#participatory research
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Belonging in School
Belonging is very close to the idea of feeling safe.Belonging in School: Resource Introduction Webinar – YouTube
Belonging in School: Resource Introduction Webinar
We added quotes from the recently released “Belonging in School – a school-level resource for developing inclusive policies” to our “Belonging” glossary page, to our “Accommodation” glossary page, and to the “The Feeling: Electric…
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AI in Education: Act Now to Shape the Future with Your Insights!
Contribute to pioneering AI research in New Zealand’s tertiary education with Ako Aotearoa. Your insights can drive innovation and inclusivity in learning. Join our survey today!
Join Our Mission to Revolutionise Adult Tertiary Education with AI in Education
In the evolving landscape of adult tertiary education both here in Aotearoa New Zealand and around the world, artificial intelligence (AI) is emerging as a transformative force.
Together with my colleague and friend, Michael Grawe, we are spearheading a research project at Ako Aotearoa, Massey University to…
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#AI in education#AI Research#AI tools in education#Ako Aotearoa#Digital Transformation#education policy#educational innovation#Graeme Smith#inclusivity in education#Massey University#Michael Grawe#participatory research#technology in learning#Tertiary Education
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#community#participatory research#manitoba#winnipeg#Indigenous#entrepreneurship#economic reconciliation#inclusion
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Call for participants [please reblog widely!!]
The Autism and Social Communication Lab at Portland State University wants your help to better understand the communication experiences of students on the autism spectrum. As a school-based professional working with autistic students, you are invited to participate in a study examining your work with students, training, and attitudes related to autism and augmentative and alternative communication (AAC).
We are seeking individuals who:
1) work within a school-based setting (including Early Intervention settings); and
2) work with autistic students.
We are collecting information via a secure online survey. The survey will involve answering questions about your experiences working with autistic students in the areas of 1) professional history related to education and training in the areas of autism and AAC; 3) experience with autistic people and students using AAC; 4) experience implementing AAC with students; 5) attitudes related to communication and communicative choice; and, 6) perspectives on speech.
The survey consists of 36 questions and takes approximately 20 minutes to complete, depending on the individual. All responses will be confidential and anonymous. Participation in the study is voluntary. You may choose to enter your name into a drawing for one of four (4) $50 gift cards.
To participate in the study, please use the following link: https://portlandstate.qualtrics.com/jfe/form/SV_8Af2zuLvpkSzENM
For further information, please contact Dr. Amy Donaldson at [email protected]
Thank you
#autistic#autistic researchers#autism#aac#slp#slpeeps#actuallyautistic#yes this is participatory research co authored by autistic aac users
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community science in California
Community and citizen science special issue of California Agriculture (January-March 2021) Vol 75, No 1
INTRODUCTION Special issue: Community and citizen science by Ryan Meyer, Sabrina Drill, Christopher Jadallah
In this special issue of California Agriculture, we explore diverse examples of science at UC Agriculture and Natural Resources (UC ANR) that have involved participation by people not typically expected to play a role in the research process. They might be school-age youth, clientele of UC ANR advisors, volunteers in programs such as the UC Master Gardener Program or the UC California Naturalist Program, or simply interested or concerned members of the public. We refer to this idea of scientific research conducted, in whole or in part, by amateur or nonprofessional scientists as community and citizen science (CCS). There are many other terms for it (see Eitzel et al. 2017) — such as public participation in scientific research, volunteer monitoring, crowd-sourced science, or participatory action research — emanating from various natural and social science disciplines. CCS projects can take many forms, as demonstrated by the many examples throughout this special issue. They can advance scientific research and monitoring in a variety of ways, build trust among the collaborators and create opportunities for outreach, education, stewardship and mutual understanding.
The traditions of Cooperative Extension overlap significantly with CCS. Cooperative Extension was founded with a mission to “to aid in diffusing among the people of the United States useful and practical information on subjects relating to agriculture and home economics, and to encourage the application of the same” (Conglose 2000). But translating information into a particular context often requires collaboration and a two-way flow of knowledge (Cash 2001).
...
We close this introduction with a final note about terminology. We have chosen the broad umbrella term of community and citizen science both here and in the aforementioned report, while recognizing that different forms of CCS stem from a variety of different traditions (Ottinger 2017), and every term has strengths and flaws (Eitzel et al. 2017). For example, some find the word “citizen” problematic for potentially implying that only legal citizens can contribute to science (e.g., Angulo 2020). Others draw clear boundaries around “community science” as an approach driven by community knowledge and priorities, as opposed to the interests of scientists (e.g., Pandya 2019). Rather than dictate a single term, in our editorial process we have encouraged authors in this special issue to use the term that works for them and their collaborators, while being very clear about the reasoning behind that choice.
