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grrbw57pjsi · 1 year

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nerdyenby · 11 months

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Happy disability pride month everyone <3

Shoutout to my fellow people who

Didn’t realize their symptoms weren’t normal (I didn’t understand that people went through their days without feeling exhausted all the time until I was 20)

Flew under the radar because they function “well enough”

Aren’t good at communicating when they’re in pain and/or don’t know how to ask for support

Are still stuck in the endless cycle of doctor referrals

Still don’t have a name for what they experience

Hesitate to call themselves disabled, while also craving the validation of our pain that comes with that label

Feel like they don’t belong in this community. I promise you do. Your struggles are valid and you are always welcome here <3

#I’m diagnosed with vasovagal syncope as well as adhd mdd and gad #I also have chronic pain and something akin to chronic fatigue #disability pride month #actually disabled

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honeyed-lemonade · 5 months

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chronic illness posting

ow

#fainted #disabled #chronic illness #chronic pain #fibromyalgia #vasovagal syncope

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webkinzpossum · 1 year

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i’m a medical mystery

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suncaptor · 5 days

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HOLY SHIT MY UNIVERSITY DIVESTED FROM MAJOR CORPORATIONS DUE TO THE PRESSURR WE PUT ON THEM REGARDING WEAPONS AND PALESTINE

#incoherents #palestine #OH MY GOD I CANT BELIEVE IT WORKED?????????#like i absolutely was protesting regardless but i was not expecting them to cave #what we were asking them to divest from is a major source of opportunity and finace to the university and for the university #but they did??????#i dont know how to explain how this makes me feel. i guess slightly less complicit is the best term. but its definitely not nothing #i am having some emotional whiplash about it #literally protesting through asmtha attacks and syncope man

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atelier-aria · 4 months

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[Icon Commissions] for Ririn~ decora!Elphelt and A.B.A. from Guilty Gear, and a Yaya (Ririn's OC!) Animated again >w<b

#i got the syncopation of the heartbeats heheh #guilty gear #a.b.a guilty gear #elphelt guilty gear #elphelt valentine

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yvanspijk · 8 months

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Pronouncing restaurant as restrant is an example of syncope: an unstressed vowel is deleted from the interior of a word, taking its syllable with it. The Romans did this a lot too. Calidus (hot) became caldus as early as the 1st c. BCE. It's caldus that birthed French chaud and Italian caldo. Here are more examples.

What did the Romans themselves say about the syncopated Popular Latin forms?You can read about it on my Patreon.

#historical linguistics #linguistics #language #etymology #latin #french #spanish #lingblr #italian #catalan #romanian #portuguese #syncope #english

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arctic-hands · 3 months

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For real tho health freaks who scream about how sugar and salt will kill us all and try to push for restrictions on things like candy and chips for SNAP recipients or politicians who try from time to time to replace food stamps all together and give out Government Approved Staples like bread and peanut butter and Government Cheese are gonna kill a whole lotta sick and disabled people like

Diabetics

POTS sufferers

Hypotensives

People with peanut allergies

People with celiac disease or wheat allergies

The lactose intolerant

People who can't eat solid food

People who are undernourished for any reason and need all the calories they can pack on

So-called "picky eaters" who can't tolerate certain tastes and textures without getting violently ill

A myriad of other human conditions that cannot be neatly tallied into categories because the human body and human experience is vast and infinitely variable

But I don't think ableds really care about us and our health like they like to claim so they can harass us about it, do you?

#tag yourself I'm five out of ten #health food is gonna kill me one day i swear to God #vasovagal syncope/POTS was actually a fun disease to have since the treatment is honestly junk food #to get my sugar and sodium levels up quickly so i don't pass out #but then the United States government in their infinite compassion slashed my food stamps in half #and now i can't afford 'luxeries' like enough chips and candy i need to not faint and concuss myself. again #add the celiac and to a lesser extent the lactose intolerancy and now two fruit allergies...#and I'm paying three times the amount for like fifteen food items and that is accounting for the food inflation even ableds are facing #whatever food shortages ableds are going thru right now i swear to you it's much much worse if you're sick/disabled #stop policing what food people buy with the money their given i don't care if it's a paycheck or welfare #SOMETIMES I'll get a pitiful and defensive 'well how was i supposed to know?!' when i confront people bugging me about this #you don't know so shut your trap about it in the first place #most people just ignore the reason and accuse me of making up excuses to eat 'unhealthy' foods tho #health nut #ableism #systemic ableism #food #Salt blessed Salt

