#hypermobility ehler danlos | Explore Tumblr Posts and Blogs

stellaltumi · 1 month

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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

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chadepitanga · 7 months

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there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.

#i want to be here for a while longer. COME ON #i have barely started living this isnt fair #cw death #chronic pain #chronic illness #ehlers danlos syndrome #hypermobility #fibromyalgia

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chaos-and-ink · 21 days

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Nothing About Me Is Straight

I'm making stickers based on my chronic illnesses for my final project in my art class. This is the first one! If people like them I'm thinking about adding them to my shop in the summer when I have more time.

Funny enough I killed my wrist and fingers trying to draw this. ouchie i need to buy some splints soon

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maxpawb · 7 months

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carousel

#art #furry #furry art #zebra #zebra furry #furry oc #oc #carousel #circusworld #neon colors #eyestrain #hypermobile ehlers danlos #hypermobility #i drew this over 2 train rides

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cripp-tid · 9 months

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if you can't have kids for medical reasons, i love you. a lot of people emphasize the joy of children, talk about how they changed their life, etc., and that's just not possible for some of us.

so. shoutout to:

• people who can "technically" have children but can't risk the financial stress due to being already disabled/chronically ill

• people who can't get off their medication long enough to conceive

• people with uteruses who have endometriosis or PCOS

• people who can get pregnant, but have a connective tissue disorder which makes them unable to handle the progesterone during pregnancy since it causes flares (hi, it's me)

• intersex conditions that makes you infertile

• anyone who has a terminal illness

• people who've had medically necessary surgeries which caused infertility

• people with genetic conditions they don't want to pass on (me again)

• those who require IVF that's just not in the cards for whatever reason

• and many, many others

• feel free to add on

you're not broken, you have a reason for being like this. i know it's hard. i love you. it's going to be ok. 💙

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nocsa · 2 months

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So my joints hate my (yay hypermobility!) So I just spent 2 hours creating an embroidery design that I'm gonna slap on some fabric, to make into cushions, to prop my joints up while I sleep so I don't dislocate anything!

Still gotta test it out and everything, but once I do, I'm planning on putting it up on my Ko-Fi if you guys wanna stitch out some OUCH things on your own

Ko-Fi

#eds #ehlers danlos syndrome #hypermobility #chronic illness #chronic pain #machine embroidery #sewing #acessibility

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k9emote · 15 days

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could i request some rib and/or back pain emojis? please and thank you!!

rib pain

rib pain v2

back/spine pain

neck pain

wrist pain

knuckle pain

hand pain

leg pain

knee pain

ankle pain

I am hypermobile and will use these all. of the time. hhrrgguhh

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crippledbanshee · 1 year

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"I don't know if I am disabled enough to use a mobility aid, but it has helped me a lot..." Sweetie, if it's helping you it's because you need it, completely able-bodied people don't need mobility aids to live to the fullest. If you can, use these aids, you deserve it.

#disability #chronically ill #cripple punk #disabled #spoonie #chronic fatigue #cripple life #chronic pain #physically disabled #mobility aid #cane #wheelchair user #mobilityaid #ehlers danlos syndrome #hypermobility

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stellaltumi · 1 month

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having just one friend who is also chronically ill makes me feel better, even though we don't have the same illnesses she gets it

#spoonie #chronic illness #invisible disability #disabled #chronic pain #actually disabled #chronically ill #pots #pots syndrome #ehlers danlos syndrome #heds #hypermobility #hypermobile ehlers danlos

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consider-your-potatoes-mashed · 11 months

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Who the FUCK decided that insurance companies get to decide what’s medically necessary????????

#medically necessary #chronic pain #disabled #disability #actually disabled #chronic illness #physical disability #hypermobility #probably heds #probably Ehlers danlos syndrome #insurance #fuck insurance companies #i’m in so much pain #like walking is hard #braces #knee braces #just let me have my custom braces I’ve tried everything else

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98lindsey · 1 year

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I was out with my family for my birthday at a restaurant when I started having an allergic reaction. So I pulled out my IV stuff to give myself something to stop it and my dad asks:

“Do you want to go in the bathroom and do that”

I laughed a little “um, not really”

I understand it’s a little strange for me to pull out needles and meds and everything in public, but the restaurant bathroom is the last place I want to be when setting up something to inject into my blood stream 😬

Can we normalize people having to regulate their bodies with medication in public please?