Report: Assessing community and citizen science at UC ANR The full report can be found at https://education.ucdavis.edu/ccs-cooperative-extension.
youtube
[Citizen Science Association video titled “Make Your Citizen Science Project Count: Strategies to Produce Quality Data”]
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#Participatory action research#Cacao#Literacy#Nutrition#Livelihood#Science communication#Community development
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So, when it came to booking our bears, what story did we want to tell? Who were the characters? And what motivated them? One thing that didn’t require much debate was that the bears should be the babyfaces of our story, and that the dogs would be the heels. To bridge the gap between the sensibilities of baiting fans of Shakespeare’s time and those of spectators today, we felt it should be the bears that our audience cheered and felt sympathy for. Inevitably given the moral binaries of wrestling storytelling, this meant the dogs would be the antagonists. A clear babyface/heel dynamic is important to wrestling storytelling, it guides who the audiences cheer and boo for, but also structures the match from a choreographic perspective.
...When it came to the day of the workshop, our story changed in interesting ways. As the wrestlers and I learnt more about the history animal baiting and the work of the research team, certain assumptions were affirmed, but also some were challenged. As the BOB team divulged their findings, we began to understand more fully where we fitted in and what we could contribute. The initial plans grew in complexity and greater nuance was added. One of our bears would be blind, attack and maul an audience member and attempt to defecate in his bearward’s hat. All details gained from the research team.
Photo credit: Rob Brazier from Head Drop Photography
#shakespeare#william shakespeare#elizabethan#tudor#early modern#history#bears#bear baiting#wrestling#professional wrestling#research#scholarship#bear#box office bears#participatory history
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In 2014 an American research team published the first large-scale study on the social and economic impact of participatory budgeting across Brazil.
"Humankind: A Hopeful History" - Rutger Bregman
#book quote#humankind#rutger bregman#nonfiction#2010s#10s#21st century#research#participatory budgeting#politics#local politics#brazil#brasil#improving social well-being through new democratic institutions#comparative political studies#michael touchton#brian wampler
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This is an excellent article by astrophysicist Dr. Adam Frank and theoretical physicist Dr. Marcelo Gleiser about how information from the James Webb Space Telescope is changing physicists' perceptions about the standard model of cosmology. 😱
Since how we understand the universe seems rather important, the link above is a gift🎁link to the article, so that even if you do not subscribe to The New York Times, you can read the entire article. Below are a few excerpts:
Not long after the James Webb Space Telescope began beaming back from outer space its stunning images of planets and nebulae last year, astronomers, though dazzled, had to admit that something was amiss. Eight months later, based in part on what the telescope has revealed, it’s beginning to look as if we may need to rethink key features of the origin and development of the universe.
[...]
But one of the Webb’s first major findings was exciting in an uncomfortable sense: It discovered the existence of fully formed galaxies far earlier than should have been possible according to the so-called standard model of cosmology.
According to the standard model, which is the basis for essentially all research in the field, there is a fixed and precise sequence of events that followed the Big Bang: First, the force of gravity pulled together denser regions in the cooling cosmic gas, which grew to become stars and black holes; then, the force of gravity pulled together the stars into galaxies.
The Webb data, though, revealed that some very large galaxies formed really fast, in too short a time, at least according to the standard model. This was no minor discrepancy. The finding is akin to parents and their children appearing in a story when the grandparents are still children themselves.
[...]
Working so close to the boundary between science and philosophy, cosmologists are continually haunted by the ghosts of basic assumptions hiding unseen in the tools we use — such as the assumption that scientific laws don’t change over time.
But that’s precisely the sort of assumption we might have to start questioning in order to figure out what’s wrong with the standard model. One possibility, raised by the physicist Lee Smolin and the philosopher Roberto Mangabeira Unger, is that the laws of physics can evolve and change over time. Different laws might even compete for effectiveness. An even more radical possibility, discussed by the physicist John Wheeler, is that every act of observation influences the future and even the past history of the universe. (Dr. Wheeler, working to understand the paradoxes of quantum mechanics, conceived of a “participatory universe” in which every act of observation was in some sense a new act of creation.)
[...]
The philosopher Robert Crease has written that philosophy is what’s required when doing more science may not answer a scientific question. It’s not clear yet if that’s what’s needed to overcome the crisis in cosmology. But if more tweaks and adjustments don’t do the trick, we may need not just a new story of the universe but also a new way to tell stories about it.
