taking my following list down from 700+ to 241 - beautiful. there were blogs on there that hadn't posted in 9 years 😭
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I’m used to letting go, but I don’t want to be alone.
Not.
Now, I’m closing all my doors cause I’m sick of wanting more.
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You always gave your best for me, you fought for me, now it's my time to do the same for you
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”You feel so close to me now, but something in the atmosphere tells me that we’re done”
- Ayla J.
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sometimes my heart cries, other times my heart plays you were good to me by jeremy zucker and chelsea cutler slowed
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Swear I'm different than before
I won't hurt you anymore
'Cause you were good to me
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As someone who’s living with a middle school social studies teacher, all the posts along the lines of “why did we never learn about this historical event in school” just make me go “because your teacher was supposed to cover all of US history in one year, and they didn’t get to the Revolutionary War until Halloween because they were urged to slow down the progression of the lessons because a more senior teacher was running behind, and they didn’t get to the Civil War until Valentine’s Day because the school kept scheduling every special event during social studies because there’s no end-of-grade testing for that subject, and they didn’t get to WWI until May because they were sick for a few days and the substitute couldn’t do much more than babysit, and now they’re having to do the entire Cold War in two days, so that’s why you didn’t hear about the lesbian inventor of the circus peanut. They would have loved to tell you about the lesbian inventor of the circus peanut!”
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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