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s0uls1sters-inc · 3 months

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Could we get some vox x a reader who faints regularly? I’ve got a chronic illness that causes fainting and yk, comfort character

Thanks in advance <33

I don't want you getting hurt

Summary reader has a chronic illness where they faint regularly and vox is always concerned about reader and making sure there okay

I just don't want you getting hurt i love you so much please take it easy

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Vox was concerned and worried the first time you fainted in front of him. He was scared that someone hurt you or you hurt yourself. Nonetheless he is still concerned till this day and constantly worries about you. Especially when you leave the tower or not with him. He needs to make sure you are okay 24/7 he doesnt want someone hurting or taking advantage of you.

“Voxxx tumble!” tumble was the word you would say to him whenever you felt fatigued or were about to faint. He rushed over to you so he could catch your head when you passed out.

“Im here baby” he sits down next to him and places your head on his shoulder while he wraps your arms around you. When you say tumble he is ready he drops everything he is doing so he can be there for you. he doesn't want anything happening to his precious baby

“Is this okay?” He always makes sure you're gonna be okay so he knows he isn't hurting you, or isn't squeezing you too tight. He has a habit of squeezing you tight because he wants to make sure you don't hurt yourself when you pass out.

“Yes it's okay oka-” you faint. This was always vox scariest part he has an irrational fear of where he thinks you will never wake up. He swears he gets so emotional when this happens he does have a soft spot for you. And by the time he knew it you woke up again. You wrap your arms around him as you lean into him.

“Thank you i love you vox” you couldn't help but always smile when you wake up to see his joyful face when you wake up is the best thing ever. You knew he truly cared for all he did for you and never doubted once.

“I love you too” he leans his head onto yours and gives you a kiss on the top of your head

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I'm sorry for how short this was i tried to do research on Syncope and tried to put it in the best way i could thank you so much for requesting i love youuu- onyx

#Syncope #vox #vox x reader #vox x reader fluff #fluff #hazbin hotel #x reader #soul sisters inc

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aelianated-star · 1 year

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Buckle up folks because this is a long post -

Tips for newly diagnosed dysautonomia patients:

- Drink a lot of water (so much water guys. Especially if you have hypovolemic types of dysautonomia, like hypovolemic POTS, it’s crucial)

- Keep up with electrolytes/ salt intake. Vitassium makes salt pills, chews, and tablets. I personally prefer the tablets because I can just suck on them for a while, but I know a few people who prefer the pills.

- Compression socks help, A LOT! One major component of dysautonomia, in general, is blood pooling (which can greatly increase your risk of fainting). The compression/construction helps blood flow and return back to your heart and brain

- Your disability(s) are valid, even if you don’t pass out/pass out a lot!! Only about 1/3 of people with POTS (one of the most common types of dysautonomia) pass out! And of those, few pass out regularly/daily (such as myself). No matter what, you are valid! Even if you’re undiagnosed, even if your case is “mild”, even if you manage it well without much help; you’re valid!

- Especially for those of you who are just being introduced to disability (likely because of long COVID), it’s okay to grieve the life you used to have/planned to have. You can live a wonderful, full life with these conditions (and other conditions), it just may require more accommodations than you anticipated!

- DONT BE AFRAID TO ACCOMODATE YOURSELF! Seriously, use mobility aids, get a 504/IEP, and make your space(s) accessible to yourself! I use forearm crutches for short distances, but because of how severe my dysautonomia is, I’m reliant on a wheelchair (with someone pushing me/motorized aid) to go more than a couple hundred feet/longer (or anything that requires standing for more than 5-10 minutes).

- Get a pulse oximeter or watch! Certain types of dysautonomia may cause lowered oxygen (hypoxia) because of a lack of available blood. It’s extremely important to monitor this and make sure you’re aware of your oxygen levels!

- Find community! I personally love using “stuff that works”. It not only lets you crowdsource for information about medications or treatments, but lets you message other people with the same condition(s) as you.