[color emphasis added]
Image caption: "These six galaxies may force astronomers to rewrite cosmology books. (Image credit: NASA, ESA, CSA, I. LABBE)"
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Gif source (before minor edits)
#understanding of the universe is changing#standard model of cosmology#james webb space telescope#birth of the universe#adam frank#marcelo gleiser#the new york times#gift link#my edited gifs
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Tumblr Post of our Endogenic and Non-traumagenic Plurality Research
EDIT: THIS POST IS OUTDATED COMPARED TO THE LINKED DOCUMENT. PLEASE CHECK THE DOCUMENT FIRST. THANK YOU
Endogenic & Non-Traumagenic Plurality
By Guardians System, a diagnosed traumagenic DID system with PTSD and CPTSD
For use by everyone, to be read by EVERYONE
Brought to you by sysmeds who say “I’m not reading all that” (/j)
Feel free to DM on Twitter at GuardiansSystemOpen for anonymous questions on Tellonym also under GuardiansSystemOtherwise, just comment! :)
Lists of Links
Put together by community members! (Not thoroughly checked)
Plurality/Multiplicity + Syscourse Resources and Findings
Pastebin by ButterflyBlood - contains info from the DSM-3 to the DSM-V, medical info, community info, Tulpa info, syscourse info, and a video
Cambrian's Thread of Experts
Thread by the Cambrian Crew - contains info from Dr Eric Yarbrough (Distinguished Fellow of the American Psychiatric Association), info from Dr Nijenhuis and Van Der Hart (two of the writers of the Theory of Structural Dissociation), info from the ICD-11 and DSM-V-TR, and an interview by Dr Richard Loewenstein (lead editor of the DSM-V’s section on DIssociative Disorders)
Studies into non-disordered and/or endogenic plurality
Pastebin by Oliviaset - contains multiple science/government links and a video
Collected Plurality Info - 8 pages of resources - Fractal System
Document by The Fractal System - contains explanations on multiple types of plurality and references links to each, contains community info, history info, academic info, and more
Scientific Papers on Endogenic Plurality - r/Plural
Post and comments by numerous systems/supporters - contains a massive amount of uncategorised links to all types of information on non-traumagenic plurality
Multiplicity Links - SARAH K REECE
Site by Sarah K Reece - a previously diagnosed traumagenic DID system that no longer fits the criteria but is still a system, links focus mainly on general helpful system information
Scientific Articles on Nondisordered Systems
Document by Tabellenblatt1 (?) - contains info specific to non-disordered plurality, including the interview by Dr Richard Loewenstein
Ex Uno Plures - Articles
Community site by Plures House - contains explanations on plurality, info on living plural, info on personal experiences, medical info, philosophical info, social info, and syscourse info
An Endogenic Proof Masterlist - Plural Anomaly
Document by Plural Anomaly - contains community info, academic info, and criticisms on the Theory of Structural Dissociation
Plurality Studies - Multiplicity and Plurality Wiki
Wiki made by numerous community members - contains uncategorised abstracts from medical info and info on Tulpas
Non-Traumagenic & Endogenic System Information
General medical/clinical studies and research
It's just a body: A community-based participatory exploration of the experiences and health care needs for transgender plural people
Study by numerous people including a system - repeatedly references and explains multiple types of plurality, both traumagenic and non-traumagenic
Multiplicity: An Explorative Interview Study on Personal Experiences of People with Multiple Selves
Study by numerous people - uses some outdated language, however, explores how systems exist both with and without Dissociative Identity Disorder
Conceptualising multiplicity spectrum experiences: a systematic review and thematic synthesis
Study by numerous people - explores how multiplicity exists outside of Dissociative Identity Disorder in a medical context in order to recommend appropriate health services
Critiquing the Requirement of Oneness over Multiplicity: An Examination of Dissociative Identity (Disorder) in Five Clinical Texts (Alternative Link)
Study by Kymbra Clayton - explains how multiple selves can be healthy without the need for singularity
NORMAL DIMENSIONS OF MULTIPLE PERSONALITY WITHOUT AMNESIA
Study by multiple people - uses slightly outdated language, describes how multiplicity can be considered natural without the dissociative disorders, and how the dissociative disorders could simply be expanding upon multiplicity
