot afford to buy a home but homes are being bought by bank bots notwithstanding).
Literally, for example, one of the things that drove me out was that there was nowhere I could move. ‘Downsizing’ just isn’t a thing. All the prices are high regardless of how reasonable it is for the size and in the meantime most work fields just cannot provide a living wage....
Much less the ability to save money...which is what ppl would need in case any unfortunate event came along (in a pandemic).
Meanwhile what’s actually happening is like global water levels- a creeping rise in costs and lack of support meaning every day everything is costing more and you’re making less and draining your savings and your energy trying to keep up but no help is in sight bc it’s year 3- almost 4- of this.
I don’t mean to be a downer but that’s literally what’s happening in the US rn. t’s a slow bleed, frog-in-hot-water situation. It’s bad. Everyone I know back home is shacking up w each other just to afford rent and food and these ppl are making good money. It doesn’t matter.
Despite working 3-4 businesses non stop basically all day every day I couldn’t afford to stay and couldn’t afford to leave either without crowdfunding- but I made the bid to go bc I literally could not see a livable future there and literally every mmonth it got more expensive. Literally my body could not produce enough money to keep up and afford just staying alive in the US.
It’s suffocation.
Capitalism is beyond late stage. It feels darker than that rn, at least in the US.
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lwh-writing · 3 months
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After literal months of my healthcare giving me the runaround and being bastards in general, I have finally gotten my updated COVID vaccine!
All it took was going "fuck this, fuck them!" and directly scheduling with my local pharmacy. The entire process took 15 minutes: 3 to schedule the appointment online (for free), 5 to walk to my local pharmacy (also free), 1 to tell the guy behind the counter my name and date of birth (once again free), 4 to wait for the guy to get ready, and 2 to get the shot and confirm that the entire thing was covered by my insurance (not technically free but it certainly felt that way).
Moral of the story: if your healthcare is being a bunch of slimy bastards and trying to gatekeep essential care from you (and vaccines are very essential), odds are there are easier and cheaper options available to you that they don't want you to know about. For COVID vaccines in particular, look into the local pharmacies in your area and see what they're offering. Especially if your health insurance is trying to scare you into waiting and/or trying to make you go to the hospital or some far-off "clinic" that is over three hours away by car. The key phrase they used on me was "We cannot guarantee any care that is not provided by your primary physician and/or usual pharmacy will be covered by your insurance policy."
Yeah, I'm calling BS. Even if you're uninsured and can't pay anything out of pocket, I'd say talk to the local pharmacy anyway. It certainly can't hurt. My only regret about all of this is not snapping sooner and getting vaccinated months ago. And before anyone gives me shit about waiting this long to get the new vaccine, please remember that 1.) I have been actively trying to get this shot since October and 2.) I am a broke college student who thought the only way I could afford this was through my insurance because the United States's healthcare system is the thing of nightmares.
Stay safe, stay healthy, and get yourself vaccinated.
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cereusblue · 7 months
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A minor piece of advice from a Healthcare worker, listen to the reviews on emergency rooms before you ever have to go to one.
As someone who just went to the ER today, I'm glad I knew what I was getting into. The big hospital in town has been known to make people wait for over 24 hours before even moved to Triage, which for those who don't know? Is the first stage after being checked in. This is where they take your vitals/urine sample/and ask you basic questions on what's been going on. Literally the one I went to today? 15 minutes till triage. We were there a total of like 2.5 hours. People who very nice. The other hospital? A family member had to go to via ambulance. Took us 4 hours just for a nurse to look in his room and tell us he could be seen. And this is before greed took over and they fired their good nurses. And I'm talking a shit ton. Like 30% of their nurses. (Maybe not that much, I'm kinda outta it right now and I'm not looking up statistics for privacy.)
Next thing is my pcp is apart of the same organization as the ER I went to. So I didn't have to do the shitty intake stuff too. So that was nice. They also had all my previous x rays.