- If you feel like something is wrong, please talk to your doctor. I know it’s scary, especially if you have medical trauma/PTSD on top of these conditions, but it can literally be lifesaving. I noticed a sudden uptick in chest pain and casually mentioned it to my doctor. Sure enough, we found I have two types of arrhythmias (p-wave inversion and flutters) Now I’m pushing for genetic testing to see if my diagnosed EDS is vEDS/cvEDS

- Don’t be afraid to start and try medications! I’ve tried numerous medications and haven’t found anything that works quite right yet, but that doesn’t mean I won’t :). And some of you may not need medication! You may be able to manage with lifestyle changes, or IV therapy, which is great! Do what works FOR YOU. Everyone is different!

- Rest days are productive! Your body is working really hard to keep you alive, it’s okay to take a break! Take care of yourself, really, it’s okay to conserve spoons.

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whatshouldwecallchronicillness · 10 months

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When I meet someone with my condition who is stable and lives a mostly normal life...

#adrenal insufficiency #Chronic Illness #spoonie #chronic pain #chronic fatigue #Dysautonomia #POTS #postural orthostatic tachycardia syndrome #oi #orthostatic hypotension #syncope #neurocardiogenic syncope

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corrosive-equilibrium · 7 months

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Here's an explanation behind each subspecies of ghosts, aka, type categories for the worldbuilding of Vitriol AU. Please check the Index in the pinned post for more worldbuilding info.

More info under cut

- There are cases of duo type categories having retained both characteristics or only obtaining one type of ectoplasm, which is a 50/50 chance.

- Natural ghosts manifesting via Ghost Zone will have their type category determined whether by the environment they manifested or randomly given.

- Limbo ghosts typically manifest their type categories to reflect aspects of their past lives as living beings. This can be by personality or influences in their lives. There are cases where that isn't applied and they are randomly given a type category.

- Baby ghosts or ghost pups with both parents having duo type categories will obtain whichever type category is the primary one from both parents.

- While certain type categories manifest with given abilities, that doesn't mean that other type categories wouldn't be able to learn them. It would only take them much longer in comparison.

- Prime Supernaturals are unable to reproduce or duplicate themselves as there were only meant to be three in existence. They exist outside of the Ghost Zone alongside the other observants.

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nerdyenby · 8 months

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Late Diagnosis (tm) starter pack

My pain doesn’t start or stop, I just remember/forget about it

Tf you mean you guys aren’t tired 24/7

“Close enough” to normal to go under the radar

Can’t decide what to bring up to your pcp first so you just never bring up That One Thing that you’ve always dealt with and keep forgetting isn’t normal

“Have you tried working out?”

“Maybe you wouldn’t get dizzy when you stand up if you left your room more often”

Thinking a mobility aid would help you but being afraid to voice that because people will think you’re exaggerating or start treating you differently

Being too drained to call and schedule an appointment even when you remember (and most of the time you forget)

“It’s not that bad… except when it is”

Flare ups that leave you in tears and unable to move but it’s only happened a handful of times so it’s “probably fine”

Being so used to being tired that that one time you woke up well rested 4 months ago is still on your mind

#ya boi is chronically ill guys #diagnosed mdd gad adhdc and vvs #meet the criteria for chronic fatigue #and am getting an xray for the chronic pain later today #my pcp says it looks like early stage scoliosis rip #wish me luck peeps #disabled #chronic illness #chronic pain #chronic fatigue #vasovagal syncope

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disruptivevoib · 7 months

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Syncopation AU Heart and Mind.

I cannot say too much, but they are real and live in a winter apocalypse

( @agent-8449 owns/plays Soul) (Hope you don't mind me @ing you agent lol)

#syncopation au #look agent i did the thing #fanvoids #cj heart #cj mind

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kiszme · 2 months

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like! dislike! like! dislike! like!

syncopation - moametal

#aesthetic #babymetal #moametal #moa kikuchi #gifs #gifset #babymetal gifs #moametal gifs #syncopation

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no-demons-in-wonderland · 3 months

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I desperately need a vacation from my body and mind. Sleep just doesn't feel the same. I wake up more tired than when I fell asleep, more sore and nauseous. Chronic fatigue is gonna end me. I can't catch up, my brain feels like it's running nonstop. My body still can't tell me what it needs. My CRPS still hasn't ended with amputation. My hEDS is barely treatable. There's so much more too.

Nothing I have can be cured.

Being autistic is hard, being autistic with severely debilitating chronic illnesses makes it feel impossible.

I'm just so damn tired.

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