Cognitive processes in dissociation: An analysis of core theoretical assumptions
Study by numerous people - discusses potentially healthy dissociation and the existence of dissociation without trauma
MODES OF EXISTENCE: TOWARDS A PHENOMENOLOGICAL POLYPSYCHISM
Study by Mick Cooper - discusses alternative ways for multiple selves to exist
A plurality of selves? An illustration of polypsychism in a recovered addict
Study by Peter T.F. Raggatt - discusses the normality of non-traumagenic multiplicity and different ways for natural plurality to exist
A Jungian Perspective on the Dissociability of the Self
Study by Brian R. Skea - includes multiple mentions of Freud, extremely explicit and triggering language, and repeated use of outdated terms, however helps to provide an understanding of much older views on non-traumagenic dissociation and plurality
TRANSGENDER Mental Health - chapter 11
Book by Dr. Eric Yarbrough of the American Psychiatric Association - states repeatedly throughout the chapter that plurality is only a part of dissociative identity disorder and exists without the disorder, as well as trauma only being reported in some cases of plurality and that trauma is not the only cause for plurality, and states that plurality itself is only a collection of alters
"I've Learned to Treat my Characters like People": Varieties of Agency and Interaction of Writers' Experiences of their Characters' Voices
Study by multiple people - describes authors’ common experience of accidental multiplicity caused by their characters gaining autonomy
Dissociation in Trauma: A New Definition and Comparison with Previous Formulations
Article by Ellert R S Nijenhuis and Onno van der Hart (two of the writers of the Theory of Structural Dissociation) - page 27, at the end of the article, they recognise mediumship and similar practices as a “division of personality,” which is what they refer to the dissociative disorders as
Exploring the Experiences of Young People with Multiplicity
Research by Zarah Eve and Sarah Perry - begins with multiplicity only sometimes being applicable for a DID/OSDD diagnosis, and continues that multiplicity itself and the dissociative disorders are not the same, as well as some respondents not associating their multiplicity with trauma alongside the dissociative disorders not applying to some of the respondents, and having a section for some multiplicity not being based in trauma
Comparison of Brazilian spiritist mediumship and dissociative identity disorder
Study by multiple people - in comparing Dissociative Identity Disorder with Brazilian Spiritist Mediumship, it was found the two shared very similar results, only that the Mediumship results appeared slightly healthier than DID
Tulpamancy
Studies and research specifically on Tulpas, though can apply to other plurality
Tibetan Buddhist with a Tulpa - Opinion on Plurality
Post by Dharma Yokeyodasampa - a Tibetan Buddhist with a more traditional Tulpa asking community members for questions, discussions include what they think about plurality, western Tulpamancy, how their Tulpa feels, and the difference between western Tulpamancy and the Tibetan practice. (This is a post compiling and explaining most of it, with a response from Dharma.)
Personality Characteristics of Tulpamancers and Their Tulpas
Study by multiple people - examines and explores what Tulpas are, what they do, their role, Tulpa experiences, some history, and more
Sentient companions predicted and modeled into existence: explaining the Tulpa phenomenon
Study by Kaj Sotala - describes a theory on how Tulpas may be psychologically caused via “feedback loops” (can also be applied to various other types of plurality, such as multiplicity caused by authors/artists and caused by other disorders)
A Time for Tulpas
Thesis by Nick Stager - discusses what a Tulpa is, experiences with Tulpas, the development of Tulpas, how other practices may be similar, how an author can accidentally create Tulpas, and more
Tracking the Tulpa - Exploring the "Tibetan" Origins of a Contemporary Paranormal Idea
Book by Natasha L. Mikles and Joseph P. Laycock - explains what Tulpas are, how Tulpas are created both intentionally and unintentionally, some of the history behind Tulpa, and Tulpas based on theosophy instead of the Tibetan practice
Tulpas and Mental Health: A Study of Non-Traumagenic Plural Experiences
Study by Jacob J. Isler - explains what Tulpamancy is and how it can differ from Dissociative Identity Disorder but still be plural
Paranormalizing the Popular through the Tibetan Tulpa: Or what the next Dalai Lama, the X Files and Affect Theory (might) have in common
