So I very rarely get super personal on this blog just for the sake of it, but given there was already a much…darker version of this post sitting in drafts until just a short while ago, and maybe someone here might need to hear an uplifting real-life story tonight, I figured I’d go ahead and draft up and post this anyway.
See, I’m sure all of y’all here have noticed my relative lack of activity with any large project over the past five months, but what y’all don’t know is that this has largely been due to some pretty serious health issues — not the least of all being that…over the past…three-ish months of those five, I have had to stare down the very real possibility that I might have a pretty serious form of Leukemia. I was bounced from doctor to doctor about this, test after test, and not much of it looked good, if I’m being perfectly honest.
During all of that time up to today, I had been sitting around contemplating much of my existence, and how, at last, when the most difficult news of all came, I would break that news to everyone — what I would do, say, etc. I must’ve run through all the scenarios a million times, drafted up at least ten different letters for different people in my life, even recorded a cover of a song through which I wanted to say goodbye to everyone here, if it came to it (and which still sits in my video gallery currently, as though still waiting to be used).
Needless to say, although they had their moments as life always does, these past months have been overall a living Hell, and it only got progressively worse with every new piece of concerning news, up until today — the day I finally was able to go see the oncologist. (Doctors are often booked out for months around here rn — weeks at best.)
Prior to the visit, I had been informed by my GP that the oncologist would overlook all of my results ahead of time, and call to cancel the visit with me herself if she found/determined there was nothing worth being concerned over.
Well, the cancel call never came, so I think you can understand when I say that I went in full expectation of the worst case scenario; I mean, clearly she had thought it critical enough to keep the appointment, so that kind of spoke volumes for itself even without having seen her.
I don’t think I’ll ever be able to forget the long time spent alone in the doctor’s office, waiting for her to arrive: there was some of the most gorgeous, peaceful instrumental music you could imagine playing softly, and as I was sitting there, forms in hand, staring down the room around me, I was just thinking to myself how that music clearly said exactly what this place was: it’s a place where people go to get basically the worst news of their lives imaginable, and try their best to cope with and struggle against their mortal illnesses. And this music was so pretty and peaceful because the patients needed it.
And here I was. Today I was one of those patients.
I sat there contemplating over my life and realizing that this was going to be the last moment that anything was even somewhat normal again for me. The last moments before life changing news.
I can’t begin to explain how that feels.
…And then the doctor came in and she was immediately telling me, like, more or less, “Oh honey, why are you here? lol We tried to call you to tell you not to come in — you don’t need all this stress for no reason, go on home, there’s nothing to worry about, you’re fine.”
Apparently she had, in fact, made an attempt to contact me because she wanted to spare me the stress of coming after reviewing the results and deciding I was fine, just like my GP said, but the call just hadn’t gone through.
The relief that I have inside of me today knowing that I am okay is beyond anything I could ever put into words. I cried the entire several hour drive home, and even now, as I type this up, I find myself tearing up just a little again in sheer gratitude and amazement and comfort.
Even if things had gone badly, I wouldn’t have had any regrets, but truly nothing makes me happier to know that I will be around for a long, long while here still — with the people and things that I love, with the strangers, with the haters, and everyone else in between.
Please never take life for granted. Live in the present and try to be as grateful for every moment as you possibly can. Life really is beautiful and precious and so, so worth living, so live it to the fullest and always remember that there can be hope.
No matter how bad things seem, there’s always a chance for hope to shine through.
It did for me. It can for you too.
I love you all so much.
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because sometimes there are invisible tests and invisible rules and you're just supposed to ... know the rule. someone you thought of as a friend asks you for book recommendations, so you give her a list of like 30 books, each with a brief blurb and why you like it. later, you find out she screenshotted the list and send it out to a group chat with the note: what an absolute freak can you believe this. you saw the responses: emojis where people are rolling over laughing. too much and obsessive and actually kind of creepy in the comments. you thought you'd been doing the right thing. she'd asked, right? an invisible rule: this is what happens when you get too excited.
you aren't supposed to laugh at your own jokes, so you don't, but then you're too serious. you're not supposed to be too loud, but then people say you're too quiet. you aren't supposed to get passionate about things, but then you're shy, boring. you aren't supposed to talk too much, but then people are mad when you're not good at replying.
you fold yourself into a prettier paper crane. since you never know what is "selfish" and what is "charity," you give yourself over, fully. you'd rather be empty and over-generous - you'd rather eat your own boundaries than have even one person believe that you're mean. since you don't know what the thing is that will make them hate you, you simply scrub yourself clean of any form of roughness. if you are perfect and smiling and funny, they can love you. if you are always there for them and never admit what's happening and never mention your past and never make them uncomfortable - you can make up for it. you can earn it.
