I wish I could feel completely comfortable with someone. We all have flaws, and that's what makes us special and beautiful. If I can tell my significant other is nervous about their body, I love to kiss it from head to toe to show that i love it all. Why can't I get that same thing in return? I've been single for close to 5 years now ...the last guy I was with made me feel so uncomfortable 😕 I have a condition called Hidradenitis suppurativa(HS) NOT CONTAGIOUS that I've had since I was 10 years old when I started my cycle. The flare-up could happen at any moment and left very unflattering scars or big purple spots that sometimes took more than a week to go away. The first time he said something about them made me so upset....I was spending an hour or longer in the bathroom trying to cover them up with conceler for about 10 mins in the bedroom. This "man" was 5'9 and weighed over 300lbs. He wouldn't take his shirt off during sex for a while til convinced him I loved his body. I did a lot for this individual and then he turns around saying ewww what's that? You're gaining weight...you're to pale, your hair is too short. Just writing this still makes me emotional. This goes out to everyone....before say a rude comment about your partners body....ask yourself would that hurt my feelings if they said it to me? Beauty starts with the soul not the outer appearance.

Sometimes, you have to feel the panic attack completely instead of forcing it away. Either way is pain. 💔 #CPTSD #PTSD #panicattacks #Pain #disability #HidradenitisSuppurativa #DisabledInSTEM #NEISvoid #MedicalTrauma #Chemotherapy #autoimmune #DomesticViolence #spoonies #TBI #hospitalssuck #emergency #Lonely #POTS #blackandwhiteart #Crohnsdisease #sicknotugly #dysautonomia (at Portland, Oregon) https://www.instagram.com/p/CoEsO0IO6AC/?igshid=NGJjMDIxMWI=

#化膿性汗腺炎 Kanōseikansen'en #HidradenitisSuppurativa . 読める? 俺はこれは英語でも読めない。(実はラテン語ｗ) Could you read this? I can't even read this in English. (Actually, it's Latin 🥴) . #ペン習字 #筆ペン #漢字 #書道 #書法 #書遊 #毛筆 #墨 #習字 #日本文化 #筆文字 #文字 #和文化 #創作書道 #インスタ書道部 #書道好きな人と繋がりたい https://www.instagram.com/p/ClByD0mvevI/?igshid=NGJjMDIxMWI=

I’m so proud of myself and my journey so I want to share it.

October 13th 2021 I decided that I was tired. I was tired of feeling bad all of the time, I was tired at the lack of confidence I had in myself, and I was tired of always being tired.

Thus I began my journey to a better happier me. I got on the proper medications that I needed for my health conditions and I cut out the foods I was intolerant too. I cut out dairy, gluten, most sugar and a lot of caffeine. It hasn’t been easy, I have had some very hard days where I am just mad at the world, but in the end these changes have been so good for me. I don’t have exact weightloss figures to share or anything, but I did want to make this post to express how proud I am of myself, to express how strong I feel for taking control of my health physically and mentally.

Date: June 24th Time: 4:00 PM - 6:00 PM Eastern Time

To participate, please fill out the Google Form: https://go.amazingointments.com/zoom-june24

During the meeting, we will explore various aspects of Hidradenitis Suppurativa, including things that may trigger a flare-up, symptoms, treatment options, and management strategies. Your insights and experiences are valuable, so come prepared to share and learn.

Let's raise awareness and support one another in our journey with Hidradenitis Suppurativa.

Please invite others who may be interested.