Article by Ben Joffe - explains what Tulpas are, how Tulpas develop, Tulpa experiences in the outside world, the difference between Tulpamancy and the Tibetan practice, some of the history behind Tulpas, Theosophy-related Tulpas, and Tibetan Sprulpa experiences
Making Friends - Transcript of a Podcast on Tulpas
(Slightly incorrect: more info here) Discussion by multiple people - explains multiple personal experiences with a Tulpa, actions of a Tulpa, accidental creation of Tulpas through writing, Tulpas taking over the physical body, Tulpas having a different identity, purposeful creation of Tulpas, discussions with professionals (Richard J. Loewenstein,) the difference between Tulpas and psychosis, the similarity between Tulpas and Dissociative Identity Disorder, how without distress then it can’t be disordered, and more
Daring to Hear Voices
Dalai Lama - Buddhist practices are open to those who need them
Clinical Information
Helpful medical information not specifically related to non-traumagenic systems
DID Brain Pattern Study Doesn't Measure Up - December 2018
Critique by Spot&Cerberus - discusses the multiple flaws with the MRI scan on DID patients
Moral Status and the Treatment of DID Study by Timothy J. Bane - discusses the current known treatments for DID in the context of integration being commonly used, how it may be unethical and unhealthy to force integration, and that a multiple can healthily exist
DID, OSDD, and UDD Diagnostic Guide (NZ)
Diagnostic guide by ACC (Accident Compensation Corporation) - the New Zealand guide to diagnosing patients with DID, OSDD, and UDD, includes history of the diagnosis, problems with the diagnosis, alternative diagnoses, requirements for a diagnosis, what to avoid in a diagnosis, what to look for in a diagnosis, and similar
The Theory of Structural Dissociation
Theory by multiple people - the most commonly used theory to explain dissociation, often specifically related to dissociative disorders
Problems with the Theory of Structural Dissociation
Research by multiple people - discusses multiple problems with the Theory of Structural Dissociation, including it being a theory, the discarding of derealisation, depersonalisation, dissociative fugue, dissociative amnesia, the lack of association with trauma and PTSD in the DSM-V, and proposes some different ideas
ICD-11 for Mortality and Morbidity Statistics
Book by the World Health Ogranisation - Dissociative disorders on 6B64
DSM DID ALTERATIONS
DSM-V-TR
DSM-V (Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition)
Book by the American Psychiatric Association - Dissociative Disorders on page 336
DSM-IV-TR
DSM-IV
DSM-III-R
DSM-III
DSM-II-SPECIAL
DSM-II
DSM-I-SPECIAL
DSM-I
Plural History
Explanations and references to different parts of plural history
Plural History - 1811
Collection by Lb Lee - contains multiple parts of history in which systems of all types have existed (there are 4 different chapters)
A Partial History of Plural Self-Advocacy
Collection by Alt H - describes times in history starting from 1987 when non-traumagenic plural advocacy was recorded
It's Not Just a Tumblr Thing - Kerry Dawkins
Article by Ex Uno Plures - contains references in history to plurality outside of and before Tumblr
A Brief History of the Use of "System" in a Non-DID Space
Collection by Lb Lee - describes the history of the word “system” being used to describe those with multiple selves, and how it isn’t a disorder-specific term
A Quick'N'Dirty History of "System" as Plural Slang
Collection by Lb Lee - explains the history of the word “system” and the different uses
"Endogenic" was not coined by Freud
Collection by Sophie in Wonderland - a discussion on the anti-endos claim that “endogenic” was coined by Freud
Origin of the term Endogenic
Explanation by the Lunastus Collective - details how the term “endogenic” came to be created, what led up to it, and what happened after
I saw a post saying we should just believe RAMCOA surivors... okay... so how about this one?
Explanation by Sophie in Wonderland - describes how and why anti-endos think “system hopping” was stolen by endogenic systems from RAMCOA systems, including an explanation from the RAMCOA system that anti-endos reference
Community Explanations
Explanations on endogenic plurality by community members (sources are used)
Debunking the Anti-Endo Carrd - Guardians System
To be updated
What do Sysmeds say That is Transphobic/TERF Rhetoric?
Post by multiple people - a discussion on the comparison of sysmeds and transmeds, and how their arguments and the language they use is the same
Why Not Just Use Thoughtform?