don't fuck up. they're all testing you, always. they're tolerating you. whatever secret club happened, over a summer somewhere - during some activity you didn't get to attend - everyone else just... figured it out. like they got some kind of award or examination that allowed them to know how-to-be-normal. how to fit. and for the rest of your life, you've been playing catch-up. you've been trying to prove that - haha! you get it! that the joke they're telling, the people they are, the manual they got- yeah, you've totally read it.
if you can just divide yourself in two - the lovable one, and the one that is you - you can do this. you can walk the line. they can laugh and accept you. if you are always-balanced, never burdensome, a delight to have in class, champagne and glittering and never gawky or florescent or god-forbid cringe: you can get away with it.
you stare at your therapist, whom you can make jokes with, and who laughs at your jokes, because you are so fucking good at people-pleasing. you smile at her, and she asks you how you're doing, and you automatically say i'm good, thanks, how are you? while the answer swims somewhere in your little lizard brain:
how long have you been doing this now? mastering the art of your body and mind like you're piloting a puppet. has it worked? what do you mean that all you feel is... just exhausted. pick yourself up, the tightrope has no net. after all, you're cheating, somehow, but nobody seems to know you actually flunked the test. it's working!
aren't you happy yet?
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still one of my favorite bits i ever got to commit was pretending not to know who jesus is when a street preacher was evangelizing to me. he was like "do you know who jesus is?" and i had so much time before my next bus and i wanted to know what would happen so i said no. and you know what. he had clearly never been told no to that question before because if i hadn't actually known who jesus was, his baffled and fumbling attempt sure wouldn't have told me. literally reversed the roles. now you get to stand here feeling very uncomfortable and wishing you could be somewhere else because guess what buddy, this is my bus stop, im early (and can catch like five other buses from this exact stop), and im now thoroughly invested in hearing about this mysterious jesus figure. you're locked in here with me. im eating the key as we speak. i will kill us both before i let you out of here.
very highly recommend this bit if you can pull it off and if you have time to kill
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I saw this on FB today and I wanna try and express something about it. Like, you know the curbcutter effect? Where when curbcuts are put in it benefits everyone (bicyclists, people with baby strollers etc) and not just disabled people?
There is also whatever the opposite of the curbcutter effect is. And this is that.
This isn't just anti-adhd/autism propaganda... this is anti-child propaganda.
Kids have developmentally appropriate ways that they need to move their bodies and express themselves and sitting perfectly still staring straight ahead is not natural or good for ANY CHILD.
Don't get me wrong, I was punished unduly as a kid for being neurodivergent (and other types of kid will ALSO be punished unduly for it... Black kids come to mind) and thus UNABLE to perform this -- but even the kids who ARE able to perform this type of behavior are not SERVED WELL by it. They don't benefit from it.
This is bad for everyone.
The idea that bc some kids may be capable of complying with unfair expectations, those expectations don't hurt them... is a dangerous idea. Compliance isn't thriving. Expectation of compliance isn't fair treatment.
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Danny is about to be kidnapped in Gotham
This is not a good time.
He's studying for the SAT, he's already been kidnapped by Vlad like, four times that week and it was a fucking Tuesday, he forgot his wallet at his new apartment, locked himself out of said new apartment (he could phase through the door but that wasn't the point), he's just been informed that the grant he applied for was denied so he needs to ask his mom and dad for college funds when he'd already told them he had it covered, and just...it was shit.
It had been shit. The entire week had been awful and annoying and he was ready to either murder everyone on the planet or go find a corner to cry in for the next three days.
So when the band of wild goons working for whatever villain of the week pulled up and tried to kidnap him, he snapped.
He used them to vent.
Shouted about how terrible his day had been, how terrible his week had been, how he'd already been kidnapped by his creepy godfather who was way too into him, how college funding was shit and the grant system was rigged, and how he'd have to call a locksmith or break down the door to his own apartment if he wanted to go to bed-all of it. He unloaded all of his frustration.
The goons actually backed off.
One of them gave him an awkward side hug and told him it'd get better.
Danny wasn't paying attention to his surrounding. He doesn't realize that the whole thing was livestreamed.
So when he gets home to his apartment later that day, his door is opened for him by the vigilante Spoiler before he can even turn intangible.
She brought over BatBurger and kidnapped Bruce Wayne, Gotham's bumbling Prince, to talk about college grants.
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