Hidradenitis suppurativa

Overview Hidradenitis suppurativa (HS), also known as acne inversa, is a chronic and often debilitating skin disease that affects hair follicles and sweat glands in areas of the body with skin folds, such as the armpits, groin, and buttocks. HS typically begins as painful, inflamed, and recurrent nodules or abscesses that may progress to draining sinuses or scarring. The exact cause of HS is unknown, but it is thought to be a combination of genetic, environmental, and immune system factors. Risk factors for HS include obesity, smoking, hormonal imbalances, and a family history of the disease. HS is often misdiagnosed or undiagnosed for years, leading to significant delays in appropriate treatment. Treatment options for HS vary depending on the severity and location of the disease, but may include topical or systemic medications, surgical interventions, and lifestyle modifications. Living with HS can be challenging and may significantly impact a person's quality of life, including their ability to work, exercise, and engage in social activities. It is important for individuals with HS to work closely with their healthcare provider to manage symptoms and receive appropriate care. Symptoms The symptoms of Hidradenitis Suppurativa can vary widely from person to person, and can range from mild to severe. Some common symptoms include: - Painful, inflamed, and recurrent nodules or abscesses in the skin folds, such as the armpits, groin, and buttocks. - Drainage of pus or other fluids from the affected areas. - Formation of tunnels or tracts under the skin, connecting the affected areas. - Scarring and thickened skin. - Itching and burning in the affected areas. - Limited mobility or flexibility due to pain and swelling. - Bad odor or foul-smelling discharge from the affected areas. - Depression and anxiety due to the chronic and disfiguring nature of the disease. It is important to note that not all individuals with HS experience all of these symptoms, and some may only have mild symptoms that come and go over time. It is important to seek medical attention if you experience any of these symptoms or suspect that you may have HS. Early diagnosis and treatment can help manage symptoms and prevent further complications. When to see a doctor If you experience any symptoms of Hidradenitis Suppurativa, it is important to see a doctor or dermatologist for an evaluation and diagnosis. In particular, you should seek medical attention if you experience: - Painful, recurring lumps or bumps in areas with skin folds, such as the armpits, groin, or buttocks. - Pus or other fluids draining from these areas. - Skin changes, such as thickened, scarred, or discolored skin. - Development of tunnels or tracts under the skin. - Limited mobility or flexibility due to swelling and pain. - Psychological symptoms, such as depression or anxiety, related to the condition. - Symptoms that interfere with your daily activities, such as work or exercise. Early diagnosis and treatment of HS can help manage symptoms and prevent further complications. Your doctor may recommend lifestyle changes, topical or oral medications, or surgical intervention depending on the severity of your condition. If you suspect you have HS or are experiencing any of the symptoms mentioned above, make an appointment with your doctor or dermatologist as soon as possible. Causes The exact cause of Hidradenitis Suppurativa is not fully understood, but it is believed to be a combination of genetic, environmental, and immune system factors. Here are some possible causes: - Genetics: There is evidence to suggest that HS may be inherited, with about one-third of people with HS having a family history of the condition. - Hormones: Hormonal changes, such as those that occur during puberty, menstrual cycles, or pregnancy, may trigger the development of HS. - Immune system dysfunction: HS is thought to be an autoimmune condition, meaning that the immune system attacks healthy tissue in the skin. - Bacterial infection: Some studies suggest that certain types of bacteria may contribute to the development and progression of HS. - Lifestyle factors: Smoking, obesity, and stress may increase the risk of developing HS or worsening symptoms. - Friction or pressure: The constant friction or pressure from tight clothing or repeated shaving of the affected areas may contribute to the development of HS. It's important to note that while these factors may increase the risk of developing HS, they do not necessarily cause the condition in all individuals. Further research is needed to fully understand the underlying causes of HS. Risk factors Several risk factors have been identified for Hidradenitis Suppurativa, including: - Gender: HS is more common in women than in men. - Age: HS usually develops after puberty and affects people in their teens and twenties, although it can occur at any age. - Genetics: As mentioned earlier, about one-third of people with HS have a family history of the condition, suggesting a genetic component. - Hormonal changes: Hormonal changes, such as those that occur during puberty, menstrual cycles, or pregnancy, may trigger the development of HS. - Obesity: Obesity has been linked to an increased risk of developing HS, possibly due to increased friction and sweating in skin folds. - Smoking: Smoking has been shown to increase the risk and severity of HS, possibly due to its effect on the immune system. - Stress: Chronic stress may contribute to the development or worsening of HS. - Certain medical conditions: People with other inflammatory conditions, such as Crohn's disease or psoriasis, may be at increased risk of developing HS. - Shaving or other hair removal methods: Shaving or other hair removal methods can cause skin irritation and lead to the development of HS in some people. It's important to note that having one or more of these risk factors does not necessarily mean that a person will develop HS, and some people with HS may not have any of these risk factors. However, understanding these risk factors can help individuals identify potential triggers and work with their healthcare provider to manage their symptoms. Complications Hidradenitis Suppurativa can lead to a number of complications, some of which can be serious. Here are some potential complications: - Scarring and disfigurement: HS can cause scarring and thickening of the skin in the affected areas, which can be permanent and disfiguring. - Abscesses and infections: Recurrent abscesses and infections can occur in the affected areas, which can be painful and require medical treatment. - Fistulas and sinuses: Over time, HS can cause the formation of abnormal connections between the affected areas, called fistulas and sinuses, which can be difficult to treat. - Limited mobility: Severe HS can cause limited mobility and make it difficult to perform daily activities, such as walking or exercising. - Depression and anxiety: The chronic and disfiguring nature of HS can lead to depression and anxiety, which can further impact a person's quality of life. - Cancer: Studies have suggested that long-term inflammation associated with HS may increase the risk of certain types of cancer, although more research is needed to confirm this link. It's important to seek medical attention if you experience any complications associated with HS. Early diagnosis and treatment can help manage symptoms and prevent further complications.