Collection by Sophie in Wonderland and Olivia Set - describes why some parogenic systems prefer using Tulpa over Thoughtform
Debunking Sysmeds - Claims and Rebuttals
Carrd by Ozymandias& - lists claims that anti-endos make against endogenic systems, and critiques the claims alongside referencing studies
I would define a plural system as having multiple, compartmentalised, self-conscious agents - SophieInWonderland
Collection by Sophie in Wonderland - an explanation of the validity of endogenic and non-traumagenic systems complete with referenced research and studies
Studies and Research into Endogenic and Non-Disordered Plurality
Masterpost - Academia on Endogenic and non-traumagenic plurality
Post by Inclusive Syscourse - contains an explanation on the validity of endogenic and non-traumagenic plurality complete with referenced research
Claims There is No Research On Endogenics
Post by Unknown - a list of research on endogenic and non-traumagenic plurality alongside explanations and descriptions
Origins of Plurality and Levels of Dissociation
Study by The Phoenixes - uses the DES to gain insight into plurality not caused by trauma
The Tulpa Carrd - explain the nature and origins of Tulpamancy and what surrounds it
Carrd by Unknown - lists an explanation and some history of Tulpamancy alongside references to research
Likely Origins of "Tulpamancy is Cultural Appropriation"
Post by the Dragonheart System - critiques a Carrd claiming that Tulpamancy is cultural appropriation, referencing research and studies
Resources
General helpful resources for all systems
Multiplicity Wiki - A wiki by plurals and multiples, for plurals and multiples
Wiki by multiple people - contains terms, definitions, and general information on all types of plurality and multiplicity
Layman's Guide to Multiplicity
Guide by Unknown - contains terms, definitions, information, explanations, and experiences on multiple types of plurality
The Plural Association - For Dissociative Identity Disorder & all other forms of Multiplicity under the Plural umbrella
Organisation by the Stronghold System (?) - contains help sites for all types of struggling systems, alongside helpful information and articles on multiple areas
Pluralpedia - the collaborative plurality dictionary
Dictionary by multiple people - contains a massive amount of information on the majority of plural terms and history
Endogenic Hub - a site dedicated to endogenic plurality
Hub by the Hordes System - contains information and experiences on multiple types of non-traumagenic plurality, alongside explanations of what plurality is
More Than One - Plurality (or multiplicity) is the existence of multiple self-aware entities inside one physical brain
Site by Unknown - contains information on terms, different system origins, denounces myths about plurality, and different plural experiences
The Dissociative Initiative - For, by, and about people with multiplicity, dissociation, and amnesia
Run by Sarah K Reece - a support group for systems that contains different information and resources on plurality
Tulpa Info - "For Science"
Guide by Unknown - multiple different languages, explains what a Tulpa is, why they can exist, and where to begin when making a Tulpa
FAQ
If you’re a sysmed, you might end up here! Congrats if you do!
What is a system? A system is anyone who has more than one entity/identity in the body/brain.
What is plural/multiple? They mean pretty much the same as "system", only "plural" was made exclusively to be inclusive of every experience that involves many in the same body. E.g. if someone is an anti-endo or sysmed and uses the hashing "plural" to find friends, they're going to attract inclusive folks who support endos.
What is DID? DID stands for Dissociative Identity Disorder. It is a disorder in which a system experiences severe dissociation that heavily impacts their life on a day-to-day basis.
What is OSDD? OSDD stands for otherwise Specified Dissociative Disorder and is used when they experience similar symptoms to DID but are missing one of the diagnostic criteria. E.g. OSDD-1A is used when there's a lack of distinct identities or no identities. OSDD-1B is used when there's a lack of memory gaps. (The separate OSDD categories don't properly exist as a diagnosis themselves - they are carried over from DDNOS.)
What is UDD? UDD stands for Unspecified Dissociative Disorder. It's often used as a placeholder diagnosis by professionals to say that although there is a dissociative disorder, they're not sure what it is.
What is a non-disordered system? A non-disordered system is a system without DID, OSDD, or UDD. They don't experience the disorders or do not fit the criteria.
What is traumagenic, endogenic, mixed-origins, etc.? Traumagenic is a system that is formed from trauma. Endogenic is a system that is formed without trauma. Mixed-origins is a system that has multiple origins, E.g. some alters came from trauma and some did not.
What is a Tulpa? A Tulpa is a created identity that comes from repeatedly feeding information on one character or multiple characters into the brain. It can be purposeful or accidental.
DID/OSDD/UDD are trauma disorders? The diagnostic criteria for the disorders don't include trauma being necessary, nor does it anywhere else in the category. Trauma disorders and dissociative disorders are also categorised separately, and there are past studied cases of DID that weren't caused by trauma. The DSM-V-TR also includes a section that states trauma isn't necessary for a diagnosis.
You need trauma to be a system? The DSM-V specifies that a diagnosis of DID cannot be applied to cultural plurality. Culture-related plurality has existed and been documented for centuries, erased by colonisation and racism. Common cultural plurality includes Tibetan Buddhism, many Two-Spirit folk, medians, and mediums. These and more are all plural.
Dissociation is a trauma reaction? You’ll find nearly every if not every professional refers to some dissociation as “trauma-related dissociation” - take, for example, Kathy Steele, one of the writers of the Theory of Structural Dissociation, whose work consists almost only of “trauma-related dissociation”. That wouldn’t be necessary if dissociation only came from trauma. Dissociation is commonly shown to exist both inside and outside of other disorders. It’s especially common in BPD, ADHD, MADD, autism, and a few other disorders.