In short, you will eventually have to go to an ER in your area *eventually.* Please, please do your research and weigh your options. Also, always, always when you move somewhere establish a new primary care doctor. Because when things happen, they are a much cheaper option (in USA) to follow up with rather than the ER. They will also help refer you to the places you need to go. When you get hurt, having places to turn to that you know you can rely on is so, so important and makes the process so much easier. When you're hurt, you're going to be exhausted. Having the quickest path to recovery/diagnosis is so important. Because there are many things the ER cannot diagnose you for. Viruses and the like, broken bones, easy as pie for them. But deeper problems? Not so much. Make sure you have a support system ready just in case.
Also if you live in the US, your specialists/pcp NEED to see you within 3 years to keep you considered an active patient. So if you can't afford two times a year or even once a year? Go back every two years for them to check in on you. This will keep you active and not have to go through the new patient process again (because insurance sucks.) Re-establishing care after those 3 years means they have to consider you a new patient and the appointment can take months to get to. The best option I had when I established my pcp when I moved here was 3 months out. The next best was 9 months. No I'm not kidding. Every, and i mean *every* other pcp in town were at capacity and couldn't take new patients. Set up your pcp because you never know what the area around you is experiencing.
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witchy-aunt · 20 days
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Okay so has anyone ever seen the madness I watched on Amazon prime due to auto play that is Shrieker 1998?? Because literally the movie makes no sense and sucks and besides that the characters are all so fucking silly to me so like you have;
Elaine who’s only personality trait is that she’s quiet, and for some reason she’s on the front of the poster for the movie.. she’s also the movie only real sex appeal because of the singular scene with her shirt off which is featured in the cover
David the perpetually angry untrusting guy whos honestly pretty reasonable the entire movie
Mike whos just really straight (no he literally has to make this apparently clear for humor purposes— he goes on a 30 second defense spiel about how he is straight.)
Tanya who’s only personality trait is that she’s a communist and she wears camo (I so wish I was joking because that feels so outlandish to write)
(My names get messed up here bc I don’t wanna check the IMDb page to check actors names out, but google is making it super confusing because I can’t tell who’s who in the cast from the poster and the photos of the actors available not looking anything like eachother!!)
clark our boring final girl who gets herself in a stupid situation and I cannot feel for like AT ALL
Zak the love interest who’s main personality trait is that he’s dumb and I’m not even entirely convinced he even likes Clark like… I think bro just wanted a fuck buddy and then they got trauma bonded (how all good relationships start)
Robert the bad boy weirdo freak that tells Clark about the shrieker (the creature you summon who kills everyone) but he’s like stupid and I still don’t understand his motives and he tries to be like this deep character but it just doesn’t work!!!
now I have yet to even get into what this movies about, essentially Clark meets Zak who has this abandoned hospital he lives in with the rest of the cast because he can’t pay for a place to live while going to college and Clark is like “ohmygod you guys are so genius I can’t afford to live and I should definitely put college over my own living because that’s a really smart beneficial decision” so whatever that’s that then the next day or whatever this weird ritual shit is found in the Basement and they’re all pointing fingers because Clark just got there and the girls sus!! later on she meets Robert who’s like this weird freak who has secretly been living in the basement and she’s like “omg it’s you doing it isn’t it” and then he educated her on shrieker lore and the shrieker is like this demon guy who literally looks like he came straight from goolies like he looks like an 80s practical effect not a fucking 1998 films n she has to keep it all secret or whatever while remaining extremely eus and then everyone fucking died and Robert turns out to be crazy and Clark ends up with zak and movie over but like WTF?? Like I don’t.. what? Like why? I’m also still so confused about the shrieker and his lore and the symbols like it’s all so stupid and I need someone to watch this so they know what I also had to endure.
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resisting the impulse to blame my Covid-cautiousness on my anxiety disorder. everyone else in my family is blaming the anxiety, but actually, I am Covid-cautious because I am already chronically ill and cannot afford to get iller, or even really to get sick, have a flare, and go to the hospital again. Covid-cautiousness is a responsible position and I should not join my parents in acting like it's a brain disorder.
(also: my dad, a literal millionaire, is trying to convince me to start taking Ubers to the hospital when I'm actively vomiting every couple of minutes because "they won't mind as long as you have a bag" which I think is not true and is kind of a rude way to treat Uber drivers if you can help it).
