Let's talk about the other symptoms of chronic pain disorders.

Let's talk about how during a flare up, my brain fog becomes so bad that I can't remember my own full name or date of birth.

Let's talk about how I often can't stand not just because my legs hurt, but because they're so weak and shaky they can't support my weight.

Let's talk about how debilitating fatigue can be, when I can't move a muscle because I'm so bone-weary tired. My pain is the main symptom of my chronic illness but there are others. There are so many others. And they all fucking suck to live with. So why am I not taken seriously when I talk about them?

ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow ow

Can someone help apoor disabled gal out affording her medications and gas for appointments? This week has been rough with a constant muscle spasm through out my back and making it hard to get anything done.

C*shapp - $thespookygalpal

V*nmo - @thespookygalpal

P*ypal - [email protected]

1 month medicated.

Took my 3rd pill of my new dosage today.

Last week and a half of the first month was pretty rough. Started hurting a lot again. Got a migraine. Wasn’t sleeping very well. Switched to taking meds in morning instead of before bed. Anxiety picked up.

Asked for a raised dosage and they agreed!

New dosage seems to be helping now. Back pretty level with pain. Back hurts a smidge but I’ve just been sleeping poorly because both kids have been getting in bed with me every night.

I’m feeling pretty confident about how well they’re working for me.

They’re working so well I’m considering closing the baby door as I can’t be pregnant (or even try to conceive) while on the medication. And I’ve heard some pretty bad horror stories about the withdrawals of getting off of it. It’s working so well, I’m not sure I want to do that, even for another baby that I so desperately want.

I’ve lost some weight (granted it’s from accidental fasting as the meds take away my appetite) but still! Lol between that and meds working at taking away my pain, it’s given me motivation to work out more. Treadmill I bought with tax return getting its worth lol

Anyways that’s my update for now.

developing a chronic pain disorder at 13 means i never really got to be a teenager and do teenager things and now all of a sudden im an adult and have to do adult things. i skipped over an entire era of my life with no time to adjust and now everyone just expects me to be normal, but im still mourning experiences i never got. it feels like i was completely stuck while life just kept going on around me and now im scrambling to keep up.

Crazy times!!!

So my week has been pretty rough. I tweaked my back getting out of a chair and tripping on an old cat. So my mobility has been very slowly returning with hot and cold packs stretching and meds. Rest and forced shuffling to get to bathroom. How I got around before we used the hallway as a pantry was using a modified walker Ir even wheelchairs. But food Camelot sale was good. So I used already through the dryer sheets to slip shuffle my way. It is so much easier than

Anything else I have and requires the least amount of muscle movements. Too bad I couldn't shuffle down the stairs.

And to end my week

Tmw you forget you're diagnosed with 'everything hurts syndrome' and end up wondering why everything hurts

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

The appointment I thought was with my primary physician at the end of this month is actually the appointment with the ophthalmologist. Now I have to wait until 4/22 to talk to her (primary) about getting referred to the pain clinic since they've decided to refuse me treatment of any other kind 

I had to take a painkiller that my body doesn't tolerate anymore, side effects will kick in anytime. Because I can't have anything stronger than paracetamol (acetaminophen/Tylenol) and I just had a painful dentist treatment. Ibuprofen is a no go - I know everyone likes to joke about it but when you can't take it cause of underlying health issues the joke ain't that funny. It is so astonishing that that I have to survive a life of chronic pain on paracetamol alone. I can't even make the dentist pain go away 😓

the things i do for donuts

If anyone can help, I am in a tough spot right now. Being disabled and having to jump through hoops has been getting to me while fucking struggling to afford things as groceries and medications. I just want to give up at this point but I am still trying to hold on to some fucking semblance of hope. Anything/everything is appreciated.\

P*ypal - [email protected]

V*nmo - @thespookygalpal

C*shapp - $thespookygalpal

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

friendly reminder that you don't need any diagnosis or disorder to adapt your routine to accommodate you! sit down in the shower. brush your teeth and wash your face in the shower. bring a chair to the kitchen while you cook. use unscented products. your routine should be built for you.

EVERYBODY STOP WHAT YOURE DOING I HAVE THE BEST NEWS! I GOT A WHEELCHAIR!!!!!!!! I CAN LEAVE THE HOUSE ALONE AGAIN, I CAN BE SAFE AND INDEPENDENT AND HAPPY AND SEE MY FRIENDS AND HAVE A LIFE AGAIN!!!!!!