So only cultural and spiritual plurality can be non-traumagenic? They’re the most well-researched, but not the only non-traumagenic plurality. There are a few different theories as to how other plurality can form. Many experience their plurality caused by mostly unrelated disorders - autism, ADHD, BPD, Bipolar Disorder, MADD, etc. Others report accidentally creating alters, especially those who focus on characters, such as writers, artists, and authors. Yet more simply say they were born with their plurality, or grew up being plural without trauma being the cause. We believe plurality that hasn’t existed since birth could be caused by a “feedback loop” (here) in which one’s brain, after being fed repeated information, begins to predict the information, therefore creating actions to fill that prediction. This could be used to explain Tulpamancy (repeated info), artists/authors/writers (repeated info), ASD (masking and special interests), ADHD (masking and hyperfixations), BPD (splitting and more), MADD (repeated info), Bipolar (different states), and so on.
Endogenic systems harm traumagenic systems? We and others have asked multiple times for sysmeds to tell us why they think endogenic systems hurt them, and every time we’ve either received silence or something that’s already been covered. Besides that, anti-endos hurt other traumagenic systems with their BS far more than endogenic systems might hurt them.
Anti-endos hurt traumagenic systems? Yup, and very frequently, considering sysmeds repeat the exact same information. Sysmeds say you have to be disordered to be a system - traumagenic systems exist without being disordered. Sysmeds say endogenic systems stole traumagenic terms - a mix of the communities coined the majority of system terms, and “endogenic” was coined by a traumagenic system. Sysmeds say what someone went through isn’t traumatising or horrific enough - traumagenic systems can be caused by any amount of trauma, no matter how “insignificant” it seems. Sysmeds repeatedly tell endogenic systems they need to have trauma - telling someone they have to have trauma when they either don’t or have amnesia around it can be incredibly damaging and has hurt many traumagenic systems. Sysmeds say they need to go to a psychologist or a therapist and be diagnosed - many traumagenic systems can’t be diagnosed. Many endogenic systems have trauma, just know they weren’t formed from it, and anti-endos repeatedly mock them about having trauma. There’s much, much more, but to end it, as a traumagenic system, we’ve personally been assaulted, harassed, threatened, told to kill ourself, and had our trauma completely invalidated and discarded by anti-endo traumagenic systems.
Expired Links
Looking for alternatives
Endogenic Research (Text Form) - NightFallSystem
----------------------------
Hey everybody.
This is a list of the research and resources we've compiled over the last year or so that refers in some way to plurality, especially in the context of being endogenic and non-traumagenic supportive.
We often argue this subject on Twitter, alongside (hope you don't mind the tags) @cambriancrew and @sophieinwonderland . We've included a few of their posts in this, as they do share some wonderful information. Sophie deals in mainly Tulpamancy, we believe? And Cambrians does a wide range of things. They've both been incredibly helpful, so big credit and massive thank you to those two (and anyone else in this document) :)
Feel free to link this post or the document itself to anyone. Link it everywhere. Feel free to tag us too, as your friendly neighbourhood endo-friendly traumagenic DID system with PTSD and CPTSD. Our collective pronouns are phe/phex/phins, and we're collectively called Guardians or Guardians System.
Hope this helps some folks! If anything's wrong in this post, mention it in the notes (we think that's how Tumblr works?) and we'll adjust it in the Google Document. Alternatively, if you'd prefer to remain anonymous or would like to talk to us directly, you can check our LinkTree at the top of this page. We're always open to feedback and new research! We're especially interested in making our document more reader-friendly, as it can be a bit of an eyesore. but we're not the best at formatting documents.
If we do receive updates to edit some information, we'll be doing so on the document, so always double-check there in case there's been a change. If there are enough updates, we'll redo this post, but hopefully, that won't be necessary for a long time, because formatting all this in Tumblr is more than enough for us.
Thank you for reading!
-Rakan (not Marcus, fuck you Marcus)
#pluralgang#plurality#endogenic#plural#plural system#plural community#traumagenic#did#osdd#system#systems#multiplicity#endos safe#pro endo#trauma#dissociation#dissociative#osddid#tulpa#tulpamancy#endo research#just stop judging others please ffs
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Stimpunks Guide to the NeurodiVerse Issue #4: From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research
Autism research is out-of-touch with the “real” worldFrontiers | From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research
Our “Stimpunks Guide to the NeurodiVerse” series surveys recent neurodiversity and disability related research. In this issue, we highlight how the vast majority of autism research is divorced from the lived realities of…
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#ableism#activist research#autism#autism research#education#emancipatory research#eugenics#guide#open research#participatory research#research
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AI in Education: Calling All Experts and Innovators to Help Us Create a Brighter Future!