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tvckington · 2 months
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the depresso something fierce these last few days, vent under the cut
all weekend I couldn’t do anything at all, I only felt comfortable existing in front of my pc and in bed and I haven’t left the house in over 48 hours. I know that’s not good for me either. I haven’t even touched my laptop for homework and now I know I’m definitely failing at least one class. I have an accelerated class that starts next week with assignments due every day and I literally cannot afford to feel like this rn. I’m torn between the thought of going to the hospital or just sitting it out for a few more hours just to see if it’s a silly goofy bipolar mood swing.
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brightgnosis · 5 months
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One thing that always gets my goat, that I've been thinking about a lot lately, is when people complain about the price of a relatively simple medication; something that's like $10, maybe $15 or $20- or less- if you don't have Insurance to cover it. It's not expensive. But they piss and moan to the high Heavens about the price of it, like it's absolutely going to throw them into abject poverty to have pay this astonishingly cheap price (for a medication they can most likely survive just fine without, no less).
Meanwhile my main medication for my Fibromyalgia? If I miss one dose, I'm in excruciating pain within hours that makes it difficult to so much as move from my bed to my couch. Sitting is painful. Existing is painful. Having to go without my medication for more than a day comes with debilitating withdrawal symptoms I may be hospitalized for if they get bad enough.
And if I don't have insurance- or if the parent company that produces it decides to get rid of its savings program- there is literally no way for me to afford this medication. Period ... Because with their savings program and my insurance, my prescription is just $20 a month (Baruch HaShem). But without that savings program, with my insurance, it's $180 to $200 a month depending on what kind of a stunt my Insurance wants to pull about my Prior Authorization this month (when originally it was $80, before they decided to no longer cover it, then fight me on my PriorAuth). With just the savings, without insurance at all, it's $380 ... And without either Insurance or the savings program at all? A single month costs me $500.
I don't have a choice in whether or not I get to take this particular medication, either. This is the only medication that works for me to treat my Fibromyalgia- and it also happens to be the only medication in the world that's actually designed specifically for Fibromyalgia to begin with. And there's no generic version of this medication in existence, either. "Name brand" is the only one that exists, because it's still under the 20 year patent protection.
All of the other options I can use are SNRIs- all of which we've tried, and all of which had horrible side effects for me. Mostly because genetically I'm at an extremely high risk for Serotonin Sickness and a number of other symptoms that can come with this class of Drugs. Which is a significant problem when they (and several related classes) are used to treat both Fibromyalgia and a number of mental health conditions that I have.
I have to be on this medication permanently. I literally cannot use anything else, and (at least until the patent expires) have no other options. I literally cannot afford to lose access to this medication. So I'm sorry if I can't garner all that much sympathy for the $10 price tag on your generic medication that you only need temporarily.
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fivebyfivemidnight · 3 months
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Let me scream into the void real quick because
Wrens got a tumour and it might be cancerous
Gotta somehow get together probably around $2000 at this point unless I find an aid facility that'll give me concession prices.
Not to mention my other dog probably needs dental work.
I'm still really sick and I've got to go under general anaesthesia to find out what's wrong. I was hoping it was a one off but keeps happening.
Keep being fucked around by the hospital the referral has been lost twice, and it's been over 3 weeks of feeling not well.
I've been trying to get free physio sessions because of how much pain I've got in my hip and shoulder to the point I can't walk sometimes. I've been waiting since November and the pain probably started in July 2023.
I am beyond poor right now and my rent is about to be raised and I literally will lose every single bit of the small amount I have aside for medical emergencies if I don't catch a break soon or can get some aid.
I got knocked back from the NDIS after having chronic conditions over half my life for not using all treatment avenues that I cannot afford. I lost all my grandfather's inheritance to trying to find a cure to conditions that have none.
Let alone I can barely work because of how sick I've been. Also helps I have multiple chronic conditions that get worse when I'm under stress.
I can't afford any of my usual coping mechanisms because they all cost money I don't have.
And on top of it my mum continues to fat shame me and acts like everything I'm going through I have any control over. It's not what I'm eating, it's literally because I cannot afford to be this sick and need various treatments and pay rent.
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