#disabled #disability #pots #chronic illness #chronically ill #chronic pain #dysautonomia #mcas #mast cell activation syndrome #spoonie #heds #chronic fatigue #postural orthostatic tachycardia syndrome #hypermobility #hypermobile eds #hypermobile ehlers danlos #ableism

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fatal-blow · 4 months

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Hey You Reading This. Are you in Pain?

Go to this website. See of you can find the thing that's bothering you (pain patterns denoted in red/shaded areas).

Massage the X shown in the diagram. See if it helps.

If you want more information on treating muscle pain, download this book off the Internet Archive:

You deserve to not be in pain. If nothing else has helped, this might.

#fatals physio corner #chronic pain #ehlers danlos syndrome #hypermobility #im still writing that essay but the sun sets at 5pm and I am in agony so this will supplement

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maxpawb · 10 months

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used a wheelchair for the first time and now im a changed man (I WENT ON A LONG OUTING WITHOUT EXCRUCIATING PAIN)

now i want to save up and get my own if possible

#art #furry #furry art #disability #ehlers danlos syndrome #hypermobility #hypermobile ehlers danlos #fursona #maxwell the lion #ari the sea lion #thats my new alt fursona !!!!he also has a form with legs #zebra chair based on the wheelchairs from the WHA manga

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defiantcripple · 16 days

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Non-hypermobile people will never know the pure joy that is being able to scratch literally anywhere on your back when it itches.

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chaos-and-ink · 12 days

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They should invent a knee that doesn’t do that.

That: bends backwards, dislocates, collapses, is chronically painful.

#chaos #ehlers danlos problems #hypermobile ehlers danlos #ehlers danlos syndrome #hypermobility #joint hypermobility #chronic pain #chronically ill #disabled #actually disabled #physically disabled #cripple punk

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geeses · 2 years

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Chronic Illness Tools Master post

Hi! I'm Laura. I am disabled with Ehlers Danlos, MCAS, and POTS. Here are a few mobility aids, physical therapy tools, braces, comfort items, and other things that I have acquired over the years that significantly increased my quality of life. I hope it helps someone.

Mobility aids:

Folding cane

Instant seat

Shower stool (nice quality)

Shower stool (cheap but works)

Physical therapy tools:

Exercise ball (small)

Exercise ball (large)

Exercise bands (with handles)

Yoga wheel

Cervical traction

Resistance bands

Theraband (get that GRIP)

Foam roller

Grip strength resistance bands

Adjustable ankle weights

Braces:

Neck brace

Wrist widget

Thumb splint

SI Joint Belt

K-tape

Knee brace

Wrist braces

K-tape (non-bulk)

Back brace

Elbow brace

Comfort items:

Heating pad

Neck and shoulders heating pad

Massage gun

Hand fan

Acupressure mat

Large Icepack

Leg pillow

Neck pillow

Bulk epsom salts (guess this could also go in the next category)

SALT:

Saltstick fastchews (orange and watermelon are my favorites)

Salt pills (that don't upset my tummy)

Cell Salts (these help my migraines)

Misc:

Quercetin (for allergies)

Neti pot

Bug bite thing

Hand warmer

Bed tray table

Toilet seat cushion

Yoga swing (yeehaw cowboy)

Cooling towels

TENS Unit

Huge Mason jar pitcher thing (revolutionized my access to water)

Pulse oximeter

*Notice* All of the above WERE Amazon Affiliate links. They no longer bring me money because Amazon decided that Tumblr is not an authorized site to use links on. Fuck amazon. I worked hella hard on this list.

I am a disabled queer artist. As I'm sure you know, it is very expensive to be disabled. These links won't bring me anything other than the joy of helping someone else. Please enjoy and share! Knowledge is power.

if you are feeling generous, here is my venmo for tips.

#text #resources #disabled #disability #ehlers danlos syndrome #hypermobility #mcas #tools #pots #dysautonomia #amazon affiliate links

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