Unlocking the Potential of AI in Education: A Call to Experts, Innovators, Enthusiasts and Early Adopters
In the rapidly evolving landscape of adult tertiary education, both in Aotearoa New Zealand and globally, artificial intelligence (AI) emerges as a pivotal force for change.
Spearheaded by technology and education experts Michael Grawe and Graeme Smith from Ako Aotearoa, this groundbreaking…
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#AI#AI ethics#AI in education#Ako Aotearoa#Artificial Intelligence#digital innovation#educational technology#Future of Learning#Graeme Smith#Inclusive Education#Massey University#Michael Grawe#New Zealand education#participatory research#technology in teaching#thisisgraeme
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Caitlyn Tivy, the (awesome) pelvic health physical therapist, is back with us again, talking vaginal dilators in a new two-part series.
"Perhaps you’ve heard of dilators — also known as vaginal trainers — before, but you weren’t sure where to learn more about them. Maybe you’ve never heard of them, but you’re looking for ways to manage pelvic pain. Perhaps you’ve already tried using dilators, but weren’t very successful. Regardless, you’re in the right place!
“Vaginal dilator” is the most commonly used medical term for these devices, though many clinicians and researchers are shifting to the term “vaginal trainer.” Many pelvic PTs—myself included!—prefer the term trainer. Not only does “training” sound less aggressive than “dilation”, it also communicates a key concept of trainer use: it should be an active, participatory process in which the user is in control, rather than an experience that is happening to them as a passive recipient.
I also generally refer to these devices simply as just “trainers”. This terminology is inclusive for everyone with genitalia that allow for use of these devices. For these reasons, I’ll use the term “trainer” for the remainder of this article.
If you search online using the terms “pelvic floor trainer” or “vaginal trainer”, you may see ads for other devices designed to help people learn to perform pelvic floor exercises, or “kegels,” properly. These devices are not the same as the trainers we’re discussing here, but not to worry: I’ll include a guide to finding the right type of trainers later!
The trainers we’re discussing here are medical devices used to decrease pain and improve flexibility in the tissues of the vaginal and neovaginal canals.
Trainers can be made from a variety of materials. They are typically cylindrical in shape. At first glance, they can look a bit like sex toys, but that’s not their intended use. Trainers are designed to provide therapeutic stretching and pain relief for the tissues of the vaginal canal. Let’s learn more about the many cases in which trainers can be useful!"
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Japanoise: Music at the edge of circulation - David Novak
Want an academic Ethnographic study of the Japanese Noise scene and artists.
Here is the blurb from the back cover:
Noise, an underground music made through an amalgam of feedback, distortion, and electronic effects, first emerged as a genre in the 1980s, circulating on cassette tapes traded between fans in Japan, Europe, and North America. With its cultivated obscurity, ear-shattering sound, and over-the-top performances, Noise has captured the imagination of a small but passionate transnational audience.
For its scattered listeners, Noise always seems to be new and to come from somewhere else: in North America, it was called "Japanoise." But does Noise really belong to Japan? Is it even music at all? And why has Noise become such a compelling metaphor for the complexities of globalization and participatory media at the turn of the millennium?
In Japanoise, David Novak draws on more than a decade of research in Japan and the United States to trace the "cultural feedback" that generates and sustains Noise. He provides a rich ethnographic account of live performances, the circulation of recordings, and the lives and creative practices of musicians and listeners. He explores the technologies of Noise and the productive distortions of its networks. Capturing the textures of feedback—its sonic and cultural layers and vibrations—Novak describes musical circulation through sound and listening, recording and performance, international exchange, and the social interpretations of media.
You can get it from my Google Drive HERE
You can also get it from the Japanoise website HERE
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Consent policies that classify autistic people and other people with I/DD as lacking the ability to consent are a major barrier to community based participatory research that includes and prioritizes people with I/DD.
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AO3/Online Fandom Research Study: Archival Curation Discourse
Edit 1/2/24: Thank you for all the responses, this survey is now closed!
Hi all!
As a part of my Master's program (Women’s and Gender Studies/Library and Information Sciences) I am doing a deep dive into fandom as a participatory community and AO3 as a community archive. I seek to better understand how fans/stans contribute to the continued evolution of AO3 as a community archive.
In other words, yes, my research is about archival curation discourse (aka anti/proship Discourse™ through an archival lens).
If you are over 18, please complete the attached survey, which is going to ask you about your personal experiences with anti/proship phenomena in fandom, and how they may have affected your participation in fandom spaces.
There are no anticipated personal benefits or compensation for participating in this study and it is completely voluntary.
Thank you and have a great day!
Link to survey
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