#LizMelrath@twitter | Explore Tumblr Posts and Blogs

in-sufficientdata · 8 months

Text

This can be a huge source of medical trauma and it's so cruel that it's being imposed on people by the medical establishment itself. How can they help but feel anything but helpless? There's no fighting that.

I can't help but think of this from my own perspective as a fibromyalgia patient who keeps having to fight being thought of as (or even being labeled as) drug-seeking.

I am literally just trying to live life closer to the standard that 'normal' people have every day.

Why is it in any way fair that most people are mostly pain-free and capable of doing the things they want to do, but I have to suffer with pain on a daily basis that is at minimum, on a very rare, very good day, at level 5?

Why is it when I report that my pain level is at level 7, 8, 9, I only get doctors side-eyeing me and explaining my OTC options?

I have had chronic pain since I was 8. I'm very fucking aware of my OTC options, so no thank you, doc.

And when I spend 20 minutes explaining in detail that my daily pain has noticeably increased and changed in quality since around January 1st, why should I have my PCP giggle at me every time I say that I need help with managing my pain and learning ways to deal with it?

It felt incredibly invalidating and I wish he would have said, look, I don't have the expertise to help you, so here's a referral to a pain specialist.

I only found out there was a such thing by trying to research the topic after this on my own!

So yeah, it's not just the insurance companies, it's the doctors, too.

It's almost like having a profit-motivated medical establishment hurts patients.

#LizMelrath@twitter #twitter #death cw #cancer cw #chronic illness #chronically ill #chronic #fibromyalgia #doctors #microaggressions #reposting everything from my twitter feed #i'm about to delete everything so get it while it's hot #tweet: 2022 #molly's mad life

2K notes · View notes