happy fibromyalgia awareness day !!! (12th may- i'm posting this at midnight my timezone)

it's not something i talk about much on here but fibromyalgia is a big part of my life and i wasn't even aware it existed until i had it.

a resource i recommend incase you want to learn more is https://www.fmauk.org/ or you can ask me instead :))

[image ID a digital drawing of sun and moon from the waist up, sun is on the left and moon is the right. they both have purple butterflies (a symbol of fibromyalgia support) around them, in their hands and on their faces. their colour palettes are mostly the same as in the game but their colours have been picked from two butterflies; doxocopa agathina for sun and purple emperor for moon. the background is a mid-purple with an orange outline of a box around each of the characters. end ID]

May 12th is Fibromyalgia Awareness Day. I drew this today to try to visualize my relationship to chronic pain and the feelings that come with it.

For months, I've had plans to write, produce, and edit an in-depth video for this year's Fibromyalgia Awareness Day. To reflect on the 8 years since I was diagnosed. But I've just been too sick. It's not just the fibro, because it's never just fibro. Most patients have many other comorbid disorders. I was diagnosed with FMS about 5 months after being diagnosed with type 2 narcolepsy. 3 years after ulcerative colitis. Since then, I can name over a dozen. And I'm still in the process if figuring out why I'm getting so much worse. X-rays, CT's, ultrasounds, MRI's. I had a rough fall after my last MRI and now my shoulder and arm are killing me so typing this is not fun. Fibromyalgia impacts everything. It makes small pains much, much bigger. But because we have to be so strong and push through so much big pain, we often don't realize when something is actually wrong because we're so used to a higher baseline. So I'm giving myself a break. No writing a script, no makeup, no setting up my ring light and camera, no hours of editing to make a short video perfect. Just a picture of my aching burning hand on the keyboard that lets me express myself, and a post written from my reclined floor chair at my custom floor desk, because I can no longer sit up for long to work on stuff. Here's your awareness.

May 12th

Today is May 12th.. On this day we try to spread awareness of three debilitating and chronic medical conditions. I have all three of these conditions & I have to say, they all suck. FMS – Fibromyalgia Syndrome CFS/ME – Chronic Fatigue Syndrome/Myalgic Encephalomyelitis MCS – Multiple Chemical Sensitivities

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it’s fibromyalgia awareness day!!

did you guys know that,

Fibromyalgia awareness day

Hello guys today is fibromyalgia awareness day.if you don't what fibromyalgia is,It's a chronic disorder that causes pain and tenderness to a whole person's body and it makes them have a chronic fatigue and causes sleep problems.A friend of mine has fibromyalgia and and I drew something for them to let them know I'm there for them 💙💜.For all of people with fibromyalgia,never forget that you're still strong and you're still a person 💜💙💜💙💜💙.

Also support them on YouTube and Ko-fi they're called Darkteatime 💜

I'm sending a little low effort fibromyalgia awareness day picture of my own into the wild

🌲🥦🌲(this post)🥦🌲🥦

[ID: a picture of a disaturated 'slightly-smiling' emoji with a transparent purple ribbon drawn over the face. In purple along the emoji's edges says it: "Hewo it fibromyalgia awarenes day", and in white at the bottom of the emoji: "12 may". End ID.]

Happy World Goth Day!! I couldn’t goth up in real life because of chronic pain but I did so in animal crossing!!!

TWENTY TIPS FOR NEWLY DIAGNOSED FIBROMYALGIA SUFFERERS...

If you have been newly diagnosed with Fibromyalgia here are a few tips to help you deal with the condition. 1. Never be afraid to ask for help, be it with the shopping, cooking or cleaning. As most sufferers tend to ‘look fine’ most people do not realise the pain they are suffering inside, so if you don’t ask you won’t get help. 2. If work is leaving you exhausted and in pain, then design a…

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Fibromyalgia Awareness Day I’m tired af now. https://twitter.com/Kitschykiss/status/1524880375683682304

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

05/12/2023 is International Nurses Day 👩‍⚕️👨‍⚕️🌎, Fintastic Friday 🦈🌎, National Fibromyalgia Awareness Day 🇺🇲, National Limerick Day 🇺🇲, National Nutty Fudge Day 🇺🇲, National Odometer Day 🇺🇲, National Military Spouse Appreciation Day 🇺🇲, National Provider Appreciation Day 🇺🇲

This can be a huge source of medical trauma and it's so cruel that it's being imposed on people by the medical establishment itself. How can they help but feel anything but helpless? There's no fighting that.

I can't help but think of this from my own perspective as a fibromyalgia patient who keeps having to fight being thought of as (or even being labeled as) drug-seeking.

I am literally just trying to live life closer to the standard that 'normal' people have every day.

Why is it in any way fair that most people are mostly pain-free and capable of doing the things they want to do, but I have to suffer with pain on a daily basis that is at minimum, on a very rare, very good day, at level 5?

Why is it when I report that my pain level is at level 7, 8, 9, I only get doctors side-eyeing me and explaining my OTC options?

I have had chronic pain since I was 8. I'm very fucking aware of my OTC options, so no thank you, doc.

And when I spend 20 minutes explaining in detail that my daily pain has noticeably increased and changed in quality since around January 1st, why should I have my PCP giggle at me every time I say that I need help with managing my pain and learning ways to deal with it?

It felt incredibly invalidating and I wish he would have said, look, I don't have the expertise to help you, so here's a referral to a pain specialist.

I only found out there was a such thing by trying to research the topic after this on my own!

So yeah, it's not just the insurance companies, it's the doctors, too.

It's almost like having a profit-motivated medical establishment hurts patients.

May 12th is Coming

May 12th is Coming

Each year on May 12th, we observe International Fibromyalgia Awareness Day. Globally, we also acknowledge Awareness for Chronic Immunological and Neurological Diseases (CIND), typically considered Chronic Fatigue Syndrome/ MyalgicEncephalomyelitis (CFS/ME) and Multiple Chemical Sensitivities (MCS). This does include other conditions such as Multiple Sclerosis, Addison’s Disease, Lupus, Chronic…

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