Natural remedies

While there is no known cure for Hidradenitis Suppurativa, there are some natural remedies that may help manage symptoms. Here are some natural remedies that people with HS may find helpful: - Turmeric: Turmeric contains a compound called curcumin, which has anti-inflammatory properties. Some studies have shown that taking turmeric supplements may help reduce inflammation in people with HS. - Tea tree oil: Tea tree oil has antimicrobial properties and may help prevent infection in the affected areas. It is important to dilute tea tree oil before using it on the skin, as it can be irritating when used in its pure form. - Aloe vera: Aloe vera has anti-inflammatory and antimicrobial properties and may help reduce inflammation and prevent infection in the affected areas. Apply aloe vera gel to the affected areas to soothe the skin. - Coconut oil: Coconut oil has antibacterial properties and may help prevent infection in the affected areas. Apply coconut oil to the affected areas to moisturize the skin and prevent dryness. - Zinc supplements: Some studies have suggested that taking zinc supplements may help reduce inflammation in people with HS. It is important to note that natural remedies should not be used as a substitute for medical treatment. People with HS should talk to their healthcare provider before trying any natural remedies, as some remedies may interact with medications or cause allergic reactions. Read the full article

Had a good day had a outing with the nursing home activity section they took us to dairy queen was great and had a blast got back got a nice hair cut fade then a bunch pf bs started cuz two old hags are miserable with there life so they try to make others feel bad too I mean one os truly a evil one but its what ever there not worth it hope yall are doing great out there nd dont let nobody get you down never give up #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #hidradenitissuppurativa #hidradenitissuppurativawarrior #hidradenitissuppurativaawareness #myjourney #mentalhealth #mentalhealthawareness #mental #staystrong #nursinghome #dreamtheimpossible #struggle #keto #ketobreakfast #ketotransformation #ketomeals #SeguinTX#weightlossjourney #hardjourney #lifechanging #fightingformylife #stoma #colostomy (at Gaudalupe Valley Nursing Center) https://www.instagram.com/p/Cgk5lm0MLyE/?igshid=NGJjMDIxMWI=

#puppylove #queencorso #queenzcupcakez #queenbzcupcakez #dacastle #cupcakezkissez💋 #cupcakekissez #chemogoddess #chemodancetherapy🩰 #hidradenitissuppurativa #chemolyfe #patientlyfe #littyville👑 #littyeryinsane😖 #littykings👑asylum (at Oakland, California) https://www.instagram.com/p/CgPdwOkpotp/?igshid=NGJjMDIxMWI=

HCSM News

Please share and retweet. It'll reach the right person if it can get around! #epidermolysisbullosa #BCSM #MedEd #HCLDR #HITsm #hpm #LCSM #BTSM #hcsmSA #JACR #NephJC #ASEchoJC #SPSM #NurChat #KareoChat #EofL #Lyphoma #BTSM #pwme #ChildhoodCancer #hidradenitissuppurativa #AFib https://t.co/EsmaJ7Gstq https://t.co/QmGaCPwjjX

— That A_liyen from area M31 🐰亜梨矢🐰 (@A_liyen_M31) Apr 25, 2023

hidradenitis suppurativa is fun because sometimes you just wake up covered in blood for absolutely no reason.

Anonymous asked:

Hi! I would really appreciate it if this could be posted anonymously- thanks!

I recently saw my doctor and she mentioned that she thought I might have a condition called hidradentis suppurativa- basically chronic cysts. She then lectured me about my weight and told me that losing weight would make my problems go away.

Well, I did my own research (per her suggestion). H.S is apparently genetic and there's no "cure"- anyone of any size can have it, and I'm pissed. She wants me to see a dermatologist to get an official diagnosis (all of my symptoms line up for a mild to moderate case), but I am SO tired of being told to lose weight. I gained eight pounds in the last two years, from 2019, and my doctor acted like that was the cause of all my health problems before telling me I was going to lose 20 pounds. I haven't been under 200 since before I started college, and I've had this issue since I was 14, but NO. It's clearly the weight causing it.

I'm just so TIRED of my weight being blamed for everything and not getting good care. That being said- do you know of any support groups/ fat-friendly places to find information on H.S, or other chronic conditions? All of my searches have led me to forums about weight loss. Thanks!

Hey friend,

I’m so sorry you’ve been struggling with this, but I’m also super proud of you for doing your own research. I had never heard of this condition before, I can’t imagine what you’re going through. You’re incredibly resilient <3

That being said.

I found some interesting websites online 1 2 3 4 and also a clothing store catering to those with HS 5. I also found a directory of Facebook groups dedicated to people with HS 6. I don’t use fb so I can’t verify any of these groups being any good, but there’s so many listed one of them has to be safe =)

I also found a cool website with patient stories 7 and one that has informative leaflets you can give out 8

Hopefully any of this helps, feel free to reach out again anytime.

Tw: very long winded rant, hs mention, ed mention, pcos mention

I was super anxious this morning because I was getting ready for the day and I took a shower and when I was done I looked at my armpits in the mirror (as people do) and I saw what looks to be the start of HS (hidradenitis suppurativa). Which is now giving me major anxiety because it's literally a long term skin issue... and all the articles I've been reading since then have just confirmed it and I'm SO SCARED AND SAD 🥺🥲 I've already been diagnosed with PCOS and those two are usually hand in hand...

The only thing I keep thinking about is how did I let myself get to this point? And what did I do that lead me here?!?! Like what do I do now?!?! This is really gonna make my ED worse and i just feel fucked. Like there's three cases and possible causes which is Heredity, obesity and smoking...

I don't smoke and as far as I know, no one in my family has had HS before... so I'm guessing it's the hormonal imbalance caused by my rapid weight gain over the pandemic 🥲🥲🥲

Also I'm sorry if you're dealing with HS and reading this post and it may seem insensitive, but I'm just venting and really upset because this really sucks and I just feel so trapped and cheated by myself. I feel played by my body. Like wtf.

I love that I have been feeling pretty decent lately

I’m going to make a post for this because it’s not well known (I think), and this info might come in handy (unless you are alergic to tomatoes)

If you have HS (Hidradenitis Suppurativa) and a cyst or a cluster is too swollen and painful making it difficult to move around, put a slice of tomato on top of it. Hold it there for abt 10min. Do this at least 3 times a day until you can see the results/improvement. The tomato will suck the pus out and make EVERYTHING better, and it won’t hurt as bad anymore!!!

My chronic illness is playing up today but Jess is giving me extra cuddles! Cats always know! 🥰🤍😻

I'm The #Master of #Disguise. I rarely reveal the brutality of my battles, my reality - behind the "smile." I'm waging a war against my own body & the time I have left. 🗯 #SuperheroDay #chronicillness #surgery #chemotherapy #War #DisabilityAwareness #sickandtiredofbeingsickandtired #superwomen #baldisbeautiful #baldwoman #fiercewomen #eagleeye #trigeminalneuralgia #hidradenitissuppurativa #realitysucks #crohnsdisease #rheumatoidarthritis #chronicillnesslife #badasswomen #strongaf #tiredofthebullshit #braintumor #lifeiswar #cityselfie #portlandnw www.hannahcrazyhawk.com (at Portland, Oregon) https://www.instagram.com/p/COOo26SlSlU/?igshid=uigonmruyu6a